tag:blogger.com,1999:blog-55635502024-03-18T19:25:07.939-07:00SQUIDALICIOUSgeekery, parenting, autismUnknownnoreply@blogger.comBlogger2607125tag:blogger.com,1999:blog-5563550.post-18037575448142344022022-11-01T09:55:00.003-07:002022-11-01T10:00:00.259-07:00My Comment to the October 2022 Interagency Autism Coordinating Committee Meeting <div>If you're frustrated about the state of government support for autistic people and their families in the United States, one of the most straightforward ways you can speak up about autism policy is to submit a comment to public IACC meetings. <a href="https://iacc.hhs.gov/about-iacc/overview/">What is the IACC, you ask</a>? From their website:</div><div></div><blockquote><div>The Interagency Autism Coordinating Committee (IACC) is a Federal advisory committee that coordinates Federal efforts and provides advice to the Secretary of Health and Human Services on issues related to autism spectrum disorder (ASD). Through its inclusion of both Federal and public members, the IACC helps to ensure that a wide range of ideas and perspectives are represented and discussed in a public forum. The committee reconvened in July 2021 to begin a new session under the Autism CARES Act of 2019.</div><div></div></blockquote><div>Every single comment submitted goes on the public record, which can sometimes be ...not a plus because people can and do submit conspiracy theories as well as expletive-filled rants, meaning that the official versions of said comments end up being a series of black redacted bars. But the IACC really does appreciate and take notice of legitimate comments.</div><div><br /></div><div>I try to submit comments <a href="http://www.squidalicious.com/2021/10/my-public-comment-to-october-2021-iacc.html" target="_blank">only sporadically</a> because I don't want to be perceived as a gadfly, but it's hard to hold back when the reality is that people either <a href="https://iacc.hhs.gov/about-iacc/overview/" target="_blank">openly</a> (or cluelessly, or misguidedly) working against better futures for autistic people like my son submit the most comments. I did submit a comment for last month's meeting, and the IACC kindly <a href="https://iacc.hhs.gov/meetings/iacc-meetings/2022/full-committee-meeting/october26/public_comments.pdf?ver=5" target="_blank">invited me to speak on the record during the meeting</a> (the video and transcript are forthcoming). Here is what I said, much of which I have said before in other arenas but which bears repeating.<br /></div><div><br /></div><div><div>----</div><div><div class="separator" style="clear: both; text-align: center;"><br /></div><br />I am writing to you both as the parent of an autistic adult who requires full-time support and supervision, and as the senior editor of <a href="https://thinkingautismguide.com/" target="_blank">Thinking Person's Guide to Autism,</a> which is an autism research and advocacy community with large and active <a href="https://www.facebook.com/thinkingpersonsguidetoautism" target="_blank">Facebook</a> and <a href="https://twitter.com/thinkingautism/" target="_blank">Twitter</a> communities—which I moderate. This means that, all day long, I hear from parents, autistic people, professionals, and researchers about their priorities for autistic people to live safe, healthy, fulfilled lives. </div><div><br /></div><div>I also participate in several initiatives for best health care practices for patients with neurodevelopment disabilities, in which participants discuss many of the same themes but in more formal ways. The lists of concerns are endless, but priorities include:</div><div><br /></div><div><ul style="text-align: left;"><li>Research on how autistic people can process medications differently than non-autistics. The medical community seems largely unaware that autistic people often have paradoxical or atypical reactions to commonly prescribed medications, such as not reacting to—or being overstimulated by—drugs classified as sedatives. In the worst case scenarios, this lack of knowledge can be (and has been) fatal. </li><li>Research on why sedation for medical care is an access need. Many autistic people, whether they can communicate effectively in medical scenarios or not, require partial or full sedation to be able to tolerate medical procedures such dental exams and MRIs. Yet this type of sedation is rarely covered by insurance. Research demonstrating the necessity of sedation in these circumstances would not only lead to more access to health care but to better health care outcomes.</li><li>Research on competing sensory access needs. Autistic people don't only have sensory systems that differ from non-autistic people, they often have sensory systems that differ from each other. We need research that demonstrates, for example, why it is not sufficient to hand every student with an autism diagnosis a set of noise-canceling headphones (many autistic kids can't tolerate wearing them, others can still hear disturbing noises when wearing non-professional-grade versions), and it is certainly not appropriate to put autistic people together in classrooms, or other settings, without fully evaluating and accommodating their individualized sensory profiles.</li><li>Research on improving access to autism diagnoses across age, gender, class, and racial gaps. Too many autistic people are being misdiagnosed, categorized as having "behavioral disorders," resorting to self-diagnosis, or being overlooked altogether. They are suffering as a result, leading to avoidable anxiety, depression, isolation, poverty, and suicidality.</li><li>Research on the transition from the school system to the adult world, especially for autistic people with the highest support needs. "The Cliff" is a real thing for students like my son, who is currently facing a complete lack of programs that can enroll an autistic adult with full-time support needs. Even those programs that are *in*appropriate for him currently have interminable wait lists. To compound matters, even though we are fortunate to have funding for home aides, there is currently a shortage of such workers, to the point where my son does not have the staffing he needs and deserves (and has been allocated). If families like ours, which have the language, class, and cognitive advantages that make it easier to navigate often labyrinthine and impenetrable public disability supports systems like Regional Center respite, SSI, and IHSS, still can't find any support, then families that don't have our advantages are certainly worse off.</li></ul></div><div><br /></div><div>A final note: I am gladdened about the IACC's current membership, inclusive as it is not only of autistic adults, but of autistics who use AAC to communicate, who have intellectual disability, who are parents, who have family members with intensive support needs similar to my own son, and/or who are people of color. It is hard to have faith in an advisory body that does not resemble the population for whom it is responsible, and it will be useful to see future iterations of the IACC reflect the autism communities to an even greater degree. Also, as someone whose autistic son has limited language, it is important for me to know that autistic IACC members—people who understand my son's life experience in ways that I as a non-autistic person never can—are looking out for his interests as a human being.</div><div><br /></div><div>----</div><div><br /></div><div>If you want to start submitting comments but need reminders about the submission periods, you can <a href="https://iacc.hhs.gov/meetings/">sign up for email notifications at the bottom of the IACC meetings page</a>. I really hope you start participating!</div><div><br /></div><div><table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: left;"><tbody><tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj59nNJ4akhwxROhYFGKVuC-QHmeTuah64G5xirjUfuP6OS254ItPGcmEjxh-SDrb0mHdxgaXkRJNFbJJuKwaxNbXkklrxXW39fKkThhlGt8KZ22nu6gLhXZJ6lAXFuL6Zu6ObKphT1sN75tda6mHimEu41tO2DVMOSFKpLGs4Ip3BemIs00g/s4032/1D263429-6817-468F-9DC6-6E48973639BA.heic" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img alt="My son, hiking on a blue sky cloudy day." border="0" data-original-height="4032" data-original-width="3024" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj59nNJ4akhwxROhYFGKVuC-QHmeTuah64G5xirjUfuP6OS254ItPGcmEjxh-SDrb0mHdxgaXkRJNFbJJuKwaxNbXkklrxXW39fKkThhlGt8KZ22nu6gLhXZJ6lAXFuL6Zu6ObKphT1sN75tda6mHimEu41tO2DVMOSFKpLGs4Ip3BemIs00g/w480-h640/1D263429-6817-468F-9DC6-6E48973639BA.heic" width="480" /></a></td></tr><tr><td class="tr-caption" style="text-align: center;"><span style="font-size: x-small;">My son, hiking on a blue sky cloudy day.</span></td></tr></tbody></table></div><div> </div></div><div><br /></div>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-5563550.post-756035928019431752022-10-13T12:59:00.007-07:002022-10-13T15:11:23.349-07:00Nāscendī (Of Being Born) | Joe on Trans Rights<div style="text-align: center;"><iframe allow="accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture" allowfullscreen="" frameborder="0" height="300" src="https://www.youtube.com/embed/XYMQ-BVTS_I" title="YouTube video player" width="500"></iframe><br /><span style="font-size: x-small;">[video: Joe, a white teen with curly brown hair and glasses, <br />sitting on a stool in an art gallery, addressing an audience.]</span></div><p><span style="font-family: arial;"><b>This page has been around longer than my youngest child—who is now in college and doing their own advocacy, for instance giving public talks with <a href="https://www.listenchange.org/" target="_blank">Listen For a Change</a> on why gender-affirming medical care <a href="https://www.aclu.org/news/lgbtq-rights/doctors-agree-gender-affirming-care-is-life-saving-care" target="_blank">saves lives</a> and <a href="https://www.psychologytoday.com/us/blog/political-minds/202201/the-evidence-trans-youth-gender-affirming-medical-care" target="_blank">improves mental health</a>. <br /><br />If you have people in your life who don't understand why it's important to support trans kids, maybe my kid's story about their medical transition will help. And please donate to <a href="https://www.listenchange.org/donate" target="_blank">Listen For A Change</a> and <a href="https://translifeline.org/donate/givelively/" target="_blank">TransLifeline</a> if you can.</b></span><br /></p>
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<p>Joe: I don't remember when I first knew that I was transgender. I feel like that's a misconception that a lot of people have. There was no big moment where a switch flipped or fireworks went off, and I just knew. That's maybe true for some people but it definitely wasn't true for me. One of the earliest memories [00:00:20] I have of anything concerning my gender was when I was around six years old and I watched the movie Victor/Victoria with my mother and my godfather.</p><p>As I watched Julie Andrews and Robert Preston play gender like a game of cards on the screen, I felt something inside of me that I couldn't really describe, or something that I really couldn't remember because I was six. Eventually, when I was around 11, I thought a little bit more about it, and eventually, when I was 13, I came out to my family and to my friends. I am extremely lucky to have a family that accepts me totally and unconditionally, but not everyone I knew had that family.</p><p>I joined a support group for transgender youth for kids like me. I remember sitting in that support group and watching and hearing all of these kids who were just like me describe how their families treated them like simultaneous murder victims and murderers, like they had been destroyed and replaced with something new, but they were also the destroyer. I remember thinking that there was really nothing that separated me from these kids except for just a pure game of luck.</p><p>I had lucked into the right family. I had lucked into people who loved me. For a while, I felt so accepted and uplifted by everyone around me that I didn't really experience any dysphoria, which is the pain caused by the disconnect between one's inner and outer self. That didn't last forever. As my body continued to develop, I grew into a pubescent child. I was unfortunately cursed with Triple Ds at 14, a round feminine face, and a voice that (at least I felt) could shatter champagne flutes.</p><p>My dysphoria became worse. I begged my parents to let me go on hormones to let me get surgery, but of course, they were skeptical because those were big changes. I knew that because I knew that I needed big changes to happen to my body in order to feel happy being myself. I knew that if I didn't get these changes, these hormones, and these surgeries to make my body into a home that I feel comfortable in, that I probably was not going to make it to 18. </p><p>Living in a body every day, waking up, and knowing that the body I was in felt like it barely belonged to me for the rest of my life felt like something absolutely intolerable. After fights in the car, lamenting to my support groups, and just working through the process of getting hormones, that was around half of it but the other half was the waiting; waiting between appointments, between re-schedulings, between insurance coverage, and letters.</p><p>It felt like my entire happiness and my entire future was being held on a string that could snap at any moment and my entire future would just come crashing to the floor. Feeling like I didn't know whether my happiness would come in weeks or months or even years was far worse than knowing that it would never happen. Eventually, on March 13th, 2020, I sat on my kitchen stool with my mother and my father as a nurse on my mom's iPad instructed me through injecting my first shot of testosterone into my body.</p><p>I don't know what I expected to happen. I think I expected to maybe go through like a Popeye sort of thing where I just immediately grew into a strong independent man. Of course, I didn't like spinach that much, so that didn't really happen. Over time, my body would undergo the changes of an second, male, puberty. (I wasn't lucky enough to have gotten puberty blockers earlier in pubescence like some other people I know.)</p><p>The hormones did a full number on me; they changed my face, they changed my voice, they changed my body, and my skin. Eventually, I got to the point where I felt a lot more comfortable in my skin, especially since I was lucky enough to be able to undergo this entire process completely inside [during the COVID Pandemic]. Eventually, the world opened up again and I was forced to go outside and know that no matter how hard I tried, whenever people saw me, they would only think of the gender that I was forced into and not who I knew that I was on the inside.</p><p>The dysphoria was even a little bit worsened by the fact that most of my body was so masculine, but my chest was … a little bit generous. There was a dichotomy between those things that I felt made it somehow even worse. This was probably when I was at my lowest point, which is odd considering I had gotten what I viewed as basically halfway there. I had gotten the hormones, but I knew what I needed.</p><p>I needed a double mastectomy, which is colloquially called top surgery. It took considerably less deliberation with my parents. I think that as soon as they had gotten over the bump of me medically transitioning in general, they were more open to the idea of me getting things like hormones and surgery. There was a lot of insurance, mess, and surgery, surgeon switching that I'm not gonna get into, but eventually, we decided that my top surgery was going to take place in late August of 2021.</p><p>I was really excited for it. This was basically going to be the next step in the entire rest of my life. Also, I knew in my heart somehow that it wasn't going to happen; something was going to come up, something was going to get rescheduled, something was going to get canceled. Then I remember just feeling like this was going to be my forever, that it was never going to stop. The pain was never going to end, and I was just going to be stuck in this weird Frankenbody for the rest of my life and nobody would ever know who I truly was on the inside.</p><p>I felt like I wasn't going through these transitions to become necessarily a man. I feel removed from all gender markers in total. I'm going through these transitions to, again, make my body into a home that I feel comfortable living in and that I love living in. That body is generally perceived by the rest of the world as masculine or as a man. When people did not treat me as masculine, when they would misgender me or use the wrong pronouns, it just felt like a stab directly to my heart because I knew that they weren't seeing the real me. They were seeing their preconceptions of me that they were projecting.</p><p>I remember one day I woke up to my mom urgently shaking me awake, saying that my surgeon had had a cancellation and that I could get my surgery earlier. I remember racing down to her computer and scheduling the new surgery as soon as possible. My heart beating a hundred miles a minute the entire time. Then the confirmation popped up on the screen that my surgery, instead of being in late August, was going to be two weeks from that day. Just so much of the time that I had expected to wait just got removed within that fraction of a second.</p><p>I still had that feeling that it wasn't going to happen, that things weren't going to work out. I remember any time my mom got a text message or a phone call or looked at her phone during those two weeks, I felt myself tense up and I was certain, this is it. It's getting canceled. It's getting postponed. It's just not going to happen. All the way up until I felt myself going under the anesthetic, laying on that surgery bed in San Mateo, I was convinced that it was not going to happen—but it <b>did</b> happen.</p><p>As you can expect from major surgery, the weeks after were mostly composed of lying in my bed and doing pretty much nothing. In another instance, it wasn't so immediate, the change didn't feel so immediate, mainly because they cut two big lines across your chest, and of course, they sever a lot of important nerves. My chest was really numb for like six months after surgery. I only regained full sensation recently. Not only that, but they have you put on this compression garment that keeps everything in place and keeps your body from wiggling in ways that it shouldn't. It didn't feel like an amputation. It didn't feel like a really instantaneous change. Again, it was really gradual. It is sort of amorphous.</p><p>One moment, though, that I knew or felt that I had really made it was when I had all of my friends over to my house to swim. And all of my friends are also transgender. I knew that they would feel happy for me, and I knew that they would also probably be a little jealous, but whatever, that's on them. I had all my friends over and I swam without my shirt off and I felt the sunshine on my skin. It was really great. It was a really beautiful moment.</p><p>I woke up the next day and it did not occur to me that I needed to put sunscreen on. My entire body, just front, and back, just lobster red. I still felt so happy in that moment and I still feel so happy today because it wasn't instant, but I could still feel everything just improving. I felt that things were slowly getting easier, I didn't have to walk like this upstairs anymore. [crosses arms across chest] I could run, I could lie facedown on my bed, I didn't have to put on a bra or a chest binder before I left the house.</p><p>Overall, everything was so much easier. That is the feeling that I associate with my transition. It's not suffering, it's not agony. It's joy and comfort and ease. That is something that I feel was really important. It's just me being comfortable being myself. Not only did I feel how much more comfortable and how much happier I was, but everyone around me could feel it too. All my friends said that I was so much happier, my parents knew that I was so much happier. My therapist knew that I was so much happier because I've stopped seeing her.</p><p>[laughter]</p><p>Every aspect of my life improved. My grades got better. I was just so happier. I felt more alive and more connected to the world at large. It was a really holistic improvement. Just everything was better and everything was easier. I stopped taking my antidepressants because I didn't need them anymore. For the first time I felt actually excited for my future. Not even like the big far off future. I felt excited to wake up the next day, and exist and live in my own body. When I was given the trust and the tools to grow into who I knew that I was meant to be, everything in my life grew along side it. Thank you.</p><p>[applause] </p>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-5563550.post-68625918586507493132021-10-15T12:48:00.007-07:002021-10-20T10:37:48.810-07:00My Public Comment to the October 2021 IACC Meeting<p></p><table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: left;"><tbody><tr><td style="text-align: center;"><a href="https://1.bp.blogspot.com/-LDOUwam5lv0/YWnZnYee4uI/AAAAAAAAH3I/2C41bIyulnAIl7Xa6GZQEjhCAhich1TdACLcBGAsYHQ/s2048/IMG_0496.jpeg" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img alt="Selfie of me on a redwood trail Leo is visible, blurrily, behind me." border="0" data-original-height="2048" data-original-width="1536" height="320" src="https://1.bp.blogspot.com/-LDOUwam5lv0/YWnZnYee4uI/AAAAAAAAH3I/2C41bIyulnAIl7Xa6GZQEjhCAhich1TdACLcBGAsYHQ/w240-h320/IMG_0496.jpeg" width="240" /></a></td></tr><tr><td class="tr-caption" style="text-align: center;"><span style="font-size: x-small;"><b>Hiking—Always Hiking<br /></b>[image: Selfie of me on a redwood trail <br />Leo is visible, blurrily, behind me.]</span></td></tr></tbody></table>I gave a live video <a href="https://videocast.nih.gov/watch=42378?jwsource=cl" target="_blank">public comment</a> (at 1:19:49) at yesterday's IACC meeting, about the need for autism research and resources to serve existing autistic people of all abilities. The comment limit was three minutes, so this is the condensed version of my howling fury over how research is primarily currently sunk into causation and treatment, not quality of life or communication. Will post the video when it becomes available. <p></p><p>----</p><p>My name is Shannon Rosa. I am the mother of a twenty-year-old high support autistic young man, and senior editor of the autism information and advocacy community <a href="http://thinkingautismguide.com/" target="_blank">Thinking Person's Guide to Autism</a>. </p><p>My son is a thinking, feeling human being, like you. He deserves a good life. My husband and I love him dearly, enjoy his company, and do our best to help him feel happy, healthy, and safe. </p><p>However, it is challenging for families like ours to give our autistic loved ones those lives they deserve, as current public and private autism efforts focus disproportionately on theoretical unborn autistic people, rather than investing in best support practices for existing autistic people like my son. Per the IACC’s own analyses, autism research funding is primarily funneled into to risk factors and biology, with less than 10% prioritizing lifespan issues and services. I do not understand how this is considered acceptable.</p><p>My son and the wider autistic community deserve to be living their best lives, <b>now</b>. They deserve family, caregivers, and therapists who understand how to help autistic people thrive, <b>now</b>. They deserve access to well-trained and -paid educators and support workers, <b>now</b>. They deserve medical professionals versed in best practices for treating autistic people, <b>now</b>. In one year, my son and his peers will age out of the school system—yet no existing federal, state, or local framework exists to transition to or support them in fulfilling and dignified lives as adults. We need those frameworks, <b>now</b>.</p><p>Even so, my family is lucky; we have decent autism services in our area, and we have the language, know-how, and socioeconomic advantages needed to access those services. At the same time, we all know that less-advantaged autistic people and their families are missing out on services—partially or entirely—as are autistic people perceived as lower-support than my son, yet who still require significant accommodations. This is unconscionable.</p><p>Finally, we need to formally recognize that autism issues must have autistic guidance. My son’s quality of life improved dramatically once we had access to autistic insights on supporting autistic people, and every autistic child and adult in this country deserve the same opportunities and benefits. I applaud the IACC for seating more autistic members, and hope autistic priorities will have a proportional influence on the IACC’s outlook and directions.</p><p>Thank you for listening.</p><p>Shannon Des Roches Rosa<br /><a href="http://www.ThinkingAutismGuide.com">www.ThinkingAutismGuide.com</a></p>Unknownnoreply@blogger.com1tag:blogger.com,1999:blog-5563550.post-34571792470403457972020-12-31T18:25:00.006-07:002021-01-01T21:41:56.752-07:002020: The Year of Hiking<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: left;"><tbody><tr><td style="text-align: center;"><a href="https://1.bp.blogspot.com/-Bw3C7rd-n5c/X-5hxs-QMwI/AAAAAAAAHlI/rmPjAKKYvO49tbGFVpiUHMcfhJ9HKSlwACLcBGAsYHQ/s2048/Bnn9tIAkSCWVzrUzyR2V6w.jpg" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" data-original-height="2048" data-original-width="1536" height="392" src="https://1.bp.blogspot.com/-Bw3C7rd-n5c/X-5hxs-QMwI/AAAAAAAAHlI/rmPjAKKYvO49tbGFVpiUHMcfhJ9HKSlwACLcBGAsYHQ/w294-h392/Bnn9tIAkSCWVzrUzyR2V6w.jpg" width="294" /></a></td></tr><tr><td class="tr-caption" style="text-align: center;"><span style="font-size: x-small;"><b>A scene from today's hike at Skyline Ridge<br /></b>[image: Young white man with short brown hair,<br />from behind, hiking a wide trail under tall oaks.]</span></td></tr></tbody></table>2020 was, appropriately enough, the year in which my middle child turned 20. And despite the year's significant and unceasing horrors, which are being catalogued everywhere and which I do not need to list for you, I enjoyed the extra time I got to spend with my family, and specifically with that son. My crew and I are incredibly lucky, and I remain gratefully, painfully aware of that good fortune.<br /><br />Because it's what we enjoy and due to a lack of other options, 2020 was, for me, a year of near-daily hiking. Most of it was with my 19- and then 20-year-old, some of it was with my eldest, some with my husband, some with my youngest, some with a combination thereof. It was all beautiful. We could hike a different trail each day in this picturesque, varied Bay Area, and never repeat ourselves. <br /><br />Yet many of our cherished trails were destroyed or badly marred in 2020. Sometimes I felt like we cursed these places just by visiting them during this upside-down year, even though I know this mindset is both egotistical and silly. But consider that our redwood pilgrimage site <a href="https://www.parks.ca.gov/?page_id=30422">Big Basin State Park</a> burned down the very day after we hiked it. Our favorite and frequented short coastal hike, Cascade Creek, burned black in that same <a href="https://en.wikipedia.org/wiki/CZU_Lightning_Complex_fires">CZU complex fire</a>, which cost so many Santa Cruz Mountains residents their homes and livelihoods. The Oat Hill Mine Trail, with its dizzying views of Napa Valley, and which my husband and I hiked just before lockdown, was partially burned in this summer's Glass fire and is <a href="https://napavalleyregister.com/news/local/glass-fire-takes-a-toll-on-parks-in-the-upper-napa-valley/article_0eacf6b3-b8c7-5366-97b4-1a32ab1c3e88.html">closed until further notice</a>. South San Francisco's Sign Hill Park was <a href="https://www.sfchronicle.com/bayarea/article/South-San-Francisco-officials-close-Sign-Hill-15687207.php">torched by teen arsonists</a> within a month of our visit. And, for variety's sake, <a href="https://www.sfchronicle.com/bayarea/article/South-San-Francisco-officials-close-Sign-Hill-15687207.php">human remains</a> were found in San Bruno Mountain park, shortly after we'd hiked <b>there</b>. Perhaps you can understand my unease.<p></p><p>Hiking also helps me grapple with one of this year's most devastating losses, the <a href="https://www.nytimes.com/2020/04/28/health/mel-baggs-dead.html">death of Mel Baggs</a>. Mel's compassionate but unyielding advocacy on behalf of disabled people like (and also unlike) Leo can't be replaced—but we can keep spreading those teachings, like <a href="http://www.thinkingautismguide.com/2019/02/the-meaning-of-self-advocacy.html">what self-advocacy actually means</a>:<br /></p><blockquote>"Self-advocacy doesn't mean staff get to pat us on the head, use the right buzzwords, tell us what wonderful little self-advocates we are, and then chastise us or put us on a behavior program when we get angry at them about their controlling behavior."</blockquote><p></p><p>As Leo and I continue to hike through the <a href="https://autisticadvocacy.org/melmemorial/">redwoods Mel loved</a>, and as my son's laughter rings through the trees, as my heart swells because who couldn't be happy in the presence of such joy—I hope that by doing our best to give Leo a good life and let him know how much he is adored, we are doing a small part to live Mel's legacy. Though we didn't do much else this year, I consider loving and being loved a win.<br /><br />Bite me, 2020. </p>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-5563550.post-36621302722778093082020-08-09T12:11:00.001-07:002020-08-09T12:11:16.815-07:00Autism versus Face Masks and Maskholes<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://1.bp.blogspot.com/--S9w8GGN_oI/Xr7dWsDuKyI/AAAAAAAAHcc/HOAZW5guW1MNzwRur_3Z2lK5FdIsh2TkQCLcBGAsYHQ/s1600/A579E0F8-D5DE-4311-9D87-337D93B30DC4.jpg" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img alt="image: Two photos: Left: Iz as a baby wearing overall made from marbled green fabric; right: Iz right now wearing a face mask made out of the very same fabric." border="0" data-original-height="1600" data-original-width="1600" height="400" src="https://1.bp.blogspot.com/--S9w8GGN_oI/Xr7dWsDuKyI/AAAAAAAAHcc/HOAZW5guW1MNzwRur_3Z2lK5FdIsh2TkQCLcBGAsYHQ/w400-h400/A579E0F8-D5DE-4311-9D87-337D93B30DC4.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><b><font size="2">Baby Iz versus Pandemic Iz</font><br /></b><font size="2">[image: Two photos: Left: Iz as a baby wearing overall made from marbled <br />green fabric; right: Iz right now wearing a face mask of the very same fabric.]</font></td></tr>
</tbody></table><br /><div>We're several months into mandatory pandemic face masking, and my son still can't wear a mask. It's not for lack of trying; he knows he's supposed to wear one, and <a href="http://www.gmsavt.org/wp-content/uploads/2020/05/Part_1_Basic_Covid-19_Information.pdf" target="_blank">we talk about how they help protect people from COVID-19</a> and why it is a deadly and contagious virus. When I put my mask on, he puts his on, too. And then, because the feeling of a mask on his face is intolerable for autistic sensory reasons, he takes that mask right off again. I don't know if he'll ever be able wear a mask for more than sixty seconds.</div><div><div><br /></div><div><div>And this is why I am highly irritated by <a href="https://abcnews.go.com/Politics/medical-reasons-wearing-face-mask/story?id=72020929&fbclid=IwAR0gIgHEngsrFkfe0x3009U83twlNxncXwwRwPyHdT-I-eL0Upkv0bnmDFs" target="_blank">parents of autistic kids saying</a> that “if my kids can do it,” then other people can’t complain about wearing masks: It sets a dangerously ableist precedent for forced mask compliance. And for those arguing, “He's talking about denialist <a href="https://www.urbandictionary.com/define.php?term=Maskhole" target="_blank">maskholes</a>, not making other autistic and disabled people to wear masks,” you don’t understand how compliance contagion works in the autism parenting sphere, or how stories like this get <a href="https://twitter.com/lauralovesian1/status/1285231424363040774?ref_src=twsrc%5Etfw">weaponized by ABA providers</a> and others who work with people like my son. This example <b>will</b> be used to force autistic people to wear masks. And I'm pissed about it.</div><div><br /></div><div>And yes, of course, some autistic people can wear masks given practice and patience. But others will never be able to, for a variety of reasons (some of which <a href="https://www.washingtonpost.com/lifestyle/2020/05/11/some-autistic-people-cant-tolerate-face-masks-heres-how-were-managing-with-our-son/" target="_blank">I wrote about in the Washington Post </a>a couple of months ago). Still other<span style="font-family: "times new roman"; font-size: 12pt;"> autistic people totally get why they should wear a mask, while simultaneously struggling with wearing one:</span></div><div><div class="MsoNormal" style="margin: 0in 0in 10pt;"><font face=""><span style="font-size: 12pt;"><blockquote class="twitter-tweet"><p dir="ltr" lang="en">If wearing a mask is hard for you, if it fucking sucks and you hate it but you're doing it anyway because you understand the evidence and importance, you're not a bad person and you're not making it up or imagining it. I get it.</p>— Emily Paige Ballou (@epballou) <a href="https://twitter.com/epballou/status/1282851755143954433?ref_src=twsrc%5Etfw">July 14, 2020</a></blockquote></span></font></div></div><div></div></div><div class="MsoNormal" style="margin: 0in 0in 10pt;"><div class="MsoNormal" style="margin: 0in 0in 10pt;"><font face="">If you are responsible for supplying an autistic person's masks, then it's a good idea to try them on yourself, first, and try to determine if they are scratchy, or rough, or pull in weird ways. I personally can tolerate masks that go over my ears, but dislike those that cinch my skull. <a href="https://www.usatoday.com/story/tech/reviewedcom/2020/07/30/neck-gaiters-vs-face-masks-they-effective/5544515002/" target="_blank">Gaiters</a> may work for some, but they are also more permeable than a face mask and so reduce protection. Other autistic folks find that <a href="https://twitter.com/semispeaking/status/1286369706803367938?ref_src=twsrc%5Etfw">mask brackets</a> help reduce a mask's sensory assault. I tend to go with the standard blue disposable medical</font> masks: They go over our ears, the interior is soft, and Leo can put them on himself. But the ear straps do break easily, so I always have a backup mask with me just in case.<span style="font-family: "times new roman"; font-size: 12pt;"><br /></span></div></div><div><span style="font-family: "times new roman"; font-size: 16px;">Another mask stressor for us is that our county now <a href="https://www.smcgov.org/covid19-face-covering" target="_blank">fines people</a> for violating pandemic mask guidelines. While <a href="https://www.cdph.ca.gov/Programs/CID/DCDC/CDPH%20Document%20Library/COVID-19/Guidance-for-Face-Coverings_06-18-2020.pdf" target="_blank">California state law gives people with I/DD an exemption from mask wearing</a>, </span>It's usually clear that Leo's not wearing a mask because he can't, as when we're in public I have one on though he doesn't. But I still worry about law enforcement making first-glance assumptions, and that leading to an encounter in which my son's behavior might be misinterpreted. </div><div><div class="MsoNormal" style="margin: 0in 0in 10pt;"><font face=""><br />I am also upset about jerks using fake ADA cards to get out of wearing masks: It's such a callow, ableist dodge, as well as total bullshit, and here's why: </font><font face="">The U.S. <a href="https://www.justice.gov/opa/pr/department-justice-warns-inaccurate-flyers-and-postings-regarding-use-face-masks-and" target="_blank">Department of Justice says</a>, </font>"The ADA does not provide a blanket exemption to people with disabilities from complying with legitimate safety requirements necessary for safe operations." This means that while the ADA does say disabled people need to be “reasonably accommodated” when working with employers, public businesses and the government, <a href="https://www.usatoday.com/story/news/factcheck/2020/07/15/fact-check-ada-disability-rights-and-face-mask-requirements/5391830002/">it does NOT allow mask exemptions "without replacing it with another measure in line with public health requirements.</a>” <b>No one </b>gets to go maskless if doing so endangers themselves or others.</div></div><div class="MsoNormal" style="margin: 0in 0in 10pt;">And last in my list of mask grievances: maskless joggers who run right through other people's social distancing bubbles. Doing so is a blatant dick move as well as a health code violation. It shouldn't matter that taking the time to safely distance interrupts an exerciser's rhythm or heart rate or whatever else they're tracking. This is a pandemic, we're all having to make changes for the greater good. Pull up your mask for five seconds, run around the other people if possible, or stop for five seconds until you can pass the other person safely. FFS.</div><div class="MsoNormal" style="margin: 0in 0in 10pt;">We're handling Leo's inability to wear a mask by diligent handwashing and application of hand sanitizer, and by avoiding any spaces in which safe social distancing isn't possible. To be very clear, safe social distancing means:</div><div><div class="MsoNormal" style="margin: 0in 0in 10pt;"><ol style="text-align: left;"><li>At least six feet between us and anyone else</li><li>Being outdoors, away from enclosed spaces with shared or recirculated air</li><li>Ideally, a good breeze </li></ol>Those last two are important because we're learning that <a href="https://www.theatlantic.com/health/archive/2020/07/why-arent-we-talking-more-about-airborne-transmission/614737/" target="_blank">good ventilation may be as crucial as hygiene</a> in preventing COVID-19 transmission. And for us, this mean we are taking lots and lots and lots and lots of hikes in remote local areas, in open, breezy spaces with wide paths. (Shout out to Peninsula Open Space, whose maps now <a href="https://www.openspace.org/sites/default/files/map_SR.pdf" target="_blank">highlight trails wider than six feet in bright green</a>.) With the exception of essential medical appointments—in which all staff take maximum precautions—Leo doesn't go indoors except in his own home. </div><br /><table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto;"><tbody><tr><td style="text-align: center;"><a href="https://1.bp.blogspot.com/-mhRRA4e12r4/XxY1RsoksaI/AAAAAAAAHhI/wAUjqD68O8stz7UG9LVRZrYOpWcYcAsNgCLcBGAsYHQ/s2048/08FXJmtiSZSmu8kcZG%2525Qrw.jpg" style="margin-left: auto; margin-right: auto;"><img alt="Leo and his dad, seen from behind, walking down a trail to a cove." border="0" data-original-height="1536" data-original-width="2048" height="300" src="https://1.bp.blogspot.com/-mhRRA4e12r4/XxY1RsoksaI/AAAAAAAAHhI/wAUjqD68O8stz7UG9LVRZrYOpWcYcAsNgCLcBGAsYHQ/w400-h300/08FXJmtiSZSmu8kcZG%2525Qrw.jpg" width="400" /></a></td></tr><tr><td class="tr-caption" style="text-align: center;"><font size="2">[image: Leo and his dad, seen from behind, walking down a trail to a cove.]</font></td></tr></tbody></table><div class="MsoNormal" style="margin: 0in 0in 10pt;"><br /></div>
<div class="MsoNormal" style="font-family: "times new roman"; font-size: 12pt; margin: 0in 0in 10pt;">
I’m relieved we have safety measures besides masks, because it’s crucial to keep my son healthy. Research indicates that people like Leo who have intellectual and developmental disabilities (I/DD) are <a href="https://www.sciencedirect.com/science/article/pii/S1936657420300674?utm_source=yahoo&utm_medium=referral&utm_campaign=in-text-link">four times more likely to get COVID-19, and twice as likely die from it</a>, which is scary AF. <br /><br />I am also terrified at the thought of my son and people who share his disabilities being hospitalized under pandemic conditions. Leo struggles with hospital environments, even in ideal times. He needs full time, 1:1 support, and while our state of <a href="https://www.disabilityrightsca.org/publications/coronavirus-covid-19-hospital-visitation-for-patients-with-disabilities" target="_blank">California allows people with I/DD to have support people stay in the hospital with them</a>, this isn't yet universal. And even if one of us were to stay with him, pandemic safeguards and protocols would make that experience exponentially more stressful and fraught than usual.</div><div class="MsoNormal" style="margin: 0in 0in 10pt;"><font face=""><span style="font-size: 12pt;"> <script async="" charset="utf-8" src="https://platform.twitter.com/widgets.js"></script>
And even though <a href="https://www.hhs.gov/about/news/2020/03/28/ocr-issues-bulletin-on-civil-rights-laws-and-hipaa-flexibilities-that-apply-during-the-covid-19-emergency.html]">Federal civil rights prohibit medical rationing and discrimination against people with disabilities</a>, if hard choices need to be made about who gets that ventilator, I worry that my son may be denied care because of negative stereotypes about disabled people's quality of life, as recently happened with <a href="https://www.npr.org/2020/07/31/896882268/one-mans-covid-19-death-raises-the-worst-fears-of-many-people-with-disabilities">the death of Michael Hickson</a>. Not being able to wear a mask is a minor worry, by contrast.</span></font><br /><br /><div class="MsoNormal" style="margin: 0in 0in 10pt;"><div class="MsoNormal" style="margin: 0in 0in 10pt;"><span style="font-family: "times new roman"; font-size: 12pt;">I am bummed that masking has become a </span><a href="https://www.washingtonpost.com/history/2020/07/25/seat-belts-masks-fights-coronavirus/" style="font-family: "times new roman"; font-size: 12pt;" target="_blank">fraught issue</a><span style="font-family: "times new roman"; font-size: 12pt;"> with bombast on both sides: Those who refuse to wear masks for "personal freedom" or "I don't believe in science" reasons, and then people who emblazon their cars with "Mask It or Casket" slogans, and insist that anyone who doesn't wear a mask is a selfish asshole or doesn't understand how masks protect people from the coronavirus. </span></div><div class="MsoNormal" style="margin: 0in 0in 10pt;"><span style="font-family: "times new roman"; font-size: 12pt;">So, my plea: If you can wear a mask, please please PLEASE do. If you can't, please protect yourself by social distancing and hand-washing. And if you see a dude not wearing a mask and he's not close enough to imperil you, leave him alone. You might be looking at my son.</span></div></div></div>
</div>
</div>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-5563550.post-20966507048924507342020-07-18T12:39:00.001-07:002020-07-18T12:39:47.285-07:00On Always Always Always Learning<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto;"><tbody><tr><td style="text-align: center;"><a href="https://1.bp.blogspot.com/-0L7-wsCxhF0/XxNPMy9MHDI/AAAAAAAAHgw/Kgg6FnwZ910XP3fEa6ihlf9IpDRws7y3ACLcBGAsYHQ/s2048/Tcn42LNtTLm5cJtBkswj1g.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img alt="White teen boy with short brown hair wearing a baseball cap, seen from behind, sitting on a wooden park bench overlooking the San Francisco Bay." border="0" data-original-height="2048" data-original-width="1536" height="640" src="https://1.bp.blogspot.com/-0L7-wsCxhF0/XxNPMy9MHDI/AAAAAAAAHgw/Kgg6FnwZ910XP3fEa6ihlf9IpDRws7y3ACLcBGAsYHQ/w480-h640/Tcn42LNtTLm5cJtBkswj1g.jpg" width="480" /></a></td></tr><tr><td class="tr-caption" style="text-align: center;"><font size="2"><b>We are also Always, Always, Always Hiking.<br /></b>[image: White teen boy with short brown hair wearing a baseball cap, seen from <br />behind, sitting on a wooden park bench overlooking the San Francisco Bay.]</font><br /><br /></td></tr></tbody></table><br /><div>My partially–speaking autistic son recently learned to say "excuse me" after he farts. <br /><br />This is important for many reasons. We are a gassy crew, and we fart a lot, so this is a good skill for all of us to have. But it's also important from the perspective of having confidence in him, in that he is always learning, and that we need to keep encouraging him to do so. <br /><br />Like many autistic people, my son requires often requires a lot of practice before acquiring a new skill. Not always, but often. We practiced the post-explosive apology for weeks before it stuck—though, like his siblings and mother, he still requires the occasional reminder about best flatulence practices. <br /><br />He's 19. He's nearing the age at which high-support disabled people like him are often approaching the transition from structured school environments into the great unsupported unknown of adulthood. I worry that for many parents, this transition is accompanied by a tendency to abandon learning now that our offspring are "grown." Or settling into doing things for our kids, because it's easier—things like toweling off after bathing when they can do it with support, guidance and/or patience—but it takes less time when we do it for them. <div><br /></div><div>But, we also know from autistic people who are able to self-report that they continue to acquire skills throughout their lives, more so than their non-autistic peers. So I am always encouraging the learning. Sometimes this means me talking about everything he and I see as we go on our many many local socially-distanced hikes, sometimes this means reading books about interesting things, sometimes this means having podcasts playing as we drive—when he's interested in them, that is; another recently taught skill is his ability to navigate the bluetooth enabled car stereo system, and like many teen boys, our hero has decided musical preferences. </div><div><br /></div><div>Whether he demonstrates to me that he has learned is less important to me than providing opportunities for him to learn, in ways that he's amenable to. Though when he does demonstrate learning—usually through an offhanded comment, or "suddenly" deciding to act on a skill he's been practicing, I am always glad for him, because he's usually glad for himself.<br /><br />And also, we are all always learning, aren't we? (Right? Or am I being naive yet again?) I am obsessive with the podcasts, though I get irritated when they get banter-y or chatty because I want the information please. I try my best to listen to disability advocates who are destroying accessibility and ableism barriers while building policy that will make live easier for my son and his entire disability community. And I still feel like I know so, so little and never enough, and of course still make big mistakes. But even when learning is painful and humiliating, in my experience it is worth doing. </div><div><br /><br /></div></div>Unknownnoreply@blogger.com2tag:blogger.com,1999:blog-5563550.post-54205003484211584042020-05-25T14:11:00.001-07:002020-05-25T14:11:33.466-07:00Pandemic Greetings from Our Backyard<div class="separator" style="clear: both; text-align: justify;">
We are fortunate in that we can all learn and work from home during the pandemic lockdown, now on week…10? Maybe? Time has lost any meaning without our usual school, work, and commute structures, which is both good and bad. My only complaint is the difficulty of carving out any alone time, which as an introvert is helpful for my mental health and energy levels/ability to not yell at people who aren't doing anything wrong. But that is a very minor issue right now. Very minor.</div>
<div class="separator" style="clear: both; text-align: justify;">
<br /></div>
<div class="separator" style="clear: both; text-align: justify;">
Still, yesterday was a beautiful spring day, so while the kids were engaged in the house but within earshot, I snuck out to the yard for some blissful hammock time. </div>
<div class="separator" style="clear: both; text-align: justify;">
<br /></div>
<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://1.bp.blogspot.com/-R2sfEODgMdI/Xsws4XJwfNI/AAAAAAAAHc0/GJhcN1lnHQIGuALIvnjijSUeZHEIBARWwCLcBGAsYHQ/s1600/W3vVfr34QrytJsFvb7hIoQ.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1600" data-original-width="1200" height="640" src="https://1.bp.blogspot.com/-R2sfEODgMdI/Xsws4XJwfNI/AAAAAAAAHc0/GJhcN1lnHQIGuALIvnjijSUeZHEIBARWwCLcBGAsYHQ/s640/W3vVfr34QrytJsFvb7hIoQ.jpg" width="480" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">[image: My stubby feet and legs in a rainbow hammock. <br />Flowering jacaranda trees and oaks are in the background.]</td></tr>
</tbody></table>
<div class="separator" style="clear: both; text-align: justify;">
Thing is, whatever I do, a certain someone also likes to do (this makes it hard for him when we go on our neighborhood hikes, because I wear a face make, but he <a href="https://www.washingtonpost.com/lifestyle/2020/05/11/some-autistic-people-cant-tolerate-face-masks-heres-how-were-managing-with-our-son/">can't bear having his nose and mouth covered</a>). I did get in about five minutes of bliss before being politely asked to surrender my spot.</div>
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<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://1.bp.blogspot.com/-jECG7EymxKc/Xsws4QIBZWI/AAAAAAAAHcs/peTjwhsqXBsfPcU-e5QP_GnHLc5QrvFIQCLcBGAsYHQ/s1600/pv5Ssz5fRUGX%2525KlS0Zw5PA.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1600" data-original-width="1200" height="640" src="https://1.bp.blogspot.com/-jECG7EymxKc/Xsws4QIBZWI/AAAAAAAAHcs/peTjwhsqXBsfPcU-e5QP_GnHLc5QrvFIQCLcBGAsYHQ/s640/pv5Ssz5fRUGX%2525KlS0Zw5PA.jpg" width="480" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">[image: Leo chilling in the same hammock as previous photo.] </td></tr>
</tbody></table>
<div style="text-align: justify;">
There's just so much wrong in the world right now, most of which I am processing on Thinking Person's Guide to Autism <a href="https://www.facebook.com/thinkingpersonsguidetoautism">social</a> <a href="https://twitter.com/thinkingautism">media</a>. Because of all the suckage, I'm hoping these two peaceful scenes will be as soothing to you as they were for us. And I hope you are doing OK, in your context.</div>
Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-5563550.post-31172642117246795272019-11-13T03:37:00.004-08:002019-11-13T03:55:28.402-08:00Vanilla Cake For a Nineteen-Year-Old Dude<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: left; margin-right: 1em; text-align: left;"><tbody>
<tr><td style="text-align: center;"><a href="https://1.bp.blogspot.com/-z-z74AKrtag/XciUYuyHCEI/AAAAAAAAHXI/nAo-Iamu6GAtCe94YMNYMTu3bdIH3_56wCLcBGAsYHQ/s1600/PXKsYObbR4eb5KexJTGMUw.jpg" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1600" data-original-width="1200" height="400" src="https://1.bp.blogspot.com/-z-z74AKrtag/XciUYuyHCEI/AAAAAAAAHXI/nAo-Iamu6GAtCe94YMNYMTu3bdIH3_56wCLcBGAsYHQ/s400/PXKsYObbR4eb5KexJTGMUw.jpg" width="300" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><b>FOAM PIT!</b><br />
[image: Distance view of Leo about to jump into a foam pit,<br />
seen through black safety netting.]</td></tr>
</tbody></table>
Someone turned nineteen very recently. Someone's mother remains in denial.<br />
<br />
We celebrated that someone's birthday according to their specific wishes for pancakes, a typically forbidden strawberry milkshake, and a trampoline-based birthday party with friends. It was a Very Good Day, going by the Very Big Smile metric.<br />
<br />
The resident someone was also clear that they wanted a vanilla cake for when cake-and-candle time rolled around. I'm perfectly happy with cake mix confections, but didn't have time to go to the store and get the boxed stuff. I experienced a rare Joy of Cooking fail in looking for alternatives—but the Internet provided, as it often does, and served up a recipe that was relatively quick and easy, and also worked with ingredients we had on hand (with a little quick thinking). Plus everyone really liked the cake in an "I don't usually like buttercream frosting" kind of way, so I'm sharing it with you.<br />
<br />
<b>PERFECT-FOR-LEO VANILLA SHEET CAKE</b><br />
<br />
<span style="font-size: x-small;">Modifed from <a href="https://marshasbakingaddiction.com/perfect-vanilla-sheet-cake/">marshasbakingaddiction.com/perfect-vanilla-sheet-cake</a></span><br />
<br />
CAKE STUFF<br />
<br />
<ul>
<li>3 cups cake flour</li>
<li>1 tsp baking powder</li>
<li>1 tsp baking soda</li>
<li>1/2 tsp salt</li>
<li>4 large room temperature eggs</li>
<li>1 1/2 cups sugar</li>
<li>2 tsp vanilla extract</li>
<li>3/4 cup vegetable oil</li>
<li>1 cup impromptu buttermilk (mix 1/2 cup sour cream with 1/2 cup water)</li>
</ul>
<br />
FROSTING STUFF<br />
<br />
<ul>
<li>4 cups powdered sugar</li>
<li>1 cup Kerrygold butter, softened</li>
<li>2 - 3 tbsp whole cream</li>
<li>1 tsp vanilla extract</li>
</ul>
<br />
MAKE THE CAKE<br />
<br />
<ul>
<li>Preheat oven to 350F</li>
<li>Grease a 13x9-inch pan, and set aside. (I used the Costco version of spray oil)</li>
<li>In a medium bowl, whisk together flour, baking powder, baking soda, and salt. Set aside.</li>
<li>In a stand mixer, beat the eggs on low speed just until blended. Add the sugar, and blend until combined. Add the vanilla extract and vegetable oil, and blend until combined. Gradually mix in the dry ingredients, alternating with the faux-buttermilk.</li>
<li>Pour the batter into the prepared pan, and spread out evenly. Bake for 30 - 35 minutes, or until a toothpick poked deep into the middle comes out clean. </li>
<li>Allow to cool completely in the pan on a wire rack before frosting, or else your frosting will just melt and will also be full of crumbs.</li>
</ul>
MAKE THE FROSTING<br />
<br />
<ul>
<li>Beat together the butter and icing sugar until light and fluffy (I used a stand mixer).</li>
<li>Beat in the whole cream and vanilla extract until smooth and spreadable. </li>
<li>Spread the frosting over the top of the cooled cake, decorate if you wish, then slice and serve.</li>
</ul>
Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-5563550.post-68145815428169008222019-06-26T15:09:00.000-07:002019-06-26T15:11:04.350-07:00Thanks For Making Me Cry, Ride a WaveLet me wipe off my still-foggy glasses and explain why that title may not mean what you think it means.<br />
<br />
This past weekend, Leo participated in <a href="http://www.rideawave.org/" target="_blank">Ride A Wave</a>—that glorious all-volunteer supported and inclusive surfing, boogie boarding, and kayaking extravaganza for people with disabilities. For our dude, this yearly "going surfing" is an annual immersion in bliss.<br />
<br />
While Leo looks forward to his yearly Ride A Wave day for months, this time he was so excited that he woke up several hours before the morning fun started (props to my tag-team partner Seymour for being up for those several hours; Leo's boundless energy and stamina are ideally matched to companions who have had a full night's sleep).<br />
<br />
Leo sang happily as the two of us drove to the beach (Allan Sherman's "<a href="https://www.youtube.com/watch?v=tPiRPmkueYo" target="_blank">When I Was A Lad,</a>" "<a href="https://www.youtube.com/watch?v=0jEizWzybOQ&list=RD0jEizWzybOQ&index=1" target="_blank">Early One Morning</a>," and "<a href="https://www.youtube.com/watch?v=irQa3UDV_AM" target="_blank">Baby Beluga</a>" are currently on heavy rotation.) Once we arrived at the Santa Cruz Wharf, we were paired with the two volunteer "Buddies" who became Leo's support team on the beach—helping him get into his swim suit, signing him up for events, whooping it up every time he caught a wave. The Buddies tend to be good eggs, but these two were especially great: intuitively following and respecting my cues about interacting with Leo and keeping him safe—and reciprocating the happiness Leo exuded all morning long.<br />
<br />
As I told one of his Buddies, getting to spend the morning watching Leo in a state of perpetual delight because of people who not only volunteer to help him have the best day ever at the beach by <b>his</b> definition, but who are as happy for him as I am, is the emotional equivalent of a spa day for me.<br />
<br />
But that wasn't why I cried.<br />
<br />
Again, let me explain. We've always had a great time at Ride A Wave day; Leo because I'm fairly certain he's a <a href="https://www.urbandictionary.com/define.php?term=selkie" target="_blank">selkie</a>, and me because if my kids are happy then I'm happy. But this year was a special one.<br />
<br />
You will need to take my word for what happened as I didn't snap that many pictures and didn't get video (for once, trying not to let my camera get between me and being in the presence of awesomeness), but what the photo below shows is Leo surrounded by a squadron of young wetsuited surf buddies. And what you really can't see is that Leo is doing what he loves the most—bobbing and pogoing in the water. And what made me cry is what happened next.<br />
<br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://1.bp.blogspot.com/-5WhFIY3Q-hE/XRAP5lvmNqI/AAAAAAAAHRk/--FxZkEcLjgqwn5tIMxSClhCxQKNk8AjQCLcBGAs/s1600/IMG_1870.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1600" data-original-width="1358" height="400" src="https://1.bp.blogspot.com/-5WhFIY3Q-hE/XRAP5lvmNqI/AAAAAAAAHRk/--FxZkEcLjgqwn5tIMxSClhCxQKNk8AjQCLcBGAs/s400/IMG_1870.JPG" width="338" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">[image: Photo of wetsuited Leo and with a circle of wetsuited<br />
tweens, with a boogie board, in waist-deep ocean waves.]</td></tr>
</tbody></table>
<br />
All the surf buddies spontaneously bobbed and pogo'd with him. Not because anyone told them to—there were no adults or coaches out there in the waves—but because they were in sync with Leo and going with his flow, so <b>everyone</b> was caught up in his irrepressible joy.<br />
<br />
Cue my sobbing (while pretending not to be).<br />
<br />
That's all I want for our sweet, wonderful guy—for other people to respect how he moves through the world, and approach him without hesitation or awkwardness or pity. I want him to know, viscerally, what it's like to be plugged into that kind of spontaneous human synchronicity. That way, when he encounters people who are yet again awkward, or unkind, or patronizing, he understands that it does NOT have to be that way, and he does NOT have to put up with it. Because he's experienced the way he should be treated, and he know's that's an achievable reality.<br />
<br />
Explaining this to his buddies on shore while trying to pretend I wasn't crying was not entirely successful, so I'm telling you, now.<br />
<br />
----<br />
<br />
Coda: Leo also got to meet Spiderman during this year's Ride A Wave. For a Spiderverse fan (who also likes to sing "<a href="https://www.youtube.com/watch?v=ApXoWvfEYVU" target="_blank">Sunflower</a>," now that I think about it), that's a green straw-level bonus on a day that was already as great as it gets.<br />
<br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://1.bp.blogspot.com/-ocBWMbGlewE/XRAQBtub6zI/AAAAAAAAHRo/OCzJlDOyWDgbxrdogfvjKB8FkbfJf8q2ACLcBGAs/s1600/2AC9A22E-579E-4361-B2E5-C625888E23E2.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1600" data-original-width="1600" height="320" src="https://1.bp.blogspot.com/-ocBWMbGlewE/XRAQBtub6zI/AAAAAAAAHRo/OCzJlDOyWDgbxrdogfvjKB8FkbfJf8q2ACLcBGAs/s320/2AC9A22E-579E-4361-B2E5-C625888E23E2.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">[image: Leo fist-bumping Spiderman at a beach.]</td></tr>
</tbody></table>
<br />Unknownnoreply@blogger.com1tag:blogger.com,1999:blog-5563550.post-2125581862099386582019-05-12T07:47:00.002-07:002019-05-12T09:05:53.991-07:00Dear Other Mothers of Autistic Kids: I See You<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: left; margin-right: 1em; text-align: left;"><tbody>
<tr><td style="text-align: center;"><a href="https://1.bp.blogspot.com/-V_ZSpDjAStg/XNei7gChIcI/AAAAAAAAHPM/nEJS-_hToqMjJ4ZSHfRCJvYvpjT0D7nrgCEwYBhgL/s1600/fullsizeoutput_2ddf.jpeg" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1600" data-original-width="1200" height="320" src="https://1.bp.blogspot.com/-V_ZSpDjAStg/XNei7gChIcI/AAAAAAAAHPM/nEJS-_hToqMjJ4ZSHfRCJvYvpjT0D7nrgCEwYBhgL/s320/fullsizeoutput_2ddf.jpeg" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><b>A Mother's Day gift from Leo. </b>
<br />
[image: Small decorated terra cotta pot with<br />
emerging seedlings. A printed icon attached to<br />
a popsicle stick is stuck in the soil, has illustrations<br />
of four flowers, and reads, "Flowers for Mom".]</td></tr>
</tbody></table>
For Mother's Day here in the United States, I want all you other moms of autistic kids to know that I see you, and that you are not alone.<br />
<br />
----<br />
<br />
I see your joys, and I see your sorrows.<br />
<br />
I see you when you are having a tough day yet still manage to interact with your child with respect and kindness.<br />
<br />
I see you when you keep your voice calm during crises, because you know your child is extra-sensitive to emotions and they need you to help them keep it together, or get it back together.<br />
<br />
I see you when you don't blame your kid for things they can't help, like meltdowns and accidentally breaking things.<br />
<br />
I see you when you can't afford to replace the broken things, and you still don't blame your child.<br />
<br />
I see you when you defend and protect your child when other people try to blame them for things they can't help.<br />
<br />
I see you when you stand up to people who think they can talk smack about your child like they aren't present, and may be absorbing every word.<br />
<br />
I see you when you correct, side-eye, or edge away from people who don't know any better than to view your parenting life as something to pity.<br />
<br />
I see you when you are cool with your kid's visceral need to sing, hum, flap, stomp, stim, or line things up, even in public—and you make sure your kid knows it.<br />
<br />
I see you when you negotiate with siblings who have a tough time with their autistic sibling singing, humming, flapping, stomping, stimming, and lining things up, because they have their own sensory and neurodivergence things going on.<br />
<br />
I see you when you teach your child, and gently remind them, about respecting other people's spaces and sensory needs too.<br />
<br />
I see you when you teach their child that their "no" matters, however they express it.<br />
<br />
I see you when you just don't go some places, because they're too stressful for your child.<br />
<br />
I see you when you make a hasty exit from places you really thought your child would like, because they turn out to be too overwhelming for your child.<br />
<br />
I see you when you retry going to those places a few years later, because your child is growing and maturing and maybe they'll be OK with those places now.<br />
<br />
I see you when you visit places repeatedly because they make your child so happy, and when your child is happy, so are you.<br />
<br />
----<br />
<br />
I see you struggle after your child's autism diagnosis, because everything is so new and overwhelming, and useful, hopeful information is so frustratingly hard to find.<br />
<br />
I see you when family members just don't know what to say, and other parent friends drift away.<br />
<br />
I see you when you find parents who <b>do</b> get what your kind of parenting is like, and help you find the useful, hopeful information you need. I see you embrace that solidarity.<br />
<br class="Apple-interchange-newline" />
I see you when you find private spaces to openly talk about your kids and your parenting, and with people who empathize and understand—without judging you or violating your trust.<br />
<br />
I see you when people say awful things to you about your parenting, and you shake it off because people who think insults are the same thing as arguments aren't worth your time.<br />
<br />
I see you when you cry because mean and thoughtless people talking smack about you or your kid sucks, and sometimes you can't just shake off mean and thoughtless speech.<br />
<br />
I see you when you struggle but take the time to listen to other parents of autistic kids who are struggling, too.<br />
<br />
I see you when you listen to people who make you rethink your approaches to parenting and autism, even when it's hard to hear you may have made mistakes.<br />
<br />
I see you when you realize that your autistic child experiences the world very differently than you do, because you aren't autistic.<br />
<br />
I see you when you seek out autistic perspectives to help you understand how your child experiences the world, so you can advocate for them effectively and empathetically.<br />
<br />
I see you when you realize that, hot damn, everything is so much easier for everyone in your family now that you have a better understanding of why your autistic child does what they do and wants what they want.<br />
<br />
I see you when you have a hard time not because your child is autistic, but because you share some of their autistic traits, and having those traits makes the demands of parenting extra-hard.<br />
<br />
I see you when you tell people that, actually, you're autistic too—and they suddenly start treating you differently.<br />
<br />
I see you when you realize there are really OMG really a lot of other autistic and neurodivergent parents of other autistic kids out there—even if many of them don't realize it yet.<br />
<br />
I see you when you reach out to and mentor other parents who are new to parenting autistic kids.<br />
<br />
----<br />
<br />
I see you when you're up in the middle of the night because your kid is up, too—and it's hard, but you don't blame your kid.<br />
<br />
I see you when you can't help falling asleep the moment you sit down.<br />
<br />
I see you when the school bus driver then knocks on your door with your kid because you really did <b>not</b> mean to fall asleep and you spend at least five minutes apologizing while horrified.<br />
<br />
I see you when you triage matters like laundry and ideally balanced meals because there are only so many hours in the day and at least some of those need to involve you sleeping.<br />
<br />
I see you when you decide that a life spent triaging is still a full life.<br />
<br />
I see you when you go to the mat for your child's education and accommodations and communication and medical needs, even when those are uphill and seemingly fruitless battles—and even when you are sleep-deprived.<br />
<br />
----<br />
<br />
I see you when you never have a day off of parenting, and still find space for laughter and fun.<br />
<br />
I see you when you never have a day off of parenting, and wonder how you're going to get through the next few hours.<br />
<br />
I see you when you don't have the supports and respite you and your child need and deserve.<br />
<br />
I see you when you never give up on advocating for your child.<br />
<br />
I see your joy when your child does something "they" said your child might never do.<br />
<br />
I see you when you accept that your child may never do some things, and you adapt.<br />
<br />
I see you when you make sure your child knows how much you love them, and that you don't expect them to show their love in exactly the same way.<br />
<br />
I see you when you learn to see what makes your child happy, and share in their specific and intense joys.<br />
<br />
I see you when you stop caring about whatever "normal" means, and start cherishing "happy" or even "content" instead.<br />
<br />
I see you when you are your child's safe space, especially when the rest of the world makes being autistic so hard and so stressful.<br />
<div class="separator" style="clear: both; text-align: center;">
</div>
<br />
...and I hope you have other people who see you too, and listen to you, and love you for everything you do for your family.Unknownnoreply@blogger.com4tag:blogger.com,1999:blog-5563550.post-13102559343664163302019-04-22T17:53:00.002-07:002019-04-22T17:54:09.593-07:00Visiting Zion National Park While Autistic <div class="separator" style="clear: both; text-align: center;">
Because I am very smart, it only took me ten years to realize that <a href="https://www.nps.gov/zion/planyourvisit/index.htm" target="_blank">Zion National Park</a> is a mere three-hour drive from Las Vegas, where we often stay with family. For us, that's day-trippable. I wasn't sure if Zion would be an ideal place for our team, but as last week was Leo's Spring Break, we were looking for new adventures, and our friend and fellow road-tripper <a href="https://soundcloud.com/stanfordmed/portraits-of-stanford-medicine-deb-karhson" target="_blank">Dr. Deb Karhson</a> was game, we decided to see if Zion was our kind of place.</div>
<div class="separator" style="clear: both; text-align: center;">
<br /></div>
<div class="separator" style="clear: both; text-align: center;">
Oh yes, it was.</div>
<div class="separator" style="clear: both; text-align: center;">
<br /></div>
<div class="separator" style="clear: both; text-align: center;">
First of all, we are all about <a href="https://2.bp.blogspot.com/-dXytno6WyXc/WJa7ipV3XuI/AAAAAAAAGZA/D8dSrI4x1zgne9IErqDFb2rbViDAHsvcwCLcB/s1600/IMG_0212.JPG" target="_blank">Transportation Days</a>. If we can spend a day riding buses, trains, subways, ferries, boats, trams, and/or cable cars, that is a day in which everybody wins. And Utah's town of Springfield, AKA the gateway to Zion NP, has a clean, efficient, free shuttle bus service. Yes! We won! (Parking in Springfield was not free, but it was not exorbitant either.)</div>
<div class="separator" style="clear: both; text-align: center;">
<br /></div>
<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://1.bp.blogspot.com/-kcLEMR5LF0o/XL4kt1iLG_I/AAAAAAAAHMA/E1UaiFZwvWsbwQP2NuClEYfMs9UGxAphQCLcBGAs/s1600/NHuG2C5ISZGU3t4aXXAbDg.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1203" data-original-width="1600" height="300" src="https://1.bp.blogspot.com/-kcLEMR5LF0o/XL4kt1iLG_I/AAAAAAAAHMA/E1UaiFZwvWsbwQP2NuClEYfMs9UGxAphQCLcBGAs/s400/NHuG2C5ISZGU3t4aXXAbDg.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">[image: Deb Karhson, me, and Leo riding the free shuttle bus<br />
from the town of Springfield to the Zion park entrance.]</td></tr>
</tbody></table>
<div style="text-align: center;">
Another reason we were heading to Zion is that it is in fact a National Park. And people with disabilities can get life-long free <a href="https://store.usgs.gov/access-pass" target="_blank">Access Passes to National Parks</a>. And I thought Leo should have an Access Pass. So I brought all his documentation—birth certificate, passport, diagnosis paperwork, most recent IEP, etc., to prove that yes in fact, our dude is who he says he is and yes, he is disabled.</div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
Turns out the ranger believed Leo without any of that, and just needed him to sign his name (and waited without comment or prompting during that process, which for our dude takes as long as it takes). OK then! Now Leo (and anyone who comes with Leo) can get into any national park, and can even get the car that Leo rides in, into those national parks. I think the Access Pass is an excellent program and I am grateful for it.</div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
We then headed to the next part of our excellent day, the Zion NP free shuttle, which takes visitors to nine different parts of the canyon, with on/off privileges at every stop. Except, d'oh:</div>
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</div>
<div style="text-align: center;">
<br /></div>
<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://4.bp.blogspot.com/-0-PN8ceoF4k/XL4jSyNVNBI/AAAAAAAAHL0/i5Gnrzh_b8Ue0v3a6Miq3LqBW1m1mQiSgCLcBGAs/s1600/IXenIcj4TDKPWfTRGjQlkw.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1200" data-original-width="1600" height="300" src="https://4.bp.blogspot.com/-0-PN8ceoF4k/XL4jSyNVNBI/AAAAAAAAHL0/i5Gnrzh_b8Ue0v3a6Miq3LqBW1m1mQiSgCLcBGAs/s400/IXenIcj4TDKPWfTRGjQlkw.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">[image: Leo next to a very long line of people waiting to board the<br />
Zion National Park free shuttle bus.]</td></tr>
</tbody></table>
<div class="separator" style="clear: both; text-align: center;">
We were there on the Friday before Easter Sunday, which turned out to be a Really Busy Day. The rangers said they had Summer attendance but Spring staffing and shuttles, so we ended up having to wait for 30 minutes to board the bus. Thankfully, waiting for a bus is a perfectly acceptable way to spend one's time, according to the teenager in our group. Whew! </div>
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<br /></div>
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We then rode up and down the canyon, possibly more than once. We got off the bus at Zion Lodge and poked around a bit, but we'll need to go back again to get our usual hiking on—the crowds made the trails inaccessible to our party, for various sensory reasons. The crowds also made for waits at many of the shuttle stops, which could have been an issue if we had had a crisis and needed to board right away, as the park has no priority boarding policy for people who have a hard time with lines. I look forward to heading back on a less-bustling day.</div>
<div class="separator" style="clear: both; text-align: center;">
<br /></div>
<div class="separator" style="clear: both; text-align: center;">
But, damn, Zion was so beautiful. The temperature was warm but not intolerable, flowers were blooming everywhere, and the skies were as blue as any I've seen. I did not even try to capture that beauty, as it is staggering on a scale incomprehensible to my puny camera phone. Let's just say that there's a reason there are windows in ceilings of the buses. You should see Zion yourself if you can, or <a href="https://www.youtube.com/watch?v=HEZ3WyAUPZM" target="_blank">watch a dedicated video</a>.</div>
<div style="text-align: center;">
<br /></div>
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://3.bp.blogspot.com/-gu49thoumvI/XL4nMH-JHHI/AAAAAAAAHMY/ejPeGqpuMk8tr4CVFySfnykvQNPNWXr8wCLcBGAs/s1600/iGCUWJbMT0%252Ba9oQLQbpPFQ.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1200" data-original-width="1600" height="300" src="https://3.bp.blogspot.com/-gu49thoumvI/XL4nMH-JHHI/AAAAAAAAHMY/ejPeGqpuMk8tr4CVFySfnykvQNPNWXr8wCLcBGAs/s400/iGCUWJbMT0%252Ba9oQLQbpPFQ.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">[image: Leo from behind, looking down the Virgin river, from a bridge.]</td></tr>
</tbody></table>
<div style="text-align: center;">
Also note that there were lots of places to rest and chill, even with the crowds. Benches and lawns and more. This is important for our crew, which requires downtime. Also important: Water fountains and spouts with tasty, clean Zion spring water everywhere. Don't forget to bring your reusable water bottle!</div>
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://4.bp.blogspot.com/-jGGyeS36h6E/XL4i8QCtpbI/AAAAAAAAHLs/x_QGMkc7UoQtnOLRGT5c5Y2tYYgjKclfwCLcBGAs/s1600/hxpzhuowTD2horTl6q3KRg.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1200" data-original-width="1600" height="300" src="https://4.bp.blogspot.com/-jGGyeS36h6E/XL4i8QCtpbI/AAAAAAAAHLs/x_QGMkc7UoQtnOLRGT5c5Y2tYYgjKclfwCLcBGAs/s400/hxpzhuowTD2horTl6q3KRg.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">[image: Leo and me lounging on the lawn in front of the Zion lodge.]</td></tr>
</tbody></table>
<div class="separator" style="clear: both; text-align: center;">
And finally, we were glad to have Deb along with us. I think sometimes Leo gets bored of me, as teenage boys tend to do with their mothers, plus Deb is the least boring person on earth and Leo loves her (as do I). Also Deb says she misses her brother, who lives in another state, and who is a lot like Leo. Then there's that Leo's dad doesn't like the two of us traveling by ourselves, but there aren't a lot of people who think traveling with us for a few days is a vacation. So, more gratitude on my part. Thanks, Deb!</div>
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<br /></div>
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://3.bp.blogspot.com/-dX8Os8k6hXM/XL4lg_6CJtI/AAAAAAAAHMM/3g_k3TUlEoQejfAZ0vSTta2Ii3p8Fp2kACLcBGAs/s1600/fullsizeoutput_2cb9.jpeg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1600" data-original-width="1200" height="400" src="https://3.bp.blogspot.com/-dX8Os8k6hXM/XL4lg_6CJtI/AAAAAAAAHMM/3g_k3TUlEoQejfAZ0vSTta2Ii3p8Fp2kACLcBGAs/s400/fullsizeoutput_2cb9.jpeg" width="300" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">[image: Leo and Deb on the grass at Zion Lodge, seen in<br />
profile. Deb is cupping Leo's cheeks and he is smiling<br />
at her.]</td></tr>
</tbody></table>
<div style="text-align: center;">
If you or your family member are autistic and/or disabled, and you've been to Zion, I'd be interested to hear about your experience. For now, I can report that we had a wonderful time, and I am raring to return.</div>
Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-5563550.post-10407158089175711322019-03-28T21:51:00.000-07:002019-03-28T21:51:21.963-07:00Leo's Adventures in Disneyland, 2019 Edition<div class="" style="clear: both; text-align: justify;">
<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: right; margin-left: 1em; text-align: right;"><tbody>
<tr><td style="text-align: center;"><a href="https://1.bp.blogspot.com/-tCpUV8hqxOI/XIAxcj2RAzI/AAAAAAAAHIQ/aMBUkpGIixA_j6_O9EGhmmuryrRAwqiPwCLcBGAs/s1600/IMG_5618.HEIC" imageanchor="1" style="clear: right; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img alt="image: Leo in front of a "We're Monsters, Inc." poster with four monsters posing jovially, while waiting in line for the ride" border="0" data-original-height="1600" data-original-width="1200" height="320" src="https://1.bp.blogspot.com/-tCpUV8hqxOI/XIAxcj2RAzI/AAAAAAAAHIQ/aMBUkpGIixA_j6_O9EGhmmuryrRAwqiPwCLcBGAs/s320/IMG_5618.HEIC" title="" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><b>The Monsters, Inc ride is a perennial fave.</b><br />
[image: Leo in front of a "We're Monsters, Inc."<br />
poster featuring four monsters posing jovially<span style="font-size: 12.8px;">.]</span></td></tr>
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It's been eight years since Leo's first successful trip to Disneyland, when we discovered that, for him, <a href="http://www.thinkingautismguide.com/2012/05/my-autistic-sons-joyful-successful.html" target="_blank">the Land of Mouse really is The Happiest Place on Earth</a>. We now try to make annual pilgrimages, because Leo deserves to be happy and when we can make that happen, we do.<br />
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Here's how the latest trip went, and how we made it happen—because unfortunately, visiting Disneyland is also expensive AF. Note: this go 'round it was just me and Leo. Seymour and Iz were in New Zealand (Iz is doing a college semester abroad*) and J and Leo have some <a href="http://www.thinkingautismguide.com/2018/10/acknowledging-and-accepting-competing.html" target="_blank">competing access things</a> going on just now. J drove down with us, but spent the night at a local friend's and went to the park with them separately. We did meet up with J and crew once to check in.<br />
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One of the most pricey parts of Disneyland is the tickets. Leo wants to see both parks, not just one, as he has has a two-park circuit that we follow for optimal joy. That means $$$ for a park-hopper pass. Luckily, we live in California, and our regional center has a program called Community Involvement (CI) that provides discounted Disneyland tickets. If you live in California and you or your child are regional center clients, ask about this! (We were lucky; our social worker told us about the tickets, but just because yours hasn't doesn't meant it's not an option. Ask!) The CI dates available are limited and subject to blackouts, but the savings are significant—and allow provide discounts for a limited number of accompanying family members.<br />
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More routine/joy: we stayed at the Grand Californian Hotel. This is important, because being a hotel guest means access to a "<a href="https://disneyland.disney.go.com/guest-services/extra-magic-hour-early-admission/" target="_blank">Magic Hour</a>" for hotel and other select pass holders, before the parks open to the general public, and during which lines are extra not-crowded. However this meant we had to pay for the hotel room. For this, I am beyond grateful to Leo's grandparents and other family members who understand how much going to Disneyland means to Leo, and gave him cash for his birthday and Christmas that we were able to use for the hotel room—because otherwise and even during "low season," room prices at this place verge on imaginary. (Though the same Magic Hour benefits hold for guests of the Disneyland Hotel and Paradise Pier hotels, which are slightly less astronomically priced, Leo's routine for as long as he's been going has been the Grand Californian.)</div>
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<tr><td class="tr-caption" style="text-align: center;">[image: Selfie of me and Leo in a hotel hot tub.]</td></tr>
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Staying at the hotel meant using the hot tub and pool the night before. This is important. Because we always use the hot tub and pool when we go to Disneyland, and Routine is Life. We both like pools and hot tubs.<br />
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We have most things Disney figured out. The one unpredictable factor is lining up to enter the park in the morning. We need to be there relatively early because if we have to wait in a long line at Town Hall to get Leo set up for <a href="https://wdpromedia.disney.go.com/media/wdpro-assets/dlr/help/guest-services/guests-with-disabilities/dlr-disability-access-service_2017-07-17.pdf" target="_blank">Disability Access Service</a>, then that cuts into his Magic Hour relaxing rides time. However, if we end up being surrounded by kids who are crying or whining (which is an act of the goddesses and no one's fault), that is distressing to Leo and we can't stay in line.<br />
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As always, we gave the park entry waiting line a solid try. And after a few minutes, we were surrounded by crying kids. I tried not to panic, and asked the people standing behind us if they would hold our spot, which they kindly did. I then took Leo around the side of the entry kiosks to talk to a gate agent, and told them about our pickle. Much to my relief, they were able to help us out. We might not need this accommodation next time, but it is good to know that the staff will make those kinds of accommodations if requested.</div>
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<tr><td class="tr-caption" style="text-align: center;"><b>FU Straw Ban</b><br />
[image: Leo waiting to ride Star Tours, looking hip with<br />
3D glasses, nonchalant attitude, and mouth-held straw.]</td></tr>
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We were the first people in line at the Disneyland Town Hall, and Leo's Disability Access Service (DAS) pass—which is tied to the entrance ticket you bring everywhere with you—was activted forthwith. So many exhalations.<br />
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The current version of the pass (there have been several iterations over the past few years) meets Leo's needs beautifully. If you've not used the DAS before: it makes it possible for people like Leo who have a hard time waiting in lines to have the shortest line experience possible. This doesn't mean jumping lines, though; you get assigned a "return time" for the FastPass or disabled access line entrances that is roughly equivalent to the ride's current standby (regular folks, non-FastPass) waiting) time. This means that if the wait time for Pirates of the Caribbean is 45 minutes, you get to spend those 45 minutes doing something that is not waiting in line, like going to the Tiki Room—and then you can come back to the FastPass entrance any time after your DAS-appointed return time. <br />
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(Apparently you can <b>also</b> use the DAS in conjunction with the regular FastPass service, but that is more planning and executive function juggling than my head had space for, and we were perfectly happy using the DAS alone.)<br />
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<tr><td class="tr-caption" style="text-align: center;">[image: Photo of a MedAlert safety bracelet<br />
clipped onto Leo's pants' belt loop.]</td></tr>
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A final logistics note: As Leo has, on occasion, followed his enthusiasm more quickly than I could keep up with him, I wanted to ensure he had a visible form of ID with my phone number and his MedicAlert info on it (even though, as I learned, The Mouse has eyes everywhere and escaped kids get returned to parents surprisingly quickly). We used <a href="https://new.safetytat.com/" target="_blank">Safety Tats</a> for a while, but they aren't that obvious, especially during cold weather which means long sleeves, and they also don't have enough information for some of Leo's medical considerations. Leo is also not a fan of safety bracelets or other medical ID tags. But I figured out that if I use a metal binder ring to attach a metal safety bracelet to his belt loop, he is not only OK with that but considers the bracelet chain an excellent fidget. Another win-win.</div>
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<tr><td class="tr-caption" style="text-align: center;">[video description: Leo rubbing his hand along the wavy<br />
metal guardrail at the Nemo submarine ride line.]</td></tr>
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Overall, a lovely time was had. Though it was a holiday week, it was a Tuesday, plus the park wasn't as crowded as the <a href="https://www.isitpacked.com/live-crowd-trackers/disneyland/" target="_blank">IsItPacked Disneyland Crowd Forecast</a> foretold. Leo got to ride all his rides, several more than once. We found more spots of joy, like the stim-worthy wavy metal railguards along the lines at the Finding Nemo submarine ride. We also found many spots of quiet and regrouping and rest, such as the circumnavigating Disneyland Train that lets you ride indefinitely. These were important, as were the Benches Everywhere (though New Orleans Square could still use more benches). </div>
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The only real bummer was the brightness. The weather report said it was going to be overcast, so I didn't bring hats. Which meant that once we found ourselves squinting (a situation that leads to horrible headaches for our young hero), hats needed to be purchased. And there is no getting a non-merch-branded hat in Disneyland; I looked. So I ended up, reluctantly, with a Darth Vader trucker hat while my companion scored a "P. Sherman, 42 Wallaby Way, Sydney" baseball cap that was the least obnoxious option. (I am old and grumpy and getting tired of branding and merch everything everywhere all the time. Except for at the new Guardians of the Galaxy ride. That was cool.)</div>
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<tr><td class="tr-caption" style="text-align: center;"><b>The Guardians of the Galaxy ride has so many Easter eggs!</b><br />
[image: Leo next to a painting of The Collector and The Master <br />
laughing while playing a game at a table.]</td></tr>
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A final happy result: Leo spent the months leading up to our visit watching Disney park ride-throughs from parks all over the world. As we made him a bunch of his own ride videos while were were there, and made them part of his YouTube channel, he can now watch videos of himself riding rides at Disneylang on our YouTube-connected TV as easily as he can watch his favorite Netflix shows and DVDs. Sometimes I really do love living in the future:</div>
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<tr><td class="tr-caption" style="text-align: center;">[image: Selfie of me and J in front of the Vasquez Rocks.]</td></tr>
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It gets better coda: Road trips have sometimes been hard with our youngest two. It is a mark of how much they have both matured that when the main freeway pass between the central valley and Los Angeles got shut down due to snow, and we ended up sitting on the freeway for four hours and were eventually turned around and had to to do a three-hour detour and did not reach our destination until 1:30 AM, they were both good sports about it and the situation was totally manageable. It is a mark of how my approach to life has changed that as long as my kids were not having a hard time, I was cool with whatever needed to be done, and am just glad it all worked out, and did not have a panic attack or meltdown. Plus when we woke up, we discovered we were five minutes away from one of the most iconic Star Trek locations in the Southland. It's hard to be mad about geekery opportunities.<br />
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<tr><td class="tr-caption" style="text-align: center;">[image: Photo of Seymour's hand holding up his gold wedding<br />
ring next to the volcano that was the film version of Mt. Doom.]</td></tr>
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*When I studied abroad in Ghana nearly 30 years ago, making a phone call to my parents was only possible at the airport, and I had to arrange the phone via mail weeks in advance—because that's how long the mail took. In contrast, Iz can and does text us all day long, time differences allowing (she is three hours behind me, but in tomorrow's time). I much prefer the contemporary situation, now that I'm in the parent position. Also: She and Seymour found the one true ring!<br />
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Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-5563550.post-29144406546179826172018-11-09T11:52:00.003-08:002018-11-09T11:52:32.594-08:00Eighteen Years. Eighteen Years. (Holy Hell.)<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="clear: left; float: left; margin-bottom: 1em; text-align: left;"><tbody>
<tr><td style="text-align: center;"><a href="https://3.bp.blogspot.com/-jxpQItj4ZVM/W-Xb8Y2ZSoI/AAAAAAAAHEs/HLyyrpat6C88OunqONKN4FH46ErppYlXwCLcBGAs/s1600/IMG_9197.jpg" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1600" data-original-width="1200" height="400" src="https://3.bp.blogspot.com/-jxpQItj4ZVM/W-Xb8Y2ZSoI/AAAAAAAAHEs/HLyyrpat6C88OunqONKN4FH46ErppYlXwCLcBGAs/s400/IMG_9197.jpg" width="300" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">[image: Smiling Leo, taken this morning.]</td></tr>
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Leo turned eighteen years old today. Like nearly all parents of newly-minted-18 year olds, I can't f***ing believe it. But I think I'm ready. I think Leo's ready, too.<br /><br />Leo's ready because birthdays mean parties! One at school today, with homemade carrot cake (a laughable nod at "eating more healthfully"), and another tomorrow with his friends and family. Plus today we'll take a trip to In-N-Out for an otherwise forbidden milkshake. There will possibly be a man-sized hammock chair arriving later today (shhh). And we will listen to The Candy Band's "It's Your Birthday" and The Ting Ting's "Happy Birthday" all day long. Yes!<br /><br />I'm ready, on many levels, if not on the plane containing my emotions: I liked having little kids! Little kids are fun! Teenagers are hard! And adult kids don't need you as much!. (I'm less thrilled about all the post-18 paperwork and services changeovers, but that is the path we're on and I'll reward myself with a beer or a bowl of Lucky Charms once it's all completed.)<br /><br />More significantly, I feel like we've made it to our own version of the Promised Land. Leo is no longer an autistic child, he's an autistic adult. A <b>happy</b> autistic adult. That's something to celebrate. While anyone who's ever spent time in our house knows that we would never pretend everything in Leo's life is easy always because often it is really REALLY not, we know more often than not how to support him in doing what he wants to do, learning, staying healthy, and being content. I feel like we are lucky more often than we are not.<br />
<br />Expanding Leo's contented space to work for our entire family has meant relearning and readjusting some family dynamics: Now that all three of our kids are teens, we are smack-dab in the middle of <a href="http://www.thinkingautismguide.com/2018/10/acknowledging-and-accepting-competing.html">Competing Access Needs</a> land, a place in which our neurodiverse trio of kids can't always accommodate each other and in fact are sometimes explosively incompatible—often for reasons none of them can control. <br /><br />Logistically. this dynamic means that, for the first time in almost a decade, our family will be embarking on separate Thanksgivings: Leo, Iz and I to one destination with my family, and Seymour and J with the Rosenberg grandparents. We are all cool with this. And you should be, too. It's what we need to do, and it's what works.<br />
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A decade or so ago I would probably have used this space to bewail what "autism" was doing to my family holidays. Today I am thrilled that we're confident enough in our son and in what works for our family to make the choices that work best for everyone. Not just for Leo. Not just for his siblings. Not just for me and my husband. For all of us.<br />
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But first, we party. Happy birthday, my dude. I love you so much.</div>
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<tr><td class="tr-caption" style="text-align: center;">[image: Barely awake Leo, taken earlier this morning, in front of a black-and<br />
white photo of barely awake toddler Leo with the exact same expression.]</td></tr>
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<br />Unknownnoreply@blogger.com2tag:blogger.com,1999:blog-5563550.post-50593521225139764252018-10-29T05:29:00.004-07:002018-10-29T05:33:40.416-07:00On Creating "Social Apps" for Autistic Kids<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: left; text-align: left;"><tbody>
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<tr><td class="tr-caption" style="text-align: center;"><b>Photo © Shannon Des Roches Rosa</b><br />
[image: Leo chilling in a medical office<br />
lobby, with an iPhone and headphones.]</td></tr>
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I don't do as much autism and tech advising as I used to do back in those <a href="http://www.squidalicious.com/p/ipads-and-autism.html">frontier iPad days</a>, but people still ask me about best practices for tech and autism, especially about apps and games for supporting autistic kids in the area of social skills.<br />
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And here is what I recommend: Tap into resources on how to create software and social approaches that actually help autistic kids, instead of trying to get those kids to conform to non-autistic social rules. It's not that learning the "hidden curriculum" (as <a href="http://www.judyendow.com/">Judy Endow</a> writes) isn't important and useful, but it's that all the burden is usually placed on the autistic kids to change their behavior, when often they aren't doing anything wrong, just different, or for different reasons or perspectives.<br />
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Here are some starting materials, please feel free to suggest more:<br />
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<li>The entire <a href="https://www.realsocialskills.org/">Real Social Skills</a> archive is invaluable on this matter, but I recommend a couple of post specifically:</li>
<ul>
<li><a href="https://www.realsocialskills.org/blog/identifying-bad-friends">Identifying Bad Friends</a></li>
<li><a href="https://www.realsocialskills.org/blog/all-autistic-people-are-disabled">All Autistic People Are Disabled</a></li>
</ul>
<li><a href="http://www.squidalicious.com/2015/05/how-can-tech-benefit-autistic-people.html">My 2015 International Meeting for Autism Research comments on autism and tech</a></li>
<li>My <a href="http://www.squidalicious.com/2013/09/how-ipads-apps-can-help-people-like-leo.html">presentation outline on iPads/tech for autistic kids/adults</a>. (Note the autistic pushback against research insisting that screen time is bad.)</li>
<li><a href="http://www.judyendow.com/autistic-behavior/autism-hidden-curriculum-and-making-friends/">Judy Endow on Hidden Curriculum</a></li>
</ul>
Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-5563550.post-46990020111487054742018-10-05T17:37:00.001-07:002018-10-05T17:50:47.943-07:00In a Different Key and The Hypocrisy of Mainstream Autism CoverageLast night I attended John Donvan's and Caren Zucker's talk at Stanford University, in which they discussed their "Story of Autism" book In a Different Key and its forthcoming film. I should be clear: I am not impressed by the authors or their book, as I find both hypocritical and disingenuous: belittling autistic people who <a href="https://ollibean.com/importance-supports/">stand up for the rights of autistic people of all abilities</a>, while lauding parents who are equally unapologetic in fighting for their autistic kids' rights; framing the murder of disabled children as the unforgivable act it is when Nazis do it, but as somehow <a href="https://twitter.com/shannonrosa/status/689255321563303937">understandable when "loving" parents do it</a>.<br />
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://4.bp.blogspot.com/-n72VqXCGYME/W7fWu-C-awI/AAAAAAAAHD0/MtGmcOLytKUSCR7LVQjpiGQCOMLExosZwCLcBGAs/s1600/Screen%2BShot%2B2018-10-05%2Bat%2B2.24.03%2BPM.png" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="714" data-original-width="1100" height="258" src="https://4.bp.blogspot.com/-n72VqXCGYME/W7fWu-C-awI/AAAAAAAAHD0/MtGmcOLytKUSCR7LVQjpiGQCOMLExosZwCLcBGAs/s400/Screen%2BShot%2B2018-10-05%2Bat%2B2.24.03%2BPM.png" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><b>Photo via SF Autism Society's public Twitter feed</b><br />
[image: In a Different Key co-authors John Donvan and Caren Zucker,<br />
seated and laughing together during yesterday's talk at Stanford.]</td></tr>
</tbody></table>
Still, I went, because I was hoping Zucker and Donvan had absorbed some community feedback about the messages their book got wrong in 2016, and that maybe now they would have better messages for the audience, and in their film.<br />
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No such luck: They doubled down on matters like ABA apologetics, and also on their disdain for autistic self-advocates—who in their opinion aren't <b>really</b> disabled. They even claimed that Steve Silberman's book NeuroTribes, which is also an autism history and which was published a few months before their own book, is more about making self-advocates proud, as opposed to their book which tells the stories of higher-support autistic people. Which is quite the headspin for me, given that an entire chapter of Silberman's book is about ... my son Leo.<br />
<br />
I really need to stop being surprised when banner-carriers for <a href="https://medium.com/the-establishment/how-the-progressive-media-sells-out-autistic-people-f1cc44f7c336">mainstream attitudes</a> about autism reject the insights and grievances of autistic people (when they don't support the authors' preconceived notions, at least). Sitting in that audience was not that different from watching Brett Kavanaugh's indignation during his confirmation hearing: Zucker and Donvan also were <a href="https://tonic.vice.com/en_us/article/438w4p/brett-kavanaugh-is-a-threat-to-disabled-peoples-rights">upset when the people their work harms spoke out, and also invoked their work on behalf of people with disabilities as a Good Character Free Pass</a>. Nor is it surprising that they and their host kept mentioning In a Different Key's Pulitzer nomination: Yep, the mainstream U.S. media gave a high-profile book about autism but excluding self-advocate voices its imprimatur. This is not a shock to anyone who has watched a parallel mainstream media industry shower its highest honors, the Academy Awards, on non-disabled actors who play disabled characters.<br />
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The talk wasn't all awful: Caren Zucker made a case for radical inclusion using the example of Donald Triplett, and showed wonderful footage of him living a happy live in an accepting and supportive community. That part was fricking fantastic, and I hope that message dominates the film. I am also glad the movie is covering police mistreatment of autistic people.<br />
<br />
And even though I was too upset by all the above to speak during Q and A, autism researcher Dr. Deb Karhson was there—and she asked the authors about how they managed to get <a href="http://www.thinkingautismguide.com/2018/04/on-hans-asperger-nazis-and-autism.html">access to Asperger's papers when Silberman was asking for them at the same time yet was rebuffed</a>. John Donvan then admitted, for the first time in public, as far as I know, that yes, they did enter into an exclusive agreement with researcher Herwig Czech (who then stonewalled Silberman). Which puts Zucker and Donvan's past behavior—allowing Silberman to be publicly criticized for championing Asperger in NeuroTribes, after In a Different Key was released with publicity emphasizing "the real Asperger story" of complicity in Nazi murders of disabled children—in a very sketchy light.<br />
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Anyhow. They suck and I knew that. But now I have more details? Here is my live-tweeted coverage:<br />
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<a href="https://twitter.com/hashtag/InADifferentKey?src=hash&ref_src=twsrc%5Etfw">#InADifferentKey</a>’s authors wanted to get beyond what they considered the standard mainstream messages about <a href="https://twitter.com/hashtag/autism?src=hash&ref_src=twsrc%5Etfw">#autism</a>. Worked on autism projects together for ~20 years.</div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/1048033353167863808?ref_src=twsrc%5Etfw">October 5, 2018</a></blockquote>
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<a href="https://twitter.com/hashtag/InADifferentKey?src=hash&ref_src=twsrc%5Etfw">#InADifferentKey</a> is meant to reach people outside of the <a href="https://twitter.com/hashtag/autism?src=hash&ref_src=twsrc%5Etfw">#autism</a> community. But it mostly reached inside the community, so they are taking it to the next level with a film rooted in the book but going farther and looking in the future.</div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/1048033904051945473?ref_src=twsrc%5Etfw">October 5, 2018</a></blockquote>
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Even though Donvan’s autistic brother-in-law’s future is not assured, things are still better than they used to be — kids get educated, Refrigerator mother theories have been soundly rejected. <a href="https://twitter.com/hashtag/InADifferentKey?src=hash&ref_src=twsrc%5Etfw">#InADifferentKey</a> <a href="https://twitter.com/hashtag/autism?src=hash&ref_src=twsrc%5Etfw">#autism</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/1048034727297335296?ref_src=twsrc%5Etfw">October 5, 2018</a></blockquote>
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Sidenote: We were told not to bring our autistic kids but the organizer brought her kid so. Hmm. I would have liked to bring Leo. <a href="https://twitter.com/hashtag/InADifferentKey?src=hash&ref_src=twsrc%5Etfw">#InADifferentKey</a> <a href="https://twitter.com/hashtag/autism?src=hash&ref_src=twsrc%5Etfw">#autism</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/1048035100686864385?ref_src=twsrc%5Etfw">October 5, 2018</a></blockquote>
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Apparently the <a href="https://twitter.com/hashtag/InADifferentKey?src=hash&ref_src=twsrc%5Etfw">#InADifferentKey</a> authors are not listening to <a href="https://twitter.com/hashtag/actuallyAutistic?src=hash&ref_src=twsrc%5Etfw">#actuallyAutistic</a> feedback because they are complaining about pushback re: their take on ABA because in their opinion it has “changed” & been “Naturalized.” When the issue is normalization & compliance & trauma. <a href="https://twitter.com/hashtag/autism?src=hash&ref_src=twsrc%5Etfw">#autism</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/1048035943360290816?ref_src=twsrc%5Etfw">October 5, 2018</a></blockquote>
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Parents were on the first wave of autism advocacy, true. But <a href="https://twitter.com/hashtag/InADifferentKey?src=hash&ref_src=twsrc%5Etfw">#InADifferentKey</a> authors are complaining that they got criticism for ignoring <a href="https://twitter.com/hashtag/autistic?src=hash&ref_src=twsrc%5Etfw">#autistic</a> adults. No, they were criticized for character assassination of self-advocate autistic adults. <a href="https://twitter.com/hashtag/autism?src=hash&ref_src=twsrc%5Etfw">#autism</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/1048036588096090112?ref_src=twsrc%5Etfw">October 5, 2018</a></blockquote>
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Caren Zucker wants the film to include more non-speaking <a href="https://twitter.com/hashtag/autistic?src=hash&ref_src=twsrc%5Etfw">#autistic</a> people. Unclear if that means we’ll hear <a href="https://twitter.com/hashtag/ActuallyAutistic?src=hash&ref_src=twsrc%5Etfw">#ActuallyAutistic</a> perspectives or parent perspectives. <a href="https://twitter.com/hashtag/InADifferentKey?src=hash&ref_src=twsrc%5Etfw">#InADifferentKey</a> <a href="https://twitter.com/hashtag/autism?src=hash&ref_src=twsrc%5Etfw">#autism</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/1048037691764355072?ref_src=twsrc%5Etfw">October 5, 2018</a></blockquote>
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<a href="https://twitter.com/hashtag/InADifferentKey?src=hash&ref_src=twsrc%5Etfw">#InADifferentKey</a> authors were here to talk to the researchers who had exclusive access to Asperger’s papers about his role in murdering <a href="https://twitter.com/hashtag/autistic?src=hash&ref_src=twsrc%5Etfw">#autistic</a> kids, so I’m guessing that means Edith Sheffer. <a href="https://twitter.com/hashtag/autism?src=hash&ref_src=twsrc%5Etfw">#autism</a><br />
<br />
More information:<a href="https://t.co/uKOW9iMvyv">https://t.co/uKOW9iMvyv</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/1048038225783083008?ref_src=twsrc%5Etfw">October 5, 2018</a></blockquote>
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The <a href="https://twitter.com/hashtag/InADifferentKey?src=hash&ref_src=twsrc%5Etfw">#InADifferentKey</a> authors are covering police mistreatment of <a href="https://twitter.com/hashtag/autistic?src=hash&ref_src=twsrc%5Etfw">#autistic</a> people in their new film. <a href="https://twitter.com/hashtag/autism?src=hash&ref_src=twsrc%5Etfw">#autism</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/1048039330986352641?ref_src=twsrc%5Etfw">October 5, 2018</a></blockquote>
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One thing Caren Zucker is making clear is that Donald Triplett’s mom took advantage of her wealth to make things better for her autistic son. <a href="https://twitter.com/hashtag/InADifferentKey?src=hash&ref_src=twsrc%5Etfw">#InADifferentKey</a> <a href="https://twitter.com/hashtag/autism?src=hash&ref_src=twsrc%5Etfw">#autism</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/1048039687934234626?ref_src=twsrc%5Etfw">October 5, 2018</a></blockquote>
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Interviews with Donald Triplett in the <a href="https://twitter.com/hashtag/InADifferentKey?src=hash&ref_src=twsrc%5Etfw">#InADifferentKey</a> film (not finished, we are seeing unfinished excerpts) are the BEST THING EVER. He is so awesome. stimming subtly the whole time. And the community loves him. Acceptance/inclusion are what all <a href="https://twitter.com/hashtag/Autistic?src=hash&ref_src=twsrc%5Etfw">#Autistic</a> ppl deserve.<a href="https://twitter.com/hashtag/autism?src=hash&ref_src=twsrc%5Etfw">#autism</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/1048040345722740736?ref_src=twsrc%5Etfw">October 5, 2018</a></blockquote>
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Donald Triplett is a happy man. Because he is completely included and accepted for who he is. Caren Zucker is wondering how that can happen for her son. Um, by being a <a href="https://twitter.com/hashtag/MilitantInclusionista?src=hash&ref_src=twsrc%5Etfw">#MilitantInclusionista</a>? Which seems to be a goal of the film, so yay. <a href="https://twitter.com/hashtag/InADifferentKey?src=hash&ref_src=twsrc%5Etfw">#InADifferentKey</a> <a href="https://twitter.com/hashtag/autism?src=hash&ref_src=twsrc%5Etfw">#autism</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/1048040797600243712?ref_src=twsrc%5Etfw">October 5, 2018</a></blockquote>
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So the end of the <a href="https://twitter.com/hashtag/InADifferentKey?src=hash&ref_src=twsrc%5Etfw">#InADifferentKey</a> rushes are showing <a href="https://twitter.com/hashtag/ActuallyAutistic?src=hash&ref_src=twsrc%5Etfw">#ActuallyAutistic</a> people with their parents. Some of the <a href="https://twitter.com/hashtag/autistic?src=hash&ref_src=twsrc%5Etfw">#autistic</a> people are speaking, but mostly parents are explaining their kids to the camera with kids right there. <a href="https://twitter.com/hashtag/InADifferentKey?src=hash&ref_src=twsrc%5Etfw">#InADifferentKey</a> <a href="https://twitter.com/hashtag/autism?src=hash&ref_src=twsrc%5Etfw">#autism</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/1048041162336956417?ref_src=twsrc%5Etfw">October 5, 2018</a></blockquote>
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Like seriously. Donald Triplett lives in Mississippi. How did they even manage to have no POC in the <a href="https://twitter.com/hashtag/InADifferentKey?src=hash&ref_src=twsrc%5Etfw">#InADifferentKey</a> film rushes we saw? <a href="https://twitter.com/hashtag/autism?src=hash&ref_src=twsrc%5Etfw">#autism</a> <a href="https://t.co/J9UrtbthE3">https://t.co/J9UrtbthE3</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/1048042323857174528?ref_src=twsrc%5Etfw">October 5, 2018</a></blockquote>
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So <a href="https://twitter.com/JillEscher?ref_src=twsrc%5Etfw">@jillescher</a> is flogging that “autisms” horse again, with the straw man framing of “monolithic disorder” (which even DSM doesn’t claim) versus “cluster of traits seen in wide variety of complex pathologies and conditions,” which is meaningless. <a href="https://twitter.com/hashtag/InADifferentKey?src=hash&ref_src=twsrc%5Etfw">#InADifferentKey</a> film? <a href="https://twitter.com/hashtag/autism?src=hash&ref_src=twsrc%5Etfw">#autism</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/1048044453426954240?ref_src=twsrc%5Etfw">October 5, 2018</a></blockquote>
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A long take on why <a href="https://twitter.com/JillEscher?ref_src=twsrc%5Etfw">@JillEscher</a>’s “autisms” position is … not evidence based and is really fairly awful pseudoscience:<a href="https://t.co/nHiwe42w3N">https://t.co/nHiwe42w3N</a> <a href="https://twitter.com/hashtag/InADifferentKey?src=hash&ref_src=twsrc%5Etfw">#InADifferentKey</a> <a href="https://twitter.com/hashtag/autism?src=hash&ref_src=twsrc%5Etfw">#autism</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/1048046364918132736?ref_src=twsrc%5Etfw">October 5, 2018</a></blockquote>
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Explaining to <a href="https://twitter.com/drdebah?ref_src=twsrc%5Etfw">@drdebah</a> that I can’t get up and ask a question to the IADK folks because my body will not comply; I am so angry that I will just start crying. Which is making my raging mind furious. Apologies to anyone I am disappointing.</div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/1048048777091641344?ref_src=twsrc%5Etfw">October 5, 2018</a></blockquote>
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I completely agree with Caren Zucker’s message that what we need is radical inclusion. Everyone deserves to have an education. No one deserves to be institutionalized [even in “neo-institutions]. <a href="https://twitter.com/hashtag/InADifferentKey?src=hash&ref_src=twsrc%5Etfw">#InADifferentKey</a> <a href="https://twitter.com/hashtag/autism?src=hash&ref_src=twsrc%5Etfw">#autism</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/1048049637733498882?ref_src=twsrc%5Etfw">October 5, 2018</a></blockquote>
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Audience member want to know how <a href="https://twitter.com/hashtag/InADifferentKey?src=hash&ref_src=twsrc%5Etfw">#InADifferentKey</a> contrasts and compares with <a href="https://twitter.com/hashtag/NeuroTribes?src=hash&ref_src=twsrc%5Etfw">#NeuroTribes</a>. (Audience is rapt.) <a href="https://twitter.com/hashtag/autism?src=hash&ref_src=twsrc%5Etfw">#autism</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/1048050061920284672?ref_src=twsrc%5Etfw">October 5, 2018</a></blockquote>
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Donovan on exclusive access to Asperger’s papers by <a href="https://twitter.com/drdebah?ref_src=twsrc%5Etfw">@drdebah</a>: “Silberman initially said that Asperger was a champion of odd boys, and threw the Nazis off their scent. Then, Jeremy/iah, his German-English translator of Asperger’s info told him story was deeper.” <a href="https://twitter.com/hashtag/InADifferentKey?src=hash&ref_src=twsrc%5Etfw">#InADifferentKey</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/1048052882400993284?ref_src=twsrc%5Etfw">October 5, 2018</a></blockquote>
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Donvan: “So then translator had found Czech’s documents, and Czech readily talked to them, came to his house in Washington, went to the archives in Vienna, which are public. Because archives were assumed destroyed, but this wasn’t true.” <a href="https://twitter.com/hashtag/InADifferentKey?src=hash&ref_src=twsrc%5Etfw">#InADifferentKey</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/1048053276858441728?ref_src=twsrc%5Etfw">October 5, 2018</a></blockquote>
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So because <a href="https://twitter.com/hashtag/InADifferentKey?src=hash&ref_src=twsrc%5Etfw">#InADifferentKey</a> was competing with <a href="https://twitter.com/hashtag/NeuroTribes?src=hash&ref_src=twsrc%5Etfw">#NeuroTribes</a>, and its authors realized they had a scoop, and they asked Czech if they could have an exclusive, and he agreed. And he made them wait two years."</div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/1048053538004205569?ref_src=twsrc%5Etfw">October 5, 2018</a></blockquote>
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So once <a href="https://twitter.com/hashtag/InADifferentKey?src=hash&ref_src=twsrc%5Etfw">#InADifferentKey</a> was published and the exclusive landed, Silberman was able to update <a href="https://twitter.com/hashtag/NeuroTribes?src=hash&ref_src=twsrc%5Etfw">#NeuroTribes</a> to reflect the new information.</div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/1048053864232935424?ref_src=twsrc%5Etfw">October 5, 2018</a></blockquote>
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Both Donvan and Zucker are clear that they don’t think Asperger is a hero *or* a monster. <a href="https://twitter.com/hashtag/InADifferentKey?src=hash&ref_src=twsrc%5Etfw">#InADifferentKey</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/1048054423186956294?ref_src=twsrc%5Etfw">October 5, 2018</a></blockquote>
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And now we have a parent ranting about why “self advocate” is even a word. OH-KAY. <a href="https://twitter.com/hashtag/InADifferentKey?src=hash&ref_src=twsrc%5Etfw">#InADifferentKey</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/1048054560231632897?ref_src=twsrc%5Etfw">October 5, 2018</a></blockquote>
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So people aren’t really asking Donvan and Zucker questions so much as ranting about personal situations that the authors aren’t really going to be able to address? But processing is a thing so. <a href="https://twitter.com/hashtag/InADifferentKey?src=hash&ref_src=twsrc%5Etfw">#InADifferentKey</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/1048054984397316096?ref_src=twsrc%5Etfw">October 5, 2018</a></blockquote>
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Audience member with actual question: is the <a href="https://twitter.com/hashtag/InaDifferentKey?src=hash&ref_src=twsrc%5Etfw">#InaDifferentKey</a> movie going to address the myth of “high functioning” autistics who despite appearances are actually quite disabled? Zucker: Movie will include voices of people of all abilities [paraphrasing]. <a href="https://twitter.com/hashtag/autism?src=hash&ref_src=twsrc%5Etfw">#autism</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/1048057167759081472?ref_src=twsrc%5Etfw">October 5, 2018</a></blockquote>
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Donvan: Self-advocates who can speak for themselves, get picked on in middle school, get serially fired, etc., will talk about their own experiences in the <a href="https://twitter.com/hashtag/InADifferentKey?src=hash&ref_src=twsrc%5Etfw">#InADifferentKey</a> film.</div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/1048057381538557953?ref_src=twsrc%5Etfw">October 5, 2018</a></blockquote>
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Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-5563550.post-61251829250222937272018-10-01T17:36:00.000-07:002018-10-02T17:45:37.483-07:00In A Different Key: Not The Autism Book You're Looking For (Live-Tweeted Review)<span style="font-size: x-small;">Content note for abuse and murder of autistic people.</span><br />
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I live-tweeted my reading of John Donvan's and Caren Zucker's "The Story of Autism" book In A Different Key when it was first published in early 2016. As the Storify platform my live-tweet compilation was originally published at has since gone under, I am republishing it here.<br />
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Verdict: Though well-intended and containing some interesting points, In a Different Key lacks empathy for autistic people themselves—even justifying parents murdering their autistic children. It also contains sloppy factual errors. Details in tweets/RTs below.<br />
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For other perspectives on the book, see relevant writings and reviews, also from 2016:<br />
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<li>M. Kelter: <a href="http://www.thinkingautismguide.com/2016/01/in-different-key-one-deeply-flawed.html" rel="nofollow" target="_blank">In A Different Key: One (Deeply Flawed) Story of Autism</a></li>
<li>Francesca Happé: <a href="http://www.the-tls.co.uk/articles/public/autistic-expression/" rel="nofollow" target="_blank">Autistic Expression</a></li>
<li>Emily Willingham: <a href="http://www.sfchronicle.com/books/article/In-a-Different-Key-by-John-Donvan-and-6778305.php?t=1be6630190&cmpid=twitter-premium" rel="nofollow" target="_blank">‘In a Different Key,’ by John Donvan and Caren Zucker</a></li>
<li>Amanda Vivian: <a href="http://adeepercountry.blogspot.com/2016/02/the-softer-side-of-searing.html" rel="nofollow" target="_blank">The Softer Side of Searing</a></li>
<li>Saskia Baron: <a href="http://www.theguardian.com/books/2016/jan/17/different-key-story-autism-review-donvan-zucker" rel="nofollow" target="_blank">In a Different Key: The Story of Autism by John Donvan and Caren Zucker – review</a></li>
<li>Ari Ne'eman: <a href="http://www.vox.com/2016/1/21/10801846/autism-in-a-different-key" rel="nofollow" target="_blank">The errors — and revelations — in two major new books about autism</a></li>
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Note that in the interim, additional information has emerged about the details of Hans Asperger's work with the Nazi regime, and also also the regarding how researcher Herman Czech specifically kept this information away from NeuroTribes author Steve Silberman despite repeated requests, yet shared it with Donvan and Zucker during the two books' parallel writing period. For details, see <a href="http://www.thinkingautismguide.com/2018/04/on-hans-asperger-nazis-and-autism.html">Silberman's "conversation across neurologies" with Max Sparrow</a>, on "how competition for priority can distort the process of excavating history."</div>
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<b>Live-Tweets</b> (From 140-character-era Twitter)
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<a class="s-quote-author-name" href="https://twitter.com/shannonrosa" target="_blank">Shannon Rosa</a><a class="s-quote-author-username" href="https://twitter.com/shannonrosa" target="_blank">@shannonrosa</a></div>
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Live-tweeting my read of new book <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a>, from my perspective as a parent of a 1:1 <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> teen, and a <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23neurodiversity" rel="nofollow" target="_blank" title="#neurodiversity">#neurodiversity</a> supporter.</div>
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<span class="timestamp" data-timestamp="2016-01-16T20:48:40.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/688462899216396288" rel="nofollow" target="_blank">Sat, Jan 16 2016 20:48:40</a></span></div>
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Tone of <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> from page one: focus on “forms” of <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a>, rather than very real, unifying <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> commonalities. <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23NotHelpful" rel="nofollow" target="_blank" title="#NotHelpful">#NotHelpful</a></div>
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<span class="timestamp" data-timestamp="2016-01-16T20:51:25.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/688463588135075840" rel="nofollow" target="_blank">Sat, Jan 16 2016 20:51:25</a></span></div>
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Also <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> page 1: Parents fatalistic over not being able to “give” their child speech. Communication=more than speech. <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a></div>
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<span class="timestamp" data-timestamp="2016-01-16T20:53:27.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/688464103182995456" rel="nofollow" target="_blank">Sat, Jan 16 2016 20:53:27</a></span></div>
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Parents need to hear that all communication is valid. Focusing on speech when other options available = damaging.. <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a></div>
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<span class="timestamp" data-timestamp="2016-01-16T20:54:59.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/688464487779708928" rel="nofollow" target="_blank">Sat, Jan 16 2016 20:54:59</a></span></div>
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Focusing on the audience crying when an <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> girl “awkwardly” hugs Katy Perry is inspiration porn. <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a></div>
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<span class="timestamp" data-timestamp="2016-01-16T20:58:02.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/688465255467335680" rel="nofollow" target="_blank">Sat, Jan 16 2016 20:58:02</a></span></div>
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If you’re not familiar with the term “Inspiration Porn,” here’s a decent primer: <a href="https://t.co/qqqcE5b1PM" rel="nofollow" target="_blank" title="http://www.ted.com/talks/stella_young_i_m_not_your_inspiration_thank_you_very_much"><span class="tco-ellipsis"><span style="left: -9999px; position: absolute;"> </span></span><span style="left: -9999px; position: absolute;">http://www.</span><span class="js-display-url">ted.com/talks/stella_y</span><span style="left: -9999px; position: absolute;">oung_i_m_not_your_inspiration_thank_you_very_much</span><span class="tco-ellipsis"><span style="left: -9999px; position: absolute;"> </span>…</span></a> <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a></div>
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<span class="timestamp" data-timestamp="2016-01-16T21:02:18.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/688466329049812992" rel="nofollow" target="_blank">Sat, Jan 16 2016 21:02:18</a></span></div>
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Parent voices = most “constant presence” in <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a> history only b/c <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> adults = unrecognized for most of 20th cent. <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a></div>
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<span class="timestamp" data-timestamp="2016-01-16T21:06:59.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/688467507112316928" rel="nofollow" target="_blank">Sat, Jan 16 2016 21:06:59</a></span></div>
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Donald Triplett’s <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> perception of the world is characterized as “inflexibility,” rather than his reality. <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a></div>
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<span class="timestamp" data-timestamp="2016-01-17T01:54:25.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/688539840187478016" rel="nofollow" target="_blank">Sun, Jan 17 2016 01:54:25</a></span></div>
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Stop bemoaning that <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> kids don’t show affection like non-autistic kids. How about focusing on how they DO? <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a></div>
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<span class="timestamp" data-timestamp="2016-01-17T01:55:44.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/688540174628732928" rel="nofollow" target="_blank">Sun, Jan 17 2016 01:55:44</a></span></div>
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Leaning against one’s parent if eye contact & touch are extremely aversive is an *extraordinary* show of affection. <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a></div>
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<span class="timestamp" data-timestamp="2016-01-17T01:56:32.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/688540376089505793" rel="nofollow" target="_blank">Sun, Jan 17 2016 01:56:32</a></span></div>
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Of course it’s hard for non-autistic parents, if they don’t understand <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> kids may express love differently. <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a></div>
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<span class="timestamp" data-timestamp="2016-01-17T01:57:57.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/688540733498724352" rel="nofollow" target="_blank">Sun, Jan 17 2016 01:57:57</a></span></div>
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Glad clinical roots of terms like “idiot” are discussed — hopefully will help folks understand objections to usage. <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a></div>
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<span class="timestamp" data-timestamp="2016-01-17T01:58:41.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/688540917133737984" rel="nofollow" target="_blank">Sun, Jan 17 2016 01:58:41</a></span></div>
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Social shaming prevented parents of kids w/disabilities from talking to each other, forming community, for decades. <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a></div>
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<span class="timestamp" data-timestamp="2016-01-17T01:59:47.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/688541192380760064" rel="nofollow" target="_blank">Sun, Jan 17 2016 01:59:47</a></span></div>
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Professional shaming dehumanized kids w/disabilities as “burdens,” families were *always* told to institutionalize. <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a></div>
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<span class="timestamp" data-timestamp="2016-01-17T02:00:31.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/688541378553360386" rel="nofollow" target="_blank">Sun, Jan 17 2016 02:00:31</a></span></div>
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Prev. eras: Parents were told it wasn’t “fair” to them, “normal” siblings to raise kids w/disabilities at home. :( <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a><br />
<a class="s-posted" href="https://twitter.com/shannonrosa/status/688541713573384192" rel="nofollow" target="_blank">Sun, Jan 17 2016 02:01:21</a></div>
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Donald Triplett’s preference for things over people makes <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> sense — people are unpredictable, thus scary. <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a></div>
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<span class="timestamp" data-timestamp="2016-01-17T02:02:28.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/688541867739226112" rel="nofollow" target="_blank">Sun, Jan 17 2016 02:02:28</a></span></div>
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Kanner recognized that, even when he began identifying kids as <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a>, “[<a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a>] was there before.” <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a></div>
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<span class="timestamp" data-timestamp="2016-01-17T02:02:57.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/688541989839572992" rel="nofollow" target="_blank">Sun, Jan 17 2016 02:02:57</a></span></div>
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Retro-diagnosing historical figures as probably <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> is not a new thing; happened during Kanner’s era, too. <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a></div>
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<span class="timestamp" data-timestamp="2016-01-17T02:03:37.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/688542158438043649" rel="nofollow" target="_blank">Sun, Jan 17 2016 02:03:37</a></span></div>
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Autistic developmental trajectories differ from “typical” ones, but Triplett exemplifies how development continues. <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a></div>
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<span class="timestamp" data-timestamp="2016-01-17T02:17:57.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/688545762930642945" rel="nofollow" target="_blank">Sun, Jan 17 2016 02:17:57</a></span></div>
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Donald Triplett isn’t “proof that some leave the most debilitating aspects of <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a> behind," but proof of <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23neurodiversity" rel="nofollow" target="_blank" title="#neurodiversity">#neurodiversity</a> <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a></div>
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<span class="timestamp" data-timestamp="2016-01-17T02:25:41.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/688547709867790337" rel="nofollow" target="_blank">Sun, Jan 17 2016 02:25:41</a></span></div>
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<a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a>’s phrasings perpetuate bias: D. Triplett is declared "a strange kid," rather than *perceived* as strange by others. <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a></div>
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<span class="timestamp" data-timestamp="2016-01-17T20:58:34.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/688827774925053952" rel="nofollow" target="_blank">Sun, Jan 17 2016 20:58:34</a></span></div>
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Later, however, Triplett described as “strangest-seeming” kid. Much better, making difference about perception. <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a></div>
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<span class="timestamp" data-timestamp="2016-01-17T21:01:53.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/688828613345415168" rel="nofollow" target="_blank">Sun, Jan 17 2016 21:01:53</a></span></div>
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“It was a challenge to be friends with Donald [Triplett].” Well, not all <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23Autistic" rel="nofollow" target="_blank" title="#Autistic">#Autistic</a> kids seek or desire friendship. <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> autism</div>
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<span class="timestamp" data-timestamp="2016-01-17T21:06:04.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/688829664932925441" rel="nofollow" target="_blank">Sun, Jan 17 2016 21:06:04</a></span></div>
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Eventually, Donald Triplett had acceptance of his family, & allies who fought off bullies at high school. Good. <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a></div>
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<span class="timestamp" data-timestamp="2016-01-17T21:07:49.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/688830102994423808" rel="nofollow" target="_blank">Sun, Jan 17 2016 21:07:49</a></span></div>
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Donald Triplett’s visibility & inclusion lead to eventual community acceptance. We need more of that, even today. <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a></div>
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<span class="timestamp" data-timestamp="2016-01-17T21:16:31.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/688832295159992320" rel="nofollow" target="_blank">Sun, Jan 17 2016 21:16:31</a></span></div>
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The horrifying cruelty of the “Refrigerator Mother” label cannot be (re)emphasized enough, as <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> recognizes. <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a></div>
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<span class="timestamp" data-timestamp="2016-01-17T21:37:58.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/688837693854203905" rel="nofollow" target="_blank">Sun, Jan 17 2016 21:37:58</a></span></div>
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Why describing someone as “severely” <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> isn’t useful. On functioning labels & <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a>: <a href="https://t.co/9xs0aWG3nf" rel="nofollow" target="_blank" title="http://ollibean.com/2013/09/26/problems-functioning-labels/"><span class="tco-ellipsis"><span style="left: -9999px; position: absolute;"> </span></span><span style="left: -9999px; position: absolute;">http://</span><span class="js-display-url">ollibean.com/2013/09/26/pro</span><span style="left: -9999px; position: absolute;">blems-functioning-labels/</span><span class="tco-ellipsis"><span style="left: -9999px; position: absolute;"> </span>…</span></a> <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a></div>
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<span class="timestamp" data-timestamp="2016-01-17T22:06:20.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/688844829724258304" rel="nofollow" target="_blank">Sun, Jan 17 2016 22:06:20</a></span></div>
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Long-standing negative media bias: <a class="tweet-url username" data-screen-name="TIME" href="https://twitter.com/TIME" rel="nofollow" target="_blank">@TIME</a> covered <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a> only after Kanner switched f/Inborn to Refrigerator Mother origin. <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a></div>
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<span class="timestamp" data-timestamp="2016-01-18T18:09:44.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/689147676173008898" rel="nofollow" target="_blank">Mon, Jan 18 2016 18:09:44</a></span></div>
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I would have been broken by the Refrigerator Mother <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a> professionals, had my son and I lived in that era. Devastating. <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a></div>
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<span class="timestamp" data-timestamp="2016-01-18T19:17:47.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/689164803927969792" rel="nofollow" target="_blank">Mon, Jan 18 2016 19:17:47</a></span></div>
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Rimland discovered most “refrigerator mothers” had non-autistic as well as <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> kids -- theory wasn't evidence-based. <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a></div>
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<span class="timestamp" data-timestamp="2016-01-18T19:39:54.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/689170366598479872" rel="nofollow" target="_blank">Mon, Jan 18 2016 19:39:54</a></span></div>
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Again with <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> terminology. “Head bangers” are 80s/90s rockers. Otherwise, head banging is what a person does, not an identity.</div>
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<span class="timestamp" data-timestamp="2016-01-18T20:04:03.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/689176444241485825" rel="nofollow" target="_blank">Mon, Jan 18 2016 20:04:03</a></span></div>
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<a class="tweet-url username" data-screen-name="justthevax" href="https://twitter.com/justthevax" rel="nofollow" target="_blank">@justthevax</a> Medical causes behind self-injury in <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> people are discussed in a <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23TPGA" rel="nofollow" target="_blank" title="#TPGA">#TPGA</a> series: <a href="https://t.co/3d4vPV2Bxv" rel="nofollow" target="_blank" title="http://www.thinkingautismguide.com/2016/01/when-autistic-kids-and-teens-are.html"><span class="tco-ellipsis"><span style="left: -9999px; position: absolute;"> </span></span><span style="left: -9999px; position: absolute;">http://www.</span><span class="js-display-url">thinkingautismguide.com/2016/01/when-a</span><span style="left: -9999px; position: absolute;">utistic-kids-and-teens-are.html</span><span class="tco-ellipsis"><span style="left: -9999px; position: absolute;"> </span>…</span></a> <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a></div>
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<span class="timestamp" data-timestamp="2016-01-20T18:34:12.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/689878607615909889" rel="nofollow" target="_blank">Wed, Jan 20 2016 18:34:12</a></span></div>
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“Tragic tendency of <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a> advocacy groups” to turn on each other. No—Infighting b/t passionate folk happens w/ALL groups. <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a><br />
<a href="https://twitter.com/thinkingautism/status/689247106662436864">Tues, Jan 19 2016 10:44:11</a></div>
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Many horrors against <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> people included <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a>; worst so far: authors implying Dougie Gibson’s murder was a “mercy killing"</div>
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<span class="timestamp" data-timestamp="2016-01-19T01:07:05.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/689252707434020864" rel="nofollow" target="_blank">Tue, Jan 19 2016 01:07:05</a></span></div>
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<tr><td style="text-align: center;"><a href="https://2.bp.blogspot.com/-jpoiyaTCxWY/W7J7Y-AjCxI/AAAAAAAAHDo/CrI7fh5w5M8hSZmUSxAOorBhiFSa-6acQCLcBGAs/s1600/IADK%2BDougie%2BMercy%2BKilling.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1200" data-original-width="1600" height="240" src="https://2.bp.blogspot.com/-jpoiyaTCxWY/W7J7Y-AjCxI/AAAAAAAAHDo/CrI7fh5w5M8hSZmUSxAOorBhiFSa-6acQCLcBGAs/s320/IADK%2BDougie%2BMercy%2BKilling.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">[image: Photo from the page of In A Different Key in which<br />
Dougie Gibson's murder is called a "mercy killing."]</td></tr>
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It should never ever EVER be implied that killing an innocent <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> person is a desperate parent’s only choice. <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a></div>
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<span class="timestamp" data-timestamp="2016-01-19T01:08:40.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/689253106287116288" rel="nofollow" target="_blank">Tue, Jan 19 2016 01:08:40</a></span></div>
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"Desperate parents driven to murder” is one of the most dangerous, pernicious autism myths. There are always other choices. <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a></div>
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<span class="timestamp" data-timestamp="2016-01-19T01:10:18.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/689253516666220544" rel="nofollow" target="_blank">Tue, Jan 19 2016 01:10:18</a></span></div>
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<a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23Autistic" rel="nofollow" target="_blank" title="#Autistic">#Autistic</a> kids & families need & deserve support. But should NEVER be implied that, sans supports, murder = understandable. <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a></div>
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<span class="timestamp" data-timestamp="2016-01-19T01:11:24.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/689253794501103617" rel="nofollow" target="_blank">Tue, Jan 19 2016 01:11:24</a></span></div>
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The stress of a child’s disability should NEVER be a mitigating factor in murder/abuse: <a href="https://t.co/CEJAQdOY41" rel="nofollow" target="_blank" title="http://www.thinkingautismguide.com/2014/11/how-asan-helped-issy-stapleton-get.html"><span class="tco-ellipsis"><span style="left: -9999px; position: absolute;"> </span></span><span style="left: -9999px; position: absolute;">http://www.</span><span class="js-display-url">thinkingautismguide.com/2014/11/how-as</span><span style="left: -9999px; position: absolute;">an-helped-issy-stapleton-get.html</span><span class="tco-ellipsis"><span style="left: -9999px; position: absolute;"> </span>…</span></a> <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a></div>
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<span class="timestamp" data-timestamp="2016-01-19T01:14:12.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/689254497659453441" rel="nofollow" target="_blank">Tue, Jan 19 2016 01:14:12</a></span></div>
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Dougie Gibson was a murder victim. Yet <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> dwells on and sympathizes with the story of the father who killed him. <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a></div>
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<span class="timestamp" data-timestamp="2016-01-19T01:17:29.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/689255321563303937" rel="nofollow" target="_blank">Tue, Jan 19 2016 01:17:29</a></span></div>
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<a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23Autistic" rel="nofollow" target="_blank" title="#Autistic">#Autistic</a> people & families deserve support, often get none. A *separate* conversation frm murder. <a href="https://t.co/AohbkugVch" rel="nofollow" target="_blank" title="http://www.thinkingautismguide.com/2015/10/when-parents-murder-disabled-children.html"><span class="tco-ellipsis"><span style="left: -9999px; position: absolute;"> </span></span><span style="left: -9999px; position: absolute;">http://www.</span><span class="js-display-url">thinkingautismguide.com/2015/10/when-p</span><span style="left: -9999px; position: absolute;">arents-murder-disabled-children.html</span><span class="tco-ellipsis"><span style="left: -9999px; position: absolute;"> </span>…</span></a> <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a></div>
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<span class="timestamp" data-timestamp="2016-01-19T01:20:47.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/689256155181264896" rel="nofollow" target="_blank">Tue, Jan 19 2016 01:20:47</a></span></div>
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BTW, you know who also wrote about lack of supports justifying parents’ murder of their <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> kids? Andrew Wakefield. <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a></div>
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<span class="timestamp" data-timestamp="2016-01-19T01:30:00.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/689258471766675457" rel="nofollow" target="_blank">Tue, Jan 19 2016 01:30:00</a></span></div>
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Dougie Gibson’s father convicted of murder, accd’ing to <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a>, only b/c jury didn’t get how hard “severe” <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a> is—on parents.</div>
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<span class="timestamp" data-timestamp="2016-01-19T02:34:33.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/689274716519976960" rel="nofollow" target="_blank">Tue, Jan 19 2016 02:34:33</a></span></div>
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Other <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a> parents recognized the despair of Dougie Gibson’s father, argues <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a>, in defense of murdering <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> children.</div>
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<span class="timestamp" data-timestamp="2016-01-19T02:38:33.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/689275725975650305" rel="nofollow" target="_blank">Tue, Jan 19 2016 02:38:33</a></span></div>
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<a class="s-quote-author-name" href="https://twitter.com/justthevax" target="_blank">Catherina+ScienceMom</a><a class="s-quote-author-username" href="https://twitter.com/justthevax" target="_blank">@justthevax</a></div>
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<a class="tweet-url username" data-screen-name="thinkingautism" href="https://twitter.com/thinkingautism" rel="nofollow" target="_blank">@thinkingautism</a> <a class="tweet-url username" data-screen-name="lizditz" href="https://twitter.com/lizditz" rel="nofollow" target="_blank">@lizditz</a> <a class="tweet-url username" data-screen-name="DrPaulOffit" href="https://twitter.com/DrPaulOffit" rel="nofollow" target="_blank">@DrPaulOffit</a> I had to stop reading <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> after their sympathy for a child murderer :(</div>
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<a class="s-via twitter" href="http://twitter.com/shannonrosa" rel="nofollow" target="_blank"> @shannonrosa</a><br />
<a href="https://twitter.com/justthevax/status/694291113029562368">Tue, Feb 6 2016 08:47:54</a></div>
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Which is worse: The systematic horrors of state institutions for <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a> etc, or public’s systematic amnesia about them? <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a></div>
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<span class="timestamp" data-timestamp="2016-01-19T03:15:39.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/689285059640082432" rel="nofollow" target="_blank">Tue, Jan 19 2016 03:15:39</a></span></div>
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While <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> constantly describes <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a> as extreme hardship for parents, it pays little attention to <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> kids themselves.</div>
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<span class="timestamp" data-timestamp="2016-01-19T05:11:39.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/689314255066148865" rel="nofollow" target="_blank">Tue, Jan 19 2016 05:11:39</a></span></div>
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Seems like <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> could at least consider the misery of an <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> child who is constantly being misunderstood and unaccommodated.</div>
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<span class="timestamp" data-timestamp="2016-01-19T05:15:09.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/689315133093380097" rel="nofollow" target="_blank">Tue, Jan 19 2016 05:15:09</a></span></div>
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In what universe is it OK or amusing to lock a non-speaking <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> child in a room with an IRS agent to escape an audit? <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a></div>
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<span class="timestamp" data-timestamp="2016-01-19T05:22:58.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/689317100922339328" rel="nofollow" target="_blank">Tue, Jan 19 2016 05:22:58</a></span></div>
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<a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> is frustrating: The history of how <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> kids became visible and educated matters. But so does honoring their humanity.</div>
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<span class="timestamp" data-timestamp="2016-01-19T05:38:10.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/689320928010895360" rel="nofollow" target="_blank">Tue, Jan 19 2016 05:38:10</a></span></div>
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Distressed to think of the Archie Castos we’ll never know about; all the <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> folk institutionalized, then forgotten. <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a></div>
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<span class="timestamp" data-timestamp="2016-01-19T06:10:50.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/689329147185774592" rel="nofollow" target="_blank">Tue, Jan 19 2016 06:10:50</a></span></div>
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People who assume <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> adults are “not like my child” per <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> need to know how mistaken they are: <span class="tco-ellipsis"><span style="left: -9999px; position: absolute;"><a href="https://t.co/ED9WNvchs9" rel="nofollow" target="_blank" title="http://www.judyendow.com/advocacy/the-pseudo-logic-of-not-autistic-enough/"> </a></span></span><span style="left: -9999px; position: absolute;"><a href="https://t.co/ED9WNvchs9" rel="nofollow" target="_blank" title="http://www.judyendow.com/advocacy/the-pseudo-logic-of-not-autistic-enough/">http://www.</a></span><span class="js-display-url"><a href="https://t.co/ED9WNvchs9" rel="nofollow" target="_blank" title="http://www.judyendow.com/advocacy/the-pseudo-logic-of-not-autistic-enough/">judyendow.com/advocacy/the-p</a></span><span style="left: -9999px; position: absolute;"><a href="https://t.co/ED9WNvchs9" rel="nofollow" target="_blank" title="http://www.judyendow.com/advocacy/the-pseudo-logic-of-not-autistic-enough/">seudo-logic-of-not-autistic-enough/</a></span><span class="tco-ellipsis"><a href="https://t.co/ED9WNvchs9" rel="nofollow" target="_blank" title="http://www.judyendow.com/advocacy/the-pseudo-logic-of-not-autistic-enough/"><span style="left: -9999px; position: absolute;"> </span>…</a></span></div>
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<span class="timestamp" data-timestamp="2016-01-19T18:46:19.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/689519270074527745" rel="nofollow" target="_blank">Tue, Jan 19 2016 18:46:19</a></span></div>
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It’s depressing, all the ways people have tried to force <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> kids to talk: LSD, shock treatments, beatings. <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a></div>
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<span class="timestamp" data-timestamp="2016-01-19T20:04:39.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/689538982162509825" rel="nofollow" target="_blank">Tue, Jan 19 2016 20:04:39</a></span></div>
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The 12-inch cattle prod that Lovaas used on <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> children entrusted to his care at UCLA delivered 1,400 volts. <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a></div>
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<span class="timestamp" data-timestamp="2016-01-19T20:14:50.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/689541546694213632" rel="nofollow" target="_blank">Tue, Jan 19 2016 20:14:50</a></span></div>
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Lovaas’s cattle prod felt like “having a tooth drilled by a dentist who had run out of Novocain” Those poor <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> kids. <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a></div>
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<span class="timestamp" data-timestamp="2016-01-19T20:18:09.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/689542383558496257" rel="nofollow" target="_blank">Tue, Jan 19 2016 20:18:09</a></span></div>
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(I took classes at the UCLA Neuropsychiatric institute — where Lovaas worked — as a student in the late '80s. Am nauseated.)</div>
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<span class="timestamp" data-timestamp="2016-01-19T20:16:22.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/689541934658916352" rel="nofollow" target="_blank">Tue, Jan 19 2016 20:16:22</a></span></div>
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When <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> children are self-injurious, usually a good reason, like illness/sensory. Yet <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> characterizes as “behavior.”</div>
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<span class="timestamp" data-timestamp="2016-01-19T20:24:17.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/689543924155715584" rel="nofollow" target="_blank">Tue, Jan 19 2016 20:24:17</a></span></div>
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It may take time/sleuthing to find out why a kid is self-injurious, but the cause is rarely merely “being <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a>.” cc: <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a></div>
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<span class="timestamp" data-timestamp="2016-01-19T20:26:32.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/689544492454510593" rel="nofollow" target="_blank">Tue, Jan 19 2016 20:26:32</a></span></div>
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Even tho not understood in Lovaas's time, would be helpful to let readers know <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> “stimming” helps self-regulation. <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a></div>
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<span class="timestamp" data-timestamp="2016-01-19T20:29:49.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/689545315964194816" rel="nofollow" target="_blank">Tue, Jan 19 2016 20:29:49</a></span></div>
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“Lovaas achieved similar mastery of the self-destructiveness of two other children,” i.e., he abused them into submission. <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a></div>
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<span class="timestamp" data-timestamp="2016-01-19T20:35:21.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/689546709240709121" rel="nofollow" target="_blank">Tue, Jan 19 2016 20:35:21</a></span></div>
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<a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> is frank about Lovaas’s abuses of <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> children, but doesn’t exactly condemn them, either, not when they “worked."</div>
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<span class="timestamp" data-timestamp="2016-01-19T21:23:04.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/689558717168091136" rel="nofollow" target="_blank">Tue, Jan 19 2016 21:23:04</a></span></div>
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Did not realize that Rimland essentially pimped/proselytized for Lovaas, in recruiting parents for ABA. <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a></div>
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<span class="timestamp" data-timestamp="2016-01-19T21:37:37.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/689562381391831040" rel="nofollow" target="_blank">Tue, Jan 19 2016 21:37:37</a></span></div>
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Interested to hear about the background and development of the TEACCH method. Somewhat like ABA, sans cattle prods. <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a></div>
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<span class="timestamp" data-timestamp="2016-01-20T03:06:47.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/689645215825530881" rel="nofollow" target="_blank">Wed, Jan 20 2016 03:06:47</a></span></div>
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TEACCH methods are still widely used to educate <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> students—in fact, it’s the method my son’s school employs. <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a></div>
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<span class="timestamp" data-timestamp="2016-01-20T03:08:03.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/689645537058942976" rel="nofollow" target="_blank">Wed, Jan 20 2016 03:08:03</a></span></div>
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Oh FFS. Families do not “deal with <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a>.” That is no way to describe parenting ANY child, in need of support, or not. <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a></div>
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<span class="timestamp" data-timestamp="2016-01-20T03:14:02.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/689647040284864513" rel="nofollow" target="_blank">Wed, Jan 20 2016 03:14:02</a></span></div>
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When Lovaas had his second heyday in the '80s, he was careful to avoid “cure,” used euphemism “recovered” instead. <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a></div>
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<span class="timestamp" data-timestamp="2016-01-20T06:36:45.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/689698055482834944" rel="nofollow" target="_blank">Wed, Jan 20 2016 06:36:45</a></span></div>
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You want to talk gnarly infighting? How about the extended, public, litigious Schopler (TEACCH)/Lovaas (ABA) brawl? <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferent" rel="nofollow" target="_blank" title="#InADifferent">#InADifferent</a> <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a></div>
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<span class="timestamp" data-timestamp="2016-01-20T06:47:06.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/689700660267233280" rel="nofollow" target="_blank">Wed, Jan 20 2016 06:47:06</a></span></div>
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“Schopler believed Lovaas had played [..] with the scientific truth, & that people would get hurt…” A valid fear indeed. <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a></div>
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<span class="timestamp" data-timestamp="2016-01-20T06:48:55.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/689701118327132160" rel="nofollow" target="_blank">Wed, Jan 20 2016 06:48:55</a></span></div>
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Things ABA proponents tend not to mention: Lovaas’s own results were unreplicated, therefore scientifically questionable. <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a></div>
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<span class="timestamp" data-timestamp="2016-01-20T07:10:28.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/689706541298020353" rel="nofollow" target="_blank">Wed, Jan 20 2016 07:10:28</a></span></div>
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<a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> describes support for Lovaas/ABA methods stagnating— until catalyzed by the publication of Let Me Hear Your Voice. <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a></div>
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<span class="timestamp" data-timestamp="2016-01-20T07:12:37.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/689707085353775104" rel="nofollow" target="_blank">Wed, Jan 20 2016 07:12:37</a></span></div>
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Recently told a friend in Ghana that US didn’t guarantee special education until the IDEA passed in 1990. She was aghast. <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a></div>
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<span class="timestamp" data-timestamp="2016-01-20T07:16:05.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/689707956397408256" rel="nofollow" target="_blank">Wed, Jan 20 2016 07:16:05</a></span></div>
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Past US researchers tended to see <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a> as an emergency, British researchers tended to want to understand it. Still true. <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a></div>
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<span class="timestamp" data-timestamp="2016-01-20T18:52:04.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/689883105776107520" rel="nofollow" target="_blank">Wed, Jan 20 2016 18:52:04</a></span></div>
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Briton Sybil Elgar’s early 1960s insight: “Visual processing tends to trump auditory processing in some kids with <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a>.” <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a></div>
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<span class="timestamp" data-timestamp="2016-01-20T19:44:06.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/689896200988790787" rel="nofollow" target="_blank">Wed, Jan 20 2016 19:44:06</a></span></div>
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First official UK <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a> prevalence rate of 4.5/10,000 was completely arbitrary, by researcher Lotter’s own admission. <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a></div>
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<span class="timestamp" data-timestamp="2016-01-20T20:10:15.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/689902783416242176" rel="nofollow" target="_blank">Wed, Jan 20 2016 20:10:15</a></span></div>
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.<a class="tweet-url username" data-screen-name="utafrith" href="https://twitter.com/utafrith" rel="nofollow" target="_blank">@utafrith</a>’s early research w/<a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> kids confirmed that, for many, visual processing trumped auditory. <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a></div>
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<span class="timestamp" data-timestamp="2016-01-20T21:40:27.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/689925482351988737" rel="nofollow" target="_blank">Wed, Jan 20 2016 21:40:27</a></span></div>
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Genetics, & the possibility of their influencing cognition/development, was a psychiatry taboo mid-20th century. <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a> <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a></div>
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<span class="timestamp" data-timestamp="2016-01-20T21:46:53.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/689927101818888194" rel="nofollow" target="_blank">Wed, Jan 20 2016 21:46:53</a></span></div>
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Genetics matter in <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a>. This has been clear since Rutter's & Holstein’s 1974 UK twin studies. <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a></div>
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<span class="timestamp" data-timestamp="2016-01-21T00:10:26.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/689963227074170880" rel="nofollow" target="_blank">Thu, Jan 21 2016 00:10:26</a></span></div>
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When <a class="tweet-url username" data-screen-name="sbaroncohen" href="https://twitter.com/sbaroncohen" rel="nofollow" target="_blank">@sbaroncohen</a> first ran Sally-Ann Theory of Mind tests, not every <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> kid failed. 15% didn’t, in fact. <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a></div>
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<span class="timestamp" data-timestamp="2016-01-21T00:36:05.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/689969679364952064" rel="nofollow" target="_blank">Thu, Jan 21 2016 00:36:05</a></span></div>
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Again <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> dehumanizes: Lorna Wing unique among researchers in going "home to <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a> at night,” rather than home to her child.</div>
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<span class="timestamp" data-timestamp="2016-01-21T00:59:20.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/689975530867838976" rel="nofollow" target="_blank">Thu, Jan 21 2016 00:59:20</a></span></div>
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Why is <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> so sympathetic to Lorna Wing’s efforts to expand the <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a> spectrum, yet so often hostile to those she included?</div>
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<span class="timestamp" data-timestamp="2016-01-21T03:29:37.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/690013350588203008" rel="nofollow" target="_blank">Thu, Jan 21 2016 03:29:37</a></span></div>
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You can read Lorna Wing’s original paper "Asperger Syndrome: A Clinical Account" here: <a href="https://t.co/UqHWkPSZLI" rel="nofollow" target="_blank" title="http://www.mugsy.org/wing2.htm"><span class="tco-ellipsis"><span style="left: -9999px; position: absolute;"> </span></span><span style="left: -9999px; position: absolute;">http://www.</span><span class="js-display-url">mugsy.org/wing2.htm</span><span style="left: -9999px; position: absolute;"></span><span class="tco-ellipsis"><span style="left: -9999px; position: absolute;"> </span></span></a> <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a></div>
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<span class="timestamp" data-timestamp="2016-01-21T14:27:48.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/690178988765937664" rel="nofollow" target="_blank">Thu, Jan 21 2016 14:27:48</a></span></div>
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Lorna Wing created “Asperger syndrome” not to differentiate <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> people f/each other, but to get them needed supports. <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a></div>
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<span class="timestamp" data-timestamp="2016-01-21T14:29:48.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/690179491990110208" rel="nofollow" target="_blank">Thu, Jan 21 2016 14:29:48</a></span></div>
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<a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a>’s bias against Hans Asperger, in featuring only mostly his negative statements re: the boys he treated, is iffy journalism.</div>
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<span class="timestamp" data-timestamp="2016-01-21T14:23:09.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/690177819402338304" rel="nofollow" target="_blank">Thu, Jan 21 2016 14:23:09</a></span></div>
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Hans Asperger saw “complete agreement in some respects” between the kids he reported on, & those Leo Kanner’s saw. <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a></div>
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<span class="timestamp" data-timestamp="2016-01-23T20:33:53.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/690995892325724160" rel="nofollow" target="_blank">Sat, Jan 23 2016 20:33:53</a></span></div>
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Seems odd for <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> to insist Asperger only studied Asperger-y <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> kids, when historical record shows otherwise. <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a></div>
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<span class="timestamp" data-timestamp="2016-01-23T20:41:38.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/690997844698746880" rel="nofollow" target="_blank">Sat, Jan 23 2016 20:41:38</a></span></div>
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Wish <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> would stop with “families dealing with" <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a> or DD, say “families who try to support their <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> kids” instead.</div>
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<span class="timestamp" data-timestamp="2016-01-23T22:22:57.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/691023340723523585" rel="nofollow" target="_blank">Sat, Jan 23 2016 22:22:57</a></span></div>
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<a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> is correct that many families of <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> kids actively fight acceptance, in actively try to find “real” child inside. :(</div>
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<span class="timestamp" data-timestamp="2016-01-23T22:25:19.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/691023934787981313" rel="nofollow" target="_blank">Sat, Jan 23 2016 22:25:19</a></span></div>
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<a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> overlooks <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> heroes in championing parent/professional <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a> history roles. <a class="tweet-url username" data-screen-name="ejwillingham" href="https://twitter.com/ejwillingham" rel="nofollow" target="_blank">@ejwillingham</a>: <span class="tco-ellipsis"><span style="left: -9999px; position: absolute;"><a href="https://t.co/PRm7Sfvd7l" rel="nofollow" target="_blank" title="http://www.sfchronicle.com/books/article/In-a-Different-Key-by-John-Donvan-and-6778305.php?t=1be6630190&cmpid=twitter-premium"> </a></span></span><span style="left: -9999px; position: absolute;"><a href="https://t.co/PRm7Sfvd7l" rel="nofollow" target="_blank" title="http://www.sfchronicle.com/books/article/In-a-Different-Key-by-John-Donvan-and-6778305.php?t=1be6630190&cmpid=twitter-premium">http://www.</a></span><span class="js-display-url"><a href="https://t.co/PRm7Sfvd7l" rel="nofollow" target="_blank" title="http://www.sfchronicle.com/books/article/In-a-Different-Key-by-John-Donvan-and-6778305.php?t=1be6630190&cmpid=twitter-premium">sfchronicle.com/books/article/</a></span><span style="left: -9999px; position: absolute;"><a href="https://t.co/PRm7Sfvd7l" rel="nofollow" target="_blank" title="http://www.sfchronicle.com/books/article/In-a-Different-Key-by-John-Donvan-and-6778305.php?t=1be6630190&cmpid=twitter-premium">In-a-Different-Key-by-John-Donvan-and-6778305.php?t=1be6630190&cmpid=twitter-premium</a></span><span class="tco-ellipsis"><a href="https://t.co/PRm7Sfvd7l" rel="nofollow" target="_blank" title="http://www.sfchronicle.com/books/article/In-a-Different-Key-by-John-Donvan-and-6778305.php?t=1be6630190&cmpid=twitter-premium"><span style="left: -9999px; position: absolute;"> </span>…</a></span></div>
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<span class="timestamp" data-timestamp="2016-01-23T17:30:36.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/690949768751636481" rel="nofollow" target="_blank">Sat, Jan 23 2016 17:30:36</a></span></div>
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Irresponsible: <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> focuses on desperation of parents to communicate w/<a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> kids when result is tragedy, ignores valid AAC.</div>
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<span class="timestamp" data-timestamp="2016-01-24T22:20:05.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/691385006791401472" rel="nofollow" target="_blank">Sun, Jan 24 2016 22:20:05</a></span></div>
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Everyone can communicate. We need to find better support strategies, not belabor well-known communication failures. <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a></div>
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<span class="timestamp" data-timestamp="2016-01-24T22:25:49.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/691386449623543809" rel="nofollow" target="_blank">Sun, Jan 24 2016 22:25:49</a></span></div>
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Many <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> people can’t speak/react typically due to motor/processing difficulties. <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> has yet to consider that (p. 371).</div>
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<span class="timestamp" data-timestamp="2016-01-24T22:29:29.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/691387370730496000" rel="nofollow" target="_blank">Sun, Jan 24 2016 22:29:29</a></span></div>
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Erm, <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a>, not only African countries treat <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a> with exorcism. American <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> kids have died: <span class="tco-ellipsis"><span style="left: -9999px; position: absolute;"><a href="https://t.co/L9rsJ0Vq0Y" rel="nofollow" target="_blank" title="http://www.cbsnews.com/news/autistic-boy-dies-during-exorcism/"> </a></span></span><span style="left: -9999px; position: absolute;"><a href="https://t.co/L9rsJ0Vq0Y" rel="nofollow" target="_blank" title="http://www.cbsnews.com/news/autistic-boy-dies-during-exorcism/">http://www.</a></span><span class="js-display-url"><a href="https://t.co/L9rsJ0Vq0Y" rel="nofollow" target="_blank" title="http://www.cbsnews.com/news/autistic-boy-dies-during-exorcism/">cbsnews.com/news/autistic-</a></span><span style="left: -9999px; position: absolute;"><a href="https://t.co/L9rsJ0Vq0Y" rel="nofollow" target="_blank" title="http://www.cbsnews.com/news/autistic-boy-dies-during-exorcism/">boy-dies-during-exorcism/</a></span><span class="tco-ellipsis"><a href="https://t.co/L9rsJ0Vq0Y" rel="nofollow" target="_blank" title="http://www.cbsnews.com/news/autistic-boy-dies-during-exorcism/"><span style="left: -9999px; position: absolute;"> </span>…</a></span></div>
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<span class="timestamp" data-timestamp="2016-01-24T22:35:57.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/691388998401421312" rel="nofollow" target="_blank">Sun, Jan 24 2016 22:35:57</a></span></div>
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<a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> oversimplifies, cites “acrimony” between those who view <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a> as tragedy, & those who view it as gift/identity. (1)</div>
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<span class="timestamp" data-timestamp="2016-01-24T22:38:58.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/691389757742448640" rel="nofollow" target="_blank">Sun, Jan 24 2016 22:38:58</a></span></div>
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Complaints re: “<a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a> is a gift” = misinterpretations of <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> folk demanding recognizing abilities *&* disabilities. <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a></div>
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<span class="timestamp" data-timestamp="2016-01-24T22:44:30.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/691391149806780416" rel="nofollow" target="_blank">Sun, Jan 24 2016 22:44:30</a></span></div>
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Was 2013 DSM <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a> revision more contentious than previous—or was it merely 1st in which <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> people participated? <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a></div>
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<span class="timestamp" data-timestamp="2016-01-27T04:12:29.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/692198466756448259" rel="nofollow" target="_blank">Wed, Jan 27 2016 04:12:29</a></span></div>
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<a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> doesn’t actually mention <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> participation in 2013 DSM; only mentions <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a> revision being particularly contentious</div>
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<span class="timestamp" data-timestamp="2016-01-27T04:14:03.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/692198859670421504" rel="nofollow" target="_blank">Wed, Jan 27 2016 04:14:03</a></span></div>
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Was Asperger an <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a> criteria “splitter,” not a “lumper” like Wing? Or did he merely defer to Kanner’s territorialism? <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a></div>
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<span class="timestamp" data-timestamp="2016-01-27T04:16:25.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/692199458067587073" rel="nofollow" target="_blank">Wed, Jan 27 2016 04:16:25</a></span></div>
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<a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a>’s authors must now buy the entire internet a drink, due to invoking cancer analogies in discussing <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> heterogeneity.</div>
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<span class="timestamp" data-timestamp="2016-01-27T04:17:47.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/692199801262379010" rel="nofollow" target="_blank">Wed, Jan 27 2016 04:17:47</a></span></div>
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Apologies that it's taking me so long to live-tweet reading <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a>: 1) Life interrupts & 2) It’s painful to read, on many levels.</div>
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<span class="timestamp" data-timestamp="2016-01-28T22:46:26.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/692841188253048832" rel="nofollow" target="_blank">Thu, Jan 28 2016 22:46:26</a></span></div>
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Kids like Dov Shestack are both chronically ill *and* <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a>. Co-occurring. Illness is not, as <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> suggests, part of <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a>.</div>
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<span class="timestamp" data-timestamp="2016-01-28T23:03:43.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/692845540141170688" rel="nofollow" target="_blank">Thu, Jan 28 2016 23:03:43</a></span></div>
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<a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> readers: <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> people do indeed have higher rates of co-occuring medical conditions. But <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a> is *not* medical.</div>
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<span class="timestamp" data-timestamp="2016-01-28T23:07:37.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/692846519460843520" rel="nofollow" target="_blank">Thu, Jan 28 2016 23:07:37</a></span></div>
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Many of my dissatisfactions w/dehumanizing language used in <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a>, coincidentally detailed <a class="tweet-url username" data-screen-name="Spectrumgo" href="https://twitter.com/Spectrum" rel="nofollow" target="_blank">@Spectrum</a>: <span class="tco-ellipsis"><span style="left: -9999px; position: absolute;"><a href="https://t.co/ipO6wbvMN6" rel="nofollow" target="_blank" title="https://spectrumnews.org/opinion/viewpoint/before-talking-about-autism-listen-to-families/"> </a></span></span><span style="left: -9999px; position: absolute;"><a href="https://t.co/ipO6wbvMN6" rel="nofollow" target="_blank" title="https://spectrumnews.org/opinion/viewpoint/before-talking-about-autism-listen-to-families/">https://</a></span><span class="js-display-url"><a href="https://t.co/ipO6wbvMN6" rel="nofollow" target="_blank" title="https://spectrumnews.org/opinion/viewpoint/before-talking-about-autism-listen-to-families/">spectrumnews.org/opinion/viewpo</a></span><span style="left: -9999px; position: absolute;"><a href="https://t.co/ipO6wbvMN6" rel="nofollow" target="_blank" title="https://spectrumnews.org/opinion/viewpoint/before-talking-about-autism-listen-to-families/">int/before-talking-about-autism-listen-to-families/</a></span><span class="tco-ellipsis"><a href="https://t.co/ipO6wbvMN6" rel="nofollow" target="_blank" title="https://spectrumnews.org/opinion/viewpoint/before-talking-about-autism-listen-to-families/"><span style="left: -9999px; position: absolute;"> </span>…</a></span></div>
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<span class="timestamp" data-timestamp="2016-01-28T23:10:06.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/692847144206610433" rel="nofollow" target="_blank">Thu, Jan 28 2016 23:10:06</a></span></div>
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Yes, $$ can influence direction of <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a> research, as <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> notes. Hence need for skepticism, reliance on unbiased expertise.</div>
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<span class="timestamp" data-timestamp="2016-01-28T23:16:03.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/692848642273595394" rel="nofollow" target="_blank">Thu, Jan 28 2016 23:16:03</a></span></div>
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Most non-scientists don’t have a clue about differentiating b/t good and questionable <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a> science. Why so many get duped. <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a></div>
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<span class="timestamp" data-timestamp="2016-01-28T23:18:02.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/692849141529993216" rel="nofollow" target="_blank">Thu, Jan 28 2016 23:18:02</a></span></div>
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Pseudo- or misguided <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a> science (ECT for “behaviors," epigenetic causation) look plausible to lay folk yet horrify ethical researchers.</div>
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<span class="timestamp" data-timestamp="2016-01-28T23:22:30.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/692850267390242816" rel="nofollow" target="_blank">Thu, Jan 28 2016 23:22:30</a></span></div>
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Dehumanizing phrases to avoid, yet used in <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a>: “Living with <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a>” when discussing parent rather than <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> experiences.</div>
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<span class="timestamp" data-timestamp="2016-01-29T19:17:17.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/693150940958846976" rel="nofollow" target="_blank">Fri, Jan 29 2016 19:17:17</a></span></div>
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LWA = “Living With Autism" <span class="tco-ellipsis"><span style="left: -9999px; position: absolute;"><a href="https://t.co/5PoCtKg2Co" rel="nofollow" target="_blank" title="https://twitter.com/soundcube/status/693152263146184704"> </a></span></span><span style="left: -9999px; position: absolute;"><a href="https://t.co/5PoCtKg2Co" rel="nofollow" target="_blank" title="https://twitter.com/soundcube/status/693152263146184704">https://</a></span><span class="js-display-url"><a href="https://t.co/5PoCtKg2Co" rel="nofollow" target="_blank" title="https://twitter.com/soundcube/status/693152263146184704">twitter.com/soundcube/stat</a></span><span style="left: -9999px; position: absolute;"><a href="https://t.co/5PoCtKg2Co" rel="nofollow" target="_blank" title="https://twitter.com/soundcube/status/693152263146184704">us/693152263146184704</a></span><span class="tco-ellipsis"><a href="https://t.co/5PoCtKg2Co" rel="nofollow" target="_blank" title="https://twitter.com/soundcube/status/693152263146184704"><span style="left: -9999px; position: absolute;"> </span>…</a></span></div>
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<span class="timestamp" data-timestamp="2016-01-29T19:25:19.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/693152963250925569" rel="nofollow" target="_blank">Fri, Jan 29 2016 19:25:19</a></span></div>
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Unsurprised to learn ‘90s era org Cure Autism Now had a veto-enabled parent-only science advisory board. <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a></div>
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<span class="timestamp" data-timestamp="2016-01-29T19:20:11.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/693151674303537152" rel="nofollow" target="_blank">Fri, Jan 29 2016 19:20:11</a></span></div>
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Interesting to read about IMFAR/Int’l Meeting For <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23Autism" rel="nofollow" target="_blank" title="#Autism">#Autism</a> Research roots as a joint CAN/NAAR curebie/biomed initiative, in <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a>.</div>
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<span class="timestamp" data-timestamp="2016-01-29T22:07:25.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/693193757622046720" rel="nofollow" target="_blank">Fri, Jan 29 2016 22:07:25</a></span></div>
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If only books like <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> could focus on *why* an <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> person might smear poop, instead of framing as horrorshow for parents.</div>
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<span class="timestamp" data-timestamp="2016-01-30T19:28:02.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/693516034288947200" rel="nofollow" target="_blank">Sat, Jan 30 2016 19:28:02</a></span></div>
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Helpful: Insights into *why* <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> kids poop-smear, plus how to react & redirect. Take note, <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23inadifferentkey" rel="nofollow" target="_blank" title="#inadifferentkey">#inadifferentkey</a>: <span class="tco-ellipsis"><span style="left: -9999px; position: absolute;"><a href="https://t.co/rEw1hiol58" rel="nofollow" target="_blank" title="http://autisticatedalmayne.com/autism/really-autism-yeah-really/"> </a></span></span><span style="left: -9999px; position: absolute;"><a href="https://t.co/rEw1hiol58" rel="nofollow" target="_blank" title="http://autisticatedalmayne.com/autism/really-autism-yeah-really/">http://</a></span><span class="js-display-url"><a href="https://t.co/rEw1hiol58" rel="nofollow" target="_blank" title="http://autisticatedalmayne.com/autism/really-autism-yeah-really/">autisticatedalmayne.com/autism/really-</a></span><span style="left: -9999px; position: absolute;"><a href="https://t.co/rEw1hiol58" rel="nofollow" target="_blank" title="http://autisticatedalmayne.com/autism/really-autism-yeah-really/">autism-yeah-really/</a></span><span class="tco-ellipsis"><a href="https://t.co/rEw1hiol58" rel="nofollow" target="_blank" title="http://autisticatedalmayne.com/autism/really-autism-yeah-really/"><span style="left: -9999px; position: absolute;"> </span>…</a></span></div>
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<span class="timestamp" data-timestamp="2016-02-03T18:11:11.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/694946248021794816" rel="nofollow" target="_blank">Wed, Feb 03 2016 18:11:11</a></span></div>
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<a class="s-quote-author-name" href="https://twitter.com/thinkingautism" target="_blank">ThinkingAutismGuide</a><a class="s-quote-author-username" href="https://twitter.com/thinkingautism" target="_blank">@thinkingautism</a></div>
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<a class="tweet-url username" data-screen-name="SherriPizza" href="https://twitter.com/SherriPizza" rel="nofollow" target="_blank">@SherriPizza</a> lots of possible reasons: <a href="https://t.co/uttx5Khypf" rel="nofollow" target="_blank" title="http://www.thinkingautismguide.com/2016/01/when-autistic-kids-and-teens-are.html"><span class="tco-ellipsis"><span style="left: -9999px; position: absolute;"> </span></span><span style="left: -9999px; position: absolute;">http://www.</span><span class="js-display-url">thinkingautismguide.com/2016/01/when-a</span><span style="left: -9999px; position: absolute;">utistic-kids-and-teens-are.html</span><span class="tco-ellipsis"><span style="left: -9999px; position: absolute;"> </span>…</span></a> & yes cleanup sucks. But focus on the act too often used to dehumanize person</div>
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<span class="timestamp" data-timestamp="2016-01-30T19:33:34.000Z"><a class="s-posted" href="https://twitter.com/thinkingautism/status/693517429557702656" rel="nofollow" target="_blank">Sat, Jan 30 2016 19:33:34</a></span></div>
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<a class="tweet-url username" data-screen-name="SherriPizza" href="https://twitter.com/SherriPizza" rel="nofollow" target="_blank">@SherriPizza</a> Different when people talk privately. Book broadcasts an <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> kid’s misunderstood struggles as horror for parents only.</div>
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<span class="timestamp" data-timestamp="2016-01-30T19:35:57.000Z"><a class="s-posted" href="https://twitter.com/thinkingautism/status/693518029112487936" rel="nofollow" target="_blank">Sat, Jan 30 2016 19:35:57</a></span></div>
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<a class="s-quote-author-name" href="https://twitter.com/thinkingautism" target="_blank">ThinkingAutismGuide</a><a class="s-quote-author-username" href="https://twitter.com/thinkingautism" target="_blank">@thinkingautism</a></div>
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<a class="tweet-url username" data-screen-name="SherriPizza" href="https://twitter.com/SherriPizza" rel="nofollow" target="_blank">@SherriPizza</a> It’s not that parents aren’t allowed to have feelings. It’s that <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> is ~exclusively about parent perspectives.</div>
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<span class="timestamp" data-timestamp="2016-01-30T19:42:13.000Z"><a class="s-posted" href="https://twitter.com/thinkingautism/status/693519604866379776" rel="nofollow" target="_blank">Sat, Jan 30 2016 19:42:13</a></span></div>
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<a class="s-quote-author-name" href="https://twitter.com/thinkingautism" target="_blank">ThinkingAutismGuide</a><a class="s-quote-author-username" href="https://twitter.com/thinkingautism" target="_blank">@thinkingautism</a></div>
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<a class="tweet-url username" data-screen-name="SherriPizza" href="https://twitter.com/SherriPizza" rel="nofollow" target="_blank">@SherriPizza</a> And yes, it can be desperately lonely as a parents. But books like <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> make it worse, IMHO, by compounding stigma.</div>
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<span class="timestamp" data-timestamp="2016-01-30T19:43:19.000Z"><a class="s-posted" href="https://twitter.com/thinkingautism/status/693519883422666752" rel="nofollow" target="_blank">Sat, Jan 30 2016 19:43:19</a></span></div>
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<a class="s-quote-author-name" href="https://twitter.com/shannonrosa" target="_blank">Shannon Rosa</a><a class="s-quote-author-username" href="https://twitter.com/shannonrosa" target="_blank">@shannonrosa</a></div>
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If <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> ppl “act out” in ways that horrify non-autistic ppl, usu. for good reasons. Take note <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a>: <span class="tco-ellipsis"><span style="left: -9999px; position: absolute;"><a href="https://t.co/3d4vPVkcp3" rel="nofollow" target="_blank" title="http://www.thinkingautismguide.com/2016/01/when-autistic-kids-and-teens-are.html"> </a></span></span><span style="left: -9999px; position: absolute;"><a href="https://t.co/3d4vPVkcp3" rel="nofollow" target="_blank" title="http://www.thinkingautismguide.com/2016/01/when-autistic-kids-and-teens-are.html">http://www.</a></span><span class="js-display-url"><a href="https://t.co/3d4vPVkcp3" rel="nofollow" target="_blank" title="http://www.thinkingautismguide.com/2016/01/when-autistic-kids-and-teens-are.html">thinkingautismguide.com/2016/01/when-a</a></span><span style="left: -9999px; position: absolute;"><a href="https://t.co/3d4vPVkcp3" rel="nofollow" target="_blank" title="http://www.thinkingautismguide.com/2016/01/when-autistic-kids-and-teens-are.html">utistic-kids-and-teens-are.html</a></span><span class="tco-ellipsis"><a href="https://t.co/3d4vPVkcp3" rel="nofollow" target="_blank" title="http://www.thinkingautismguide.com/2016/01/when-autistic-kids-and-teens-are.html"><span style="left: -9999px; position: absolute;"> </span>…</a></span></div>
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<span class="timestamp" data-timestamp="2016-01-30T19:31:01.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/693516786298294272" rel="nofollow" target="_blank">Sat, Jan 30 2016 19:31:01</a></span></div>
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Good to see <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> acknowledge (tho 3/4 thru): <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> insights are lifelines for parents who struggle to understand their kids.</div>
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<span class="timestamp" data-timestamp="2016-01-30T19:39:34.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/693518940291469312" rel="nofollow" target="_blank">Sat, Jan 30 2016 19:39:34</a></span></div>
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<a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a>, like <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23NeuroTribes" rel="nofollow" target="_blank" title="#NeuroTribes">#NeuroTribes</a> before it, has good info on backstory of Rain Man.</div>
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<span class="timestamp" data-timestamp="2016-01-31T19:25:57.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/693877900211191809" rel="nofollow" target="_blank">Sun, Jan 31 2016 19:25:57</a></span></div>
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It’s not for <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a>’s non-<a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> authors to declare Dustin Hoffman’s <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a> portrayal “flawless.” Ask <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23ActuallyAutistic" rel="nofollow" target="_blank" title="#ActuallyAutistic">#ActuallyAutistic</a> folk.</div>
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<span class="timestamp" data-timestamp="2016-01-31T19:30:32.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/693879051417595904" rel="nofollow" target="_blank">Sun, Jan 31 2016 19:30:32</a></span></div>
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Temple Grandin’s approval of Claire Danes’s portrayal of her, as told in <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a>? Now that matters. <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23ActuallyAutistic" rel="nofollow" target="_blank" title="#ActuallyAutistic">#ActuallyAutistic</a></div>
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<span class="timestamp" data-timestamp="2016-01-31T20:43:33.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/693897430010441728" rel="nofollow" target="_blank">Sun, Jan 31 2016 20:43:33</a></span></div>
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Not in <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a>: Temple Grandin’s mother refused to institutionalize her bc saw institutions as journalist. <span class="tco-ellipsis"><span style="left: -9999px; position: absolute;"><a href="https://t.co/xZSPkXvOBj" rel="nofollow" target="_blank" title="http://meaningoflife.tv/videos/32212"> </a></span></span><span style="left: -9999px; position: absolute;"><a href="https://t.co/xZSPkXvOBj" rel="nofollow" target="_blank" title="http://meaningoflife.tv/videos/32212">http://</a></span><span class="js-display-url"><a href="https://t.co/xZSPkXvOBj" rel="nofollow" target="_blank" title="http://meaningoflife.tv/videos/32212">meaningoflife.tv/videos/32212</a></span><span style="left: -9999px; position: absolute;"></span><span class="tco-ellipsis"><span style="left: -9999px; position: absolute;"><a href="https://t.co/xZSPkXvOBj" rel="nofollow" target="_blank" title="http://meaningoflife.tv/videos/32212"> </a></span></span></div>
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<span class="timestamp" data-timestamp="2016-01-31T19:45:15.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/693882754971230209" rel="nofollow" target="_blank">Sun, Jan 31 2016 19:45:15</a></span></div>
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Before Temple Grandin/late ‘80s, <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23actuallyautistic" rel="nofollow" target="_blank" title="#actuallyautistic">#actuallyautistic</a> insights weren’t available to parents/public. <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> Thankfully no longer true.</div>
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<span class="timestamp" data-timestamp="2016-01-31T19:51:54.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/693884430511771650" rel="nofollow" target="_blank">Sun, Jan 31 2016 19:51:54</a></span></div>
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<a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23Autism" rel="nofollow" target="_blank" title="#Autism">#Autism</a> professionals have important roles, but there is no substitute for <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23actuallyautistic" rel="nofollow" target="_blank" title="#actuallyautistic">#actuallyautistic</a> insights, in understanding <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> people.</div>
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<span class="timestamp" data-timestamp="2016-01-31T19:54:17.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/693885031232634880" rel="nofollow" target="_blank">Sun, Jan 31 2016 19:54:17</a></span></div>
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<a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> finally cites <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a> understanding/compassion; but only as way to help Temple Grandin normalize, & not her <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> QoL.</div>
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<span class="timestamp" data-timestamp="2016-01-31T20:01:51.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/693886933416587264" rel="nofollow" target="_blank">Sun, Jan 31 2016 20:01:51</a></span></div>
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Ugh. Did not realize Gerson Saines acceptance speech for Temple Grandin Emmy catastrophized re: <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a> epidemic myth. Sigh <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a></div>
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<span class="timestamp" data-timestamp="2016-01-31T20:47:37.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/693898450077810688" rel="nofollow" target="_blank">Sun, Jan 31 2016 20:47:37</a></span></div>
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Like <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23NeuroTribes" rel="nofollow" target="_blank" title="#NeuroTribes">#NeuroTribes</a>, <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> shows there is no <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a> “epidemic,” only changes in diagnostic criteria, and diagnostic substitution.</div>
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<span class="timestamp" data-timestamp="2016-01-31T20:34:08.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/693895056193761280" rel="nofollow" target="_blank">Sun, Jan 31 2016 20:34:08</a></span></div>
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As <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> notes, <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a> is under diagnosed in kids of color/low SES kids. But it is also missed in girls: <span class="tco-ellipsis"><span style="left: -9999px; position: absolute;"><a href="https://t.co/ECFiVeHuVN" rel="nofollow" target="_blank" title="https://www.blogher.com/how-can-we-do-better-our-autistic-girls"> </a></span></span><span style="left: -9999px; position: absolute;"><a href="https://t.co/ECFiVeHuVN" rel="nofollow" target="_blank" title="https://www.blogher.com/how-can-we-do-better-our-autistic-girls">https://www.</a></span><span class="js-display-url"><a href="https://t.co/ECFiVeHuVN" rel="nofollow" target="_blank" title="https://www.blogher.com/how-can-we-do-better-our-autistic-girls">blogher.com/how-can-we-do-</a></span><span style="left: -9999px; position: absolute;"><a href="https://t.co/ECFiVeHuVN" rel="nofollow" target="_blank" title="https://www.blogher.com/how-can-we-do-better-our-autistic-girls">better-our-autistic-girls</a></span><span class="tco-ellipsis"><a href="https://t.co/ECFiVeHuVN" rel="nofollow" target="_blank" title="https://www.blogher.com/how-can-we-do-better-our-autistic-girls"><span style="left: -9999px; position: absolute;"> </span>…</a></span></div>
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<span class="timestamp" data-timestamp="2016-01-31T20:36:08.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/693895560709844994" rel="nofollow" target="_blank">Sun, Jan 31 2016 20:36:08</a></span></div>
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Pls note <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a>: Poor science journalism—not lack of evidence—let Wakefield’s vaccine/<a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a> BS flourish: <span class="tco-ellipsis"><span style="left: -9999px; position: absolute;"><a href="https://t.co/t0jHoS9IMm" rel="nofollow" target="_blank" title="http://www.thinkingautismguide.com/2011/01/interview-with-seth-mnookin-author-of.html"> </a></span></span><span style="left: -9999px; position: absolute;"><a href="https://t.co/t0jHoS9IMm" rel="nofollow" target="_blank" title="http://www.thinkingautismguide.com/2011/01/interview-with-seth-mnookin-author-of.html">http://www.</a></span><span class="js-display-url"><a href="https://t.co/t0jHoS9IMm" rel="nofollow" target="_blank" title="http://www.thinkingautismguide.com/2011/01/interview-with-seth-mnookin-author-of.html">thinkingautismguide.com/2011/01/interv</a></span><span style="left: -9999px; position: absolute;"><a href="https://t.co/t0jHoS9IMm" rel="nofollow" target="_blank" title="http://www.thinkingautismguide.com/2011/01/interview-with-seth-mnookin-author-of.html">iew-with-seth-mnookin-author-of.html</a></span><span class="tco-ellipsis"><a href="https://t.co/t0jHoS9IMm" rel="nofollow" target="_blank" title="http://www.thinkingautismguide.com/2011/01/interview-with-seth-mnookin-author-of.html"><span style="left: -9999px; position: absolute;"> </span>…</a></span></div>
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<span class="timestamp" data-timestamp="2016-01-31T21:23:30.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/693907481383141376" rel="nofollow" target="_blank">Sun, Jan 31 2016 21:23:30</a></span></div>
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Speaking of bad journalism: <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> fails to point out that vaccines contained ethyl-, not methylmercury: <a href="https://t.co/448sqdGg4h" rel="nofollow" target="_blank" title="http://www.chop.edu/centers-programs/vaccine-education-center/vaccine-ingredients/thimerosal#.Vq59MPFEi2U"><span class="tco-ellipsis"><span style="left: -9999px; position: absolute;"> </span></span><span style="left: -9999px; position: absolute;">http://www.</span><span class="js-display-url">chop.edu/centers-progra</span><span style="left: -9999px; position: absolute;">ms/vaccine-education-center/vaccine-ingredients/thimerosal#.Vq59MPFEi2U</span><span class="tco-ellipsis"><span style="left: -9999px; position: absolute;"> </span>…</span></a></div>
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<span class="timestamp" data-timestamp="2016-01-31T21:35:58.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/693910617233592320" rel="nofollow" target="_blank">Sun, Jan 31 2016 21:35:58</a></span></div>
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Inexcusably bad journalism: <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> implies MMR vaccine contained Thimerosal/mercury, when it *never* did: <span class="tco-ellipsis"><span style="left: -9999px; position: absolute;"><a href="https://t.co/jTESlOcr1S" rel="nofollow" target="_blank" title="http://www.fda.gov/BiologicsBloodVaccines/SafetyAvailability/VaccineSafety/UCM096228#t1"> </a></span></span><span style="left: -9999px; position: absolute;"><a href="https://t.co/jTESlOcr1S" rel="nofollow" target="_blank" title="http://www.fda.gov/BiologicsBloodVaccines/SafetyAvailability/VaccineSafety/UCM096228#t1">http://www.</a></span><span class="js-display-url"><a href="https://t.co/jTESlOcr1S" rel="nofollow" target="_blank" title="http://www.fda.gov/BiologicsBloodVaccines/SafetyAvailability/VaccineSafety/UCM096228#t1">fda.gov/BiologicsBlood</a></span><span style="left: -9999px; position: absolute;"><a href="https://t.co/jTESlOcr1S" rel="nofollow" target="_blank" title="http://www.fda.gov/BiologicsBloodVaccines/SafetyAvailability/VaccineSafety/UCM096228#t1">Vaccines/SafetyAvailability/VaccineSafety/UCM096228#t1</a></span><span class="tco-ellipsis"><a href="https://t.co/jTESlOcr1S" rel="nofollow" target="_blank" title="http://www.fda.gov/BiologicsBloodVaccines/SafetyAvailability/VaccineSafety/UCM096228#t1"><span style="left: -9999px; position: absolute;"> </span>…</a></span></div>
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<span class="timestamp" data-timestamp="2016-01-31T21:43:59.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/693912637185220608" rel="nofollow" target="_blank">Sun, Jan 31 2016 21:43:59</a></span></div>
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Yep, anti-vax/<a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a> parents’ Achilles' heel was always “lack of convincing scientific support for an unproven hypothesis” <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a></div>
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<span class="timestamp" data-timestamp="2016-02-01T05:53:41.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/694035872363077632" rel="nofollow" target="_blank">Mon, Feb 01 2016 05:53:41</a></span></div>
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Yep, curebie parents reject science, embrace possibly fatal <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a> pseudoscience “treatments” like chelation. Horrifying. <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a></div>
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<span class="timestamp" data-timestamp="2016-02-01T05:56:51.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/694036670287466496" rel="nofollow" target="_blank">Mon, Feb 01 2016 05:56:51</a></span></div>
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Another argument against person-first language—or for closer editing: “When injecting children with <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a>…” er, what? <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a></div>
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<span class="timestamp" data-timestamp="2016-02-01T06:01:28.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/694037832726245376" rel="nofollow" target="_blank">Mon, Feb 01 2016 06:01:28</a></span></div>
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Charming: Anti-science parents invited to top <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a> research meetings at NIH, etc. boast re: jeering and being disruptive. <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a></div>
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<span class="timestamp" data-timestamp="2016-02-01T06:07:11.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/694039268973359104" rel="nofollow" target="_blank">Mon, Feb 01 2016 06:07:11</a></span></div>
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Disingenuous: <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> cites RFK Jr’s "Deadly Immunity" Rolling Stone article, but not <a class="tweet-url username" data-screen-name="Salon" href="https://twitter.com/Salon" rel="nofollow" target="_blank">@Salon</a>’s retraction: <span class="tco-ellipsis"><span style="left: -9999px; position: absolute;"><a href="https://t.co/doTiXAH0Jf" rel="nofollow" target="_blank" title="http://www.salon.com/2011/01/16/dangerous_immunity/"> </a></span></span><span style="left: -9999px; position: absolute;"><a href="https://t.co/doTiXAH0Jf" rel="nofollow" target="_blank" title="http://www.salon.com/2011/01/16/dangerous_immunity/">http://www.</a></span><span class="js-display-url"><a href="https://t.co/doTiXAH0Jf" rel="nofollow" target="_blank" title="http://www.salon.com/2011/01/16/dangerous_immunity/">salon.com/2011/01/16/dan</a></span><span style="left: -9999px; position: absolute;"><a href="https://t.co/doTiXAH0Jf" rel="nofollow" target="_blank" title="http://www.salon.com/2011/01/16/dangerous_immunity/">gerous_immunity/</a></span><span class="tco-ellipsis"><a href="https://t.co/doTiXAH0Jf" rel="nofollow" target="_blank" title="http://www.salon.com/2011/01/16/dangerous_immunity/"><span style="left: -9999px; position: absolute;"> </span>…</a></span></div>
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<span class="timestamp" data-timestamp="2016-02-01T06:13:49.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/694040939480772610" rel="nofollow" target="_blank">Mon, Feb 01 2016 06:13:49</a></span></div>
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OK, so <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> mentions later that <a class="tweet-url username" data-screen-name="Salon" href="https://twitter.com/Salon" rel="nofollow" target="_blank">@Salon</a> retracted RFK Jr’s Deadly Immunity article on thimerosal. Several chapters later.</div>
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<span class="timestamp" data-timestamp="2016-02-01T08:02:40.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/694068334036254720" rel="nofollow" target="_blank">Mon, Feb 01 2016 08:02:40</a></span></div>
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<a class="tweet-url username" data-screen-name="NeuroDiverseAU" href="https://twitter.com/NeuroDiverseAU" rel="nofollow" target="_blank">@NeuroDiverseAU</a> I’m disappointed, honestly. I already knew <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> was anti-neurodiversity, but I didn’t expect sloppy reporting.</div>
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<span class="timestamp" data-timestamp="2016-02-01T06:15:58.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/694041482076954626" rel="nofollow" target="_blank">Mon, Feb 01 2016 06:15:58</a></span></div>
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<a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> cites <a class="tweet-url username" data-screen-name="DrPaulOffit" href="https://twitter.com/DrPaulOffit" rel="nofollow" target="_blank">@DrPaulOffit</a> profiting from invention of rotavirus vaccine, ignores years of labor to create it, with no $ guarantee.</div>
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<span class="timestamp" data-timestamp="2016-02-01T07:28:52.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/694059829313163264" rel="nofollow" target="_blank">Mon, Feb 01 2016 07:28:52</a></span></div>
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Sloppy: <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> cites anti-vax furor over <a class="tweet-url username" data-screen-name="DrPaulOffit" href="https://twitter.com/DrPaulOffit" rel="nofollow" target="_blank">@DrPaulOffit</a> profiting from rotavirus vaccine; ignores 100Ks of lives vaccine has saved.</div>
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<span class="timestamp" data-timestamp="2016-02-01T07:38:00.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/694062127691091969" rel="nofollow" target="_blank">Mon, Feb 01 2016 07:38:00</a></span></div>
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I understand <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> is trying to tell a compelling story. But the story is strangely sympathetic to pseudoscience <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a> beliefs.</div>
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<span class="timestamp" data-timestamp="2016-02-01T07:40:22.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/694062722623770629" rel="nofollow" target="_blank">Mon, Feb 01 2016 07:40:22</a></span></div>
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Glad to see <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> recognize <a class="tweet-url username" data-screen-name="deerbrian" href="https://twitter.com/deerbrian" rel="nofollow" target="_blank">@deerbrian</a>’s crucial role & then-rare skepticism re: Andrew Wakefield, in taking that charlatan down.</div>
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<span class="timestamp" data-timestamp="2016-02-01T07:53:31.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/694066029752782848" rel="nofollow" target="_blank">Mon, Feb 01 2016 07:53:31</a></span></div>
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For the unaware: Wakefield was in cahoots w/lawyers seeking <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a>-vaccine causation evidence to sue MMR makers for damage <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a></div>
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<span class="timestamp" data-timestamp="2016-02-01T07:58:12.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/694067209270767617" rel="nofollow" target="_blank">Mon, Feb 01 2016 07:58:12</a></span></div>
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<a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> is correct: Wakefield’s conflicts of interest in trying to undermine public confidence in the MMR vaccine are *stupefying*.</div>
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<span class="timestamp" data-timestamp="2016-02-01T08:08:24.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/694069776377753602" rel="nofollow" target="_blank">Mon, Feb 01 2016 08:08:24</a></span></div>
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More <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> sloppiness: it’s the *oral* polio vaccine that very rarely causes polio—and it hasn’t been used in the US since 2000.</div>
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<span class="timestamp" data-timestamp="2016-02-01T08:21:12.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/694072997154414592" rel="nofollow" target="_blank">Mon, Feb 01 2016 08:21:12</a></span></div>
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So it is irresponsible for <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> to state that the polio vaccine sometimes causes polio, when the US's injected version does not.</div>
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<span class="timestamp" data-timestamp="2016-02-01T08:23:56.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/694073685024460801" rel="nofollow" target="_blank">Mon, Feb 01 2016 08:23:56</a></span></div>
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Michelle Cedillo’s story *is* a tragic one. But yet again, <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> evokes “misery" of <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a> by describing “behaviors” not people.</div>
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<span class="timestamp" data-timestamp="2016-02-01T19:51:24.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/694246690551771140" rel="nofollow" target="_blank">Mon, Feb 01 2016 19:51:24</a></span></div>
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<a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23Autistic" rel="nofollow" target="_blank" title="#Autistic">#Autistic</a> people w/high support/complex medical needs deserve extra effort to see their humanity, less pity. Pls take note, <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a></div>
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<span class="timestamp" data-timestamp="2016-02-01T19:58:01.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/694248357506617344" rel="nofollow" target="_blank">Mon, Feb 01 2016 19:58:01</a></span></div>
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The Cedillos could have been compensated for <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23vaccine" rel="nofollow" target="_blank" title="#vaccine">#vaccine</a>—not <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a>—injury, per <a class="tweet-url username" data-screen-name="sethmnookin" href="https://twitter.com/sethmnookin" rel="nofollow" target="_blank">@sethmnookin</a>: <a href="https://t.co/wRYjvm8brI" rel="nofollow" target="_blank" title="http://www.thinkingautismguide.com/2012/01/interview-seth-mnookin-on-championing.html"><span class="tco-ellipsis"><span style="left: -9999px; position: absolute;"> </span></span><span style="left: -9999px; position: absolute;">http://www.</span><span class="js-display-url">thinkingautismguide.com/2012/01/interv</span><span style="left: -9999px; position: absolute;">iew-seth-mnookin-on-championing.html</span><span class="tco-ellipsis"><span style="left: -9999px; position: absolute;"> </span>…</span></a> cc: <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a></div>
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<span class="timestamp" data-timestamp="2016-02-01T20:09:50.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/694251330060161025" rel="nofollow" target="_blank">Mon, Feb 01 2016 20:09:50</a></span></div>
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The real tragedy for Michelle Cedillo & family was being misled by anti-vax truthers & carpetbaggers. She deserved better. <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a></div>
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<span class="timestamp" data-timestamp="2016-02-01T20:12:02.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/694251886065496064" rel="nofollow" target="_blank">Mon, Feb 01 2016 20:12:02</a></span></div>
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“Hippocrates Would Puke”: apt summary of Andrew Wakefield’s MMR hoax (& New York Daily News headline), per <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a></div>
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<span class="timestamp" data-timestamp="2016-02-01T20:22:06.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/694254417885835264" rel="nofollow" target="_blank">Mon, Feb 01 2016 20:22:06</a></span></div>
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Schools still force <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> kids to listen to non-autistic kids complain about them as <a class="tweet-url username" data-screen-name="alexplank" href="https://twitter.com/alexplank" rel="nofollow" target="_blank">@alexplank</a> did in <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a>. Needs to stop.</div>
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<span class="timestamp" data-timestamp="2016-02-03T20:51:25.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/694986571691356160" rel="nofollow" target="_blank">Wed, Feb 03 2016 20:51:25</a></span></div>
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While <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> notes “Aspies” like <a class="tweet-url username" data-screen-name="alexplank" href="https://twitter.com/alexplank" rel="nofollow" target="_blank">@alexplank</a> work hard to “pass,” its authors work just as hard to dismiss <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> commonalities.</div>
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<span class="timestamp" data-timestamp="2016-02-03T21:27:37.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/694995679794454528" rel="nofollow" target="_blank">Wed, Feb 03 2016 21:27:37</a></span></div>
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Why is it <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> authors cannot conceive that <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> people of all abilities may have more in common than not? Bias or denial?</div>
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<span class="timestamp" data-timestamp="2016-02-03T21:32:52.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/694997002568880128" rel="nofollow" target="_blank">Wed, Feb 03 2016 21:32:52</a></span></div>
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<a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> could ask: Why aren’t *all* kids taught a common social skills framework? Why the pressure on <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> kids, zero on non-?</div>
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<span class="timestamp" data-timestamp="2016-02-03T22:26:55.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/695010603836973057" rel="nofollow" target="_blank">Wed, Feb 03 2016 22:26:55</a></span></div>
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Major <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> fail: In claiming <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> self-advocates are parents’s adversaries, it shows ignorance of what neurodiversity *is*.</div>
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<span class="timestamp" data-timestamp="2016-02-04T18:38:38.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/695315541586632705" rel="nofollow" target="_blank">Thu, Feb 04 2016 18:38:38</a></span></div>
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<a class="s-quote-author-name" href="https://twitter.com/au_pis_aller" target="_blank">Pis Aller</a><a class="s-quote-author-username" href="https://twitter.com/au_pis_aller" target="_blank">@au_pis_aller</a></div>
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<a class="tweet-url username" data-screen-name="TheFactFidget" href="https://twitter.com/TheFactFidget" rel="nofollow" target="_blank">@TheFactFidget</a> <a class="tweet-url username" data-screen-name="thinkingautism" href="https://twitter.com/thinkingautism" rel="nofollow" target="_blank">@thinkingautism</a> ➜ that it pits self-advocating autistes against parents is sad. Much can be learnt. Kids = future s-advocates</div>
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<a class="s-via twitter" href="http://twitter.com/shannonrosa" rel="nofollow" target="_blank"> @shannonrosa</a><br />
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<span class="timestamp" data-timestamp="2016-02-04T19:13:17.000Z"><a class="s-posted" href="https://twitter.com/au_pis_aller/status/695324381803712513" rel="nofollow" target="_blank">Thu, Feb 04 2016 19:13:17</a></span></div>
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No, <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADiffferentKey" rel="nofollow" target="_blank" title="#InADiffferentKey">#InADiffferentKey</a>: The “Ransom Notes” campaign failed b/c it dehumanized <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> ppl, not b/c ran “afoul" of neurodiversity movement.</div>
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<span class="timestamp" data-timestamp="2016-02-04T18:41:31.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/695316267083780096" rel="nofollow" target="_blank">Thu, Feb 04 2016 18:41:31</a></span></div>
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Oh FFS: <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> compares Jim Sinclair’s “Don’t Mourn For Us” to Bettleheim’s Refrigerator Mothers, as form of parent blaming. O RLY</div>
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<span class="timestamp" data-timestamp="2016-02-04T18:44:13.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/695316948100354048" rel="nofollow" target="_blank">Thu, Feb 04 2016 18:44:13</a></span></div>
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Acc’ding to <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a>, non-parents like Jim Sinclair shouldn't speak for <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> kids “disabled in the extreme.” Like my own son?</div>
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<span class="timestamp" data-timestamp="2016-02-04T19:04:56.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/695322160517087232" rel="nofollow" target="_blank">Thu, Feb 04 2016 19:04:56</a></span></div>
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At least <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a>’s agenda is clear: Anyone who is mean to parents of <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> kids is awful. Even <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> people wanting rights.</div>
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<span class="timestamp" data-timestamp="2016-02-04T18:47:16.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/695317717708976129" rel="nofollow" target="_blank">Thu, Feb 04 2016 18:47:16</a></span></div>
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<a class="s-quote-author-name" href="https://twitter.com/e_c_h_o" target="_blank">Sarah Akin</a><a class="s-quote-author-username" href="https://twitter.com/e_c_h_o" target="_blank">@e_c_h_o</a></div>
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<a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADIfferentKey" rel="nofollow" target="_blank" title="#InADIfferentKey">#InADIfferentKey</a> in a nutshell —
Cattle prods, murder, dehumanization: Let's not rush to judgment!
Hurt a parent's feels: YOU MONSTER!</div>
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<a class="s-via twitter" href="http://twitter.com/shannonrosa" rel="nofollow" target="_blank"> @shannonrosa</a><br />
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<a class="s-posted" href="https://twitter.com/e_c_h_o/status/695690258105499648" rel="nofollow" target="_blank">Fri, Feb 05 2016 16:23:02</a></div>
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What <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> doesn’t get: High support 1:1 <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> kids like my own son *need* self-advocates to fight for their rights/humanity.</div>
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<span class="timestamp" data-timestamp="2016-02-04T19:06:30.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/695322555075268608" rel="nofollow" target="_blank">Thu, Feb 04 2016 19:06:30</a></span></div>
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…b/c if people buy into messages <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> spreads, ppl are *less* likely to support my <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> son’s rights & humanity, not more.</div>
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<span class="timestamp" data-timestamp="2016-02-04T19:08:25.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/695323039311876096" rel="nofollow" target="_blank">Thu, Feb 04 2016 19:08:25</a></span></div>
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<a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKEy" rel="nofollow" target="_blank" title="#InADifferentKEy">#InADifferentKEy</a> dismissively describes <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a> researcher/info nexus Michelle Dawson <a class="tweet-url username" data-screen-name="autismcrisis" href="https://twitter.com/autismcrisis" rel="nofollow" target="_blank">@autismcrisis</a> as a “formal postal worker."</div>
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<span class="timestamp" data-timestamp="2016-02-04T19:20:32.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/695326088096927744" rel="nofollow" target="_blank">Thu, Feb 04 2016 19:20:32</a></span></div>
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<a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> critiques & patronizes <a class="tweet-url username" data-screen-name="aneeman" href="https://twitter.com/aneeman" rel="nofollow" target="_blank">@aneeman</a> for a “failure of empathy”: telling parents to seek humanity, not cures for <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> kids.</div>
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<span class="timestamp" data-timestamp="2016-02-05T20:46:59.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/695710230366330880" rel="nofollow" target="_blank">Fri, Feb 05 2016 20:46:59</a></span></div>
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Since <a class="tweet-url username" data-screen-name="aneeman" href="https://twitter.com/aneeman" rel="nofollow" target="_blank">@aneeman</a> is proudly <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> yet refuses to be a self-narrating zoo exhibit, <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> decides he cannot empathize w/parents.</div>
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<span class="timestamp" data-timestamp="2016-02-05T20:49:33.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/695710878423842818" rel="nofollow" target="_blank">Fri, Feb 05 2016 20:49:33</a></span></div>
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…which is news to me, as <a class="tweet-url username" data-screen-name="aneeman" href="https://twitter.com/aneeman" rel="nofollow" target="_blank">@aneeman</a> has spent a lot of time w/my own high-support <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> son, and they are buds. Pls note, <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a></div>
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<span class="timestamp" data-timestamp="2016-02-05T20:51:44.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/695711425134616576" rel="nofollow" target="_blank">Fri, Feb 05 2016 20:51:44</a></span></div>
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Pls also note, <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a>: I would take issue w/your "not <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> enough/no empathy” character assassination of <a class="tweet-url username" data-screen-name="aneeman" href="https://twitter.com/aneeman" rel="nofollow" target="_blank">@aneeman</a> regardless.</div>
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<span class="timestamp" data-timestamp="2016-02-05T20:54:07.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/695712026966913024" rel="nofollow" target="_blank">Fri, Feb 05 2016 20:54:07</a></span></div>
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<a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> claims people avoided arguing w/ <a class="tweet-url username" data-screen-name="aneeman" href="https://twitter.com/aneeman" rel="nofollow" target="_blank">@aneeman</a> publicly for fear of being seen as bigots. Or maybe b/c his arguments were sound?</div>
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<span class="timestamp" data-timestamp="2016-02-05T20:59:19.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/695713334872543232" rel="nofollow" target="_blank">Fri, Feb 05 2016 20:59:19</a></span></div>
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<a class="tweet-url username" data-screen-name="thinkingautism" href="https://twitter.com/thinkingautism" rel="nofollow" target="_blank">@thinkingautism</a> <a class="tweet-url username" data-screen-name="aneeman" href="https://twitter.com/aneeman" rel="nofollow" target="_blank">@aneeman</a> For fear of being seen *accurately* as bigots. "I'm not ableist, but..."</div>
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<a class="s-via twitter" href="http://twitter.com/shannonrosa" rel="nofollow" target="_blank"> @shannonrosa</a><br />
<span class="timestamp" data-timestamp="2016-02-05T21:05:37.000Z"><a class="s-posted" href="https://twitter.com/e_c_h_o/status/695715170081845248" rel="nofollow" target="_blank">Fri, Feb 05 2016 21:05:37</a></span></div>
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Heaven forbid <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> admit <a class="tweet-url username" data-screen-name="aneeman" href="https://twitter.com/aneeman" rel="nofollow" target="_blank">@aneeman</a> is a skilled, informed policy wonk. Instead, his foes are too nice to fight w/<a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistics" rel="nofollow" target="_blank" title="#autistics">#autistics</a>? <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23FFS" rel="nofollow" target="_blank" title="#FFS">#FFS</a></div>
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<span class="timestamp" data-timestamp="2016-02-05T21:01:10.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/695713799148433408" rel="nofollow" target="_blank">Fri, Feb 05 2016 21:01:10</a></span></div>
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<a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a>'s patronizing continues: “<a class="tweet-url username" data-screen-name="autismspeaks" href="https://twitter.com/autismspeaks" rel="nofollow" target="_blank">@autismspeaks</a> gave [<a class="tweet-url username" data-screen-name="aneeman" href="https://twitter.com/aneeman" rel="nofollow" target="_blank">@aneeman</a>] a pass to say what he wanted.” Like men “let” women have the vote?</div>
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<span class="timestamp" data-timestamp="2016-02-05T21:05:00.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/695714763829981184" rel="nofollow" target="_blank">Fri, Feb 05 2016 21:05:00</a></span></div>
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<a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> is so worried about “high functioning” <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> <a class="tweet-url username" data-screen-name="aneeman" href="https://twitter.com/aneeman" rel="nofollow" target="_blank">@aneeman</a> representing <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a> that it ignores his cross-disability agenda.</div>
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<span class="timestamp" data-timestamp="2016-02-05T21:10:54.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/695716251788652544" rel="nofollow" target="_blank">Fri, Feb 05 2016 21:10:54</a></span></div>
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If <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> actually paid attention to <a class="tweet-url username" data-screen-name="autselfadvocacy" href="https://twitter.com/autselfadvocacy" rel="nofollow" target="_blank">@autselfadvocacy</a> work, it'd know <a class="tweet-url username" data-screen-name="aneeman" href="https://twitter.com/aneeman" rel="nofollow" target="_blank">@aneeman</a> + team fight for <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> people of ALL abilities.</div>
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<span class="timestamp" data-timestamp="2016-02-05T21:13:29.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/695716902446825472" rel="nofollow" target="_blank">Fri, Feb 05 2016 21:13:29</a></span></div>
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<a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> assumes <a class="tweet-url username" data-screen-name="aneeman" href="https://twitter.com/aneeman" rel="nofollow" target="_blank">@aneeman</a> knows nada of high support <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> kids, yet is “mind blind” if doesn’t cow to IRL attack by curbie mom.</div>
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<span class="timestamp" data-timestamp="2016-02-05T21:16:33.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/695717674098118656" rel="nofollow" target="_blank">Fri, Feb 05 2016 21:16:33</a></span></div>
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Asperger’s syndrome is not a “ticket onto the spectrum,” <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> —Asperger himself recognized <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> kids of all abilities.</div>
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<span class="timestamp" data-timestamp="2016-02-05T21:20:58.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/695718784582025216" rel="nofollow" target="_blank">Fri, Feb 05 2016 21:20:58</a></span></div>
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Kanner’s defining the <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a> label excluded Asperger-like folk who needed support, for decades: the tragedy <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> ignores.</div>
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<span class="timestamp" data-timestamp="2016-02-05T21:23:35.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/695719440348901376" rel="nofollow" target="_blank">Fri, Feb 05 2016 21:23:35</a></span></div>
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Correction: On p. 531, <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> does mention <a class="tweet-url username" data-screen-name="aneeman" href="https://twitter.com/aneeman" rel="nofollow" target="_blank">@aneeman</a> and Steven Kapp’s contributions to informing the <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a> criteria in the DSM-5.</div>
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<span class="timestamp" data-timestamp="2016-02-05T21:48:11.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/695725634413162496" rel="nofollow" target="_blank">Fri, Feb 05 2016 21:48:11</a></span></div>
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<a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> claims parental love is one element in the whole <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a> “saga” that is “unquestionably pure.” Really? Ask Issy Stapleton.</div>
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<span class="timestamp" data-timestamp="2016-02-05T21:49:51.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/695726052216147968" rel="nofollow" target="_blank">Fri, Feb 05 2016 21:49:51</a></span></div>
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<a class="s-quote-author-name" href="https://twitter.com/e_c_h_o" target="_blank">Sarah Akin</a><a class="s-quote-author-username" href="https://twitter.com/e_c_h_o" target="_blank">@e_c_h_o</a></div>
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Apparently <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> authors have never heard of child abuse.
Even as they document it.</div>
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<a class="s-via twitter" href="http://twitter.com/shannonrosa" rel="nofollow" target="_blank"> @shannonrosa</a><br />
<span class="timestamp" data-timestamp="2016-02-05T22:23:26.000Z"><a class="s-posted" href="https://twitter.com/e_c_h_o/status/695735658397065217" rel="nofollow" target="_blank">Fri, Feb 05 2016 22:23:26</a></span></div>
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Here’s hoping the story of Donald Triplett helps <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a> readers accept non-standard, <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> developmental paths & milestones.</div>
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<span class="timestamp" data-timestamp="2016-02-06T18:52:04.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/696043701370421248" rel="nofollow" target="_blank">Sat, Feb 06 2016 18:52:04</a></span></div>
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Donald Triplett led a good life due to family supports, $, & influence + community acceptance. Few <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistics" rel="nofollow" target="_blank" title="#autistics">#autistics</a> are so lucky. <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a></div>
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<span class="timestamp" data-timestamp="2016-02-06T21:13:41.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/696079338177822720" rel="nofollow" target="_blank">Sat, Feb 06 2016 21:13:41</a></span></div>
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Correction, <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a>: iPad 2010 introduction made AAC more affordable & *accessible* to <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> ppl w/communication support needs.</div>
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<span class="timestamp" data-timestamp="2016-02-06T21:39:51.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/696085922043957248" rel="nofollow" target="_blank">Sat, Feb 06 2016 21:39:51</a></span></div>
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It’s not as though AAC didn’t exist before the iPad. My son uses a non-iPad device, as current iPad options insufficient. <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23inadifferentkey" rel="nofollow" target="_blank" title="#inadifferentkey">#inadifferentkey</a></div>
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<span class="timestamp" data-timestamp="2016-02-06T21:41:20.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/696086298419855363" rel="nofollow" target="_blank">Sat, Feb 06 2016 21:41:20</a></span></div>
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<a class="s-quote-author-name" href="https://twitter.com/shannonrosa" target="_blank">Shannon Rosa</a><a class="s-quote-author-username" href="https://twitter.com/shannonrosa" target="_blank">@shannonrosa</a></div>
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The “Talking Typewriter” ERELS system was used to help <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> kids communicate as early as 1965, for instance. Per <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23NeuroTribes" rel="nofollow" target="_blank" title="#NeuroTribes">#NeuroTribes</a>.</div>
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<span class="timestamp" data-timestamp="2016-02-06T21:44:51.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/696087181199212544" rel="nofollow" target="_blank">Sat, Feb 06 2016 21:44:51</a></span></div>
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<a class="s-quote-author-name" href="https://twitter.com/Aspieadvocate" target="_blank">Carol Greenburg</a><a class="s-quote-author-username" href="https://twitter.com/Aspieadvocate" target="_blank">@Aspieadvocate</a></div>
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If <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InaDifferentKey" rel="nofollow" target="_blank" title="#InaDifferentKey">#InaDifferentKey</a>'s btwn eternal battle of autistics vs parents were true, I'd be at constant war w/myself... <a class="s-via twitter" href="http://twitter.com/shannonrosa" rel="nofollow" target="_blank">@shannonrosa</a></div>
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<span class="timestamp" data-timestamp="2016-02-08T01:04:44.000Z"><a class="s-posted" href="https://twitter.com/Aspieadvocate/status/696507605703741440" rel="nofollow" target="_blank">Mon, Feb 08 2016 01:04:44</a></span></div>
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<a class="s-quote-author-name" href="https://twitter.com/shannonrosa" target="_blank">Shannon Rosa</a><a class="s-quote-author-username" href="https://twitter.com/shannonrosa" target="_blank">@shannonrosa</a></div>
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Finished <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23InADifferentKey" rel="nofollow" target="_blank" title="#InADifferentKey">#InADifferentKey</a>. Verdict: This is not the <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autism" rel="nofollow" target="_blank" title="#autism">#autism</a> book you’re looking for. Not if you want to understand/support <a class="tweet-url hashtag" href="https://twitter.com/#!/search?q=%23autistic" rel="nofollow" target="_blank" title="#autistic">#autistic</a> people.</div>
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<span class="timestamp" data-timestamp="2016-02-07T22:09:43.000Z"><a class="s-posted" href="https://twitter.com/shannonrosa/status/696455826781810688" rel="nofollow" target="_blank">Sun, Feb 07 2016 22:09:43</a></span></div>
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Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-5563550.post-53794135824815821842018-09-21T11:05:00.002-07:002018-09-21T11:12:38.305-07:00My Comments to the September 2018 IACC on Autism and Health Care IssuesNext Thursday, September 27, 2018, the Interagency Autism Coordinating Committee will meet to discuss <a href="https://iacc.hhs.gov/meetings/iacc-meetings/2018/iacc-workshop/september27/">the health needs of autistic people</a>. I submitted the public comment below, which will become part of the IACC official record (though without the links featured here). You never know what will help, so I hope some of these suggestions stick.<br />
<br />
----<br />
<br />
First: My thanks to you, the members of the IACC, for your work on behalf of autistic people of all ages and abilities.<br />
<br />
I am writing to you as the parent of a seventeen-year-old high support autistic son, whom I love with all my heart. (There is no “but” after that statement.) I am also writing to you as an advocate deeply engaged with autistic people, their families, autism professionals, and autism researchers, in my role as editor of <a href="http://www.thinkingautismguide.com/">Thinking Person's Guide to Autism</a>.<br />
<br />
I am certain the Committee is aware that autistic people as a community are badly served by the current state of health care and supports. Both formal research, and autistic people's own reports, clearly show that autistic health concerns—including mental health issues—are too often dismissed or misunderstood, and that autistic people are also more likely than the general population to have co-occurring health conditions.<br />
<br />
I have to believe that the Committee shares my opinion that it is <a href="https://www.realclearhealth.com/articles/2018/08/30/patients_harmed_by_cost-effectiveness_measures_110821.html">unconscionable for our autistic community members to receive improper and insufficient health care</a>. I have to believe that you recognize why the current approach is also financially irresponsible, as the proactive and appropriate health care autistic and disabled people currently <b>aren't</b> getting is demonstrably more cost-effective than the reactive or emergency care they tend to get instead.<br />
<br />
Based on both my personal and professional experience, I have some recommendations on how to improve health care matters for autistic people.<br />
<br />
If nothing else, I would like to see more autistic-informed health care policy. It is only through participatory autism research that we have become aware of matters like the <a href="http://www.thinkingautismguide.com/2018/06/insar-2018-autism-and-suicidality.html">crisis-level rates of suicide and suicidal ideation in autistic people</a>, while studies of commonly self-reported but poorly studied and understood co-occurring conditions like <a href="https://jnnp.bmj.com/content/85/8/e3.40">hypermobility</a> or <a href="http://nosmag.org/we-need-research-on-ehlers-danlos-syndrome/">Ehlers-Danlos syndrome</a> are only now emerging. If we are going to properly support autistic people of all abilities to achieve best possible health outcomes, our health care initiatives need autistic guidance.<br />
<br />
<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: left; margin-right: 1em; text-align: left;"><tbody>
<tr><td style="text-align: center;"><a href="https://3.bp.blogspot.com/-6MasZw8ZSYo/W6UxPAwiHXI/AAAAAAAAHDQ/lheIg0pO48chK-UOEbib8HQfmKYbDAA9gCLcBGAs/s1600/IMG_8574.jpg" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1600" data-original-width="1200" height="320" src="https://3.bp.blogspot.com/-6MasZw8ZSYo/W6UxPAwiHXI/AAAAAAAAHDQ/lheIg0pO48chK-UOEbib8HQfmKYbDAA9gCLcBGAs/s320/IMG_8574.jpg" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><b>Cheerfully tolerating a 24-hour EEG</b><br />
[image: Leo smiling despite having electrodes<br />
glued all over his head and covered with<br />
bandages, and attached to a tangle of wires.]</td></tr>
</tbody></table>
I would like to see more of this autistic-informed policy integrated into autism education for medical professionals, for matters like accommodations during patient-professional interactions. We need more medical personnel to understand why autistic people—even those technically capable of holding a conversation—can have a debilitating fear of needles, may have difficulty with sensory-intensive procedures like MRIs or EEGs, may have trouble answering questions or self-reporting accurately due to <a href="http://www.judyendow.com/advocacy/fear-anxiety-and-autistic-behavior/">processing</a>, <a href="https://www.youtube.com/watch?v=Fl-aKRdzLyQ">alexithymia</a>, or <a href="https://musingsofanaspie.com/2013/07/03/interoception-how-do-i-feel/">interception</a> issues, and may have <a href="https://www.autism.org.uk/about/behaviour/meltdowns.aspx">meltdowns when overwhelmed</a>. We must develop strategies for ensuring those autistic individuals are accommodated, so they can receive the care they deserve without being written off as "difficult."<br />
<br />
I would like to see more medical professional awareness about the sensory needs of autistic people both in general, and in medical environments. When my son was recently in the ER at Stanford University, he was given access to a lovely sensory “<a href="https://www.facebook.com/thinkingpersonsguidetoautism/posts/2044638238910826">Imagination Station</a>,” and in addition the flickering fluorescent lights in his room were turned off. Many autistic adults who heard about my son's experience reported that they too would like access to these kinds of sensory accommodations, but such options, even when available, are usually reserved for children.<br />
<br />
I would like to see more outreach to medical schools and other training programs about the need for more neurologists, behavioral psychiatrists, developmental pediatricians, and registered dietitians both in general, and who understand autism specifically. These scarcity of these specialists makes accessing health care even more difficult for autistic kids and adults.<br />
<br />
I would like to see investment in “<a href="https://www.autism.org.uk/about/health/hospital-passport.aspx">health passports</a>,” like those developed by the UK’s National Autistic Society, to improve autistic people’s hospital and medical experiences. I would like to see encouragement to adopt and support models like the autism and healthcare toolkits and resources developed by <a href="https://autismandhealth.org/">AASPIRE</a> and <a href="https://odpc.ucsf.edu/">UCSF’s Office of Developmental Primary Care</a>, in delineating compassionate, respectful, and useful best practices for patients with developmental disabilities.<br />
<br />
I would like to see all autistic people, including those with intellectual disabilities, treated with more respect by medical professionals. Autistic people must to be able to trust the professionals taking care of them if they are to tolerate anxiety-provoking medical environments—yet too often autistic people are not even addressed during in-person conversations about their own health, or they are spoken in a manner more appropriate for speaking to A Very Good Dog (as happened to my son while getting his flu shot just this week). In worst-case scenarios, dismissive attitudes can lead to tragedy, as with the <a href="https://www.autism.org.uk/get-involved/media-centre/news/2018-04-20-oliver-mcgowan.aspx">recent death of 18-year-old Oliver McGowan</a>. These attitudes must change, because my son's life and those of his autistic community members are valuable, and should be treated that way.<br />
<br />
I would like to see more awareness in medical professionals (and documentation in research) about autistic people's increased likelihood of atypical or paradoxical reactions to medication. I have learned about this tendency from autistic community self-reports as well as specialists like Dr. Glenn Elliott at Children’s Health Council in Palo Alto, and have also observed it first-hand many times with my son—including an ER visit in which he was given a medication that was supposed to stop his grand mal seizure, but instead sent it into overdrive. Yet not one medical professional who has prescribed medications to my son has ever ever mentioned such reactions to me, not unless I bring the topic up—and even then, many were not aware that atypical or paradoxical medication reactions are "a thing" for autistic people.<br />
<br />
I would like to see more outreach from medical professionals to autistic individuals and families about the side effects and unpredictable outcomes of routinely prescribed FDA-approved antipsychotic medications like Risperdal, which can cause liver damage, diabetes, and unavoidable weight gain—and the lifestyle changes people can make to at least partially offset those effects.<br />
<br />
I would like to see outreach campaigns about the ongoing (and illegal) use of medications as <a href="https://www.wnycstudios.org/story/episode-3">chemical restraints</a> for people with behavioral difficulties. I would instead like to see more medical professionals helping families to understand how <a href="http://www.thinkingautismguide.com/2016/08/when-autistic-children-are-aggressive.html">health, sensory, processing, and communication difficulties may be underlying the “unmanageable” aggression</a>, and that in many cases accommodations and health care, rather than (or in addition to) medications, are what is needed.<br />
<br />
I would really like to see more emphasis on why <a href="http://www.thinkingautismguide.com/2018/08/are-co-occurring-conditions-part-of.html">co-occurring health conditions like GI troubles or epilepsy are not caused by autism</a>, and why treating those conditions is not the same as “treating” autism.<br />
<br />
I would like to see the IACC take a firmer stance on <a href="http://www.squidalicious.com/2017/09/me-and-leo-and-doctors.html">pseudoscience medical approaches to autism</a>, as these approaches dupe autistic people and their families into pursing expensive, bogus "cures," diverting both funds and focus from legitimate approaches to optimal autistic health and wellness. The organization <a href="https://tacanow.org/conference/">TACA (Talking About Curing Autism) is holding its annual conference</a> in California next month, and is featuring autism “health” seminars on topics that have not only been debunked by mainstream science, but which encourage parents to subject their children to potentially dangerous treatments. Examples include “The Importance of Detoxification” and “The Relationship Between Heavy Metals, Parasites, and Symptoms in Your Child.” Yet somehow this conference is eligible for Regional Center (Medi-Cal) reimbursement. This is a waste or both private and public funds, especially for families or individuals with limited access to resources.<br />
<br />
Finally, I would like to see recognition that health care access gaps are even more pronounced for <a href="https://amp.theguardian.com/society/2018/sep/14/thousands-of-autistic-girls-and-women-going-undiagnosed-due-to-gender-bias?__twitter_impression=true">autistic kids and adults who aren't male</a>, autistic people of low socioeconomic status, and autistic people of color, due to well-documented barriers including accessing formal diagnosis, and thus receiving proper care and accommodations. We need investment in easy-read and multilingual autism and health care information. Ideally, we also need investment in "community ambassadors" who can translate and/or advocate for people who <a href="https://insar.confex.com/insar/2017/webprogram/Paper24883.html">may have multiple barriers to resources</a>, and thus to effective self- or family advocacy.<br />
<br />
I need the Committee to understand that while this list may seem excessive, it is in actuality neither comprehensive nor sufficient; I am hoping other comments and discussants will address my oversights. However, tackling these issues would be a welcome start to helping more autistic people lead the happiest and healthiest lives possible.<br />
<br />
Thank you,<br />
<br />
Shannon Des Roches Rosa<br />
Redwood City, CaliforniaUnknownnoreply@blogger.com3tag:blogger.com,1999:blog-5563550.post-12143547780325356632018-04-16T21:43:00.000-07:002018-04-16T21:44:55.358-07:00#SaidNoMother: Autism "Awareness" At Its WorstIt's April, that annual demonstration of how autism "awareness" can be used to hurt people like Leo. When autism awareness is deployed as a weapon—especially without autism understanding or acceptance—it enables hateful crusades like the recent anti-vaxxer autism martyr parent #SaidNoMother parade of self-congratulatory ignorance.<br />
<br />
I already wrote about <a href="http://www.squidalicious.com/2018/03/saidnomother-wretched-hive-of-scum-and.html">how much the performative victimhood of #SaidNoMother parents appalls me</a>. But, as the campaign wore on (and repeated the same tweets and images ad nauseum), more countering was needed: People need to know that this crap is not acceptable. <br />
<br />
The #SaidNoMother crew themselves seem unlikely to have epiphanies about doing right by their autistic kids any time soon, as they are mostly vapid white women of a certain class and certain inability to believe that money can't buy happiness. As I am a member of such a census category, it my duty to call out my kind when they embarrass us all in their clueless unexamined privilege: Not only regarding the irony of speaking out about vaccines when they have no experience with vaccine-preventable diseases thanks to growing up in a vaccinated cocoon, but also because they don't seem to realize that not all families have the funding to pursue expensively bogus autism "recovery" pseudoscience. And by their polluting of those autism information waters, they may lead people who <b>don't</b> have financial wiggle room to make choices that endanger their autistic kids' health and well being, as well as their families' economic health.<br />
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I am asking <a href="https://twitter.com/hashtag/SaidNoMother?src=hash&ref_src=twsrc%5Etfw">#SaidNoMother</a> something. Why is it so many of you claim injury due to metal toxicity and also claim to know how to recover children like ours but yet you report the least improvement in your children and you seem to be the unhappiest parents I have ever met?</div>
— Brandi Dalhover (@SpectrumomYeah) <a href="https://twitter.com/SpectrumomYeah/status/983487403104133121?ref_src=twsrc%5Etfw">April 9, 2018</a></blockquote>
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<a href="https://twitter.com/hashtag/SaidNoMother?src=hash&ref_src=twsrc%5Etfw">#SaidNoMother</a> privilege & gullibility, crystalized: It’s expensive to “recover” your child because <a href="https://twitter.com/hashtag/autism?src=hash&ref_src=twsrc%5Etfw">#autism</a> carpetbaggers target parents of means. They don’t make money off people who can’t afford their snake oil (or who know that <a href="https://twitter.com/hashtag/vaccineswork?src=hash&ref_src=twsrc%5Etfw">#vaccineswork</a> & have nothing to do with <a href="https://twitter.com/hashtag/autism?src=hash&ref_src=twsrc%5Etfw">#autism</a>). <a href="https://t.co/1o7nb5Ofy7">https://t.co/1o7nb5Ofy7</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/982375559626801152?ref_src=twsrc%5Etfw">April 6, 2018</a></blockquote>
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<br />
The #SaidNoMother mob is also shameless in their attempts at shaming. They told outright lies (like nonsensical "sleuthing" into my background?), and one even got her autistic kids' sibling to tell me that I'm mean for "bullying their mom." Disgusting.<br />
<br />
It's frustrating to engage with people who are not just vehemently willfully ignorant but have ends-justify-means mindsets, as you can see in the collected tweets below. (Eventually the zealots blocked all their critics, so apologies for any missing tweets that jar threads out of context.)<br />
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"Im so glad my mother hates living with me because im autistic" - <a href="https://twitter.com/hashtag/saidnoautistic?src=hash&ref_src=twsrc%5Etfw">#saidnoautistic</a> ever.</div>
— Tania Grey (@maxriderflies) <a href="https://twitter.com/maxriderflies/status/978083497943404546?ref_src=twsrc%5Etfw">March 26, 2018</a></blockquote>
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Very common mistake to equate 'regression' at young age to vaccines as seem to occur at similar times. Not enough explanation for what may actually be happening (differences in synaptic pruning theories etc. are less accessible and immediately appealing). Human fallacy 2+2=10 etc</div>
— Damian Milton (@milton_damian) <a href="https://twitter.com/milton_damian/status/978164082359635968?ref_src=twsrc%5Etfw">March 26, 2018</a></blockquote>
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Yes. And we can replace "spent" with "wasted".<br />
<br />
This One Big Lie has cost the autism/autistic community so very much and in so many ways, wasted resources and increased stigma/ignorance being the main two.</div>
— Autvntg (@autvntg) <a href="https://twitter.com/autvntg/status/978159949284069376?ref_src=twsrc%5Etfw">March 26, 2018</a></blockquote>
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Yep, given 'neurodiversity' and lack of good evidence, hard to know what is going on, but it is not one effect, nor one trajectory developmentally. One thing for sure though, it ain't vaccines.</div>
— Damian Milton (@milton_damian) <a href="https://twitter.com/milton_damian/status/978266997443133440?ref_src=twsrc%5Etfw">March 26, 2018</a></blockquote>
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In the case of my child old videos show a) very obvious skill loss/regression from around 2 years b) subtly atypical development from the start. I can see how parents overlook/miss the latter and focus on the former looking for a "cause".</div>
— Colm (@colmuacuinn) <a href="https://twitter.com/colmuacuinn/status/978270890357088256?ref_src=twsrc%5Etfw">March 26, 2018</a></blockquote>
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Because these myths about autism as vaccine injury or illness have historically led to a lot of horrific mistreatment of autistic people, rather than to understanding of autism as a complex neurodevelopmental condition.<br />
<br />
That's what it has to do with us.</div>
— Emily Paige Ballou (@epballou) <a href="https://twitter.com/epballou/status/978293726480084993?ref_src=twsrc%5Etfw">March 26, 2018</a></blockquote>
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Because It Happened To Us. I "regressed" at age 3. In 1959. 5 years before the MMR was available. How did my parents become autistic? Because they probably were.</div>
— Jo Qatana 🐽 (@joqatana) <a href="https://twitter.com/joqatana/status/978287775303712768?ref_src=twsrc%5Etfw">March 26, 2018</a></blockquote>
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I think my socially isolated Autistic child should take up smoking just so that they will have other "freaks" to talk to. <a href="https://twitter.com/hashtag/saidnomother?src=hash&ref_src=twsrc%5Etfw">#saidnomother</a> (what I actually did during high school to have ppl to talk to) <a href="https://twitter.com/hashtag/ActuallyAutistic?src=hash&ref_src=twsrc%5Etfw">#ActuallyAutistic</a></div>
— Smiles for Miles 📺🐾🐳📚🎶🛶⛵️ (@oldsoulsmiling) <a href="https://twitter.com/oldsoulsmiling/status/978296347240607744?ref_src=twsrc%5Etfw">March 26, 2018</a></blockquote>
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Listening to actually autistic people rather than <a href="https://twitter.com/hashtag/saidnomother?src=hash&ref_src=twsrc%5Etfw">#saidnomother</a> fear-mongering and ableist fuckery for the win.<br />
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Also, vaccinate your goddamn kids. <a href="https://t.co/HVKAkrJJZ7">https://t.co/HVKAkrJJZ7</a></div>
— Ren Martinez (@RenTheMusical) <a href="https://twitter.com/RenTheMusical/status/978272168437075975?ref_src=twsrc%5Etfw">March 26, 2018</a></blockquote>
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A warning, especially to my fellow autistics and other disabled folk: <a href="https://twitter.com/hashtag/SaidNoMother?src=hash&ref_src=twsrc%5Etfw">#SaidNoMother</a> is a cesspool of hatred. Stay far, far away. <br />
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PS to the people on that hashtag: vaccines don't cause autism, you ignorant liches.</div>
— Marieke Nijkamp (@mariekeyn) <a href="https://twitter.com/mariekeyn/status/978258253829287936?ref_src=twsrc%5Etfw">March 26, 2018</a></blockquote>
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"I want everyone to know embarrassing personal information about about my child so they'll know how much of a martyr I am for putting up with them" <a href="https://twitter.com/hashtag/saidnomother?src=hash&ref_src=twsrc%5Etfw">#saidnomother</a> unless they are an <a href="https://twitter.com/hashtag/autismparent?src=hash&ref_src=twsrc%5Etfw">#autismparent</a> I guess</div>
— Dana, seeker of darkness (@Sugarlow23) <a href="https://twitter.com/Sugarlow23/status/978324903773405187?ref_src=twsrc%5Etfw">March 26, 2018</a></blockquote>
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“I want every child to be replaced by kittens” <a href="https://twitter.com/hashtag/SaidNoMother?src=hash&ref_src=twsrc%5Etfw">#SaidNoMother</a> <br />
(I just want to drown out the ableist pseudo-vigilantes on this hashtag with pictures of fuzzy kittens) <a href="https://t.co/4HzuDxjPj6">pic.twitter.com/4HzuDxjPj6</a></div>
— Cassie P (@AngryAmygdala) <a href="https://twitter.com/AngryAmygdala/status/978339146262568961?ref_src=twsrc%5Etfw">March 26, 2018</a></blockquote>
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You could be teaching the world that autistic lives have value.<br />
Instead you tell them we're better off dead. Even your own child.<a href="https://twitter.com/hashtag/SaidNoMother?src=hash&ref_src=twsrc%5Etfw">#SaidNoMother</a>, indeed.</div>
— S. (@E_c_h_o) <a href="https://twitter.com/E_c_h_o/status/977710102852628480?ref_src=twsrc%5Etfw">March 25, 2018</a></blockquote>
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I want to use my kids like props so I can virtue-signal and get attention from the other low-info anti-vaccine parents on Facebook <a href="https://twitter.com/hashtag/saidnomother?src=hash&ref_src=twsrc%5Etfw">#saidnomother</a> <a href="https://twitter.com/hashtag/saidnofather?src=hash&ref_src=twsrc%5Etfw">#saidnofather</a> <a href="https://twitter.com/hashtag/saidnoparent?src=hash&ref_src=twsrc%5Etfw">#saidnoparent</a></div>
— J. "Merely Part Of The Performance" Kelly (@jkellyca) <a href="https://twitter.com/jkellyca/status/978361781012676609?ref_src=twsrc%5Etfw">March 26, 2018</a></blockquote>
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I want my child to contract a preventable illness and endanger the lives of other children and immune compromised people, possibly killing them in the process. <a href="https://twitter.com/hashtag/saidnomother?src=hash&ref_src=twsrc%5Etfw">#saidnomother</a></div>
— Smiles for Miles 📺🐾🐳📚🎶🛶⛵️ (@oldsoulsmiling) <a href="https://twitter.com/oldsoulsmiling/status/978371412233728000?ref_src=twsrc%5Etfw">March 26, 2018</a></blockquote>
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Because my son and I are autistic, which makes us neither sick nor broken. I speak, he is still working on spoken & written language We both appreciate people who take our needs for support seriously as we define & express them. We don’t see ourselves as anyone’s tragedy. <a href="https://t.co/Q06nnXTYkF">https://t.co/Q06nnXTYkF</a></div>
— Carol Greenburg (@Aspieadvocate) <a href="https://twitter.com/Aspieadvocate/status/978375255281545217?ref_src=twsrc%5Etfw">March 26, 2018</a></blockquote>
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I love it when a bunch of entitled middle class white women vilify my daughter for their own reckless cause because they can’t come to terms with their own lives not going exactly as they expected <a href="https://twitter.com/hashtag/SaidNoMother?src=hash&ref_src=twsrc%5Etfw">#SaidNoMother</a></div>
— Megen Amanita (@megenporter) <a href="https://twitter.com/megenporter/status/978373640826765312?ref_src=twsrc%5Etfw">March 26, 2018</a></blockquote>
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Vaccines don't cause autism.<br />
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Your genetics do.<br />
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You have no one to blame but yourself and your partner. <br />
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Stop scaring people away from life-saving vaccines with your ignorance.<br />
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"I'd rather my kid be dead than autistic" is the REAL <a href="https://twitter.com/hashtag/saidnomother?src=hash&ref_src=twsrc%5Etfw">#saidnomother</a> statement.</div>
— Jenthar the Destroyer, Queen of all Darkness (@albertafarmlife) <a href="https://twitter.com/albertafarmlife/status/977174053013282817?ref_src=twsrc%5Etfw">March 23, 2018</a></blockquote>
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Ah, <a href="https://twitter.com/hashtag/saidnomother?src=hash&ref_src=twsrc%5Etfw">#saidnomother</a>, where parents get to ignore their child's inherent right to human dignity by treating them as political toys without their consent, describing them as 'damaged'. That'll totally work out well. </sarc></div>
— Chris von Csefalvay (on partial break for Lent) (@chrisvcsefalvay) <a href="https://twitter.com/chrisvcsefalvay/status/978403759754809345?ref_src=twsrc%5Etfw">March 26, 2018</a></blockquote>
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Hey, <a href="https://twitter.com/hashtag/SaidNoMother?src=hash&ref_src=twsrc%5Etfw">#SaidNoMother</a> participants: You didn't lose your kid to autism. You're losing them to your own fucking unwillingness to love or accept your Autistic kid.<br />
<br />
We're. Still. People. We're not props for your fake science or narratives of personal martyrdom.</div>
— (((Jay Edidin))) (@RaeBeta) <a href="https://twitter.com/RaeBeta/status/978309395972018178?ref_src=twsrc%5Etfw">March 26, 2018</a></blockquote>
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Another anti-vaxxer tell: unexamined privilege. It is contemptible for one who never experienced or witnessed vaccine-preventable death/disease themselves—thanks to vaccines & herd immunity—to sow lies while, globally, so many kids still get sick & die due to limited vax access. <a href="https://t.co/Bevl8BdDx9">https://t.co/Bevl8BdDx9</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/977256023143542784?ref_src=twsrc%5Etfw">March 23, 2018</a></blockquote>
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<a href="https://twitter.com/hashtag/SaidNoMother?src=hash&ref_src=twsrc%5Etfw">#SaidNoMother</a> is an anti-vaccine, anti-science, and anti-autistic hashtag being used primarily by white mothers to validate their parental experiences. Their warped perspectives are derived from drawing false conclusions. They are NOT feminist and they stigmatize disability.</div>
— feMNistProf (@feMNistProf) <a href="https://twitter.com/feMNistProf/status/978465276017573888?ref_src=twsrc%5Etfw">March 27, 2018</a></blockquote>
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Now, I'm just a humble viral epidemiologist, but apparently, the MMR <a href="https://twitter.com/hashtag/vaccine?src=hash&ref_src=twsrc%5Etfw">#vaccine</a> can give you FLESH. EATING. DIARRHOEA.<br />
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"I want my child to grow up and post nonsense about my grandchild's 'flesh eating diarrhoea' on the internet," <a href="https://twitter.com/hashtag/SaidNoMother?src=hash&ref_src=twsrc%5Etfw">#SaidNoMother</a>. <a href="https://t.co/1eVm4ZqIPm">pic.twitter.com/1eVm4ZqIPm</a></div>
— Chris von Csefalvay (on partial break for Lent) (@chrisvcsefalvay) <a href="https://twitter.com/chrisvcsefalvay/status/978455960720171009?ref_src=twsrc%5Etfw">March 27, 2018</a></blockquote>
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"I would rather trust the testimony of a woman who prides herself on her scientific illiteracy, & puts the word ‘science’ in scare quotes, than the 1000s of doctors & researchers who don’t want my child to die of preventable illness,” <a href="https://twitter.com/hashtag/SaidNoMother?src=hash&ref_src=twsrc%5Etfw">#SaidNoMother</a> <a href="https://twitter.com/hashtag/vaccineswork?src=hash&ref_src=twsrc%5Etfw">#vaccineswork</a> <a href="https://twitter.com/hashtag/autismacceptance?src=hash&ref_src=twsrc%5Etfw">#autismacceptance</a> <a href="https://t.co/rn2YWXLqoI">https://t.co/rn2YWXLqoI</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/978479321718210562?ref_src=twsrc%5Etfw">March 27, 2018</a></blockquote>
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This is the result of <a href="https://twitter.com/hashtag/SaidNoMother?src=hash&ref_src=twsrc%5Etfw">#SaidNoMother</a> autistic hate. <br />
<br />
This.<a href="https://t.co/beKfe6uHlt">https://t.co/beKfe6uHlt</a></div>
— Alyzande Renard 🍁🍂 (@alyzande) <a href="https://twitter.com/alyzande/status/978452609278382080?ref_src=twsrc%5Etfw">March 27, 2018</a></blockquote>
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My child did NOT "become" autistic. I have yet to see any valid scientific or medical reason to 'cause' it. It is NOT like a cold or bronchitis! You make it sound nasty & preventable. You also sound pissed you have to 'deal w/ it'. You sound like a parent who wants pity for you!</div>
— Felicity (@CamoMom80) <a href="https://twitter.com/CamoMom80/status/978606370701434880?ref_src=twsrc%5Etfw">March 27, 2018</a></blockquote>
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It's extremely common in the autistic community to seem to "regress" on development. We talk about this all the time. It happens to us as adults too, although less noticeable because we have learned to fake it as adults.</div>
— Tracey Rolandelli (@RolandelliDsign) <a href="https://twitter.com/RolandelliDsign/status/978648837328744449?ref_src=twsrc%5Etfw">March 27, 2018</a></blockquote>
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I fell for '00s autism/vax fears, so enrolled my son in a regression study at UC Davis MIND Institute. They looked at home videos, & showed me my son’s <a href="https://twitter.com/hashtag/autism?src=hash&ref_src=twsrc%5Etfw">#autism</a> traits were there all along. <br />
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Parent recall is unreliable; not ONE of these “regression” claims has ever been verified. <a href="https://t.co/Wvs8Sq6cy1">https://t.co/Wvs8Sq6cy1</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/978677520965881856?ref_src=twsrc%5Etfw">March 27, 2018</a></blockquote>
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Why are parents seeking some one/thing to blame? Why are you suspect of people motivating you to embrace your son as he is? Don't you think he deserves that? Learning to innerstand Autism by listening to <a href="https://twitter.com/hashtag/ActuallyAutistic?src=hash&ref_src=twsrc%5Etfw">#ActuallyAutistic</a> ppl will only help you and enhance your son's daily life.</div>
— Autism Hwy (@AutismHWY) <a href="https://twitter.com/AutismHWY/status/978699155743784960?ref_src=twsrc%5Etfw">March 27, 2018</a></blockquote>
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Again with the anti-vaxxer greatest hits: “you question my fear-and-misinformation-based testimonials, therefore you must be pharma-funded.” <br />
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Dude, I *wish* I had some of that sweet pharma lucre so I could actually fund projects & staff instead of limited all-volunteer efforts. <a href="https://t.co/quEMIMUGnM">https://t.co/quEMIMUGnM</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/978703395040018433?ref_src=twsrc%5Etfw">March 27, 2018</a></blockquote>
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Far too many parents have to pay for Autistic kids’ services out of pocket (*ahem*). This is a social infrastructure fail; it has nothing to do with “vaccine injury” claims.<br />
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Your insistence on your child’s disability making YOU a victim is purely about privilege & denialism BTW. <a href="https://t.co/C42TcLyDtN">https://t.co/C42TcLyDtN</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/978704702115229696?ref_src=twsrc%5Etfw">March 27, 2018</a></blockquote>
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Steve Silberman’s <a href="https://twitter.com/hashtag/NeuroTribes?src=hash&ref_src=twsrc%5Etfw">#NeuroTribes</a> is a thorough debunking of the misinformed autism “epidemic” notion, &explains how autistic people have always been here. No one should deny more autistic people have been *identified*, however. Note: Photo of handsome dudes:<a href="https://t.co/lVzfoIMzMx">https://t.co/lVzfoIMzMx</a> <a href="https://t.co/BtUPwv59h0">https://t.co/BtUPwv59h0</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/978745711083704321?ref_src=twsrc%5Etfw">March 27, 2018</a></blockquote>
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"I can’t refute the facts or rights issues <a href="https://twitter.com/hashtag/actuallyautistic?src=hash&ref_src=twsrc%5Etfw">#actuallyautistic</a> people are forcing me to confront, so I’ll invoke ableism, exemplify the double empathy problem, and belittle disabled people whose communication efforts use so much more energy than mine do."<a href="https://t.co/P4Dn85dSC3">https://t.co/P4Dn85dSC3</a> <a href="https://t.co/J6MRozVI7A">https://t.co/J6MRozVI7A</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/978747581332209665?ref_src=twsrc%5Etfw">March 27, 2018</a></blockquote>
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Well, if you can't trust a hastily thrown together pamphlet written in comic sans, what can you trust? <br />
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"Someone would have said something." They did. Autistics were either the "weird genus" making scientific breakthrus, or the "crazy cousins" who were locked up in the attic.</div>
— Kristyle Solomon (@kristyleTweets) <a href="https://twitter.com/kristyleTweets/status/978748746090475520?ref_src=twsrc%5Etfw">March 27, 2018</a></blockquote>
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More like a lot of <a href="https://twitter.com/hashtag/actuallyautistic?src=hash&ref_src=twsrc%5Etfw">#actuallyautistic</a> perception. You do not realize the language you choose reveals to many exactly what you think of Autism. So it is an easy correlation to draw. If you disrespect Autism and what it IS...you disrespect an entire culture and community of people.</div>
— Autism Hwy (@AutismHWY) <a href="https://twitter.com/AutismHWY/status/978750027894960128?ref_src=twsrc%5Etfw">March 27, 2018</a></blockquote>
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More like a lot of <a href="https://twitter.com/hashtag/actuallyautistic?src=hash&ref_src=twsrc%5Etfw">#actuallyautistic</a> perception. You do not realize the language you choose reveals to many exactly what you think of Autism. So it is an easy correlation to draw. If you disrespect Autism and what it IS...you disrespect an entire culture and community of people.</div>
— Autism Hwy (@AutismHWY) <a href="https://twitter.com/AutismHWY/status/978750027894960128?ref_src=twsrc%5Etfw">March 27, 2018</a></blockquote>
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As an <a href="https://twitter.com/hashtag/ActuallyAutistic?src=hash&ref_src=twsrc%5Etfw">#ActuallyAutistic</a> mom to 2 <a href="https://twitter.com/hashtag/ActuallyAutistic?src=hash&ref_src=twsrc%5Etfw">#ActuallyAutistic</a> sons, I find the entire <a href="https://twitter.com/hashtag/SaidNoMother?src=hash&ref_src=twsrc%5Etfw">#SaidNoMother</a> campaign absolutely disgusting, dehumanizing, & ableist. I can’t understand how mothers could be so disparaging about their own child. It literally makes me nauseous.</div>
— Michelle (@StopVaxxedLies) <a href="https://twitter.com/StopVaxxedLies/status/978696442247135232?ref_src=twsrc%5Etfw">March 27, 2018</a></blockquote>
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The autistic population has always been large, it’s just that now it is better diagnosed and identified. Which is good when people get supports earlier, and only bad when anti-vaxxers use the clear results of a diagnostic shift to claim there’s an “autism epidemic.” <a href="https://t.co/lhy2fZC6fY">https://t.co/lhy2fZC6fY</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/978781965238255616?ref_src=twsrc%5Etfw">March 27, 2018</a></blockquote>
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Non-verbal Autistics CAN talk. You're just not listening. You're just not looking to communicate the way THEY do. A parent of a deaf child teaches and learns ASL. Dont call them grotesque or unnatural. They adapt to communicate in the way the child can understand.</div>
— Tania Grey (@maxriderflies) <a href="https://twitter.com/maxriderflies/status/978781157872553984?ref_src=twsrc%5Etfw">March 27, 2018</a></blockquote>
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So if your child had any of those delays listed bc they were in a car accident or bc of chemo or a variety of other things, would you describe them that way? Or are you only disgusted by disability when it is blamed on <a href="https://twitter.com/hashtag/vaccines?src=hash&ref_src=twsrc%5Etfw">#vaccines</a> <a href="https://twitter.com/hashtag/SaidWorstMomEver?src=hash&ref_src=twsrc%5Etfw">#SaidWorstMomEver</a></div>
— Brandi Dalhover (@SpectrumomYeah) <a href="https://twitter.com/SpectrumomYeah/status/978779950793875456?ref_src=twsrc%5Etfw">March 27, 2018</a></blockquote>
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“I could do without sea lions.”<a href="https://t.co/oFQAnPBVs5">https://t.co/oFQAnPBVs5</a> <a href="https://t.co/NIQ83SjSmf">https://t.co/NIQ83SjSmf</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/978785940297588737?ref_src=twsrc%5Etfw">March 28, 2018</a></blockquote>
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Me too. The way they put down actually autistic people who disagree with them is disgusting too.</div>
— HistoryWoman (@HelenRBarton) <a href="https://twitter.com/HelenRBarton/status/978768073867124736?ref_src=twsrc%5Etfw">March 27, 2018</a></blockquote>
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Encephalitis is not autism. I mean, that’s not a controversial statement.</div>
— DorotheaBrooke (@heterochromance) <a href="https://twitter.com/heterochromance/status/978817378866806785?ref_src=twsrc%5Etfw">March 28, 2018</a></blockquote>
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That’s what settles science-replicated results. Something <a href="https://twitter.com/hashtag/AndrewWakefield?src=hash&ref_src=twsrc%5Etfw">#AndrewWakefield</a> refuses to do for his followers. So if anything, this narrative helped rational people be even more secure in their decision to <a href="https://twitter.com/hashtag/vaccinate?src=hash&ref_src=twsrc%5Etfw">#vaccinate</a>. It is also the difference between doctors who trust science.</div>
— Brandi Dalhover (@SpectrumomYeah) <a href="https://twitter.com/SpectrumomYeah/status/978826040452767744?ref_src=twsrc%5Etfw">March 28, 2018</a></blockquote>
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I would be his friend and no one is completely independent. Do you take him around other autistic people? Just because he can speak doesn't mean he's not communicating</div>
— 🕷️Anansi Acolyte, Spider Demon Lord, Satanael🕷 (@chromesthesia) <a href="https://twitter.com/chromesthesia/status/978833335169544193?ref_src=twsrc%5Etfw">March 28, 2018</a></blockquote>
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I know people in their 20s who can't speak. It doesn't make them grotesque.</div>
— 🕷️Anansi Acolyte, Spider Demon Lord, Satanael🕷 (@chromesthesia) <a href="https://twitter.com/chromesthesia/status/978833511049318400?ref_src=twsrc%5Etfw">March 28, 2018</a></blockquote>
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It is because of denialist anti-vax arguments about Hannah Poling that the Vaccine Court Had to issue a formal clarification: The Hannah Poling case “does not afford any support to the notion that vaccinations can contribute to the causation of autism.”<a href="https://t.co/gvLyz7OqI4">https://t.co/gvLyz7OqI4</a> <a href="https://t.co/KTuXtyJvHr">https://t.co/KTuXtyJvHr</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/978886677870600193?ref_src=twsrc%5Etfw">March 28, 2018</a></blockquote>
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Sadly, Anti-vax trutherism means we can never have a rational convo about extremely rare but real vaccine injuries: victims are real but the risk is equal to that of getting struck by lightning. This shouldn’t derail life-saving vax efforts. <br />
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Also: Encephalopathy is NOT autism. <a href="https://t.co/Risqt1rfd5">https://t.co/Risqt1rfd5</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/978889755474702337?ref_src=twsrc%5Etfw">March 28, 2018</a></blockquote>
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It is grotesque that people get shamed for not being able to use the toilet, that people who cannot speak do not get intensive AAC support, that people are excluded because they are different and that supported living is not available in every community.</div>
— Martine Meijers (@MarTNT) <a href="https://twitter.com/MarTNT/status/978959641718743040?ref_src=twsrc%5Etfw">March 28, 2018</a></blockquote>
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Disability is not grotesque. It is a fact of life. That society enables fear and disrespect regarding people with disabilities *is* grotesque. People who need supports deserve those supports. Period. <a href="https://t.co/VRjdprIGGf">https://t.co/VRjdprIGGf</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/978992583845150726?ref_src=twsrc%5Etfw">March 28, 2018</a></blockquote>
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Autistic people often develop skills on different timelines than typically developing kids! Just because we haven't learned something doesn't mean we won't, or that we don't have other, worthwhile capabilities.</div>
— Emily Paige Ballou (@epballou) <a href="https://twitter.com/epballou/status/978993387738206210?ref_src=twsrc%5Etfw">March 28, 2018</a></blockquote>
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The govt took over liability for vaccines bc otherwise the pharma Cos would have stopped manufacturing vaccines due to imperiled profits (so, no, not a fan of Big Pharma). <br />
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Again, this isn’t evidence of widespread vaccine risk. This is ethical compensation of those RARE victims. <a href="https://t.co/M3kc69rZH1">https://t.co/M3kc69rZH1</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/979044730351661056?ref_src=twsrc%5Etfw">March 28, 2018</a></blockquote>
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I read and reviewed Jenny McCarthy’s Mother Warriors. She squandered the opportunity to provide real help.<br />
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"Reading Mother Warriors is like listening to a college sophomore try to recruit campus freshman to Earth-First!-style environmental activism."<a href="https://t.co/1neV1xvDLy">https://t.co/1neV1xvDLy</a> <a href="https://t.co/V0Yto178t0">https://t.co/V0Yto178t0</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/979045815116185600?ref_src=twsrc%5Etfw">March 28, 2018</a></blockquote>
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I suggest you read Neurotribes. And read things written by Temple Grandin and John Elder Robison. Listen to the actually autistic. Conspiracy theories aside it's more important to fight for services than seek out a cause</div>
— Sue (@Roselover24) <a href="https://twitter.com/Roselover24/status/979026741565026306?ref_src=twsrc%5Etfw">March 28, 2018</a></blockquote>
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Yes. <a href="https://t.co/ar23kepBT3">https://t.co/ar23kepBT3</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/979046034062979073?ref_src=twsrc%5Etfw">March 28, 2018</a></blockquote>
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Yes. <a href="https://t.co/ar23kepBT3">https://t.co/ar23kepBT3</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/979046034062979073?ref_src=twsrc%5Etfw">March 28, 2018</a></blockquote>
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When privileged anti-vax parents convinced by charlatans that their autistic kids are damaged claim that disabled activists who counter their toxic autism BS are the ones discriminating against THEM, & resort to ad hominem (personal) attacks because they can’t counter evidence. <a href="https://t.co/yZalKZvpnE">https://t.co/yZalKZvpnE</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/979048907832307712?ref_src=twsrc%5Etfw">March 28, 2018</a></blockquote>
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Written without irony by one of the participants of the <a href="https://twitter.com/hashtag/SaidNoMother?src=hash&ref_src=twsrc%5Etfw">#SaidNoMother</a> campaign, when the <a href="https://twitter.com/hashtag/autistic?src=hash&ref_src=twsrc%5Etfw">#autistic</a> people they are actively harming with their ableist, debunked claims about vaccine-autism causation push back with all the weight of legitimate research and basic human decency. <a href="https://t.co/PbUCIY0He7">https://t.co/PbUCIY0He7</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/979049320799338497?ref_src=twsrc%5Etfw">March 28, 2018</a></blockquote>
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Because of anti-vax efforts to scare the public, not because of actual risks. <br />
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Same reason thimerosal was removed: Not because there was any legitimate risk, but because anti-vax-stoked fears imperiled public confidence about vaccines. Then we had disease outbreaks. Nice work. <a href="https://t.co/nSri4n7OVI">https://t.co/nSri4n7OVI</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/979050212218961922?ref_src=twsrc%5Etfw">March 28, 2018</a></blockquote>
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You want absolutes from science? That’s not how it works, friend. <a href="https://t.co/GCrZ1Xj6RX">https://t.co/GCrZ1Xj6RX</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/979051448846622720?ref_src=twsrc%5Etfw">March 28, 2018</a></blockquote>
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Controversial histories are by nature complex. It is both OK and desirable to correct the record, to make sure that the most accurate information gets out. That’s not double-speak. That is people who aren’t pushing conspiracy theories having an info-based conversation. <a href="https://t.co/GvPFM4mZWi">https://t.co/GvPFM4mZWi</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/979058014823985152?ref_src=twsrc%5Etfw">March 28, 2018</a></blockquote>
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There is such a thing as vaccine injury. It just has NOTHING to do with AUTISM.</div>
— Jo Qatana 🐽 (@joqatana) <a href="https://twitter.com/joqatana/status/979058356299079681?ref_src=twsrc%5Etfw">March 28, 2018</a></blockquote>
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I can tell you that I am accountable for 1 of the shifts.<br />
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Diagnosed bipolar at 15.<br />
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Not actually bipolar. I'm Autistic, but that took 25 more years to discover.<br />
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Girls get up to 6 diagnoses before they get a correct one of Autism.</div>
— PatriciaPersists🐭🌻🍵 (@pgzwicker) <a href="https://twitter.com/pgzwicker/status/979060696834084865?ref_src=twsrc%5Etfw">March 28, 2018</a></blockquote>
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My presence here is to counter you, not convince you. Arguing with people about their cultish beliefs is rarely effective. I am providing legitimate information for the people who are listening on the sidelines and wondering if there’s any merit to antivax claims. (Spoiler: no.) <a href="https://t.co/dIYQk0ljW5">https://t.co/dIYQk0ljW5</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/979063018431524865?ref_src=twsrc%5Etfw">March 28, 2018</a></blockquote>
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Sigh<br />
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My family is autistic <br />
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I’m Bonafide 18/18 characteristics DX in Cambridge at ARC <br />
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Just let them bring it on</div>
— jon adams (@soundcube) <a href="https://twitter.com/soundcube/status/979065372560252928?ref_src=twsrc%5Etfw">March 28, 2018</a></blockquote>
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Again with The baseless accusations in denial of evidence. <br />
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More importantly: it will never be too late to help your Autistic son live the best life possible, through focusing on the understanding our kids need from their parents/society. Recommend <a href="https://twitter.com/RespectConnectd?ref_src=twsrc%5Etfw">@RespectConnectd</a> for guidance. <a href="https://t.co/xMbvxe69Fm">https://t.co/xMbvxe69Fm</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/979067925150679040?ref_src=twsrc%5Etfw">March 28, 2018</a></blockquote>
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I can because it's logical.<br />
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I'm not sure how or why it isn't for others but this is just plain old big picture thinking ability + data + superb pattern recognition skills + 1000's of hours of reading/research and interaction with others = logical answer of dx criteria</div>
— PatriciaPersists🐭🌻🍵 (@pgzwicker) <a href="https://twitter.com/pgzwicker/status/979065982298750977?ref_src=twsrc%5Etfw">March 28, 2018</a></blockquote>
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Because anti-vax arguments & conclusions are based in pseudoscience, the hallmark of which is that it looks & feels “sciencey” to the credulous. This is why the <a href="https://twitter.com/thinkingautism?ref_src=twsrc%5Etfw">@thinkingautism</a> mission statement includes an <a href="https://twitter.com/hashtag/autism?src=hash&ref_src=twsrc%5Etfw">#autism</a> pseudoscience-identification checklist:<a href="https://t.co/dVEmBRl9BL">https://t.co/dVEmBRl9BL</a> <a href="https://t.co/ABbB7Q5vBO">https://t.co/ABbB7Q5vBO</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/979068771078881281?ref_src=twsrc%5Etfw">March 28, 2018</a></blockquote>
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And this is what is so distressing about anti-vaxxer “<a href="https://twitter.com/hashtag/autism?src=hash&ref_src=twsrc%5Etfw">#autism</a> parents.” Not only do they refuse to acknowledge how to best help & understand their own Autistic kids, but they actively try to recruit other parents into believing autism is “damage” not well-substantiated neurology. <a href="https://t.co/a51GUD5DQy">https://t.co/a51GUD5DQy</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/979069760548687872?ref_src=twsrc%5Etfw">March 28, 2018</a></blockquote>
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People absolutely noticed. They just didn't understand what they were noticing. But autistics have often been mistreated horribly for our differences even if they weren't dx'd correctly.</div>
— Emily Paige Ballou (@epballou) <a href="https://twitter.com/epballou/status/979078288139345922?ref_src=twsrc%5Etfw">March 28, 2018</a></blockquote>
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Yes.. Autism has always been vastly underdiagnosed, especially in women, POC, and low SES communities. Then autistics were known as odd aunts & uncles, eccentric professors, train enthusiasts, & institutionalized cousins. Also, in some cultures <a href="https://twitter.com/hashtag/autistic?src=hash&ref_src=twsrc%5Etfw">#autistic</a> traits aren’t deemed odd. <a href="https://t.co/7QwhDBeoaD">https://t.co/7QwhDBeoaD</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/979047736782684160?ref_src=twsrc%5Etfw">March 28, 2018</a></blockquote>
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I never said Hannah Poling didn’t have an autism diagnosis. I cited the vaccine court decision stating definitively that, as in all other claims of vaccine-autism causation, the court and expert determined that vaccines had NOTHING to do with her being autistic. <a href="https://t.co/GvPFM4mZWi">https://t.co/GvPFM4mZWi</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/979168356690350081?ref_src=twsrc%5Etfw">March 29, 2018</a></blockquote>
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As <a href="https://twitter.com/epballou?ref_src=twsrc%5Etfw">@epballou</a> noted, so many autistic people are un- or under-employed. I am an unpaid volunteer. The anti-vax contingent are characteristically fleeced by autism “cure” carpetbaggers. The irony of being accused of being shills... <a href="https://t.co/KspaItUJiV">https://t.co/KspaItUJiV</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/979170042439876608?ref_src=twsrc%5Etfw">March 29, 2018</a></blockquote>
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Logic and anti-vaxx don't belong in the same sentence.<br />
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There's no logic to anti-vaxx. That's woo and woo dresses up like logic, but isn't.<br />
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Been there, done that - thankfully I'm cured.</div>
— PatriciaPersists🐭🌻🍵 (@pgzwicker) <a href="https://twitter.com/pgzwicker/status/979067032963567616?ref_src=twsrc%5Etfw">March 28, 2018</a></blockquote>
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Autistic kids are often medically fragile or complex; also being human they get sick too. That doesn’t have anything to do with vaccines, or being autistic—unless parents unwittingly contribute by refusing to understand autism, & therefore stressing kids into compromised health. <a href="https://t.co/Hgh5PEgNHE">https://t.co/Hgh5PEgNHE</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/979174789968359424?ref_src=twsrc%5Etfw">March 29, 2018</a></blockquote>
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Let me rephrase: Vaccines, being given only a few times in an individual’s lifetime, are not *huge* money-makers for Pharma companies; that’s part of why they tried to exit the vax market. Prescription medications—now THAT is where the real pharma profits is. <a href="https://t.co/Y7OJMhK7Kv">https://t.co/Y7OJMhK7Kv</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/979176078995419141?ref_src=twsrc%5Etfw">March 29, 2018</a></blockquote>
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“I’m going to spend all my energy bewailing my high-support <a href="https://twitter.com/hashtag/autistic?src=hash&ref_src=twsrc%5Etfw">#autistic</a> son’s neurology & blaming vaccines even though that’s a conspiracy theory, instead of using my time to learn how he can live the best life possible, both now & after I’m gone.” <a href="https://twitter.com/hashtag/SaidNoMother?src=hash&ref_src=twsrc%5Etfw">#SaidNoMother</a> (No good mother.)</div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/977941705356861440?ref_src=twsrc%5Etfw">March 25, 2018</a></blockquote>
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neurotypical parents are privileged above autistic people, yes. that's how privilege works.</div>
— harrison porg (pacrim 2 spoilers) (@torako_tiger) <a href="https://twitter.com/torako_tiger/status/979172232869175297?ref_src=twsrc%5Etfw">March 29, 2018</a></blockquote>
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Exactly. Signs of autism are more evident when language and communication start to develop because autism affects those things most. <a href="https://twitter.com/hashtag/CommonSense?src=hash&ref_src=twsrc%5Etfw">#CommonSense</a></div>
— Brandi Dalhover (@SpectrumomYeah) <a href="https://twitter.com/SpectrumomYeah/status/979173009977114624?ref_src=twsrc%5Etfw">March 29, 2018</a></blockquote>
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The fact that you can’t accept your child’s autism as natural, or any of us <a href="https://twitter.com/hashtag/ActuallyAutistic?src=hash&ref_src=twsrc%5Etfw">#ActuallyAutistic</a> people as natural, is what is toxic. Something about us is fucked up in your view & that is what is fucked. Learn who we are, not who you think we are. You’re the injured one. Accept us.</div>
— John Marble (@JHMarble) <a href="https://twitter.com/JHMarble/status/979190795050758144?ref_src=twsrc%5Etfw">March 29, 2018</a></blockquote>
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Mine did that too but it had NOTHING TO DO WITH VACCINES. This is a textbook case of "correlation doesn't equal causation." it's a very common thing with autism kids, vaxxed or NOT.</div>
— Anne (@annealexander70) <a href="https://twitter.com/annealexander70/status/979198504928149504?ref_src=twsrc%5Etfw">March 29, 2018</a></blockquote>
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Nope. <br />
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Parent reports of post-vax regression do not outweigh systematic studies analyzing & debunking those anecdotes using observable, quantified, systematic analysis according to ethics-board-approved guidelines. Even when pseudoscientists use sciencey-looking charts & graphs. <a href="https://t.co/3CX3JUnKXw">https://t.co/3CX3JUnKXw</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/979201844806217729?ref_src=twsrc%5Etfw">March 29, 2018</a></blockquote>
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It’s important to understand how “vaccine-<a href="https://twitter.com/hashtag/autism?src=hash&ref_src=twsrc%5Etfw">#autism</a> misinformation hurts the amazing people in the autistic communities in general, and people like my wonderful, happy, <a href="https://twitter.com/hashtag/autistic?src=hash&ref_src=twsrc%5Etfw">#autistic</a> son specifically.”<a href="https://t.co/a6JL2ifK9v">https://t.co/a6JL2ifK9v</a><a href="https://twitter.com/hashtag/SaidNoMother?src=hash&ref_src=twsrc%5Etfw">#SaidNoMother</a> <a href="https://twitter.com/hashtag/VaccinesWork?src=hash&ref_src=twsrc%5Etfw">#VaccinesWork</a> <a href="https://twitter.com/hashtag/SaidNoFather?src=hash&ref_src=twsrc%5Etfw">#SaidNoFather</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/979207449419771904?ref_src=twsrc%5Etfw">March 29, 2018</a></blockquote>
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<a href="https://twitter.com/hashtag/Autistic?src=hash&ref_src=twsrc%5Etfw">#Autistic</a> people are offended when asked if they think vaccines cause <a href="https://twitter.com/hashtag/autism?src=hash&ref_src=twsrc%5Etfw">#autism</a> not just because the science doesn't support the link but because it dismisses their humanity.<a href="https://twitter.com/hashtag/SaidNoMother?src=hash&ref_src=twsrc%5Etfw">#SaidNoMother</a> <a href="https://twitter.com/hashtag/SaidNoFather?src=hash&ref_src=twsrc%5Etfw">#SaidNoFather</a><a href="https://twitter.com/hashtag/VaccinesWork?src=hash&ref_src=twsrc%5Etfw">#VaccinesWork</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/979207918691041280?ref_src=twsrc%5Etfw">March 29, 2018</a></blockquote>
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Non-Autistic people must remember: <a href="https://twitter.com/hashtag/autistic?src=hash&ref_src=twsrc%5Etfw">#autistic</a> people take part in <a href="https://twitter.com/hashtag/autism?src=hash&ref_src=twsrc%5Etfw">#autism</a> conversations, read what is written, & hear everything said in their presence. That makes it especially nasty & gauche to make the absurd claim that autism is “vaccine injury."<a href="https://twitter.com/hashtag/VaccinesWork?src=hash&ref_src=twsrc%5Etfw">#VaccinesWork</a> <a href="https://twitter.com/hashtag/SaidNoMother?src=hash&ref_src=twsrc%5Etfw">#SaidNoMother</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/979209065157951488?ref_src=twsrc%5Etfw">March 29, 2018</a></blockquote>
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Time to turn the <a href="https://twitter.com/hashtag/SaidNoMother?src=hash&ref_src=twsrc%5Etfw">#SaidNoMother</a> denialists' responses into a drinking game:<br />
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“You Pharma shill!”: DRINK<br />
“But Hannah Poling”: DRINK<br />
“Vaccines cause <a href="https://twitter.com/hashtag/autism?src=hash&ref_src=twsrc%5Etfw">#autism</a> bc conspiracy theories & anecdotes trump evidence:" DRINK<br />
Ad hominem attack: DRINK<br />
“No, YOU must disprove my BS claim”: DRINK <a href="https://t.co/51jEWCaaJE">https://t.co/51jEWCaaJE</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/979214184008183808?ref_src=twsrc%5Etfw">March 29, 2018</a></blockquote>
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What adorable little coffins. <a href="https://twitter.com/hashtag/saidnomother?src=hash&ref_src=twsrc%5Etfw">#saidnomother</a> <a href="https://twitter.com/hashtag/diptheria?src=hash&ref_src=twsrc%5Etfw">#diptheria</a> <a href="https://twitter.com/hashtag/vaccineswork?src=hash&ref_src=twsrc%5Etfw">#vaccineswork</a> <a href="https://twitter.com/hashtag/vaccinessavelives?src=hash&ref_src=twsrc%5Etfw">#vaccinessavelives</a>… <a href="https://t.co/FEAHGN9uqT">https://t.co/FEAHGN9uqT</a></div>
— RtAVM (@RtAVM) <a href="https://twitter.com/RtAVM/status/979228805867880449?ref_src=twsrc%5Etfw">March 29, 2018</a></blockquote>
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I’m open about once having bought into autism pseudoscience & anti-vax fear & disinfo, because other parents need to know that recovery from being scared/misinformed is not only possible but preferable. Short version here, longer version in <a href="https://twitter.com/hashtag/NeuroTribes?src=hash&ref_src=twsrc%5Etfw">#NeuroTribes</a>:<a href="https://t.co/e1HkMCD0WJ">https://t.co/e1HkMCD0WJ</a> <a href="https://t.co/JYl2pr7gbD">https://t.co/JYl2pr7gbD</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/979354096867004417?ref_src=twsrc%5Etfw">March 29, 2018</a></blockquote>
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It is too early to play the <a href="https://twitter.com/hashtag/SaidNoMother?src=hash&ref_src=twsrc%5Etfw">#SaidNoMother</a> drinking game, so here’s info on why Hannah Poling has an autism diagnosis but how vaccines had nada to do with it:<a href="https://t.co/gvLyz7wPju">https://t.co/gvLyz7wPju</a><br />
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An investigative journalist on how VAERS/Vaccine court actually works: <a href="https://t.co/wRYjvm8brI">https://t.co/wRYjvm8brI</a> <a href="https://t.co/SSi7u9KiOj">https://t.co/SSi7u9KiOj</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/979357988447141889?ref_src=twsrc%5Etfw">March 29, 2018</a></blockquote>
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So you know: autism is <a href="https://twitter.com/hashtag/autism?src=hash&ref_src=twsrc%5Etfw">#autism</a>. <a href="https://twitter.com/hashtag/Autistic?src=hash&ref_src=twsrc%5Etfw">#Autistic</a> people often have co-occurring conditions, & being human can have any trait/condition other humans have.<br />
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We need more/better research into those co-occurring condtions though, for autistic/family QOL purposes: <a href="https://t.co/ipO6wbvMN6">https://t.co/ipO6wbvMN6</a> <a href="https://t.co/0clC9Ra0BQ">https://t.co/0clC9Ra0BQ</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/979359657058709504?ref_src=twsrc%5Etfw">March 29, 2018</a></blockquote>
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I am countering your disinformation, not trying to convince you. <br />
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You can disagree with facts and expert resources all you like; your conspiracy theory approach alters no reality except your own. <a href="https://t.co/Yv5kuLiu6o">https://t.co/Yv5kuLiu6o</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/979360401392480256?ref_src=twsrc%5Etfw">March 29, 2018</a></blockquote>
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Sigh. Yet if I suddenly said, “you’re right, science is wrong, vaccines DO cause autism” you would see that as an epiphany not a flip. <br />
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All the work I do is to improve the well-being, quality of life, & acceptance of my Autistic son & his peeps. I have no other agenda/conflicts. <a href="https://t.co/SYIwVcG8oM">https://t.co/SYIwVcG8oM</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/979383611370582016?ref_src=twsrc%5Etfw">March 29, 2018</a></blockquote>
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Sigh. Yet if I suddenly said, “you’re right, science is wrong, vaccines DO cause autism” you would see that as an epiphany not a flip. <br />
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All the work I do is to improve the well-being, quality of life, & acceptance of my Autistic son & his peeps. I have no other agenda/conflicts. <a href="https://t.co/SYIwVcG8oM">https://t.co/SYIwVcG8oM</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/979383611370582016?ref_src=twsrc%5Etfw">March 29, 2018</a></blockquote>
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When we say “there is NO evidence linking vaccines to autism” without adding “and fear of <a href="https://twitter.com/hashtag/autism?src=hash&ref_src=twsrc%5Etfw">#autism</a> hurts <a href="https://twitter.com/hashtag/autistic?src=hash&ref_src=twsrc%5Etfw">#autistic</a> people,” we’re actually contributing to negative stereotypes about autism & autistic people, rather than furthering acceptance and inclusion:<a href="https://t.co/johwaa7PZG">https://t.co/johwaa7PZG</a></div>
— Thinking Person's Guide To Autism (@thinkingautism) <a href="https://twitter.com/thinkingautism/status/979367575342612480?ref_src=twsrc%5Etfw">March 29, 2018</a></blockquote>
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That "something" being engagement with better research, data, the Wakefield study being uncovered as a fraud from beginning to end, and increasing familiarity with other autistic people.<br />
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This is a story she's told repeatedly; it's not a deep dark mystery.</div>
— Emily Paige Ballou (@epballou) <a href="https://twitter.com/epballou/status/979386870504345606?ref_src=twsrc%5Etfw">March 29, 2018</a></blockquote>
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It’s not about winning, when engaging with anti-vaxxers in public spaces. Ppl who fall for cultish anti-vax mindsets are scared, credulous, straw-graspers, & reflexively entrenched.<br />
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It’s about providing evidence-based, reliable information to counter/negate their disinformation. <a href="https://t.co/PUFAE3GaUv">https://t.co/PUFAE3GaUv</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/979388812445990912?ref_src=twsrc%5Etfw">March 29, 2018</a></blockquote>
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Autism can be caused by de novo genetic mutations. Less commonly than by inherited ones, but it can. So you don't HAVE to have had autism in your family.<br />
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But taking a closer look at family history may reveal more than you think...</div>
— Emily Paige Ballou (@epballou) <a href="https://twitter.com/epballou/status/979388662638137345?ref_src=twsrc%5Etfw">March 29, 2018</a></blockquote>
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Also many kids have challenges like these, AND precocious abilities like early reading. It...doesn't sound "very different" at all. Dramatic mismatches of abilities are very common in autistic people. Superficially very different presentations can stem from the same core trait.</div>
— Emily Paige Ballou (@epballou) <a href="https://twitter.com/epballou/status/979389238377664512?ref_src=twsrc%5Etfw">March 29, 2018</a></blockquote>
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Autistic people have different “styles” because they have different genetic combinations, being a huge, diverse human population. Being autistic is like being female, gay, Black, Jewish—one identify of many; autistic people exemplify infinite diversity in infinite combinations. <a href="https://t.co/ywkuwFjMwW">https://t.co/ywkuwFjMwW</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/979397437549821952?ref_src=twsrc%5Etfw">March 29, 2018</a></blockquote>
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Yep. <a href="https://t.co/K0UusXb2fH">https://t.co/K0UusXb2fH</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/979397589404549120?ref_src=twsrc%5Etfw">March 29, 2018</a></blockquote>
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Yep. <a href="https://t.co/K0UusXb2fH">https://t.co/K0UusXb2fH</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/979397589404549120?ref_src=twsrc%5Etfw">March 29, 2018</a></blockquote>
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Again, there are de novo mutations linked to autism.<br />
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The "different autisms" line is widely used to try to divide autistic people from each other in ways that we tend to resent.</div>
— Emily Paige Ballou (@epballou) <a href="https://twitter.com/epballou/status/979392302522257408?ref_src=twsrc%5Etfw">March 29, 2018</a></blockquote>
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I mean, this is probably the case. They haven't found one "autism gene," b/c they've found thousands. Their effects would be expected to interact with and modulate each other's in a whole constellation of ways.</div>
— Emily Paige Ballou (@epballou) <a href="https://twitter.com/epballou/status/979391866411081732?ref_src=twsrc%5Etfw">March 29, 2018</a></blockquote>
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Kim Peek, on of the Rainman models, wasn’t autistic, though he was a savant. And he was *born* with several brain formation irregularities. (More info in NeuroTribes.)<br />
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Those incredibly rare vaccine injuries are not in any way related to autism. <a href="https://t.co/VBag5ccVGF">https://t.co/VBag5ccVGF</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/979398530069536768?ref_src=twsrc%5Etfw">March 29, 2018</a></blockquote>
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Complete strangers can certainly tell you that it is unreasonable to claim your child’s <a href="https://twitter.com/hashtag/autism?src=hash&ref_src=twsrc%5Etfw">#autism</a> is a vaccine injury, when scientists have reviewed millions of similar parent reports, yet were never able to validate a single case. That is how evidence-based engagement works. <a href="https://t.co/3MGkN3rq5M">https://t.co/3MGkN3rq5M</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/979399548090048513?ref_src=twsrc%5Etfw">March 29, 2018</a></blockquote>
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Absolutely.<br />
But "you have a totally different autism from this person based on my blunt and superficial assessment of surface traits w/ no understanding of core processing differences so your culture, human rights, medical ethics have nothing to do with each other" isn't that.</div>
— Emily Paige Ballou (@epballou) <a href="https://twitter.com/epballou/status/979399068576346112?ref_src=twsrc%5Etfw">March 29, 2018</a></blockquote>
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There probably are environmental *influences,* in the sense of every aspect of our environment is interacting w/ our genes all the time.<br />
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But no, there are not really isolated environmental triggers of autism.</div>
— Emily Paige Ballou (@epballou) <a href="https://twitter.com/epballou/status/979399406905712641?ref_src=twsrc%5Etfw">March 29, 2018</a></blockquote>
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I am grateful to the UC Davis Mind Institute for the work they’ve done on autism & regression, & infant sibling studies. <br />
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However, the org was founded by curebie parents, and so still too often features highly questionable “environmental causation” and epigenetics research. <a href="https://t.co/9j7T3emreX">https://t.co/9j7T3emreX</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/979400457486348294?ref_src=twsrc%5Etfw">March 29, 2018</a></blockquote>
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This is a couple years old. Current estimates of autism heritability (the variance in the trait attributable to inherited factors) are up to 87-95%.</div>
— Emily Paige Ballou (@epballou) <a href="https://twitter.com/epballou/status/979399915037224960?ref_src=twsrc%5Etfw">March 29, 2018</a></blockquote>
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Again, with the anti-vaxxer ignorance of their own movement's history.<br />
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Antivax-stoked hysteria led to environmental causation dominating autism research for the better part of the last 20 years; Researchers have largely concluded autism is inborn. So much wasted money/time. <a href="https://t.co/ZAxkRF6APE">https://t.co/ZAxkRF6APE</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/979402644199387136?ref_src=twsrc%5Etfw">March 29, 2018</a></blockquote>
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At least anti-vaxxers are consistent: “I can’t counter your evidence-based claims, so I’ll just pull some insupportable accusations out of my butt.” <br />
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The claims below mean at least three drinks by the rules of the <a href="https://twitter.com/hashtag/SaidNoMother?src=hash&ref_src=twsrc%5Etfw">#SaidNoMother</a> drinking game? I’ll be doing shots of ... water. <a href="https://t.co/V3TufxyRXf">https://t.co/V3TufxyRXf</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/979404823719129088?ref_src=twsrc%5Etfw">March 29, 2018</a></blockquote>
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It is depressing, dealing with people who choose to endanger their <a href="https://twitter.com/hashtag/autistic?src=hash&ref_src=twsrc%5Etfw">#autistic</a> kids via “injury” anti-vax BS, instead of doing everything they can to understand <a href="https://twitter.com/hashtag/autism?src=hash&ref_src=twsrc%5Etfw">#autism</a> & best practices for parenting those kids (esp. those w/co-occurring health issues). Occasional levity is a balm. <a href="https://t.co/2Nb0TghTq4">https://t.co/2Nb0TghTq4</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/979408228504055808?ref_src=twsrc%5Etfw">March 29, 2018</a></blockquote>
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Autism is how one’s brain works; Autistic people are always going to be autistic. With proper supports & understanding, Autistic lives are easier—but most “EI” is about PTSD-causing normalization, not support. Autistic people often do well despite, not bc of, early intervention. <a href="https://t.co/d1KfCFI7qc">https://t.co/d1KfCFI7qc</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/979433272546533376?ref_src=twsrc%5Etfw">March 29, 2018</a></blockquote>
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This IS anecdotal, but with our son, the signs were there and we chose to ignore some of them because even though we had some professional experience with Autism, we still were largely ignorant and had biases to overcome.</div>
— Chris Chan (@tchrischan) <a href="https://twitter.com/tchrischan/status/979429359093248000?ref_src=twsrc%5Etfw">March 29, 2018</a></blockquote>
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It's *really* easy. A lot of parents have trouble even considering that their child's rapid development and their vaccination schedules might only be a coincidence. There's too much confirmation bias.</div>
— Chris Chan (@tchrischan) <a href="https://twitter.com/tchrischan/status/979431452294041601?ref_src=twsrc%5Etfw">March 29, 2018</a></blockquote>
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Or social/developmental demands on an autistic kid's capabilities have caught up with them. Their difficulty is real, and at least some of its suddenness is real, but again, timing with vaccination is largely coincidental. /2</div>
— Emily Paige Ballou (@epballou) <a href="https://twitter.com/epballou/status/979452494538592258?ref_src=twsrc%5Etfw">March 29, 2018</a></blockquote>
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Here's a scientific article on the diagnostic reclassification from Mental Retardation to Autism, which alone accounts for 26% of the increase (excluding all other sources of diagnosis reclassification in people without intellectual disability): <a href="https://t.co/fTxgXKSNmJ">https://t.co/fTxgXKSNmJ</a></div>
— Lissanna (@restokin) <a href="https://twitter.com/restokin/status/979470440178466816?ref_src=twsrc%5Etfw">March 29, 2018</a></blockquote>
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Here's another scientific article finding that at least 60% of the increase in one country was due to changes in reporting practices: <a href="https://t.co/PyasHG1KXF">https://t.co/PyasHG1KXF</a></div>
— Lissanna (@restokin) <a href="https://twitter.com/restokin/status/979471186940739584?ref_src=twsrc%5Etfw">March 29, 2018</a></blockquote>
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No, you’re toxic to our children, who are who they were meant to be. They are not damaged, they are not injured, and they aren’t suffering until they discover people who treat them as such. And it’s even sadder when it’s their parent.</div>
— Megen Amanita (@megenporter) <a href="https://twitter.com/megenporter/status/979476181652156416?ref_src=twsrc%5Etfw">March 29, 2018</a></blockquote>
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I don't get this idea that changing your mind when presented with evidence that something is incorrect is a bad thing.</div>
— Kristi Pritchard (@KristiPritchard) <a href="https://twitter.com/KristiPritchard/status/979477719707561984?ref_src=twsrc%5Etfw">March 29, 2018</a></blockquote>
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No. <a href="https://twitter.com/hashtag/saidnomother?src=hash&ref_src=twsrc%5Etfw">#saidnomother</a> is selfish, arrogant moms who don’t accept their children as the wonderful humans they are. They refer to kids in horrendous and degrading terms. It’s disgusting.</div>
— Katie (@katieicunurse) <a href="https://twitter.com/katieicunurse/status/979484919301857280?ref_src=twsrc%5Etfw">March 29, 2018</a></blockquote>
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your child didn't "regress into autism" because of vaccines. your child was autistic already but too young for you to have recognized it yet. the vaccines just let your children survive long enough for them to grow into who they are.<br />
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<a href="https://twitter.com/hashtag/saidnomother?src=hash&ref_src=twsrc%5Etfw">#saidnomother</a> but <a href="https://twitter.com/hashtag/saidthisautistic?src=hash&ref_src=twsrc%5Etfw">#saidthisautistic</a></div>
— ch(aud) gadya (@audendum) <a href="https://twitter.com/audendum/status/977634356402507777?ref_src=twsrc%5Etfw">March 24, 2018</a></blockquote>
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Please include messages of <a href="https://twitter.com/hashtag/autism?src=hash&ref_src=twsrc%5Etfw">#autism</a> understanding & acceptance into your <a href="https://twitter.com/hashtag/SaidNoMother?src=hash&ref_src=twsrc%5Etfw">#SaidNoMother</a> countering. If these attitudes become commonplace, new parents will ideally have one less irrational fear interfering with good vax choices for their kids: <a href="https://t.co/a6JL2ifK9v">https://t.co/a6JL2ifK9v</a> <a href="https://twitter.com/hashtag/vaccineswork?src=hash&ref_src=twsrc%5Etfw">#vaccineswork</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/979597182469730304?ref_src=twsrc%5Etfw">March 30, 2018</a></blockquote>
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Where can you find good <a href="https://twitter.com/hashtag/autism?src=hash&ref_src=twsrc%5Etfw">#autism</a> acceptance & understanding info, as part of countering <a href="https://twitter.com/hashtag/SaidNoMother?src=hash&ref_src=twsrc%5Etfw">#SaidNoMother</a> autism/vax disinfo? We trust <a href="https://twitter.com/autselfadvocacy?ref_src=twsrc%5Etfw">@autselfadvocacy</a>, <a href="https://twitter.com/NOSeditorial?ref_src=twsrc%5Etfw">@NOSeditorial</a>, <a href="https://twitter.com/autism_women?ref_src=twsrc%5Etfw">@autism_women</a>, <a href="https://twitter.com/wearelikeyrkid?ref_src=twsrc%5Etfw">@wearelikeyrkid</a>, <a href="https://twitter.com/RespectConnectd?ref_src=twsrc%5Etfw">@RespectConnectd</a>, <a href="https://twitter.com/M_Kelter?ref_src=twsrc%5Etfw">@M_Kelter</a>, <a href="https://twitter.com/UnstrangeMind?ref_src=twsrc%5Etfw">@UnstrangeMind</a>, <a href="https://twitter.com/epballou?ref_src=twsrc%5Etfw">@epballou</a> <a href="https://twitter.com/phineasfrogg?ref_src=twsrc%5Etfw">@phineasfrogg</a>, <a href="https://twitter.com/hashtag/NeuroTribes?src=hash&ref_src=twsrc%5Etfw">#NeuroTribes</a>.</div>
— Thinking Person's Guide To Autism (@thinkingautism) <a href="https://twitter.com/thinkingautism/status/979598819217227777?ref_src=twsrc%5Etfw">March 30, 2018</a></blockquote>
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Countering <a href="https://twitter.com/hashtag/SaidNoMother?src=hash&ref_src=twsrc%5Etfw">#SaidNoMother</a> will help! I know bc of personal experience: it became increasingly difficult for me to rail against vaccines when the people & resources I most respected were constantly posting info that caused me to question my fear-based opinions on vaccines & autism.</div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/979600774266208256?ref_src=twsrc%5Etfw">March 30, 2018</a></blockquote>
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I am so sad for your very alive <a href="https://twitter.com/hashtag/autistic?src=hash&ref_src=twsrc%5Etfw">#autistic</a> son, whom you refuse to accept & support, & also your clueless anti-vax privilege in never having experienced the measles encephalitis that killed Roald Dahl’s daughter—due to your growing up in a vaccinated herd: <a href="https://t.co/ITz7A3UdOe">https://t.co/ITz7A3UdOe</a> <a href="https://t.co/5fjEC10TUY">https://t.co/5fjEC10TUY</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/979734780492132352?ref_src=twsrc%5Etfw">March 30, 2018</a></blockquote>
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Something you may not have considered: intellectual-disability-based slurs like “idiot” are hurtful. People with intellectual disabilities are on Twitter & reading what you write, but even if they weren’t here’s why you should think twice, <a href="https://twitter.com/NOSeditorial?ref_src=twsrc%5Etfw">@NOSeditorial</a>: <a href="https://t.co/XNW19vLjtk">https://t.co/XNW19vLjtk</a> <a href="https://t.co/HxqrLLHUc8">https://t.co/HxqrLLHUc8</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/979736226566586369?ref_src=twsrc%5Etfw">March 30, 2018</a></blockquote>
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Remember, I am also the parent of a high-support handsome Autistic son. And I know what a difference it makes when you combine <a href="https://twitter.com/hashtag/autism?src=hash&ref_src=twsrc%5Etfw">#autism</a> understanding/acceptance with your love, like determining the sensory/medical issues behind self-injury instead of publicly complaining about it. <a href="https://t.co/jaKGE1v5FW">https://t.co/jaKGE1v5FW</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/979741568474128391?ref_src=twsrc%5Etfw">March 30, 2018</a></blockquote>
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Changing a position on something when presented with more evidence is not only not suspicious, it's *smart*. That's how everyone, both laypeople and scientists, learn more abt the world. It's only when you are closed off to real science & lean on myths that there is a problem.</div>
— Kristyle Solomon (@kristyleTweets) <a href="https://twitter.com/kristyleTweets/status/979765484810743813?ref_src=twsrc%5Etfw">March 30, 2018</a></blockquote>
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Spare me the unexamined privilege of <a href="https://twitter.com/hashtag/SaidNoMother?src=hash&ref_src=twsrc%5Etfw">#SaidNoMother</a> claims of victimhood. <a href="https://twitter.com/hashtag/Autistic?src=hash&ref_src=twsrc%5Etfw">#Autistic</a> people have been consistently bullied, institutionalized, subjected to PTSD (or worse) via shock/ normalization treatments. And when one of them kills their kids, the rest “understand.” Disgusting. <a href="https://t.co/EkR6InEySl">https://t.co/EkR6InEySl</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/979856419909287936?ref_src=twsrc%5Etfw">March 30, 2018</a></blockquote>
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Spare me the unexamined privilege of <a href="https://twitter.com/hashtag/SaidNoMother?src=hash&ref_src=twsrc%5Etfw">#SaidNoMother</a> claims of victimhood. <a href="https://twitter.com/hashtag/Autistic?src=hash&ref_src=twsrc%5Etfw">#Autistic</a> people have been consistently bullied, institutionalized, subjected to PTSD (or worse) via shock/ normalization treatments. And when one of them kills their kids, the rest “understand.” Disgusting. <a href="https://t.co/EkR6InEySl">https://t.co/EkR6InEySl</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/979856419909287936?ref_src=twsrc%5Etfw">March 30, 2018</a></blockquote>
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Right. Because mothers supporting other mothers no matter what ableist, filicide-enabling attitudes they hold is so much more important than mothers helping other moms understand & support their <a href="https://twitter.com/hashtag/autistic?src=hash&ref_src=twsrc%5Etfw">#autistic</a> kids better, so those kids will be happier and then those moms will, too. <a href="https://t.co/pLr02cjdQF">https://t.co/pLr02cjdQF</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/979864457521188864?ref_src=twsrc%5Etfw">March 30, 2018</a></blockquote>
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The <a href="https://twitter.com/hashtag/SaidNoMother?src=hash&ref_src=twsrc%5Etfw">#SaidNoMother</a> campaign will save exactly zero kids from vaccine-related suffering because <a href="https://twitter.com/hashtag/autism?src=hash&ref_src=twsrc%5Etfw">#autism</a> is not a disease, & autistic people mostly suffer from lack of family/social understanding & accommodation. <br />
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Vaccine risks are literally 1 in a million: <a href="https://t.co/XqOrUVodI7">https://t.co/XqOrUVodI7</a> <a href="https://t.co/29Tlfoi9E0">https://t.co/29Tlfoi9E0</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/979866924807958528?ref_src=twsrc%5Etfw">March 30, 2018</a></blockquote>
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Also, vaccines have nothing to do with <a href="https://twitter.com/hashtag/autism?src=hash&ref_src=twsrc%5Etfw">#autism</a>. I keep forgetting this hard, documented fact is “debated” by <a href="https://twitter.com/hashtag/SaidNoMother?src=hash&ref_src=twsrc%5Etfw">#SaidNoMother</a> anti-vaxxers & their ilk and so has to be reiterated constantly. <a href="https://t.co/Qh411osZVu">https://t.co/Qh411osZVu</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/979874865569148928?ref_src=twsrc%5Etfw">March 31, 2018</a></blockquote>
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Parenthood is supposed to be about putting your kids first. Yet when <a href="https://twitter.com/hashtag/SaidNoMother?src=hash&ref_src=twsrc%5Etfw">#SaidNoMother</a> anti-vaxxers invoke pseudoscience & ableism to make their kids’ disabilities all about the parents’ “suffering,” their critics are “c**t”s. Welcome to the Upside-Down of <a href="https://twitter.com/hashtag/autism?src=hash&ref_src=twsrc%5Etfw">#autism</a> martyr parents. <a href="https://t.co/NHiAKChdl1">https://t.co/NHiAKChdl1</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/979876144425009153?ref_src=twsrc%5Etfw">March 31, 2018</a></blockquote>
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I do too. Learning from <a href="https://twitter.com/hashtag/actuallyautistic?src=hash&ref_src=twsrc%5Etfw">#actuallyautistic</a> people has been so helpful for my son. As has acceptance. I now recognise my frustration isn't with him, it's with the systems that don't adequately support him and recognise his needs.</div>
— Kristi Pritchard (@KristiPritchard) <a href="https://twitter.com/KristiPritchard/status/979874226214551552?ref_src=twsrc%5Etfw">March 31, 2018</a></blockquote>
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This should be spread in april to remember the autistics and disabled people that lost their lives due to caretakers. <a href="https://t.co/p3sFgzaPM9">https://t.co/p3sFgzaPM9</a></div>
— Marius Davrie (@MariusDavrie) <a href="https://twitter.com/MariusDavrie/status/980095253649686529?ref_src=twsrc%5Etfw">March 31, 2018</a></blockquote>
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This should be spread in april to remember the autistics and disabled people that lost their lives due to caretakers. <a href="https://t.co/p3sFgzaPM9">https://t.co/p3sFgzaPM9</a></div>
— Marius Davrie (@MariusDavrie) <a href="https://twitter.com/MariusDavrie/status/980095253649686529?ref_src=twsrc%5Etfw">March 31, 2018</a></blockquote>
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"Everyone has their own way of doing things. The way Neurodivergent people get from A to B in the world is a lot different than the way neurotypical (NT) people do it.” <a href="https://twitter.com/hashtag/Autistic?src=hash&ref_src=twsrc%5Etfw">#Autistic</a> advice <a href="https://twitter.com/hashtag/SaidNoMother?src=hash&ref_src=twsrc%5Etfw">#SaidNoMother</a> anti-vax martyr parents would be happier if they’d heed:<a href="https://t.co/XqOrUVodI7">https://t.co/XqOrUVodI7</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/980113460921905152?ref_src=twsrc%5Etfw">March 31, 2018</a></blockquote>
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"The researchers' conclusion, after reviewing my son's infant, toddler, & preschool-age videos, was that he did not regress or react to vaccines, but rather that he followed a typical <a href="https://twitter.com/hashtag/autistic?src=hash&ref_src=twsrc%5Etfw">#autistic</a> path of gaining skills & abilities unevenly.”<a href="https://t.co/e1HkMCD0WJ">https://t.co/e1HkMCD0WJ</a> <a href="https://twitter.com/hashtag/SaidNoMother?src=hash&ref_src=twsrc%5Etfw">#SaidNoMother</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/980116738456018945?ref_src=twsrc%5Etfw">March 31, 2018</a></blockquote>
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"Analysis of 10 studies involving more than 1.2 million children reaffirms that vaccines don’t cause autism,” despite bogus <a href="https://twitter.com/hashtag/SaidNoMother?src=hash&ref_src=twsrc%5Etfw">#SaidNoMother</a> memes. <br />
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Also, <a href="https://twitter.com/hashtag/autistic?src=hash&ref_src=twsrc%5Etfw">#autistic</a> people deserve love & respect as they are. Using them as fear-mongering props is shameful. <a href="https://t.co/V1rDIgVYhi">https://t.co/V1rDIgVYhi</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/980118389585625089?ref_src=twsrc%5Etfw">March 31, 2018</a></blockquote>
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CW for <a href="https://twitter.com/hashtag/SaidNoMother?src=hash&ref_src=twsrc%5Etfw">#SaidNoMother</a>-style ableism. <br />
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“I’m chained to this denigrating, unpaid forced labor with no tangible reward for all my sacrifice.” This is the kind of BS “<a href="https://twitter.com/hashtag/Autism?src=hash&ref_src=twsrc%5Etfw">#Autism</a> martyr parents” spew, & <a href="https://twitter.com/hashtag/ElmoMom?src=hash&ref_src=twsrc%5Etfw">#ElmoMom</a> <a href="https://twitter.com/hashtag/WhitneyEllenby?src=hash&ref_src=twsrc%5Etfw">#WhitneyEllenby</a> of <a href="https://twitter.com/hashtag/AutismUncensored?src=hash&ref_src=twsrc%5Etfw">#AutismUncensored</a> specifically:<a href="https://t.co/xvJKQnXuIg">https://t.co/xvJKQnXuIg</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/980144772986806273?ref_src=twsrc%5Etfw">March 31, 2018</a></blockquote>
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"Measles is one of the leading causes of death among young children even though a safe and cost-effective vaccine is available.<br />
In 2016, there were 89K measles deaths globally—marking the first year measles deaths have fallen below 100K per year.” Per <a href="https://twitter.com/WHO?ref_src=twsrc%5Etfw">@WHO</a><a href="https://t.co/nG5ZaFRUHP">https://t.co/nG5ZaFRUHP</a> <a href="https://t.co/Qgc8JFl9ti">https://t.co/Qgc8JFl9ti</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/980145766244130816?ref_src=twsrc%5Etfw">March 31, 2018</a></blockquote>
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How dangerously absurd are <a href="https://twitter.com/hashtag/SaidNoMother?src=hash&ref_src=twsrc%5Etfw">#SaidNoMother</a> claims? They say measles is no big deal, but "During 2000-2016, measles vaccination prevented an estimated 20.4 million deaths.” Mostly in developing, low SES communities privileged anti-vaxxers don’t acknowledge:<a href="https://t.co/mJfXa67fgS">https://t.co/mJfXa67fgS</a> <a href="https://t.co/mlwrmVyWY6">https://t.co/mlwrmVyWY6</a></div>
— Thinking Person's Guide To Autism (@thinkingautism) <a href="https://twitter.com/thinkingautism/status/980146960572153857?ref_src=twsrc%5Etfw">March 31, 2018</a></blockquote>
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The children are not being helped when their parents blame <a href="https://twitter.com/hashtag/vaccines?src=hash&ref_src=twsrc%5Etfw">#vaccines</a> for their autism, allergies, and other things vaccines don't cause. Sometimes it's even an excuse to subject them to untested, potentially abusive or harmful treatments. <a href="https://twitter.com/hashtag/saidnomother?src=hash&ref_src=twsrc%5Etfw">#saidnomother</a> helps no child.</div>
— (((Dorit Reiss))) (@doritmi) <a href="https://twitter.com/doritmi/status/980110166149312512?ref_src=twsrc%5Etfw">March 31, 2018</a></blockquote>
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WE ARE NORMAL. If you can’t accept us autistic people as a natural variation in the human condition, then that’s your unexamined bigotry, your fears, and your shit to work through. Go work on that and good luck. Autistic people don’t exist for your abuse. <a href="https://twitter.com/hashtag/AutismAcceptance?src=hash&ref_src=twsrc%5Etfw">#AutismAcceptance</a></div>
— John Marble (@JHMarble) <a href="https://twitter.com/JHMarble/status/980155178543300608?ref_src=twsrc%5Etfw">March 31, 2018</a></blockquote>
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<a href="https://twitter.com/hashtag/saidnomother?src=hash&ref_src=twsrc%5Etfw">#saidnomother</a> is about Mommy making everything about HER and publicly disparaging her child. The things they say about human children is disgusting. It’s a disgrace and verbally abusive.</div>
— Katie (@katieicunurse) <a href="https://twitter.com/katieicunurse/status/980151203458928640?ref_src=twsrc%5Etfw">March 31, 2018</a></blockquote>
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Autistic people are really tired of taking an endless stream of ignorance and abuse by people like you. We’ve lived this life. You haven’t. To continue pushing your self-serving ignorance in the face of autistic people & scientific consensus is bigotry. We can speak ourselves.</div>
— John Marble (@JHMarble) <a href="https://twitter.com/JHMarble/status/980185912767275009?ref_src=twsrc%5Etfw">March 31, 2018</a></blockquote>
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I hope your son is OK, as I have been there. <br />
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I specifically said, several times, that we need more research into why autistic ppl have a higher rate of epilepsy. Autistic people tend to want this too.<br />
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That’s separate from spreading lies about autism being caused by vaccines. <a href="https://t.co/Wr3Rtg4o0x">https://t.co/Wr3Rtg4o0x</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/980233722325712896?ref_src=twsrc%5Etfw">April 1, 2018</a></blockquote>
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You are an awesome daughter for backing up your mom. However, she is spreading misinformation about vaccines causing autism, which is not true. <a href="https://t.co/i1d7VZ7SDQ">https://t.co/i1d7VZ7SDQ</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/980234179492237316?ref_src=twsrc%5Etfw">April 1, 2018</a></blockquote>
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BROUGHT IN HER DAUGHTER FFS
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You are an awesome daughter for backing up your mom. However, she is spreading misinformation about vaccines causing autism, which is not true. <a href="https://t.co/i1d7VZ7SDQ">https://t.co/i1d7VZ7SDQ</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/980234179492237316?ref_src=twsrc%5Etfw">April 1, 2018</a></blockquote>
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I reiterated several times that Hannah Poling does have an autism diagnosis, but that the vaccine court ruled that vaccines had nothing to do with it. Emphatically. <br />
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I’m countering your disinformation, because it hurts my son, your son, & autistic people. That’s not attacking. <a href="https://t.co/1GHeSTRbe4">https://t.co/1GHeSTRbe4</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/980235542418698241?ref_src=twsrc%5Etfw">April 1, 2018</a></blockquote>
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What keeps me up at night is fretting over the <a href="https://twitter.com/hashtag/autistic?src=hash&ref_src=twsrc%5Etfw">#autistic</a> kids & adults who are not getting the services and supports they need, the way the need it. Anti-vax disinformation & ableism like yours makes that uphill awareness & acceptance battle even harder. <a href="https://t.co/TuDBfllBz8">https://t.co/TuDBfllBz8</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/980237621572988928?ref_src=twsrc%5Etfw">April 1, 2018</a></blockquote>
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There's a reason my mother didn't have to worry I'd get polio and die like some of her classmates did, or have post polio syndrome like she did. And pre-vax Mom was more Autistic than I am...</div>
— SplendidColors (@Splendid_Colors) <a href="https://twitter.com/Splendid_Colors/status/980236675384197120?ref_src=twsrc%5Etfw">April 1, 2018</a></blockquote>
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Yet another example of an anti-vax parent denying autistic people’s agency. As if. <a href="https://t.co/kn3KzAordp">https://t.co/kn3KzAordp</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/980264218040520704?ref_src=twsrc%5Etfw">April 1, 2018</a></blockquote>
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Literally, and_kell, you just said you'd share private information about your son just to prove a point. YOU are the danger to your child.</div>
— Solveig ⚧ - Autistic Acceptance Worldwide (@autisticb4mmr) <a href="https://twitter.com/autisticb4mmr/status/980245382369177601?ref_src=twsrc%5Etfw">April 1, 2018</a></blockquote>
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Sure it did Dianne. Although it was not formally recognised until latterly, those of us who are scholars of the medical literature know that descriptions of autistic individuals go back hundreds of years.</div>
— Carl Smythe #FBPE (@carlsmythe) <a href="https://twitter.com/carlsmythe/status/980228040264421378?ref_src=twsrc%5Etfw">March 31, 2018</a></blockquote>
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Most people don't know and are not interested in antivaccine campaign like <a href="https://twitter.com/hashtag/saidnomother?src=hash&ref_src=twsrc%5Etfw">#saidnomother</a> or <a href="https://twitter.com/hashtag/saidnomotherever?src=hash&ref_src=twsrc%5Etfw">#saidnomotherever</a>, in part given the movement's history of saying things that aren't true.</div>
— (((Dorit Reiss))) (@doritmi) <a href="https://twitter.com/doritmi/status/980268399480643584?ref_src=twsrc%5Etfw">April 1, 2018</a></blockquote>
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Three of these are moms of children with <a href="https://twitter.com/hashtag/autism?src=hash&ref_src=twsrc%5Etfw">#autism</a>, which <a href="https://twitter.com/hashtag/vaccines?src=hash&ref_src=twsrc%5Etfw">#vaccines</a> don't cause. I agree they probably believe otherwise, but like the rest of the <a href="https://twitter.com/hashtag/saidnomother?src=hash&ref_src=twsrc%5Etfw">#saidnomother</a> campaign they are not speaking truth. They work to scare people from protecting children from disease. Bad cause.</div>
— (((Dorit Reiss))) (@doritmi) <a href="https://twitter.com/doritmi/status/980270695706853376?ref_src=twsrc%5Etfw">April 1, 2018</a></blockquote>
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Gratitude is a troubling reaction to a campaign targeted at putting children at risk of diseases and dehumanizing people with <a href="https://twitter.com/hashtag/autism?src=hash&ref_src=twsrc%5Etfw">#autism</a>, as <a href="https://twitter.com/hashtag/saidnomother?src=hash&ref_src=twsrc%5Etfw">#saidnomother</a> is.</div>
— (((Dorit Reiss))) (@doritmi) <a href="https://twitter.com/doritmi/status/980271245697560576?ref_src=twsrc%5Etfw">April 1, 2018</a></blockquote>
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Evidently, key to an antivaxxer's <a href="https://twitter.com/hashtag/saidnomother?src=hash&ref_src=twsrc%5Etfw">#saidnomother</a> meme is a glowy picture of herself or exploitative one of a child, or both, along with a wordy quote urging fictitious claims. Which pretty much sums up the engine that drives this entire movement. Selfish, exploitative, false.</div>
— Emily '2018 Had Best Step Up' Willingham🏁 (@ejwillingham) <a href="https://twitter.com/ejwillingham/status/980231407111819264?ref_src=twsrc%5Etfw">March 31, 2018</a></blockquote>
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Autism is genetic. It is not a disease. You don't catch it or develop it. A person is or is not autistic. It is part of how they're born.</div>
— Merissa King (@KittenofMetal) <a href="https://twitter.com/KittenofMetal/status/980296544850243584?ref_src=twsrc%5Etfw">April 1, 2018</a></blockquote>
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No, but it is far more likely than autism being caused by it. I have a cousin who is vaccine injured. They exist. Autism just isn't one of them.</div>
— Merissa King (@KittenofMetal) <a href="https://twitter.com/KittenofMetal/status/980338622124756992?ref_src=twsrc%5Etfw">April 1, 2018</a></blockquote>
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Her parents have even admitted that there are a plethora of variables and no concrete data to prove that her autism was not already there before the vaccines.</div>
— Merissa King (@KittenofMetal) <a href="https://twitter.com/KittenofMetal/status/980334473270255616?ref_src=twsrc%5Etfw">April 1, 2018</a></blockquote>
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Preceded her diagnosis, not her autism. Many symptoms are shared. It's possible that her parents didn't notice the symptoms of her autism/ they were exacerbated by the encephalopathy, but it did not cause her autism.</div>
— Merissa King (@KittenofMetal) <a href="https://twitter.com/KittenofMetal/status/980332558134185984?ref_src=twsrc%5Etfw">April 1, 2018</a></blockquote>
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Pre-vax, measles-related cases per year, 1956 - 60 averages: 450 deaths, 150,000 patients had respiratory complications, 4000 patients had encephalitis with a high risk of neurological sequelae and death, 48,000 hospitalized.<a href="https://t.co/ByD0vpc3Ya">https://t.co/ByD0vpc3Ya</a></div>
— Autvntg (@autvntg) <a href="https://twitter.com/autvntg/status/980326880833351680?ref_src=twsrc%5Etfw">April 1, 2018</a></blockquote>
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"Instead of learning how to accept and support my <a href="https://twitter.com/hashtag/autistic?src=hash&ref_src=twsrc%5Etfw">#autistic</a> child so they can live the best life possible, I’m going to ignore all reasonable medical advice and “treat” them with bleach enemas that actually WILL make them sick," <a href="https://twitter.com/hashtag/SaidNoMother?src=hash&ref_src=twsrc%5Etfw">#SaidNoMother</a>:<a href="https://t.co/FkRJSjGyzD">https://t.co/FkRJSjGyzD</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/980525651915501568?ref_src=twsrc%5Etfw">April 1, 2018</a></blockquote>
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"Revelations about presuming competence, human dignity […] apply to everyone. They are the most important for the kids who really do have ID, who really can’t read or use full sentences & who really do need extensive support.” <a href="https://twitter.com/JustStimming?ref_src=twsrc%5Etfw">@JustStimming</a>:<a href="https://t.co/SNJwPw6QWD">https://t.co/SNJwPw6QWD</a> <a href="https://twitter.com/hashtag/SaidNoMother?src=hash&ref_src=twsrc%5Etfw">#SaidNoMother</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/980526597370298369?ref_src=twsrc%5Etfw">April 1, 2018</a></blockquote>
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I don’t think I’ll ever understand this notion of “losing [my] kid to autism” anymore than I can understand the idea of of losing myself to my own Autism. My diagnosis brought my whole history into focus for me, just as his diagnosis helped me get who he has always been. <a href="https://t.co/4NUWIXL13O">https://t.co/4NUWIXL13O</a></div>
— Carol Greenburg (@Aspieadvocate) <a href="https://twitter.com/Aspieadvocate/status/980242336117612544?ref_src=twsrc%5Etfw">April 1, 2018</a></blockquote>
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<a href="https://twitter.com/hashtag/saidnomother?src=hash&ref_src=twsrc%5Etfw">#saidnomother</a> <a href="https://twitter.com/hashtag/saidnofather?src=hash&ref_src=twsrc%5Etfw">#saidnofather</a> People who exploit their disabled kids to push dangerous antivaccine propaganda are gross. <a href="https://twitter.com/hashtag/ableism?src=hash&ref_src=twsrc%5Etfw">#ableism</a> <a href="https://twitter.com/hashtag/provaccines?src=hash&ref_src=twsrc%5Etfw">#provaccines</a></div>
— A. F. B. V. (@BeAffirmed) <a href="https://twitter.com/BeAffirmed/status/980543658570039296?ref_src=twsrc%5Etfw">April 1, 2018</a></blockquote>
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://2.bp.blogspot.com/-sMqYRaLZJhg/WsvU-X9R5nI/AAAAAAAAG8Y/iSPfGzRPmh4OyrJ-w0WElU9KMpRHlECuwCLcBGAs/s1600/Screen%2BShot%2B2018-04-09%2Bat%2B2.00.22%2BPM.png" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="721" data-original-width="1159" height="248" src="https://2.bp.blogspot.com/-sMqYRaLZJhg/WsvU-X9R5nI/AAAAAAAAG8Y/iSPfGzRPmh4OyrJ-w0WElU9KMpRHlECuwCLcBGAs/s400/Screen%2BShot%2B2018-04-09%2Bat%2B2.00.22%2BPM.png" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">[image: Tweet from Dianne Thompson @djt10, reading "Autistic people don't<br />
exist for your abuse" you say. They apparently exist to abuse others, according<br />
to the behavior of you and yours who claim to be autistic as an excuse to batter<br />
victims, caretakers and their supporters."]</td></tr>
</tbody></table>
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When abuse-enabling <a href="https://twitter.com/hashtag/SaidNoMother?src=hash&ref_src=twsrc%5Etfw">#SaidNoMother</a> autism martyr parents see everything through the lens of their self-appointed victimhood, while accusing people who defend <a href="https://twitter.com/hashtag/autistic?src=hash&ref_src=twsrc%5Etfw">#autistic</a> rights of being “not really autistic," while *simultaneously* stigmatizing autistic “deficits.” How charming. <a href="https://t.co/M7jjZg8YRS">https://t.co/M7jjZg8YRS</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/980655279699197954?ref_src=twsrc%5Etfw">April 2, 2018</a></blockquote>
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Reminding the world that we and all Autistics are human beings is not abusing anyone. Some people need to stop playing king of victim mountain, using autistic people in their lives as game markers.</div>
— Maxfield Sparrow (@UnstrangeMind) <a href="https://twitter.com/UnstrangeMind/status/980797422233423872?ref_src=twsrc%5Etfw">April 2, 2018</a></blockquote>
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Happy <a href="https://twitter.com/hashtag/WAAD?src=hash&ref_src=twsrc%5Etfw">#WAAD</a> to all you “fanatical provaxxers,” Autistic or not (or undiagnosed) who care so much about children’s health, defending <a href="https://twitter.com/hashtag/Autistic?src=hash&ref_src=twsrc%5Etfw">#Autistic</a> humanity, & countering dangerous <a href="https://twitter.com/hashtag/autism?src=hash&ref_src=twsrc%5Etfw">#autism</a> pseudoscience! <br />
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I hope <a href="https://twitter.com/hashtag/saidnomother?src=hash&ref_src=twsrc%5Etfw">#saidnomother</a> folks eventually learn to accept their autistic kids too. <a href="https://t.co/bcMotjyPKG">https://t.co/bcMotjyPKG</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/980805604410146816?ref_src=twsrc%5Etfw">April 2, 2018</a></blockquote>
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I'm seriously disgusted by anivaxxers and the <a href="https://twitter.com/hashtag/SaidNoMother?src=hash&ref_src=twsrc%5Etfw">#SaidNoMother</a> tweets. How can a bunch of people actively work to not vaccinate their kids, putting other kids in danger, and then wanna act like vaccines cause autism? <br />
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Is this the dark ages? Should I watch out for plagues of locusts</div>
— Giorgio Darmani (@HordeBoyRiot_) <a href="https://twitter.com/HordeBoyRiot_/status/980828217471848449?ref_src=twsrc%5Etfw">April 2, 2018</a></blockquote>
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Your children's existence disgusts you so much that you latch on to conspiracy theories peddled by proven grifters because it gives you someone to *blame* for it. I hope you see the light one day, for their sake. But until that day, I see no value in continuing dialogue.</div>
— Dagoth Ur welcomes you, Jack, to your Nazi website (@maruhkati) <a href="https://twitter.com/maruhkati/status/980863357614985223?ref_src=twsrc%5Etfw">April 2, 2018</a></blockquote>
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Parents, if you don't want to traumatize & alienate your <a href="https://twitter.com/hashtag/autistic?src=hash&ref_src=twsrc%5Etfw">#autistic</a> kids, learn how to recognize harmful writing about <a href="https://twitter.com/hashtag/autism?src=hash&ref_src=twsrc%5Etfw">#autism</a> so you can avoid repeating these mistakes. Here are four examples of the kinds of writing to avoid: <a href="https://t.co/QjekXrpdpb">https://t.co/QjekXrpdpb</a> <a href="https://twitter.com/hashtag/WAAD?src=hash&ref_src=twsrc%5Etfw">#WAAD</a> <a href="https://twitter.com/hashtag/SaidNoMother?src=hash&ref_src=twsrc%5Etfw">#SaidNoMother</a> <a href="https://twitter.com/hashtag/WAAD2018?src=hash&ref_src=twsrc%5Etfw">#WAAD2018</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/980912070928490497?ref_src=twsrc%5Etfw">April 2, 2018</a></blockquote>
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How can you honor autistic people on <a href="https://twitter.com/hashtag/WorldAutismAcceptanceDay?src=hash&ref_src=twsrc%5Etfw">#WorldAutismAcceptanceDay</a>: “<a href="https://twitter.com/hashtag/Autistic?src=hash&ref_src=twsrc%5Etfw">#Autistic</a> people like my son deserve the love & respect that come with acceptance, not merely acknowledgment that <a href="https://twitter.com/hashtag/autism?src=hash&ref_src=twsrc%5Etfw">#autism</a> exists. Awareness is passive. Acceptance is a choice."<a href="https://t.co/wlARhNv4EL">https://t.co/wlARhNv4EL</a> <a href="https://twitter.com/hashtag/SaidNoMother?src=hash&ref_src=twsrc%5Etfw">#SaidNoMother</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/980917702129799168?ref_src=twsrc%5Etfw">April 2, 2018</a></blockquote>
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That is a strange comment. I will point out that thanks to anti-vaccine misinformation Italy is going through a measles outbreak in which people, including babies, are hospitalized and dying. That is the result of anti-vaccine efforts like <a href="https://twitter.com/hashtag/saidnomother?src=hash&ref_src=twsrc%5Etfw">#saidnomother</a>.</div>
— (((Dorit Reiss))) (@doritmi) <a href="https://twitter.com/doritmi/status/981241839440277505?ref_src=twsrc%5Etfw">April 3, 2018</a></blockquote>
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Discovered the <a href="https://twitter.com/hashtag/saidnomother?src=hash&ref_src=twsrc%5Etfw">#saidnomother</a> hashtag yesterday. I am disgusted. <a href="https://twitter.com/hashtag/VaccinesWork?src=hash&ref_src=twsrc%5Etfw">#VaccinesWork</a> and I love my <a href="https://twitter.com/hashtag/autistic?src=hash&ref_src=twsrc%5Etfw">#autistic</a> sister. Vaccines didn’t make her how she is, and she has nothing to be ashamed of, either.</div>
— Ali Kat (@nerdc0re84) <a href="https://twitter.com/nerdc0re84/status/981213744629010433?ref_src=twsrc%5Etfw">April 3, 2018</a></blockquote>
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<a href="https://twitter.com/hashtag/SaidNoMother?src=hash&ref_src=twsrc%5Etfw">#SaidNoMother</a> <a href="https://twitter.com/hashtag/SaidNoFather?src=hash&ref_src=twsrc%5Etfw">#SaidNoFather</a> <a href="https://twitter.com/hashtag/vaccinesWork?src=hash&ref_src=twsrc%5Etfw">#vaccinesWork</a> <a href="https://t.co/rMR55yxXUV">https://t.co/rMR55yxXUV</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/981282178121187328?ref_src=twsrc%5Etfw">April 3, 2018</a></blockquote>
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The <a href="https://twitter.com/hashtag/saidnomother?src=hash&ref_src=twsrc%5Etfw">#saidnomother</a> hashtag serves as a harsh reminder of<br />
1) just how pervasive scientific illiteracy is,<br />
2) how vitriolic and unaccepting these mothers are, and<br />
3) how far we still need to go to educate people that <a href="https://twitter.com/hashtag/VaccinesDontCauseAutism?src=hash&ref_src=twsrc%5Etfw">#VaccinesDontCauseAutism</a>.</div>
— Doc Bastard (@DocBastard) <a href="https://twitter.com/DocBastard/status/979471943987548162?ref_src=twsrc%5Etfw">March 29, 2018</a></blockquote>
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Dear <a href="https://twitter.com/hashtag/saidnomother?src=hash&ref_src=twsrc%5Etfw">#saidnomother</a>. Vaccines help people, and are good for you. Smallpox, polio, and other diseases are not made up. Also, Smallpox was eradicated because of a very successful vaccination campaign, proving herd immunity works. If your kid has Autism, they were born with it.</div>
— A'vian S'thari (@InkyFinn) <a href="https://twitter.com/InkyFinn/status/981363500718141441?ref_src=twsrc%5Etfw">April 4, 2018</a></blockquote>
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Read a vaccine insert. Then remember they are written to inform doctors, not terrify laypeople. Then remember that they list reported, not verified vaccine reactions. Then rest assured that <a href="https://twitter.com/hashtag/VaccinesWork?src=hash&ref_src=twsrc%5Etfw">#VaccinesWork</a>, despite <a href="https://twitter.com/hashtag/SaidNoMother?src=hash&ref_src=twsrc%5Etfw">#SaidNoMother</a> Dunning-Kruger alarmists (you can look that up, too). <a href="https://t.co/oxMieMBZ5k">https://t.co/oxMieMBZ5k</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/981615057258737665?ref_src=twsrc%5Etfw">April 4, 2018</a></blockquote>
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Read a vaccine insert. Then remember they are written to inform doctors, not terrify laypeople. Then remember that they list reported, not verified vaccine reactions. Then rest assured that <a href="https://twitter.com/hashtag/VaccinesWork?src=hash&ref_src=twsrc%5Etfw">#VaccinesWork</a>, despite <a href="https://twitter.com/hashtag/SaidNoMother?src=hash&ref_src=twsrc%5Etfw">#SaidNoMother</a> Dunning-Kruger alarmists (you can look that up, too). <a href="https://t.co/oxMieMBZ5k">https://t.co/oxMieMBZ5k</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/981615057258737665?ref_src=twsrc%5Etfw">April 4, 2018</a></blockquote>
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Would a Doctor Ever Say These Things About <a href="https://twitter.com/hashtag/Vaccines?src=hash&ref_src=twsrc%5Etfw">#Vaccines</a>? <a href="https://t.co/dm6V1hmFN4">https://t.co/dm6V1hmFN4</a> via <a href="https://twitter.com/wordpressdotcom?ref_src=twsrc%5Etfw">@wordpressdotcom</a> <a href="https://twitter.com/AboutPediatrics?ref_src=twsrc%5Etfw">@AboutPediatrics</a> <a href="https://twitter.com/hashtag/saidnomother?src=hash&ref_src=twsrc%5Etfw">#saidnomother</a></div>
— (((Dorit Reiss))) (@doritmi) <a href="https://twitter.com/doritmi/status/982344904553652224?ref_src=twsrc%5Etfw">April 6, 2018</a></blockquote>
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Retweeted UN Geneva (<a href="https://twitter.com/UNGeneva?ref_src=twsrc%5Etfw">@UNGeneva</a>):<br />
<br />
Vaccines protect against 26 diseases.<br />
Vaccines save lives.<a href="https://twitter.com/hashtag/VaccinesWork?src=hash&ref_src=twsrc%5Etfw">#VaccinesWork</a>.<br />
<br />
Find out more from <a href="https://twitter.com/WHO?ref_src=twsrc%5Etfw">@WHO</a> : <a href="https://t.co/dxjn7N4bxU">https://t.co/dxjn7N4bxU</a> <a href="https://t.co/jEItqajg4Q">pic.twitter.com/jEItqajg4Q</a> <a href="https://t.co/dxjn7N4bxU">https://t.co/dxjn7N4bxU</a></div>
— Mark Harbison (@HarbisonRotary) <a href="https://twitter.com/HarbisonRotary/status/982799642118127616?ref_src=twsrc%5Etfw">April 8, 2018</a></blockquote>
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Would a Doctor Ever Say These Things About <a href="https://twitter.com/hashtag/Vaccines?src=hash&ref_src=twsrc%5Etfw">#Vaccines</a>? <a href="https://t.co/dm6V1hmFN4">https://t.co/dm6V1hmFN4</a> via <a href="https://twitter.com/wordpressdotcom?ref_src=twsrc%5Etfw">@wordpressdotcom</a> <a href="https://twitter.com/AboutPediatrics?ref_src=twsrc%5Etfw">@AboutPediatrics</a> <a href="https://twitter.com/hashtag/saidnomother?src=hash&ref_src=twsrc%5Etfw">#saidnomother</a></div>
— (((Dorit Reiss))) (@doritmi) <a href="https://twitter.com/doritmi/status/982344904553652224?ref_src=twsrc%5Etfw">April 6, 2018</a></blockquote>
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Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-5563550.post-27823681417999395422018-04-02T14:15:00.000-07:002018-04-02T19:15:28.620-07:00How You Can Honor World Autism Acceptance Day<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://2.bp.blogspot.com/-fSR0tigKBZA/WsKZjwxh0EI/AAAAAAAAG8I/ieIqedmLTgUM04clZuoNY0hDRbBkyHYlQCLcBGAs/s1600/NERDS.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="600" data-original-width="600" height="400" src="https://2.bp.blogspot.com/-fSR0tigKBZA/WsKZjwxh0EI/AAAAAAAAG8I/ieIqedmLTgUM04clZuoNY0hDRbBkyHYlQCLcBGAs/s400/NERDS.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">[image: Me and my three kids sitting on a bench in a San Francisco park<br />
in 2015, eating ice cream and enjoying each other's company.]</td></tr>
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People all over the planet are observing <a href="http://www.un.org/en/events/autismday/" rel="nofollow" style="border: 0px; box-sizing: border-box; color: #666666; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; font-weight: inherit; line-height: inherit; margin: 0px; max-width: 100%; padding: 0px; vertical-align: baseline;" target="_blank">World Autism Awareness Day</a> today. My autistic friends and my family, however, prefer to follow The Autistic Self-Advocacy's example and observe <a href="http://autismacceptanceday.blogspot.com/" rel="nofollow" style="border: 0px; box-sizing: border-box; color: #666666; font-family: inherit; font-size: inherit; font-stretch: inherit; font-variant: inherit; line-height: inherit; margin: 0px; max-width: 100%; padding: 0px; vertical-align: baseline;" target="_blank"><span style="font-style: inherit; font-weight: inherit;">Autism </span><span style="border: 0px; box-sizing: border-box; font-family: inherit; font-size: inherit; font-stretch: inherit; font-variant: inherit; line-height: inherit; margin: 0px; max-width: 100%; padding: 0px; vertical-align: baseline;"><b>Acceptance</b></span><span style="font-style: inherit; font-weight: inherit;"> Day</span></a>.</div>
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Why acceptance? Because autistic people like my teenage son Leo deserve the love and respect that come with acceptance, not merely acknowledgment that autism exists. Awareness is passive. <a href="http://www.autismacceptancemonth.com/" rel="nofollow" style="border: 0px; box-sizing: border-box; color: #666666; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; font-weight: inherit; line-height: inherit; margin: 0px; max-width: 100%; padding: 0px; vertical-align: baseline;" target="_blank">Acceptance is a choice</a>.</div>
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Here are ten ways you can honor Autism Acceptance Day, and autistic people of all ages:</div>
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<strong style="border: 0px; box-sizing: border-box; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; line-height: inherit; margin: 0px; max-width: 100%; padding: 0px; vertical-align: baseline;">1) Honor communication.</strong> <a href="http://everyonecommunicates.org/" rel="nofollow" style="border: 0px; box-sizing: border-box; color: #666666; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; font-weight: inherit; line-height: inherit; margin: 0px; max-width: 100%; padding: 0px; vertical-align: baseline;" target="_blank">Everyone communicates</a>. That includes autistic people of all abilities. If your autistic loved one struggles with spoken language, the best action you can take in their honor is to help them find a communication system that works for them, whether scripted speech, typing, a symbol-to-speech device or app, sign language, or a letter board.</div>
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You also need to understand that an autistic person’s spoken words <a href="https://youtu.be/8xDuIlRrtb8" rel="nofollow" style="border: 0px; box-sizing: border-box; color: #666666; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; font-weight: inherit; line-height: inherit; margin: 0px; max-width: 100%; padding: 0px; vertical-align: baseline;" target="_blank">may not accurately represent what they’re thinking</a>, or their intentions. When my son jumps up and sings “The cold never bothered me anyway!” at me, I understand he's telling me that his current environmental temperature needs to change. If he asks me to repeat phrases after him, he's asking for reassurance.</div>
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Autistic communication isn't necessarily verbal or language-based; sometimes communication happens through behavior, like a child refusing to get out of bed, or being upset with routines that usually comfort them. It's important to pay attention to this kind of communication; while it may be a show of independence, behavioral changes can also be <a href="http://www.theguardian.com/lifeandstyle/2015/mar/29/autism-ill-health-learning-disabilities-non-verbal-patients" rel="nofollow" style="border: 0px; box-sizing: border-box; color: #666666; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; font-weight: inherit; line-height: inherit; margin: 0px; max-width: 100%; padding: 0px; vertical-align: baseline;" target="_blank">an autistic person's only external sign of illness</a>.</div>
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Also honor autistic ability to participate in communication. My son, like many autistic folk, takes a few moments to process spoken words. But he understands most everything people say to him. There is no need to talk to him in a sing-song voice, or speak extra slowly. Besides, where is the harm in talking to him like you would any other teenager?</div>
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<strong style="border: 0px; box-sizing: border-box; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; line-height: inherit; margin: 0px; max-width: 100%; padding: 0px; vertical-align: baseline;">2) Honor competence</strong>. Recognize the things your autistic loved can do, and <a href="http://loveexplosions.net/2014/10/22/her-quiet-revolution-for-independence/" rel="nofollow" style="border: 0px; box-sizing: border-box; color: #666666; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; font-weight: inherit; line-height: inherit; margin: 0px; max-width: 100%; padding: 0px; vertical-align: baseline;" target="_blank">encourage them to do them</a>. Have patience if the learning takes a bit longer than you might expect—autistic kids' legendary ability to “suddenly” do things like read or ride a bike is often the result of extended practicing, even if, at the time, it seems the practicing wasn't clicking . So please try to avoid doing things for your kids that they are willing and able to do for themselves. Their independence and sense of self-worth need to trump your momentary convenience.</div>
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And don't forget to presume competence. This doesn’t mean you should assume every non-speaking autistic child is a hidden genius; it means you should always treat every child like a worthy human being. It means, as the <a href="http://www.theguardian.com/society/2015/mar/20/autism-does-aba-therapy-open-societys-doors-to-children-or-impose-conformity" rel="nofollow" style="border: 0px; box-sizing: border-box; color: #666666; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; font-weight: inherit; line-height: inherit; margin: 0px; max-width: 100%; padding: 0px; vertical-align: baseline;" target="_blank">autistic writer/self-advocate Julia Bascom tells it</a>, remembering that:</div>
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"...talking about someone in front of them, dehumanization, infantilization, segregation—are wrong to do to anybody. There’s not an IQ threshold for being treated with respect, for being included, for being treated like a person.”</blockquote>
<div style="background-color: white; border: 0px; box-sizing: border-box; color: #3b3e3f; font-family: Roboto, sans-serif; font-size: 16px; font-stretch: inherit; font-variant-numeric: inherit; line-height: 1.4; max-width: 100%; padding: 20px 0px 0px; vertical-align: baseline;">
<strong style="border: 0px; box-sizing: border-box; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; line-height: inherit; margin: 0px; max-width: 100%; padding: 0px; vertical-align: baseline;">3) Honor interests (even if you think they are age-inappropriate).</strong> So what if your teenager loves watching Curious George, or your eight-year-old only wants to talk about forensic pathology? Seriously, where is the harm in encouraging such interests if they make your autistic child or loved one (or self) happy? As <a href="http://www.thinkinclusive.us/another-take-on-autistic-cultural-compentency/#sthash.KKBVXoDA.dpuf" rel="nofollow" style="border: 0px; box-sizing: border-box; color: #666666; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; font-weight: inherit; line-height: inherit; margin: 0px; max-width: 100%; padding: 0px; vertical-align: baseline;" target="_blank">autistic advocate Lydia Wayman writes</a>,</div>
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"I am finishing my Master’s degree in English and creative writing, yet I cannot cross a street without help, struggle with independent living skills, and possess a strong affinity for anything Disney or Hello Kitty. This spike-and-valley development may be atypical for most people, but it is a totally typical way for an autistic person to develop and sets the stage in each individual for the culture we build together."</blockquote>
<div style="background-color: white; border: 0px; box-sizing: border-box; color: #3b3e3f; font-family: Roboto, sans-serif; font-size: 16px; font-stretch: inherit; font-variant-numeric: inherit; line-height: 1.4; max-width: 100%; padding: 20px 0px 0px; vertical-align: baseline;">
<strong style="border: 0px; box-sizing: border-box; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; line-height: inherit; margin: 0px; max-width: 100%; padding: 0px; vertical-align: baseline;">4) Honor sensory needs.</strong> Many autistic people's senses are more finely tuned than a non-autistic person's hearing, smell, or sense of touch. Noises that don't bother you if you aren't autistic may be unbearable to someone who is. Other people's perfume may feel like chemical warfare. Being in a crowd may feel like drowning. <a href="https://www.psychologytoday.com/blog/aspergers-diary/201503/shopping-while-autistic" rel="nofollow" style="border: 0px; box-sizing: border-box; color: #666666; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; font-weight: inherit; line-height: inherit; margin: 0px; max-width: 100%; padding: 0px; vertical-align: baseline;" target="_blank">These perceptions are very real</a>, so consider that if you refuse to acknowledge or accommodate autistic sensory needs, you are essentially torturing a fellow human being.</div>
<div style="background-color: white; border: 0px; box-sizing: border-box; color: #3b3e3f; font-family: Roboto, sans-serif; font-size: 16px; font-stretch: inherit; font-variant-numeric: inherit; line-height: 1.4; max-width: 100%; padding: 20px 0px 0px; vertical-align: baseline;">
<strong style="border: 0px; box-sizing: border-box; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; line-height: inherit; margin: 0px; max-width: 100%; padding: 0px; vertical-align: baseline;">5) Honor executive functioning difficulties.</strong> Autistic people often struggle with organization, sequencing, problem solving, <a href="http://musingsofanaspie.com/executive-function-series/" rel="nofollow" style="border: 0px; box-sizing: border-box; color: #666666; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; font-weight: inherit; line-height: inherit; margin: 0px; max-width: 100%; padding: 0px; vertical-align: baseline;" target="_blank">and other executive function (EF) skills</a>. So do everything you can to support your autistic loved ones in this area, by helping to develop supports such as checklists or visual schedules. Further EF accommodations can include eliminating simple barriers in the home, like installing towel hooks instead of towel bars, using open laundry bins instead of ones with lids, or storing dishes in a lower cabinet instead of an upper one. Small changes like these can make big differences in the happiness and functioning abilities of people you care about (or, again, your own self).</div>
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<strong style="border: 0px; box-sizing: border-box; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; line-height: inherit; margin: 0px; max-width: 100%; padding: 0px; vertical-align: baseline;">6) Honor anxiety.</strong> The world is not usually a friendly or accommodating place for autistic people, given some of the topics mentioned above, so it's no wonder that <a href="http://www.thinkingautismguide.com/2012/07/imfar-2012-toward-better.html" rel="nofollow" style="border: 0px; box-sizing: border-box; color: #666666; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; font-weight: inherit; line-height: inherit; margin: 0px; max-width: 100%; padding: 0px; vertical-align: baseline;" target="_blank">anxiety is such a common co-occurring diagnosis</a> for autistic people. It's also one that needs to be taken seriously. Please do what you can to respect an autistic person's verbal declarations or behavioral indications of anxiety; your consideration can make the difference between an autistic person getting through their day, or having a meltdown. Which brings us to the next topic:</div>
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<strong style="border: 0px; box-sizing: border-box; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; line-height: inherit; margin: 0px; max-width: 100%; padding: 0px; vertical-align: baseline;">7) Honor routine.</strong> Autistic people like my son can find comfort in routine, whether it's visiting the same restaurant as a family every Saturday, or using the same series of steps and scripted phrases to get dressed in the morning. As far as many autistic people are concerned, anything different is bad, and a source of stress. Especially surprises.</div>
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If things need to change, do what you can to make the transition easier, in the fashion that works best for the autistic person in question. Would a custom "social" story about the transition help? Or would they prefer to ask you, every few minutes, to repeat the same scripted details about the upcoming change? Again, do what you can to accommodate, especially if that autistic someone is dependent on you.</div>
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<strong style="border: 0px; box-sizing: border-box; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; line-height: inherit; margin: 0px; max-width: 100%; padding: 0px; vertical-align: baseline;">8) Honor autistic role models</strong>. There are so many autistic people online being proud and fearless. Learn from them, bow to them. A very incomplete and haphazard list includes <a href="https://www.realsocialskills.org/">Ruti Regan</a>, <a href="http://withasmoothroundstone.tumblr.com/" rel="nofollow" style="border: 0px; box-sizing: border-box; color: #666666; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; font-weight: inherit; line-height: inherit; margin: 0px; max-width: 100%; padding: 0px; vertical-align: baseline;" target="_blank">Mel Baggs,</a> <a href="http://idoinautismland.com/" rel="nofollow" style="border: 0px; box-sizing: border-box; color: #666666; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; font-weight: inherit; line-height: inherit; margin: 0px; max-width: 100%; padding: 0px; vertical-align: baseline;" target="_blank">Ido Kedar,</a> <a href="http://www.whoneedsnormalcy.blogspot.com/" rel="nofollow" style="border: 0px; box-sizing: border-box; color: #666666; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; font-weight: inherit; line-height: inherit; margin: 0px; max-width: 100%; padding: 0px; vertical-align: baseline;" target="_blank">Morénike Oniawu</a>, <a href="http://autismacceptanceday.blogspot.com/" rel="nofollow" style="border: 0px; box-sizing: border-box; color: #666666; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; font-weight: inherit; line-height: inherit; margin: 0px; max-width: 100%; padding: 0px; vertical-align: baseline;" target="_blank">Paula C. Durbin-Westby</a>, <a href="http://theinvisiblestrings.com/" rel="nofollow" style="border: 0px; box-sizing: border-box; color: #666666; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; font-weight: inherit; line-height: inherit; margin: 0px; max-width: 100%; padding: 0px; vertical-align: baseline;" target="_blank">M. Kelter</a>, <a href="https://juststimming.wordpress.com/" rel="nofollow" style="border: 0px; box-sizing: border-box; color: #666666; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; font-weight: inherit; line-height: inherit; margin: 0px; max-width: 100%; padding: 0px; vertical-align: baseline;" target="_blank">Julia Bascom</a>, <a href="http://emmashopebook.com/" rel="nofollow" style="border: 0px; box-sizing: border-box; color: #666666; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; font-weight: inherit; line-height: inherit; margin: 0px; max-width: 100%; padding: 0px; vertical-align: baseline;" target="_blank">Emma Zurcher-Long</a>, <a href="http://emmashopebook.com/" rel="nofollow" style="border: 0px; box-sizing: border-box; color: #666666; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; font-weight: inherit; line-height: inherit; margin: 0px; max-width: 100%; padding: 0px; vertical-align: baseline;" target="_blank">Lynne Soraya</a>, <a href="http://www.autistichoya.com/" rel="nofollow" style="border: 0px; box-sizing: border-box; color: #666666; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; font-weight: inherit; line-height: inherit; margin: 0px; max-width: 100%; padding: 0px; vertical-align: baseline;" target="_blank">Lydia Brown</a>, <a href="http://www.judyendow.com/" rel="nofollow" style="border: 0px; box-sizing: border-box; color: #666666; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; font-weight: inherit; line-height: inherit; margin: 0px; max-width: 100%; padding: 0px; vertical-align: baseline;" target="_blank">Judy Endow</a>, <a href="http://nonspeakingautisticspeaking.blogspot.com/" rel="nofollow" style="border: 0px; box-sizing: border-box; color: #666666; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; font-weight: inherit; line-height: inherit; margin: 0px; max-width: 100%; padding: 0px; vertical-align: baseline;" target="_blank">Amy Sequenzia</a>. <a href="http://jerobison.blogspot.com/" rel="nofollow" style="border: 0px; box-sizing: border-box; color: #666666; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; font-weight: inherit; line-height: inherit; margin: 0px; max-width: 100%; padding: 0px; vertical-align: baseline;" target="_blank">John Elder Robison</a>, <a href="https://unstrangemind.wordpress.com/" rel="nofollow" style="border: 0px; box-sizing: border-box; color: #666666; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; font-weight: inherit; line-height: inherit; margin: 0px; max-width: 100%; padding: 0px; vertical-align: baseline;" target="_blank">Max Sparrow</a>, and <a href="https://chavisory.wordpress.com/">Emily Paige Ballou</a>.</div>
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<strong style="border: 0px; box-sizing: border-box; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; line-height: inherit; margin: 0px; max-width: 100%; padding: 0px; vertical-align: baseline;">9) Honor the undiagnosed autistic people you already know.</strong> We know that autistic people have always been here, that most of the increase in autism rates has to do with changing diagnostic criteria to include more people, and that <a href="https://storify.com/shannonrosa/sfari-webinar-the-female-autism-conundrum" rel="nofollow" style="border: 0px; box-sizing: border-box; color: #666666; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; font-weight: inherit; line-height: inherit; margin: 0px; max-width: 100%; padding: 0px; vertical-align: baseline;" target="_blank">women especially often go undiagnosed</a>. This means that the current CDC autism estimate of 1 in 68 people is probably too low. This means you likely have more autistic people in your life than you officially know you do.</div>
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So try to show respect and kindness rather than irritation towards people who, for example, you'd otherwise think are one-upping you when you tell them about your experiences and they reciprocate by telling you about their own related experiences—as such reciprocation is a <a href="https://www.psychologytoday.com/blog/aspergers-diary/201503/being-misunderstood" rel="nofollow" style="border: 0px; box-sizing: border-box; color: #666666; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; font-weight: inherit; line-height: inherit; margin: 0px; max-width: 100%; padding: 0px; vertical-align: baseline;" target="_blank">very autistic way to empathize</a>. Smile and nod and try to honestly listen to the little girl who wants to tell you about every possible gem category and the subtle differences between them. Kindness and courtesy rarely cause harm, after all.</div>
<div style="background-color: white; border: 0px; box-sizing: border-box; color: #3b3e3f; font-family: Roboto, sans-serif; font-size: 16px; font-stretch: inherit; font-variant-numeric: inherit; line-height: 1.4; max-width: 100%; padding: 20px 0px 0px; vertical-align: baseline;">
<strong style="border: 0px; box-sizing: border-box; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; line-height: inherit; margin: 0px; max-width: 100%; padding: 0px; vertical-align: baseline;">10) Honor autistic people as their own unique selves.</strong> Do not disrespect them by trying to view them as flawed, or potential, non-autistic people. Do not be surprised by or resentful of <a href="http://www.judyendow.com/autistic-behavior/autistic-adults-do-not-look-like-autistic-children/" rel="nofollow" style="border: 0px; box-sizing: border-box; color: #666666; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; font-weight: inherit; line-height: inherit; margin: 0px; max-width: 100%; padding: 0px; vertical-align: baseline;" target="_blank">autistic adults who have gained more skills than your autistic child</a> currently possesses. Do not talk about autistic people having less mature minds in more mature bodies. Do not try to cajole them into doing things that cause them distress, like going to loud parties or talking about whether there is an autism epidemic (again, autistic people have always been part of human society). Just show some respect by trying <a href="https://thethirdglance.wordpress.com/2015/03/29/when-supports-disappear-life-as-an-autistic-adult/" rel="nofollow" style="border: 0px; box-sizing: border-box; color: #666666; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; font-weight: inherit; line-height: inherit; margin: 0px; max-width: 100%; padding: 0px; vertical-align: baseline;" target="_blank">not to impose your non-autistic sensibilities</a> onto them.</div>
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Because autistic people are, again, individuals. Treat them that way. Accept that some may possess a wicked sense of humor, but totally miss others’ reciprocated (or retaliated) humor or sarcasm. Accept that some function best with noise-canceling headphones at school and work. Accept that some autistic people loathe hugs. Accept that some autistic people crave hugs. Accept that some autistic people may enjoy skipping as a form of locomotion whenever possible. Accept that your preferences may surprise them, and their preferences may surprise you.</div>
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Accept. Accept. Accept.</div>
Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-5563550.post-20475853213794579942018-03-26T12:57:00.000-07:002018-03-26T13:19:29.465-07:00#SaidNoMother: A Wretched Hive of Scum and Villainy<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://4.bp.blogspot.com/-qAF-Bgl81n0/WrlPZgwUCEI/AAAAAAAAG74/4g7pAYHKvYM58_t0SoM3FJztZf1s-CgOwCLcBGAs/s1600/28954245_10155679282433650_5216655211422203920_o.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1080" data-original-width="1080" height="400" src="https://4.bp.blogspot.com/-qAF-Bgl81n0/WrlPZgwUCEI/AAAAAAAAG74/4g7pAYHKvYM58_t0SoM3FJztZf1s-CgOwCLcBGAs/s400/28954245_10155679282433650_5216655211422203920_o.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span class="hasCaption" style="font-family: inherit;"><b>“I will only dwell on what my <a class="_58cn" data-ft="{"tn":"*N","type":104}" href="https://www.facebook.com/hashtag/autistic" style="color: #365899; cursor: pointer; font-family: inherit; text-decoration: none;">#autistic</a> child *can’t* do, <a class="_58cn" data-ft="{"tn":"*N","type":104}" href="https://www.facebook.com/hashtag/saidnomother" style="color: #365899; cursor: pointer; font-family: inherit; text-decoration: none;">#saidnomother</a> </b></span><br />
<span class="hasCaption" style="font-family: inherit;">[image: Leo, seen from behind, happily hiking on a verdant oak woodland trail.]</span></td></tr>
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<b>[Content warning for parents saying dehumanizing things to and about autistic people, including their own children. Also lots of autism pseudoscience.]</b><br />
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I haven't had to address the anti-vax Autism Mommy contingent for a long, satisfying while. After the 2015 Disneyland Measles outbreak, the world wised up to the fact that vaccine-preventable diseases were real and deadly, and that vaccines make them go away—and also that <a href="https://vaxplanations.wordpress.com/2014/04/09/134/">established science proves vaccines have nothing to do with autism</a>. Which, no of course I didn't want diseases to resurge, but yes I am glad that I can focus on autism acceptance, education, and rights, instead of spending my time countering willfully, dangerously ignorant <a href="https://io9.gizmodo.com/vaccine-advocates-please-dont-discriminate-against-my-1684756521">people who think having an autistic child like Leo is worse than having a child die from a preventable disease</a>.<br />
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But there is still a small, angry, stewing knot of those awful autism-vaccine causation parents lurking on the social media fringes. And their latest effort is the loathsome #SaidNoMother campaign, bewailing all the ways in which the parents "suffer" by having "vaccine injured" kids. The pseudoscience bombs those parents lob about their children are dehumanizing, so dive in at your own risk; these people have no sense of their children as deserving, valuable human beings.<br />
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Because Twitter doesn't weight its hashtagged tweets, it may seem like this campaign is huge. But please know that, as an associate tipped me off, it only has one-seventh the impressions of a non-pseudoscience hashtag like #VaccinesWork. So, big hashtag/little pond. And many of those impressions are due to Autistic people and like-minded individuals taking on and infiltrating the hashtag, because even though #SaidNoMother is not trending that much, it's still really f***ing distressing and needs all the countering the Neurodiversity community can muster.<br />
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Since Twitter is so ephemeral and scattershot, it's hard to get a sense of how this scenario is playing out unless you experienced it in real time. Or, you know, unless you archive the tweets in a timeline. As I have below. Because so many of the people I countered blocked me, my responses might not make sense—but if they haven't blocked you, you can click through to their linked tweets for context.<br />
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If you care about autistic people like Leo and cannot stand to see autistic people used as collateral damage by pseudoscience-embracing martyr parents, please feel free to RT as many of the entries below as your clicker finger can stand. I included a LOT of links debunking just about any nonsense theory or concept they tried to throw at me, plus as many links to helpful resources as I could squeeze in. Because I hope that at least some of these parents, or the people who listen to these parents, will read what was shared, and consider what their children need from them, instead of waging a fruitless war against their own child's neurology.<br />
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I want my child to die of preventable disease <a href="https://twitter.com/hashtag/saidnomother?src=hash&ref_src=twsrc%5Etfw">#saidnomother</a>. <br />
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Vaccines having nothing to do with <a href="https://twitter.com/hashtag/autism?src=hash&ref_src=twsrc%5Etfw">#autism</a>, says this mother of an <a href="https://twitter.com/hashtag/autistic?src=hash&ref_src=twsrc%5Etfw">#autistic</a> child (and, well, legit science).<a href="https://twitter.com/hashtag/vaccineswork?src=hash&ref_src=twsrc%5Etfw">#vaccineswork</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/976325782439002112?ref_src=twsrc%5Etfw">March 21, 2018</a></blockquote>
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Thanks for the reminder that another anti-vaxxer ploy is to automatically accuse anyone who disagrees with their disinformation of being a pharma <a href="https://twitter.com/search?q=%24hill&src=ctag&ref_src=twsrc%5Etfw">$hill</a>.<br />
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“I want you to insult & tell lies about anyone who disagrees with you” <a href="https://twitter.com/hashtag/SaidNoMother?src=hash&ref_src=twsrc%5Etfw">#SaidNoMother</a> (Well, no GOOD mother.)<a href="https://twitter.com/hashtag/VaccinesWork?src=hash&ref_src=twsrc%5Etfw">#VaccinesWork</a> <a href="https://t.co/i3lCIgIIG2">https://t.co/i3lCIgIIG2</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/976666639176409089?ref_src=twsrc%5Etfw">March 22, 2018</a></blockquote>
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Right? I want a junket. Or at least a coffee mug. <a href="https://t.co/cOBWxgHglr">https://t.co/cOBWxgHglr</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/976683807540588546?ref_src=twsrc%5Etfw">March 22, 2018</a></blockquote>
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With the unemployment/under-employment rate of autistic people the way it is? Put up or shut up with these paid "pharma shill" jobs, anti-vaxxers.</div>
— Emily Paige Ballou (@epballou) <a href="https://twitter.com/epballou/status/976686377306873857?ref_src=twsrc%5Etfw">March 22, 2018</a></blockquote>
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Another anti-vaxxer ploy, per <a href="https://twitter.com/hashtag/SaidNoMother?src=hash&ref_src=twsrc%5Etfw">#SaidNoMother</a>, is to claim those refuting their disinformation don’t know the “real story.” <br />
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I’ve been reporting on this beat for 10yrs. I have an autistic son. I work with top autism researchers. So yep, <a href="https://twitter.com/hashtag/vaccineswork?src=hash&ref_src=twsrc%5Etfw">#vaccineswork</a> &have nada to do with <a href="https://twitter.com/hashtag/autism?src=hash&ref_src=twsrc%5Etfw">#autism</a>. <a href="https://t.co/NoixiqDA0x">https://t.co/NoixiqDA0x</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/976870206923595777?ref_src=twsrc%5Etfw">March 22, 2018</a></blockquote>
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My son is autistic and all my kids are vaccinated—just like the majority of children are. <br />
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This <a href="https://twitter.com/hashtag/saidnomother?src=hash&ref_src=twsrc%5Etfw">#saidnomother</a> campaign is utter BS, from a tiny but zealous group of vaccine denialists/autism martyr parents who don’t actually care about <a href="https://twitter.com/hashtag/autistic?src=hash&ref_src=twsrc%5Etfw">#autistic</a> kids' (or adults’) well-being. <a href="https://t.co/trRkvuoH93">https://t.co/trRkvuoH93</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/976880879233589248?ref_src=twsrc%5Etfw">March 22, 2018</a></blockquote>
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Mine are both vaccinated. I'd make the same decision again - because I believe in science & don't believe that autism is a terrible thing. <br />
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This <a href="https://twitter.com/hashtag/saidnomother?src=hash&ref_src=twsrc%5Etfw">#saidnomother</a> campaign is annoying & hardly represents the mothers out there accurately. <br />
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Says what mother? This mother.</div>
— Tara Shearer (@NotAratear) <a href="https://twitter.com/NotAratear/status/976896827692904448?ref_src=twsrc%5Etfw">March 22, 2018</a></blockquote>
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Autism is not a an injury. <a href="https://twitter.com/hashtag/Autism?src=hash&ref_src=twsrc%5Etfw">#Autism</a> is neurology. If you care about your <a href="https://twitter.com/hashtag/autistic?src=hash&ref_src=twsrc%5Etfw">#autistic</a> children, fight for them: for acceptance, rights, and inclusion. Howling at the internet over the loss of your theoretical non-disabled children—who never existed—is a sad, useless waste of energy. <a href="https://t.co/TPpLMXAi1J">https://t.co/TPpLMXAi1J</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/976936013103681536?ref_src=twsrc%5Etfw">March 22, 2018</a></blockquote>
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This kind of absurd denialism—of on-the-record facts, and after MMR-autism link fraudster Wakefield lost his license for taking money, abusing children, & falsifying data—is a reminder of how False Prophets turn followers’ fear & ignorance into angry, fervent “beliefs.” <a href="https://t.co/8mzCP9h0CA">https://t.co/8mzCP9h0CA</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/976942619207991296?ref_src=twsrc%5Etfw">March 22, 2018</a></blockquote>
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The MMR vaccine has never contained thimerosal. Not that you’ve cited a shred of evidence in this thread. <a href="https://t.co/1iRNhnOsPZ">https://t.co/1iRNhnOsPZ</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/976943062965305349?ref_src=twsrc%5Etfw">March 22, 2018</a></blockquote>
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Encephalitis isn't autism. Autism entails distinctive, innate processing differences (yes, sometimes debilitating ones!), not injury or infection. Autism isn't encephalitis and encephalitis isn't autism.</div>
— Emily Paige Ballou (@epballou) <a href="https://twitter.com/epballou/status/976943973334966272?ref_src=twsrc%5Etfw">March 22, 2018</a></blockquote>
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You can suffer a bout of encephalitis and still be autistic. Autism doesn't make us immune from other transmissible illnesses.</div>
— Emily Paige Ballou (@epballou) <a href="https://twitter.com/epballou/status/976944518187581440?ref_src=twsrc%5Etfw">March 22, 2018</a></blockquote>
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I’m sorry that you cannot accept your daughter as natural or us <a href="https://twitter.com/hashtag/ActuallyAutistic?src=hash&ref_src=twsrc%5Etfw">#ActuallyAutistic</a> people as normal. We’re not damaged. We’re simply different. There’s no need for phantoms to explain the misunderstood away. We’ve lived this difference. We’re here to ask of. We can help.</div>
— John Marble (@JHMarble) <a href="https://twitter.com/JHMarble/status/976945252257882112?ref_src=twsrc%5Etfw">March 22, 2018</a></blockquote>
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Autism is not brain damage. Vaccines have nothing to do with autism. Despite denialists making word salad with sciencey-sounding terms. <a href="https://t.co/dOYfZCUmOE">https://t.co/dOYfZCUmOE</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/976947138948079616?ref_src=twsrc%5Etfw">March 22, 2018</a></blockquote>
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In which alternate universe? Vaccine safety is one of the most researched topics in contemporary medicine. Surveys of millions of children have determined that there is no link between autism and vaccines. It may not be illegal to lie on Twitter, but it is still unethical. <a href="https://t.co/W6H56K0TBo">https://t.co/W6H56K0TBo</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/976948713363988486?ref_src=twsrc%5Etfw">March 22, 2018</a></blockquote>
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Once again, the anti-vaxxer fallback: “I can’t refute your facts, so I’ll play the pathetic autism martyr parent card while accusing you of being paid shills.”<br />
<br />
Your child is not damaged. You are wasting your $/energy and your child’s future by believing the lies of a huckster. <a href="https://t.co/udZ77LL1N4">https://t.co/udZ77LL1N4</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/976949786921201664?ref_src=twsrc%5Etfw">March 22, 2018</a></blockquote>
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Riiiight. Here is an in-depth explanation of why there’s no “there”<br />
there in these autism/vaccine/MTFHR claims, and the varieties of ways in which quacks fleece the credulous: <a href="https://t.co/46C0G9gbtX">https://t.co/46C0G9gbtX</a> <a href="https://t.co/eyaddW8Yiv">https://t.co/eyaddW8Yiv</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/976952661781053441?ref_src=twsrc%5Etfw">March 22, 2018</a></blockquote>
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Why do these people spend so much time trying to find "the cause" as opposed to just helping their kids? I just don't get it.</div>
— Tracy (@TAB2034) <a href="https://twitter.com/TAB2034/status/976953484322004992?ref_src=twsrc%5Etfw">March 22, 2018</a></blockquote>
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<br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://1.bp.blogspot.com/-Kcyx9nj9OgI/WrlM4EYE1fI/AAAAAAAAG7s/dLi4YRRJ_AsGTaCi5ByyGxAn_8GKVjBHQCLcBGAs/s1600/Screen%2BShot%2B2018-03-26%2Bat%2B12.40.12%2BPM.png" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="980" data-original-width="663" height="400" src="https://1.bp.blogspot.com/-Kcyx9nj9OgI/WrlM4EYE1fI/AAAAAAAAG7s/dLi4YRRJ_AsGTaCi5ByyGxAn_8GKVjBHQCLcBGAs/s400/Screen%2BShot%2B2018-03-26%2Bat%2B12.40.12%2BPM.png" width="270" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><b>Blurring & anonymizing courtesy Jay Edidin</b><br />
[image: Photo of a mom kissing her child, whose<br />
face is blurred out. A superimposed white text box<br />
reads, "I can't wait for my 8 year old's diapers to<br />
be delivered, said no mother of a vaccine injured<br />
child, ever. #SaidNoMother.]</td></tr>
</tbody></table>
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[Note: I deleted my original Tweeted response because it linked to the original photo above, in which the child's face wasn't blurred out.] </div>
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There is no shame in needing to use diapers at any age; that’s what disability looks like for some people. <br /><br />What *should* happen: “I love to publicly shame my child for being disabled as part of making their disability into a martyrdom pity party all about me, <a href="https://twitter.com/hashtag/SaidNoMother?src=hash&ref_src=twsrc%5Etfw">#SaidNoMother</a>."</div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/978365200192557056?ref_src=twsrc%5Etfw">March 26, 2018</a></blockquote>
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I would think that being eager for diapers to arrive would be a completely normal opinion for someone who needed them and didn’t have them.</div>
— Rabbi Ruti Regan 🏳️🌈♀🇺🇸 (@RutiRegan) <a href="https://twitter.com/RutiRegan/status/977724399204913152?ref_src=twsrc%5Etfw">March 25, 2018</a></blockquote>
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Every statement below is false. <br />
Vaccine ingredients are safe & chosen for effectiveness, & occur in lower doses than in most organic produce. The only “known” cause of autism is being born human (sorry, mice). Vaccine injuries are *rare* but real, hence fair NVICP compensations. <a href="https://t.co/7t0PqCSFvv">https://t.co/7t0PqCSFvv</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/977226365530353664?ref_src=twsrc%5Etfw">March 23, 2018</a></blockquote>
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Another anti-vaxxer tell: unexamined privilege. It is contemptible for one who never experienced or witnessed vaccine-preventable death/disease themselves—thanks to vaccines & herd immunity—to sow lies while, globally, so many kids still get sick & die due to limited vax access. <a href="https://t.co/Bevl8BdDx9">https://t.co/Bevl8BdDx9</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/977256023143542784?ref_src=twsrc%5Etfw">March 23, 2018</a></blockquote>
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Hi. I’m autistic. A funny thing about us is that we get REALLY interested in subjects and obsessively learn about them until we’re experts. Most adult autistics do that with our own autism & conclude from overwhelming evidence that our autism is not vaccine-driven but natural.</div>
— John Marble (@JHMarble) <a href="https://twitter.com/JHMarble/status/977264516600799233?ref_src=twsrc%5Etfw">March 23, 2018</a></blockquote>
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You can of course believe whatever you wish. But you cannot insist that your beliefs/anecdotes trump a well-established body of evidence regarding vaccine safety. Also Autistic people are more likely to be medically fragile, &thus more reliant on vaccines to protect their health. <a href="https://t.co/R4jAlonO73">https://t.co/R4jAlonO73</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/977307539871117313?ref_src=twsrc%5Etfw">March 23, 2018</a></blockquote>
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Real kids are dying at the hands of their parents and caregivers, as a result of the campaign of dehumanization that anti vaxxers perpetrate against <a href="https://twitter.com/hashtag/ActuallyAutistic?src=hash&ref_src=twsrc%5Etfw">#ActuallyAutistic</a> people. Many that don't die are assaulted and even tortured. THAT is legit. Your actions have consequences.</div>
— Marie Porter 🇨🇦 (@OverlordMarie) <a href="https://twitter.com/OverlordMarie/status/977308146074079232?ref_src=twsrc%5Etfw">March 23, 2018</a></blockquote>
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My son is on the autism spectrum so I researched the claimed connection to vaccines. It cannot be said often enough that the original 1998 paper that claimed a connection had to be retracted as it was proven to be fraudulent. <a href="https://twitter.com/hashtag/vaccineswork?src=hash&ref_src=twsrc%5Etfw">#vaccineswork</a> <a href="https://twitter.com/hashtag/saidnomother?src=hash&ref_src=twsrc%5Etfw">#saidnomother</a><a href="https://t.co/3yx7LW1AVX">https://t.co/3yx7LW1AVX</a> <a href="https://t.co/B65L0177gq">https://t.co/B65L0177gq</a></div>
— Henning Dekant (@HenningDekant) <a href="https://twitter.com/HenningDekant/status/977398283722285056?ref_src=twsrc%5Etfw">March 24, 2018</a></blockquote>
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Risk of vaccine adverse reactions is real. Rare, but real.<br />
<br />
The risks of vaccines are still hundreds of times lower than the risks of serious complications from measles, mumps, and chickenpox.</div>
— Emily Paige Ballou (@epballou) <a href="https://twitter.com/epballou/status/977417576128147456?ref_src=twsrc%5Etfw">March 24, 2018</a></blockquote>
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That, plus autistic people's lives are equally worth protecting. We're not just the trade-off or the risk people take for healthy, non-autistic kids. We have lives and well-being worth saving.</div>
— Emily Paige Ballou (@epballou) <a href="https://twitter.com/epballou/status/977417834161729536?ref_src=twsrc%5Etfw">March 24, 2018</a></blockquote>
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By focusing your energies on a thoroughly debunked conspiracy theory about vaccine-autism causation, you are stigmatizing <a href="https://twitter.com/hashtag/autism?src=hash&ref_src=twsrc%5Etfw">#autism</a> & diverting energy for getting <a href="https://twitter.com/hashtag/autistic?src=hash&ref_src=twsrc%5Etfw">#autistic</a> people/families the help and services they deserve. IDK why you’re desperately folding aluminum hats instead. <a href="https://t.co/ZK556JwAbO">https://t.co/ZK556JwAbO</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/977560219424141312?ref_src=twsrc%5Etfw">March 24, 2018</a></blockquote>
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Autistics are not "collateral damage." We are every bit as whole as non-autistics. You want to fight for autism justice? Fight for our right to be treated as equals, to be viewed as living lives just as valid as everyone else. Fight against prejudice instead of perpetuating it.</div>
— Rachel Snyder (@1RachelSnyder1) <a href="https://twitter.com/1RachelSnyder1/status/977565912428630016?ref_src=twsrc%5Etfw">March 24, 2018</a></blockquote>
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Funny how anti-vaxxers are willfully ignorant re: their own history. The Vaccine-autism hoax intentionally started by Wakefield set off a panic that led to outsize/damaging ‘00s media coverage. Resulting reduced vax uptake led to disease breakouts—THAT is why you’re ignored now. <a href="https://t.co/vZS10jmnHk">https://t.co/vZS10jmnHk</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/977597059925557248?ref_src=twsrc%5Etfw">March 24, 2018</a></blockquote>
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So, those claims are BS. Straightforward enough.<br />
<br />
Note: Ginger is one of the most industrious disinformation-purveyors of the anti-vax movements. Here’s a point-by-point refutation of her bogus “vaccines cause autism” list of studies. <a href="https://twitter.com/hashtag/vaccineswork?src=hash&ref_src=twsrc%5Etfw">#vaccineswork</a><a href="https://t.co/WDFJSZwOeP">https://t.co/WDFJSZwOeP</a> <a href="https://t.co/ImMqqmUtQm">https://t.co/ImMqqmUtQm</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/977613946868789248?ref_src=twsrc%5Etfw">March 24, 2018</a></blockquote>
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This is an older example of the classic coincidence anti-vaxxers love to flog & hype: Parents notice autism traits around the same time vaccines are given. Contemporary regression studies show autistic traits were there all along. So vaccines still have nothing to do with autism. <a href="https://t.co/c6ov4uRi9A">https://t.co/c6ov4uRi9A</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/977622717904994305?ref_src=twsrc%5Etfw">March 24, 2018</a></blockquote>
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Because Twitter is a deceptively level playing field, let me make Ginger’s role very clear: yes, she believes what she spouts. But *what* she spouts is the debunked autism-vaccine equivalent of Flat Eartherism or moon landing denialists, and is simply untrue. <a href="https://t.co/HofHf3vTOZ">https://t.co/HofHf3vTOZ</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/977633325845114881?ref_src=twsrc%5Etfw">March 24, 2018</a></blockquote>
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"I want all my child’s organs to shut down after a pertussis infection," <a href="https://twitter.com/hashtag/saidnomother?src=hash&ref_src=twsrc%5Etfw">#saidnomother</a> <br />
<br />
"I want my baby too young for a whooping cough vaccine to die because people around her didn’t get vaccinated," <a href="https://twitter.com/hashtag/saidnomother?src=hash&ref_src=twsrc%5Etfw">#saidnomother</a><br />
<br />
(Unfortunately from a true story):<br />
<a href="https://t.co/lclF722Zgq">https://t.co/lclF722Zgq</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/977693287782875137?ref_src=twsrc%5Etfw">March 24, 2018</a></blockquote>
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Look. As autistic people we’re here to help, along with the consensus of the entire scientific community. However, your views are incorrect and those who hold them have fucked-up an entire generation of autistic people by diverting funding and attention from the services we need.</div>
— John Marble (@JHMarble) <a href="https://twitter.com/JHMarble/status/977936191382147072?ref_src=twsrc%5Etfw">March 25, 2018</a></blockquote>
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If you understood autism as we autistic people do, if you had the knowledge to communicate as your daughter does, if she had the accommodations and you the support you need, your view would change. Society has failed you. It has failed us.</div>
— John Marble (@JHMarble) <a href="https://twitter.com/JHMarble/status/977937995587141632?ref_src=twsrc%5Etfw">March 25, 2018</a></blockquote>
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If you understood autism as we autistic people do, if you had the knowledge to communicate as your daughter does, if she had the accommodations and you the support you need, your view would change. Society has failed you. It has failed us.</div>
— John Marble (@JHMarble) <a href="https://twitter.com/JHMarble/status/977937995587141632?ref_src=twsrc%5Etfw">March 25, 2018</a></blockquote>
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That is why autistic people en masse speak out against incorrect vaccine views. We’ve seen how it diverts attention and funding from the accommodations and support we desperately need. Your views may be well-intended but they hurt us. They rob us. They hurt you.</div>
— John Marble (@JHMarble) <a href="https://twitter.com/JHMarble/status/977938771042713600?ref_src=twsrc%5Etfw">March 25, 2018</a></blockquote>
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It can be hard to break from a view when it grows to be part of your identity. I empathize. However, we are autistic. We have stated how your views make us suffer & hold us back. We are begging you to hear us. Our lives are at stake. Please reach out to us to understand us more.</div>
— John Marble (@JHMarble) <a href="https://twitter.com/JHMarble/status/977939511849005057?ref_src=twsrc%5Etfw">March 25, 2018</a></blockquote>
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“I’m going to spend all my energy bewailing my high-support <a href="https://twitter.com/hashtag/autistic?src=hash&ref_src=twsrc%5Etfw">#autistic</a> son’s neurology & blaming vaccines even though that’s a conspiracy theory, instead of using my time to learn how he can live the best life possible, both now & after I’m gone.” <a href="https://twitter.com/hashtag/SaidNoMother?src=hash&ref_src=twsrc%5Etfw">#SaidNoMother</a> (No good mother.)</div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/977941705356861440?ref_src=twsrc%5Etfw">March 25, 2018</a></blockquote>
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“I’m going to yell at <a href="https://twitter.com/hashtag/autistic?src=hash&ref_src=twsrc%5Etfw">#autistic</a> people who want to help me understand my autistic child better, because I would rather focus on claiming my child is “damaged” than learn how I can improve my child’s life, as well as my own.” <a href="https://twitter.com/hashtag/SaidNoMother?src=hash&ref_src=twsrc%5Etfw">#SaidNoMother</a> (no GOOD mother.) <a href="https://t.co/Zp1MbrIx9T">https://t.co/Zp1MbrIx9T</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/977943013832900610?ref_src=twsrc%5Etfw">March 25, 2018</a></blockquote>
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See, I would actually love to spend a week at Tanner’s house, to convey to Tanner how awesome he is just as he is, despite his dad telling the world for 10+ yrs that his own son is irreparably damaged goods. <br />
<br />
“I love to publicly disparage my child” <a href="https://twitter.com/hashtag/SaidNoMother?src=hash&ref_src=twsrc%5Etfw">#SaidNoMother</a> (no GOOD mother) <a href="https://t.co/RE7jVXPU3X">https://t.co/RE7jVXPU3X</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/977944076208160768?ref_src=twsrc%5Etfw">March 25, 2018</a></blockquote>
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If you’re calling autistic people idiots, I fear you might not understand how that term has historically been used as a slur to ridicule and oppress us. That makes it hard for us to hear your arguments.</div>
— John Marble (@JHMarble) <a href="https://twitter.com/JHMarble/status/977943981555204098?ref_src=twsrc%5Etfw">March 25, 2018</a></blockquote>
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“Don’t judge people who spread dangerous misinformation. But you really should have an open mind and agree with me.”<br />
<br />
Yes, the vaccines given to kids today are very different—because they are safer and better tested and more comprehensive. They also have nothing to do w/autism. <a href="https://t.co/uEaMI5yMsL">https://t.co/uEaMI5yMsL</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/977946838434070528?ref_src=twsrc%5Etfw">March 25, 2018</a></blockquote>
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Researchers spent years investigating thousands of parent anecdotes like this. They were never able to validate a *single* parent account of "vaccine-induced" autistic regression. They DID find that parent memory is unreliable, & the kids' <a href="https://twitter.com/hashtag/autistic?src=hash&ref_src=twsrc%5Etfw">#autistic</a> traits were there all along. <a href="https://t.co/MFh3IQMmDx">https://t.co/MFh3IQMmDx</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/977947344414040065?ref_src=twsrc%5Etfw">March 25, 2018</a></blockquote>
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Be reassured: Now the autism-vax hoax is recognized as the life-endangering BS that it is, not like the '00s when quackery-shiller Jenny McCarthy ran amok. Hashtags/social media presences are deceptive.<br />
<br />
Still, I’d really like to see more people working towards autism acceptance. <a href="https://t.co/wnohabLQjn">https://t.co/wnohabLQjn</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/977968334586068992?ref_src=twsrc%5Etfw">March 25, 2018</a></blockquote>
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Here’s the thing. Autistic people know the <a href="https://twitter.com/hashtag/autistic?src=hash&ref_src=twsrc%5Etfw">#autistic</a> experience better than non-autistic parents ever could, while parents know their kids as individuals. I don’t understand why parents reject autistic insights that could empower their kids' & families’ lives—except as denialism. <a href="https://t.co/Gzt0Cq8wbC">https://t.co/Gzt0Cq8wbC</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/977980875609534464?ref_src=twsrc%5Etfw">March 25, 2018</a></blockquote>
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You’ll go to your grave fighting the wrong fight, & your daughter will suffer. <br />
<br />
Research is clear: Many now-adult autistics, regardless of intellectual disability, have PTSD &/or end up in depression/suicide as a result of parents treating them as “broken” their entire lives. <a href="https://t.co/CAUcVGVcvh">https://t.co/CAUcVGVcvh</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/977981855587708928?ref_src=twsrc%5Etfw">March 25, 2018</a></blockquote>
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“I want my <a href="https://twitter.com/hashtag/autistic?src=hash&ref_src=twsrc%5Etfw">#autistic</a> child to grow up thinking of themselves as broken, & be at risk for suicide because I always told everyone they were vaccine-damaged—instead of giving them unconditional love, self-advocacy skills, & acceptance, <a href="https://twitter.com/hashtag/saidnomother?src=hash&ref_src=twsrc%5Etfw">#saidnomother</a>. <br />
<br />
Link: <a href="https://t.co/0o5kWKXOoU">https://t.co/0o5kWKXOoU</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/977982988100108288?ref_src=twsrc%5Etfw">March 25, 2018</a></blockquote>
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Example of how conspiracy theories see conspiracies everywhere. <br />
<br />
What is actually happening: <a href="https://twitter.com/hashtag/autistic?src=hash&ref_src=twsrc%5Etfw">#autistic</a> people, family members, and allies are genuinely outraged by the <a href="https://twitter.com/hashtag/SaidNoMother?src=hash&ref_src=twsrc%5Etfw">#SaidNoMother</a> autism/vaccines disinformation campaign, & are speaking out & pushing back. <a href="https://t.co/15UYsdceCf">https://t.co/15UYsdceCf</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/977990908757995520?ref_src=twsrc%5Etfw">March 25, 2018</a></blockquote>
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If I found out my mum would rather I, and others, died from entirely preventable diseases than have me as I am... yeah, I'd be devastated. <a href="https://twitter.com/hashtag/SaidNoMother?src=hash&ref_src=twsrc%5Etfw">#SaidNoMother</a>? That's exactly what you're saying.</div>
— StaceyLikesBooks (@ReadingAutistic) <a href="https://twitter.com/ReadingAutistic/status/977960993291726848?ref_src=twsrc%5Etfw">March 25, 2018</a></blockquote>
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Because autism isn’t illness or vaccine injury.<br />
<br />
Because Autistic people like my son/friends shouldn’t be fodder for stigmatizing conspiracy theories about causation when legit science shows autism is inborn.<br />
<br />
Because parents becoming aware of Autistic traits is not “regression.” <a href="https://t.co/F7f1BdZviR">https://t.co/F7f1BdZviR</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/978016469526003712?ref_src=twsrc%5Etfw">March 25, 2018</a></blockquote>
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My son is a 1:1 support Autistic dude. I love him for who he is, do my best to understand what he needs from me, and fight for the rest of society to see & value him as well—now, & after I die.<br />
<br />
Your attitude is horrifying. <a href="https://twitter.com/hashtag/Autism?src=hash&ref_src=twsrc%5Etfw">#Autism</a> is not a demon possessing your child. For shame. <a href="https://t.co/HplEVXwKh2">https://t.co/HplEVXwKh2</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/978035017170300928?ref_src=twsrc%5Etfw">March 25, 2018</a></blockquote>
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I am sorry you’ve fallen in with people who encourage you to say such awful things about your son. He is a person. And he is not a toddler. He is an adult with intellectual disability. <br />
<br />
Yes, <a href="https://twitter.com/hashtag/autistic?src=hash&ref_src=twsrc%5Etfw">#autistic</a> people & families need/deserve more supports. But that’s not your son’s fault. <a href="https://t.co/nhwPSfzlEE">https://t.co/nhwPSfzlEE</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/978040007414951942?ref_src=twsrc%5Etfw">March 25, 2018</a></blockquote>
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“I want my <a href="https://twitter.com/hashtag/autistic?src=hash&ref_src=twsrc%5Etfw">#autistic</a> child to spend their entire childhood ENTIRELY WITHOUT SAFE PEOPLE OR SPACES because they are injured/broken, and that means they don’t deserve for anyone to have their back, including me.” <a href="https://twitter.com/hashtag/SaidNoMother?src=hash&ref_src=twsrc%5Etfw">#SaidNoMother</a><a href="https://t.co/mirpN8xHi9">https://t.co/mirpN8xHi9</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/978040815170633728?ref_src=twsrc%5Etfw">March 25, 2018</a></blockquote>
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It’s more important for me to be seen as a “Warrior Mom” who fights ‘autism’ than it is to pay attention to & fight for the needs of my incredibly vulnerable child, who is already at a disadvantage from society’s bias against the disabled" <a href="https://twitter.com/hashtag/SaidNoMother?src=hash&ref_src=twsrc%5Etfw">#SaidNoMother</a>: <a href="https://t.co/mSVJLBIgY3">https://t.co/mSVJLBIgY3</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/978042413938704384?ref_src=twsrc%5Etfw">March 25, 2018</a></blockquote>
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"Regression” is part of varied autistic development, not due to “injury.” Researcher “think classifying [autistic kids] as regressive or non-regressive is a waste of time and a misnomer.”<br />
<br />
Also autistic adults report “regression” throughout their lives.<a href="https://t.co/i0P0j2Z4Xj">https://t.co/i0P0j2Z4Xj</a> <a href="https://t.co/2aVYQWsWKe">https://t.co/2aVYQWsWKe</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/978044649343410176?ref_src=twsrc%5Etfw">March 25, 2018</a></blockquote>
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I think I am the parent of a high-support autistic teen. I think I spend my time compiling best practices resources for parents, families, & autistic people about quality of life & services, including planning after parents die:<a href="https://t.co/2S0xL7alY9">https://t.co/2S0xL7alY9</a><a href="https://t.co/3REBaXmQUt">https://t.co/3REBaXmQUt</a> <a href="https://t.co/buon6OZ5N0">https://t.co/buon6OZ5N0</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/978045805901750272?ref_src=twsrc%5Etfw">March 25, 2018</a></blockquote>
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Being disabled is not grotesque. Having these thoughts about your own child IS grotesque. <br />
<br />
Some people need toilet assistance. That is life.<br />
<br />
Some people don’t have verbal speech. But everyone communicates, though not enough get appropriate support.<br />
<br />
Autistic socializing varies. <a href="https://t.co/UNp1GI1NUm">https://t.co/UNp1GI1NUm</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/978054002309918721?ref_src=twsrc%5Etfw">March 25, 2018</a></blockquote>
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You realize you could become disabled at any time, and have any of the traits you so heartlessly describe as “grotesque” at any time? How would you want to be treated? With fear & loathing? Or with respect & appropriate care? <a href="https://t.co/UNp1GI1NUm">https://t.co/UNp1GI1NUm</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/978054639735091202?ref_src=twsrc%5Etfw">March 25, 2018</a></blockquote>
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"it"<br />
<br />
And that's the crux of things.<br />
<br />
You see Autism as something outside of the person. So that allows you to say such dehumanizing things about YOUR son. But it's not, autism is <a href="https://twitter.com/hashtag/actuallyautistic?src=hash&ref_src=twsrc%5Etfw">#actuallyautistic</a> people.<br />
<br />
Your language about your son is truly grotesque.</div>
— PatriciaPersists🐭🌻🍵 (@pgzwicker) <a href="https://twitter.com/pgzwicker/status/978049983609016320?ref_src=twsrc%5Etfw">March 25, 2018</a></blockquote>
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"Im so glad my mother hates living with me because im autistic" - <a href="https://twitter.com/hashtag/saidnoautistic?src=hash&ref_src=twsrc%5Etfw">#saidnoautistic</a> ever.</div>
— Tania Grey (@maxriderflies) <a href="https://twitter.com/maxriderflies/status/978083497943404546?ref_src=twsrc%5Etfw">March 26, 2018</a></blockquote>
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In replying to your other tweet, I linked to resources for ensuring people with high support disability needs get the care they deserve, whether their family can participate or not. It is a model from *this* world. <br />
<br />
Please let me know what other resources you are looking for. <a href="https://t.co/v5uSMgOogs">https://t.co/v5uSMgOogs</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/978112880766668800?ref_src=twsrc%5Etfw">March 26, 2018</a></blockquote>
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Because these myths about autism as vaccine injury or illness have historically led to a lot of horrific mistreatment of autistic people, rather than to understanding of autism as a complex neurodevelopmental condition.<br />
<br />
That's what it has to do with us.</div>
— Emily Paige Ballou (@epballou) <a href="https://twitter.com/epballou/status/978293726480084993?ref_src=twsrc%5Etfw">March 26, 2018</a></blockquote>
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As if April wasn't exhausting and dehumanizing enough for <a href="https://twitter.com/hashtag/ActuallyAutistic?src=hash&ref_src=twsrc%5Etfw">#ActuallyAutistic</a> people, there's a new "<a href="https://twitter.com/hashtag/SaidNoMother?src=hash&ref_src=twsrc%5Etfw">#SaidNoMother</a>" campaign to REALLY drive home how much they hate us. <br />
<br />
... Don't click through that hashtag unless you really want to lose any remaining faith in humanity.</div>
— Marie Porter 🇨🇦 (@OverlordMarie) <a href="https://twitter.com/OverlordMarie/status/976946146634498049?ref_src=twsrc%5Etfw">March 22, 2018</a></blockquote>
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Listening to actually autistic people rather than <a href="https://twitter.com/hashtag/saidnomother?src=hash&ref_src=twsrc%5Etfw">#saidnomother</a> fear-mongering and ableist fuckery for the win.<br />
<br />
Also, vaccinate your goddamn kids. <a href="https://t.co/HVKAkrJJZ7">https://t.co/HVKAkrJJZ7</a></div>
— Ren Martinez (@RenTheMusical) <a href="https://twitter.com/RenTheMusical/status/978272168437075975?ref_src=twsrc%5Etfw">March 26, 2018</a></blockquote>
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“I will go bankrupt paying for bogus detoxifying treatments that are unhealthy for my child before I accept he or she for who they are. Treating my child like a cancer that needs cured gets me the attention I want.” <a href="https://twitter.com/hashtag/SaidNoMother?src=hash&ref_src=twsrc%5Etfw">#SaidNoMother</a> <a href="https://twitter.com/hashtag/SaidEveryAntiVaxMother?src=hash&ref_src=twsrc%5Etfw">#SaidEveryAntiVaxMother</a> <a href="https://twitter.com/hashtag/vaccineswork?src=hash&ref_src=twsrc%5Etfw">#vaccineswork</a></div>
— Brandi Dalhover (@SpectrumomYeah) <a href="https://twitter.com/SpectrumomYeah/status/978251363388936192?ref_src=twsrc%5Etfw">March 26, 2018</a></blockquote>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://1.bp.blogspot.com/-SxVcWfWYyzQ/Wrkk8mJ9gSI/AAAAAAAAG7c/xzK3Pc_rDc4up4EodBYn6_9qA-ZCK7rtgCLcBGAs/s1600/Screen%2BShot%2B2018-03-26%2Bat%2B9.31.57%2BAM.png" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="583" data-original-width="539" height="320" src="https://1.bp.blogspot.com/-SxVcWfWYyzQ/Wrkk8mJ9gSI/AAAAAAAAG7c/xzK3Pc_rDc4up4EodBYn6_9qA-ZCK7rtgCLcBGAs/s320/Screen%2BShot%2B2018-03-26%2Bat%2B9.31.57%2BAM.png" width="296" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">[image: Screenshot of a tweet from @TannersDad, featuring<br />
a man with a black eye looking at the camera. The tweet reads,<br />
"Let's have a real discussion this April. #ABA Autism Beyond<br />
April. New movement of Mothers Fathers Grandparents Siblings<br />
Rising Up above the noise of Pharmaceutical Propaganda explore<br />
the truth Revolution Breaking MSM Silence<br />
#SaidNoMother #SaidNoFather.]</td></tr>
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"My autistic child is in so much distress that he is behaving aggressively. I’m going to post a photo of my black eye on Social Media instead of helping him” <a href="https://twitter.com/hashtag/SaidNoMother?src=hash&ref_src=twsrc%5Etfw">#SaidNoMother</a> <br />
<br />
Info on understanding/supporting autistic ppl who are aggressive/self-injurious:<a href="https://t.co/mr53TbHZDf">https://t.co/mr53TbHZDf</a> <a href="https://t.co/XdKrST79Hx">https://t.co/XdKrST79Hx</a></div>
— Shannon Rosa (@shannonrosa) <a href="https://twitter.com/shannonrosa/status/978308173076381696?ref_src=twsrc%5Etfw">March 26, 2018</a></blockquote>
Unknownnoreply@blogger.com2tag:blogger.com,1999:blog-5563550.post-41946730845117548962018-03-01T17:23:00.001-08:002018-03-01T22:28:48.000-08:00To Siri, With So Much Disappointment <table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://i.cbc.ca/1.4363883.1508510144!/fileImage/httpImage/image.png_gen/derivatives/16x9_940/to-siri-with-love.png" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="450" data-original-width="800" height="225" src="https://i.cbc.ca/1.4363883.1508510144!/fileImage/httpImage/image.png_gen/derivatives/16x9_940/to-siri-with-love.png" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><b>To Siri With Love author Judith Newman and her son Gus</b><br />
[image: A white woman with long curly dark hair, snuggling with her teen<br />
son, who has short dark hair, next to an image of the book To Siri With Love.]</td></tr>
</tbody></table>
<span id="goog_1809908640"></span><span id="goog_1809908641"></span><a href="https://www.blogger.com/"></a>It took me a long time to read Judith Newman's autism parenting memoir To Siri With Love, despite the author herself courteously sending me a copy. I had to nudge myself to keep going, because I don't like reading books that treat autistic people as inscrutable annoyances. I also dragged my feet due to more personal preferences: books written in breezy airport-bookstore-ready voices are not my thing, plus Newman's sense of humor put me off: Getting a discount on a hotel room because a kid was recently eaten by an alligator onsite is not amusing to me, for instance.<br />
<br />
Others, including autistic writer Max Sparrow, have written extensively about why <a href="http://www.thinkingautismguide.com/2017/12/why-to-siri-with-love-is-wrecking-ball.html">To Siri With Love is flawed</a>, and you should read what they have to say. Because I'm not alone in noticing that one of the primary problems with the book is that, when it talks about autism, it recycles outdated and stigmatizing cliches. Despite the two years since the award-winning <a href="https://www.theguardian.com/lifeandstyle/2015/aug/29/autism-spectrum-steve-silberman-neurotribes-legacy-autism-people-think-differently">neurodiversity explainer and history NeuroTribes</a> was published, and despite Newman being a journalist, To Siri features common misconceptions, like insisting all autistic people <a href="https://visualvox.wordpress.com/2017/12/14/without-theoryofmind-tosiriwithlove-wouldnt-be-the-dumpster-fire-it-is/">lack theory of mind</a> (long-established research clarifies that the issue is actually one of <a href="http://www.tandfonline.com/doi/abs/10.1080/09687599.2012.710008">“double empathy,”</a> in which <a href="https://intersectionalneurodiversity.wordpress.com/2017/11/19/new-research-suggests-social-issues-are-down-to-neurotypicals-more-than-autistics/">negative assumptions from non-autistic people about autistic people are most of the problem</a>).<br />
<br />
I am also put off by how little respect Newman's shows for autistic people. She writes passionately about how much a specific autistic adult needs support and understanding and (correctly) how badly society and systems have mistreated him—yet reveals second-hand information about his bowel habit demonstrations of distress. This <b>actual</b> lack of theory of mind is even more confusing given that Newman wrote Siri in part to bring more attention to non-genius autistic kids like her son Gus (who seems like the most awesome young man ever), a group she considers underrepresented. But, as as comedian and filmmaker <a href="http://www.slate.com/articles/podcasts/represent/2017/11/comedian_hari_kondabolu_talks_the_problem_with_apu.html">Hari Kondabolu says in talking about minority representation in general</a>: it can’t just be about the stereotypes; it has to be about <a href="http://www.thinkingautismguide.com/2018/03/what-good-representation-of-autistic.html">recognizing real-life diversity and humanity</a>. Yet Newman does nothing to expand autism understanding, bust negative autism stereotypes, or further her son's humanity; if anything To Siri With Love mostly illustrates how much her son's autistic traits annoy her.<br />
<br />
I think Newman has failed her son by writing this book. I think her book will make life harder, not easier, for autistic people including but not limited to both our sons. Because when it comes to the treatment of autistic people, the entire world is essentially bigoted bullies and complicit bystanders. Instead of defending her son, Newman has joined the side of the bullies in declaring, “Well yeah, I love him but I get your point and actually I agree that he’s weird.”<br />
<br />
This deeply messed up attitude needs to be called out. While it’s common if not OK for parents to be ignorant and bigoted when they come from outside a community, once you find out your own kids are part of a margnialized community you are supposed to be like Amy Acker's mom in Marvel’s X-Men-adjacent series Gifted, and get 100% on your kid's side and do whatever is necessary to protect them. (I’m not recommending going on the lam, but allying with and learning from your kids’ community? Yes, that is actually a very good idea.)<br />
<br />
And you certainly don’t join the world's bullies in smacking down all the other autistic people who come to your kid's aid because they are part of his community and get how much being bullied hurts. Instead, you ask your kid's people—who may not be exactly like your kid but surely understand what it is like to be constantly treated like subhumans yet survive—how they did it. You learn from them. Because you and those autistic people? That particular Venn diagram is all your kid has. It should be you, Autistics, and your kid against the fucking world.<br />
<br />
This is why it is so infuriating and hurts so much to have a mainstream author like Newman choose the side of conventional shitty attitudes about autism and autistic people when her kid needs so much more from her. Yes, changing one's deeply ingrained negative assumptions about autism is hard. Yes, it's harder when society reinforces those assumptions. But if you’re the parent of a child from a minority group yet you yourself represent and have direct connections to high-profile media channels, and you not only shirk your power and waste the opportunity to change minds but then <a href="https://twitter.com/epballou/status/936352636089044993?ref_src=twsrc%5Etfw">belittle and dismiss</a> and <a href="https://qz.com/1177548/amazon-amzn-reviews-are-being-restricted-for-its-most-controversial-products/">sabotage</a> your son's autistic community members for having opinions about your harmful book and the people it is hurting, including your own kid? You kind of suck.<br />
<br />
<div dir="ltr" lang="en">
</div>
People need to be aware that, despite Newman's insistence otherwise, autistic people <a href="http://www.thinkingautismguide.com/2018/02/what-neurodiversity-movement-doesand.html">generally don’t think they know autistic kids better than those kids' parents do</a>. But autistic people assuredly do know what it’s like to be an autistic kid in a way non-autistic people never can. They have logical explanations for matters Newman considers autistic mysteries, like why autistic people have <a href="https://ollibean.com/autistic-meltdown-or-temper-tantrum/">meltdowns</a> over things that make no sense to outsiders, and why those meltdowns are not manipulative tantrums. They understand why Routine is Life. They understand that it's fully possible to have phenomenal skills in some areas while also having serious disabilities. They understand why training autistic kids like they're sea lions may result in some compliance and <a href="https://twitter.com/rsocialskills/status/969219409821798401">changed behavior</a>, but it also results in kids being <a href="https://hennykdotcom.files.wordpress.com/2018/02/aia_evidence-of-increased-ptsd-symptoms-in-autistics-exposed-to-applied-behavior-analysis.pdf">traumatized</a> and not trusting their own right to say "no." They understand that when parents like Newman contradict autistic experience on these matters, and in doing so influence other parents to dismiss autistic insights, those parents' collective autistic children will suffer.<br />
<br />
To Siri With Love also lacks informed empathy. If Newman had spent real time researching the history of reproductive rights for people with disabilities, she would have known that her blithely casual “maybe I will sterilize Gus, maybe I won’t” attitude reinforces the <a href="http://www.autistichoya.com/2017/12/boycotttosiri-letter-to-judith-newman.html">life-destroying notion that disabled people shouldn't have agency over their own bodies</a>. Yes, she includes a few obligatory citations in related history. But her tone and sources omit the core histories of Black, disabled, and other marginalized communities, including why is it so inhumane to have had their reproductive rights forcibly stripped away. As <a href="http://www.thinkingautismguide.com/2018/01/autisticwhileblack-to-siri-with-loves.html">Kerima Çevik writes</a>, "Forced sterilization is part of a larger nightmare of systemic abuse of the black body we've survived but can't forget." Self-engaged and shallow approaches like Newman's, in my opinion, contribute to the ongoing atmosphere that allows the reproductive rights of people with disabilities to <a href="https://www.aclu.org/blog/disability-rights/integration-and-autonomy-people-disabilities/washington-state-may-make-it?redirect=blog/disability-rights/integration-and-autonomy-people-disabilities/washington-state-wants-make-it">remain under attack</a>.<br />
<br />
People like Lydia Brown have already criticized <a href="http://www.autistichoya.com/2017/12/boycotttosiri-letter-to-judith-newman.html">how awful it is for Newman to muse about her son’s sex life</a>, and equate it to a Benny Hill film, as though being autistic somehow turns sex farcical and fictional (she also once again disregards her son's privacy and dignity). I can't help but wonder: If she's so concerned about her son's sexuality, why she doesn’t include helpful information about <a href="https://diverse-city.com/online-store-2/dvds/">sex ed for people with developmental disabilities</a>, <a href="https://starinhereye.wordpress.com/2018/01/08/we-need-to-talk-about-these-metoos/">avoiding learned compliance</a>, or the <a href="https://www.npr.org/2018/01/09/572929725/for-some-with-intellectual-disabilities-ending-abuse-starts-with-sex-ed">increased rates of sexual abuse of people with disabilities</a>? Anyone who has ever read The World According to Garp is aware that that sexual abuse of people with disabilities is not limited to women.<br />
<br />
Newman has heard most of these criticism before, and was not pleased by them. And here's my final disappointment: Instead of listening, she went on the attack against her son's autistic brethren and their allies. While of course we all want our friends to circle the wagons for us, there is no excuse for Newman and her defenders <a href="https://internationalbadassactivists.org/2017/12/28/autistics-and-autisticculture-mocked-by-judith-newman-friends-twitter-screens-working-on-transcribing-1-time-boycotttosiri">silencing marginalized disabled people, or making fun of how people who (by definition) have communication disabilities express themselves</a>. I am horrified by her willful abuse of her privilege, just as I was horrified by some autistic people’s calls for Newman to die, or have her kids taken away.<br />
<br />
Siri: Please delete the book "To Siri With Love" from my Kindle app. Thank you.Unknownnoreply@blogger.com3tag:blogger.com,1999:blog-5563550.post-78161640556890221302018-01-25T11:40:00.001-08:002018-01-25T12:05:24.067-08:00Realistic Evaluations of (My) Parental Stress Levels<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: left; margin-right: 1em; text-align: left;"><tbody>
<tr><td style="text-align: center;"><a href="https://3.bp.blogspot.com/-b1IQoCM5tQ4/WmoWpcKS5dI/AAAAAAAAG48/T8DrRaNLAFEO5C9lzeiFEScHBiuqn1jJACLcBGAs/s1600/IMG_6202.jpg" imageanchor="1" style="clear: left; display: inline; margin-bottom: 1em; margin-left: auto; margin-right: auto; text-align: center;"><img border="0" data-original-height="1280" data-original-width="960" height="320" src="https://3.bp.blogspot.com/-b1IQoCM5tQ4/WmoWpcKS5dI/AAAAAAAAG48/T8DrRaNLAFEO5C9lzeiFEScHBiuqn1jJACLcBGAs/s320/IMG_6202.jpg" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><b>Me and Leo goofing off</b><br />
[image: Selfie of me and Leo. He is making<br />
a goofy face; I am not.]</td></tr>
</tbody></table>
That damned flu hit our family last week. It sucked. It took out many nodes in our people network as well.<br />
<br />
We didn't have as awful a time as many, possibly because we'd had our shots, possibly because luck. My mom, who works at a hospital, confirmed that this is not a flu to f**k with (I am paraphrasing), as her facility has already had several deaths. It is not too late to get your flu shot!<br />
<br />
Besides being sick, the flu made me grumpy: Even though I prefer to be home, I resent having to <b>stay</b> home. So as soon as everyone else was well(ish) and back to their regularly scheduled, the-hell-out-of-my-space routines, I resumed my own routine. Which sometimes includes hikes. Which, the first time out, sparked a coughing fit that shut me down and almost sent me back home. Scary, but I was fine.<br />
<br />
After that fit, though, I kept feeling light-headed. Like I couldn't get enough air in my lungs. I decided to sleep on it. I thought I felt better after a full night with my lovely new C-PAP machine stabilizing the air pressure in my head, but by mid-morning I was feeling light-headed and sub-oxygenated again, and finally went in to see a doctor just to be sure I wasn't traipsing around with pneumonia (as has happened before).<br />
<br />
The doctor took all my vitals, even did an EKG (which, gaah, embarrassing; I just wanted my lungs listened to and my oxygen saturation pinged). All my everything was totally fine.<br />
<br />
And then he asked me: How is your stress level? I told him I was fine, we were getting over the flu, I have been on Prozac for more than a year and it is useful ... and then I started laughing like a hyena.<br />
<br />
He asked why, and I said, "Well, this is just my life, and you have to understand that no one is to blame and I'm used to it, but ... well my son hasn't really slept in ten days, though he's doing OK. And his respite workers were sick for all their sessions too. And his poor dad had a super-intense week at work and powered through even though he was sick, which had me worried. So yes, I guess I have been more stressed than usual lately."<br />
<br />
To his credit, the doctor's eyes only widened for a moment before he snapped back into professionalism, and suggested that I focus on full-diaphragm breathing, and also on paying attention to whether or not I was holding my breath (I was), and finally consider exploring other stress reduction techniques. It may be that the wee dose of Prozac I currently take needs adjusting. It may be that it will take a few more days for me to be 100%.<br />
<br />
I think a lot of us parents whose kids need significant support have a hard time talking about our own support needs in a reasonable way. While we do not and cannot blame our kids for matters over which they have no control, it is tricky to talk about why we might need extra space or help without people assuming our kids are the problem, or feeling like we're going for a pity grab. Which, that's all rooted in society's shitty shallow attitudes towards disability, so f**k society for making yet another aspect of living our lives that much more difficult for us.<br />
<br />
Mostly I'm telling you about my inability to recognize my own physical stress symptoms to remind you to take extra good care of, and go easy on, yourself when things are harder than usual. Because while there are bucketloads of research underscoring how acceptance and understanding reduce stress levels in parents of kids with disabilities, a positive or pragmatic "I got it" attitude isn't always going to be enough when the entire family's support needs intensify. If we're going to be the parent our family needs and also make it through these tough times ourselves, we need recognize when it's time to readjust.<br />
<br />
We need to be aware of how being stressed out affects our bodies, how that stress can manifest in weird or seemingly unrelated physical ways, and be mindful of that weirdness not just in ourselves but in other family members, too.<br />
<br />
The factors leading to my not-pneumonia can be considered bad luck only insofar as this country doesn't have a social support network that recognizes and properly provides respite for our families. As I noted to a friend, I have a daydream that Sweden's legendary social fabric provides night time respite workers who hang out with people with disabilities as needed, so that both they and their families get the care they deserve. And if the Swedes have no such program, I don't want to know about that.<br />
<br />
(We're all much better now.)<br />
<br />
(Remember to breathe from your diaphragm.)Unknownnoreply@blogger.com1tag:blogger.com,1999:blog-5563550.post-2242388608883214992018-01-16T20:52:00.000-08:002018-01-16T20:52:57.177-08:00IACC Meeting Tomorrow, January 17The NIH's <a href="https://iacc.hhs.gov/">Interagency Autism Coordinating Committee</a>, or IACC, will be meeting all day tomorrow, Wednesday, January 17th, 9AM to 5 PM East Coast time. What happens at the IACC meetings? From the site:<br />
<blockquote class="tr_bq">
"The purpose of the IACC meeting is to discuss business, agency updates, and issues related to autism spectrum disorder (ASD) research and services activities. The meeting will be open to the public and will be accessible by webcast and conference call."</blockquote>
So, if you can't attend in person, you can watch the <a href="https://videocast.nih.gov/summary.asp?live=26973&bhcp=1">webcast</a>. If don't have all day to watch the webcast, you can <a href="https://iacc.hhs.gov/meetings/iacc-meetings/2018/full-committee-meeting/january17/#agenda">choose sessions from the agenda</a>.<br />
<br />
The IACC also <a href="https://iacc.hhs.gov/meetings/iacc-meetings/2018/full-committee-meeting/january17/#comments">accepts both in-person and written public comments</a>, which need to be submitted seven business days before the meetings. Below is the comment I submitted for this meeting. Once of these days I'll make it in person.<br />
<br />
If you're thinking to yourself, "Oh my comments won't make a difference," then perhaps you should take a look at the wildly varying ... quality of the submitted comments for this session, and also how few they are. Thoughtful, well-reasoned, non-profane, non-pseudoscience, non-self-loathing comments, both public and oral, are in short supply.<br />
<blockquote>
I am the parent of a 17-year-old high-support autistic son, and am writing regarding my concerns about his near-future integrated housing options. Those concerns are twofold: 1) I want my son to be part of his community, and 2) I am worried about ongoing efforts to erode existing civil rights safeguards that protect and guarantee integration for people with disabilities. </blockquote>
<blockquote>
As this committee must be aware of the body of research supporting integrated housing options for people with disabilities, in terms of both improved quality of life and wider community disability acceptance, I will instead emphasize the basic decency factor: My son and his adult soon-to-be peers are part of their local communities, and they deserve whatever supports they need to live the lives they want to live—in those communities. I urge the committee to redouble efforts to make those options more readily available, and to identify attempts at segregated housing, veiled or outright, farm-based or "neo-institutional," as the isolating and dehumanizing options that they are. </blockquote>
<blockquote>
I also urge the committee to exercise vigilance and demonstrate opposition to recent Department of Justice rollbacks on disability protections. We cannot allow civil rights for autistic people, including those integration protections upheld by Olmstead, to be decided by business interests (e.g., the sheltered workshop industry suspected to have lobbied for last month's disappointing DOJ actions). My son's housing options need to be determined by what he needs and deserves, and not by the calculations of a profit-minded entity.</blockquote>
<blockquote>
I would like to thank the Committee members for both their time, and their hard work.</blockquote>
I may not be able to watch much of it as we're all down with the flu. But I'll try. And I hope you will, if you can, too.<br />
<br />Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-5563550.post-85224890889092967762017-12-01T09:58:00.000-08:002017-12-01T10:03:47.470-08:00#BoycottToSiri Needed To Happen Because Ableist Autism Parenting Memoirs Need to Stop HappeningIt's gratifying to see the autistic-led <a href="https://twitter.com/hashtag/BoycottToSiri?src=hash">#BoycottToSiri</a> furor over Judith Newman's dangerously ableist autism parenting memoir To Siri With Love. Yet, despite the current zeitgeist of "you don't get to get away with that shit any more," Newman's treatment of autistic critics so far seems no different than any other called-out perpetrator's denial of both harm and responsibility.<br />
<br />
I'm also frustrated that publishing-enabled bigotry remains the dominant theme of the autism parenting literary realm, with authors like Newman continuing to get <a href="https://twitter.com/HeatherShamsai/status/936039715064680448">kudos for their "honesty</a>." This is doubly angering as a parent who has been pushing for <a href="https://theestablishment.co/how-the-progressive-media-sells-out-autistic-people-f1cc44f7c336">better autism coverage in progressive media outlets</a> and <a href="https://theestablishment.co/how-autism-warrior-parents-harm-autistic-kids-6700b8bf6677">better autism parenting role models</a> for years, and who was, until this point, cautiously optimistic that public tolerance of exploitative autism parenting behavior was on the wane.<br />
<br />
Nope. Publishers still don't seem to grok the problem with parents violating autistic children's privacy for their rubbernecking readers. Fellow autism parent Ron Suskind (who wrote the<a href="https://www.nytimes.com/2017/08/16/books/review/to-siri-with-love-judith-newman-memoir.html"> New York Times book review of To Siri that sparked the outrage</a>) is, like Newman, the kind of dangerous autism double agent we see too much of these days: nimble users of neurodiversity-friendly code words and phrases—Newman makes the case for "autistic" versus "with autism"—who nevertheless undermine their children's rights by endorsing classically indefensible themes like forced sterilization.<br />
<br />
I get that the journey towards best practices is not always the easiest for parents of autistic kids, having myself learned <a href="http://www.thinkingautismguide.com/2017/03/after-autism-diagnosis-13-necessary.html">many hard and heartbreaking lessons</a> about what my son does and does not deserve, since he was first diagnosed 14 years ago. But I also know that, while I would gut a fire-breathing dragon to get my son what he needs, autistic people will always be my son's greatest champions, in terms of fighting for his rights and basic dignity, now and forever. When it comes to autism, I am required to listen to autistic people If I want to do right by my son.<br />
<br />
With autistic primacy in autism topics in mind, here are a few examples of autistic commentary from the #BoycottToSiri Twittersphere that both you, dear Reader, and Newman need to absorb:<br />
<blockquote class="twitter-tweet" data-partner="tweetdeck">
<div dir="ltr" lang="en">
.<a href="https://twitter.com/judithn111?ref_src=twsrc%5Etfw">@judithn111</a>, how can you say you’re “autism-very-friendly” while writing off the possibility that your son is capable of loving romantic relationships?</div>
— Sara Luterman (@slooterman) <a href="https://twitter.com/slooterman/status/936381053945729024?ref_src=twsrc%5Etfw">November 30, 2017</a></blockquote>
<script async="" charset="utf-8" src="https://platform.twitter.com/widgets.js"></script>
<br />
<blockquote class="twitter-tweet" data-lang="en">
<div dir="ltr" lang="en">
[cn: ableism, eugenics, mental-age-ism]<br />
I don't know what's worse.<br />
- mom saying her nearly adult teenager is mentally a child<br />
- mom thinking that no woman will ever love him<br />
- or mom using that to argue eugenics (forced sterilization) on him<br />
<br />
Trashfire she is. :(<a href="https://twitter.com/hashtag/BoycottToSiri?src=hash&ref_src=twsrc%5Etfw">#BoycottToSiri</a> <a href="https://t.co/MvulMYd1qP">https://t.co/MvulMYd1qP</a></div>
— Ariane ⚧ (@nahratzah) <a href="https://twitter.com/nahratzah/status/936281205737185283?ref_src=twsrc%5Etfw">November 30, 2017</a></blockquote>
<script async="" charset="utf-8" src="https://platform.twitter.com/widgets.js"></script>
<br />
<blockquote class="twitter-tweet" data-partner="tweetdeck">
<div dir="ltr" lang="en">
Autistic people were once put in "idiot" asylums for the feebleminded, sterilized on basis of burden and invented danger to society. Judith wonders if her son even thinks. Same justifications used century ago. How was this even published? <a href="https://twitter.com/hashtag/ToSiriWithLove?src=hash&ref_src=twsrc%5Etfw">#ToSiriWithLove</a></div>
— Gregory Love (@grlo1114) <a href="https://twitter.com/grlo1114/status/936340245074841601?ref_src=twsrc%5Etfw">November 30, 2017</a></blockquote>
<script async="" charset="utf-8" src="https://platform.twitter.com/widgets.js"></script>
<br />
<blockquote class="twitter-tweet" data-lang="en">
<div dir="ltr" lang="en">
Here's why <a href="https://twitter.com/hashtag/actuallyautistic?src=hash&ref_src=twsrc%5Etfw">#actuallyautistic</a> folk and our allies should boycott Judith Newman's, To Siri With Love, which is written by an ~autism mommy~ of the highest order and is questionable af. <br />
<br />
A thread, 'cause what the everloving heck.<a href="https://twitter.com/hashtag/autistic?src=hash&ref_src=twsrc%5Etfw">#autistic</a> <a href="https://twitter.com/hashtag/autism?src=hash&ref_src=twsrc%5Etfw">#autism</a> <a href="https://twitter.com/hashtag/ToSiriWithLove?src=hash&ref_src=twsrc%5Etfw">#ToSiriWithLove</a> <a href="https://twitter.com/hashtag/BoycottToSiri?src=hash&ref_src=twsrc%5Etfw">#BoycottToSiri</a> <a href="https://t.co/CTirdF9gaL">pic.twitter.com/CTirdF9gaL</a></div>
— Amythest (@amythestschaber) <a href="https://twitter.com/amythestschaber/status/935631501986639872?ref_src=twsrc%5Etfw">November 28, 2017</a></blockquote>
<script async="" charset="utf-8" src="https://platform.twitter.com/widgets.js"></script>
<br />
<blockquote class="twitter-tweet" data-lang="en">
<div dir="ltr" lang="en">
Mom writes book about Autistic son, says he will be forever a child, and promotes eugenics - USING HER AUTISTIC SON! <a href="https://twitter.com/hashtag/BoycottToSiri?src=hash&ref_src=twsrc%5Etfw">#BoycottToSiri</a> <a href="https://t.co/6aDtkdNwk0">https://t.co/6aDtkdNwk0</a></div>
— Amy Sequenzia (@AmySequenzia) <a href="https://twitter.com/AmySequenzia/status/935920029325021184?ref_src=twsrc%5Etfw">November 29, 2017</a></blockquote>
<script async="" charset="utf-8" src="https://platform.twitter.com/widgets.js"></script>
<br />
<blockquote class="twitter-tweet" data-lang="en">
<div dir="ltr" lang="en">
That's it for chp three...<br />
<br />
This book is WORSE than I expected. Please support autistic authors instead of sending money this writer's way.</div>
— Kaelan Rhy 📝54,315 (@KaelanRhy) <a href="https://twitter.com/KaelanRhy/status/936474721587159040?ref_src=twsrc%5Etfw">December 1, 2017</a></blockquote>
<script async="" charset="utf-8" src="https://platform.twitter.com/widgets.js"></script>
<br />
<blockquote class="twitter-tweet" data-lang="en">
<div dir="ltr" lang="en">
I'm sad because half of my feed is autistic and other neurodivergent writers who can't find agents/publishers for their <a href="https://twitter.com/hashtag/ownvoicers?src=hash&ref_src=twsrc%5Etfw">#ownvoicers</a> books and the other half is quotes from <a href="https://twitter.com/hashtag/ToSiriWithLove?src=hash&ref_src=twsrc%5Etfw">#ToSiriWithLove</a> that dehumanise autistic people. <a href="https://twitter.com/hashtag/BoycottToSiri?src=hash&ref_src=twsrc%5Etfw">#BoycottToSiri</a> and support neurodivergent writers</div>
— Brooke Winters 🇪🇺 (@brookewinters33) <a href="https://twitter.com/brookewinters33/status/936388613738319872?ref_src=twsrc%5Etfw">December 1, 2017</a></blockquote>
<br />
<script async="" charset="utf-8" src="https://platform.twitter.com/widgets.js"></script>
I hope Newman realizes that her son may well read her book as well as the reaction from his own autistic community one day, and that she'll need to have both an explanation and an apology ready when that happens (if he even tells her).<br />
<br />
And if she needs guidance on any of these matters: I'm actually a friendly person who happens to have an active BS-meter. I would be happy to provide advice or conversation.Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-5563550.post-25711296947240412332017-11-28T16:10:00.002-08:002017-11-28T16:18:20.063-08:00A #GivingTuesday Silicon Valley Call Out<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: left; margin-right: 1em; text-align: left;"><tbody>
<tr><td style="text-align: center;"><a href="https://1.bp.blogspot.com/--u1kTAuJPv0/Wh3kdkuP32I/AAAAAAAAG3Q/F_fn2y228FoEfwoDvggvypm845ZsC_yQACLcBGAs/s1600/3814828113_3e2fa16cb0_b.jpg" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" data-original-height="525" data-original-width="782" height="213" src="https://1.bp.blogspot.com/--u1kTAuJPv0/Wh3kdkuP32I/AAAAAAAAG3Q/F_fn2y228FoEfwoDvggvypm845ZsC_yQACLcBGAs/s320/3814828113_3e2fa16cb0_b.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><b>Photo © <a href="https://www.flickr.com/photos/msk13/">Misko</a> | Flickr/<a href="https://creativecommons.org/licenses/by/2.0/">Creative Commons</a></b><br />
[image: The donations receptacle at the British Museum.]</td></tr>
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It's #GivingTuesday everywhere, including right here in Silicon Valley. And while I'm sure the drivers of all those brand-new Teslas, BMWs, and other shiny cars whizzing around my local streets are being extra-philanthropic today in keeping with the Valley's ethos of social service, mindful giving, and finding the <a href="https://www.nytimes.com/2016/11/06/giving/philanthropy-in-silicon-valley-big-bets-on-big-ideas.html?_r=0">Very Best Charity</a> for one's donationeering, there's one area in which I see a big black financial hole coupled with a need for innovation: Championing of struggling autism non-profits, especially local or smaller-scale ones.<br />
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The reasons this gap exists are many, and mostly based in misconceptions and discomfort: Autism is not considered as sexy as other causes, so, being involved with a smaller-scale autism organization is perhaps not so shiny a cap-feather. Also, thanks to decades of pity-engorged campaigns like Jerry's Kids, disability-based charity efforts can be considered maudlin, or <a href="http://www.washingtonpost.com/wp-dyn/content/article/2007/08/31/AR2007083101273.html">dehumanizing</a>—approaches Silicon Valley types shun (rightfully so, in the latter case).<br />
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And then, frankly, there's the fact that just talking about, let alone being involved with, autism and disability makes many people uncomfortable, and the assumption that only family members get involved with autism causes. Even though autistic people found, run, and staff their own orgs. Even though <a href="https://www.ted.com/talks/steve_silberman_the_forgotten_history_of_autism">autistic people are just people, and have always been here</a>. Even though most of us will likely become disabled if we aren't already, and if live long enough. And even though, most significantly, Silicon Valley is an autism epicenter for autistic individuals both diagnosed and un-, who have a tendency to meet and mate and create more autistic individuals with diverse abilities and support needs.<br />
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<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: left; margin-right: 1em; text-align: left;"><tbody>
<tr><td style="text-align: center;"><a href="https://1.bp.blogspot.com/-PcusaPCknMc/Wh3ogpiPiSI/AAAAAAAAG3c/R40MHSmFuy0WRylrwUsw4eZ0QSFN6PIdQCLcBGAs/s1600/neurotribes%2Bguardian%2Bphotoshoot%2Bsteve%2Bleo%2Bfilter.jpg" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto; text-align: center;"><img border="0" data-original-height="1600" data-original-width="1600" height="320" src="https://1.bp.blogspot.com/-PcusaPCknMc/Wh3ogpiPiSI/AAAAAAAAG3c/R40MHSmFuy0WRylrwUsw4eZ0QSFN6PIdQCLcBGAs/s320/neurotribes%2Bguardian%2Bphotoshoot%2Bsteve%2Bleo%2Bfilter.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><b>My son Leo with NeuroTribes author Steve Silberman, </b><br />
<b>whose article The Geek Syndrome discussed autism in SV.</b><br />
[image: White teen boy and white man posing with each<br />
other in Golden Gate Park.]</td></tr>
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So how can Silicon Valley start participating and investing in more autism-oriented philanthropy, and <a href="https://www.theguardian.com/lifeandstyle/2015/aug/29/autism-spectrum-steve-silberman-neurotribes-legacy-autism-people-think-differently">taking care of its autistic own</a>? Because autism philanthropy certainly can be done properly.<br />
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May I suggest that, the next time one of you exuberantly talented Silicon Valley balls-of-energy-and-brainpower decides to make the world a better place, and realizes that working with or donating to an autism org is a good way to do that, you follow this path:<br />
<br />
1) <b>Donate to, or get on or consult for the board of a local autism organization or school</b>. Many (though not all) of these organizations are constantly scrambling for funds, and/or have boards that are underpowered, in terms of connections, energy, and influence. Levering your innovation savvy and connections to strategize new success pathways could Do. So. Much. Good. (As would coaxing other associates of yours to join or consult with those boards, or donate to related causes.)</div>
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<b>2) Back up and do some research</b> into how <a href="https://juststimming.wordpress.com/2014/12/21/dangerous-assumptions/">the autistic community tends to think about itself and its innate diversity</a>, what are <a href="https://spectrumnews.org/opinion/viewpoint/intelligence-scores-not-predict-success-autistic-adults/">the most helpful ways to think about meeting autistic needs</a>, what <a href="http://autchat.com/all-topics/">autistic people themselves actually want from life</a>, where <a href="https://montgomerycal.wordpress.com/2017/08/14/a-knife-wound-to-the-gut-vor-and-people-with-disabilities/">they want (and don't want) to live</a>, what <a href="http://wearelikeyourchild.blogspot.com/">they would have wanted as kids</a>, and what <a href="https://storify.com/shannonrosa/autimfar-chat-at-imfar-2017">they want from autism research</a>. Consider avoiding the <a href="https://theestablishment.co/how-the-progressive-media-sells-out-autistic-people-f1cc44f7c336">mistakes well-meaning and progressive people tend to make</a> when they support autism causes, how the Road to Hell is paved, all that. And please avoid supporting organizations that fundamentally disrespect autistic people (feel free to ask, if you are unsure).<br />
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<b>3) Choose an organization to support</b>, like these fine options (about which I am completely biased; the latter two are local, and all links are to their donation pages):<br />
<ul>
<li><b><a href="https://autisticadvocacy.networkforgood.com/projects/23616-your-gift-will-help-empower-the-autistic-community">The Autistic Self-Advocacy Network</a>:</b> A-List autistic butt-kickers who fight for policy, law, and social change.</li>
<li><b><a href="http://nosmag.org/donate/">NOS Magazine</a>:</b> The only autistic-run media current events and topics magazine; features both snark and hard research enough for skeptics of all stripes.</li>
<li><b><a href="http://www.morgancenter.org/donate/">The Morgan Autism Center</a>:</b> Leo's school, which still needs help to upgrade its new facilities.</li>
<li><b><a href="http://www.viaservices.org/donate">Via West</a>:</b> Leo's camp, which in the wake of the recent regional fires wants to install even more safeguards to protect its campers.</li>
</ul>
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Feel free to list additional worthy orgs in the comments. And please please PLEASE get involved, if you can!</div>
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Unknownnoreply@blogger.com1