11.19.2012

Rock This Way

Leo went off Risperdal last month. We were going to transition him from Risperdal to Seroquel because the Risperdal was affecting his cholesterol levels, but during the meds-free part of his transition he did so well that we just ... kept him off. And are continuing to do so, with his doctor's full support. Most of the details are in the BlogHer column I wrote last week. In general, he's doing well. Some hiccups with having a hard time getting to sleep (Risperdal is soporific stuff) but they're minor and entirely reasonable for anyone who essentially just went off sleeping pills, and his sleep is not otherwise disrupted. Which is healthy for a growing kid.

I'm observing him extra-closely just now because we're a data-focused family. It's important to know how his post-Risperdal behaviors compare to those from past years, especially as the Halloween-birthday-Thanksgiving-Christmas season is challenging for him regardless, what with schedule disruptions, sweets, visitors, travel. If he's having a really hard time -- an uncharacteristically hard time, rather than reacting to seasonal circumstances -- we want to know.

So I'm noticing. I'm noticing remarkable things, like how he uses his iPad to manipulate music. He has always enjoyed using his tablets' icons (so friendly to visual types) to hit favorite beats and moments in music and videos. But if I wasn't noticing, or if like his more sensitive sister I found it difficult to tolerate the ensuing seeming cacophony, I might get irritated. And I might have missed the resulting patterns he's creating -- essentially his own, custom music compositions.

He strings together and then loops the introductions to songs like Everybody Wants to Rule the World and Right As Rain, alternating precisely, stopping before the vocals in each. Because those vocals don't match. But you know what does match? The two songs' propelling beats. They're mirrors, they make a pair. If he knew how to splice them into a mashup, I'm betting he'd do it. I'm guessing he might, eventually.

Until then, keep noticing, everyone.

2 comments:

  1. I am so happy to hear Leo is doing well off the meds. It's amazing how amazing our kids with special needs really are when we take the time to observe them. My 3 with Down syndrome show and do brilliant things when I take the time to notice. I love your blog. Thanks for posting and encouraging us other moms out here in cyberspace.

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  2. Wow, this is great to hear! Charlie does similar mixing and mashing on the iPad -- kinks, world beat lullabies, rem, wiggles, ocean waves. Hope all continues well!

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