tag:blogger.com,1999:blog-5563550.post2421468815462135605..comments2024-02-02T03:32:36.204-07:00Comments on SQUIDALICIOUS: Screaming and Sobbing and Throwing ThingsUnknownnoreply@blogger.comBlogger10125tag:blogger.com,1999:blog-5563550.post-6489601131312863212008-05-24T15:08:00.000-07:002008-05-24T15:08:00.000-07:00Given our very positive experience with Trileptal,...Given our very positive experience with Trileptal, I say try the medicine. We can always tell when we havne't given our son his meds and his seizures were small discharges on his EEG. Absence seizures/staring episodes. He is more cranky and he doesn't sleep well without Trileptal.TDRhttps://www.blogger.com/profile/01852512257697542004noreply@blogger.comtag:blogger.com,1999:blog-5563550.post-66625464590401726232008-05-21T23:42:00.000-07:002008-05-21T23:42:00.000-07:00As one of the so-called self-pay patients, I reall...As one of the so-called self-pay patients, I really wish we could have Boy tested. Even before this article, I've wondered if some of his quiet spells were just woolgathering or if he was having a seizure.<BR/><BR/>I would love some answers. We all would.DivaLeahttps://www.blogger.com/profile/09777712092222499616noreply@blogger.comtag:blogger.com,1999:blog-5563550.post-48927996685213507792008-05-21T20:45:00.000-07:002008-05-21T20:45:00.000-07:00I thought of you immediately when I saw that artic...I thought of you immediately when I saw that article (and then of course I forgot to track down your email address in the meltdown of our current IEP disaster and special ed lawyer's emergency hospitalization) -- I'm so glad you're pursuing this for Leelo, and yourself -- as a migraineur (migraineuse?) myself, I cringe every time I imagine Leelo suffering with untreated seizures and/or migraines...<BR/><BR/>Bah! to managed care.Unknownhttps://www.blogger.com/profile/11432493712447462261noreply@blogger.comtag:blogger.com,1999:blog-5563550.post-54944017763295257312008-05-21T07:45:00.000-07:002008-05-21T07:45:00.000-07:00A pal of mine has both her children on seizure med...A pal of mine has both her children on seizure meds [one autistic and non autistic sib] Both have seizures. Both are doing well but it's been a long hard road for them, all of them. [incidentally, they are both adopted with different birth parents]<BR/><BR/>I think the night monitors and round the clock watching was wearing them all out. Wishing you an even better outcome.<BR/>Best wishesMaddyhttps://www.blogger.com/profile/05828186178060722812noreply@blogger.comtag:blogger.com,1999:blog-5563550.post-38494566674708103802008-05-20T22:37:00.000-07:002008-05-20T22:37:00.000-07:00From what I understand per a neurologist, an EEG i...From what I understand per a neurologist, an EEG is a window in time-therefore you can still have seizures, but may not demonstrate them on EEG (ces't moi). So a repeat EEG may not add much info unless there is a question of localization or type of seizure as needed to choose a medication. I would rec asking MD benefit of second EEG given the difficulty of doing it. <BR/>Previously, I treated a successful gentleman who had had absence seizures for quite sometime before they were diagnosed. They were that mild. But he did have some deficits as a result. Generally, seizure activity is located in the temporal lobes (and may spread from there), main skill effected would be short term memory-vs language which is left parietal. Trying meds may add clarity to Leelo and his skills and difficulties. ....hang in thereJudy McCrary Koeppen MS SLP Sage Therapyhttps://www.blogger.com/profile/07676186836546670650noreply@blogger.comtag:blogger.com,1999:blog-5563550.post-21713203617893293512008-05-20T22:00:00.000-07:002008-05-20T22:00:00.000-07:00Well, your question is really good. "Would this ma...Well, your question is really good. "Would this make any difference to whether we might try this seizure med" and the answer is probably no... Whatever the EEG says, you will likely not use the meds if the effect is bad on Leelo. <BR/><BR/>Doctors sometimes lose sight of the goal and the effect, in the search for data and proof and certainty.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5563550.post-39665339168276228082008-05-20T16:19:00.000-07:002008-05-20T16:19:00.000-07:00Charlotte's seizures were (are?) really small, and...Charlotte's seizures were (are?) really small, and I still wonder whether putting her on medication earlier might have helped with her dev delays. The neuro told me that seizures could definitely be impacting her speech. Tho given the fact that mommy has a potty mouth, that might not always be a bad thing ;)Melanie Khttps://www.blogger.com/profile/11044681837284196286noreply@blogger.comtag:blogger.com,1999:blog-5563550.post-34667591803510718172008-05-20T15:17:00.000-07:002008-05-20T15:17:00.000-07:00Back in the day (1999-2001) I assisted with the fM...Back in the day (1999-2001) I assisted with the fMRI scans of cancer patients who took Topomax for pain-management. Interesting drug - one of those that I wouldn't be worried about trying "just in case." Good luck!Kariannahttps://www.blogger.com/profile/17134447321568305619noreply@blogger.comtag:blogger.com,1999:blog-5563550.post-55625038055519773872008-05-20T15:12:00.000-07:002008-05-20T15:12:00.000-07:00OH HAI my email is aba_help@AT@ yahoo.comThanks Me...OH HAI my email is aba_help<BR/><BR/>@AT@ <BR/><BR/>yahoo.com<BR/><BR/>Thanks Melissa.Shannon Des Roches Rosahttps://www.blogger.com/profile/18057806553670980068noreply@blogger.comtag:blogger.com,1999:blog-5563550.post-85595224821154757072008-05-20T15:08:00.000-07:002008-05-20T15:08:00.000-07:00My Zachary has been on Topomax since he was 6. He ...My Zachary has been on Topomax since he was 6. He is now 13.<BR/>I understand how frightening it is the seizures and the meds.<BR/>No more seizures at all.<BR/>Our neuro was Dr. Mark Koukkari by O'Connor Hospital in San Jose.<BR/>He ia good.<BR/>I lost your email address to contact you and I cannot find the email me on your new blog page.<BR/>Can you send it to me?Anonymousnoreply@blogger.com