|To Siri With Love author Judith Newman and her son Gus|
[image: A white woman with long curly dark hair, snuggling with her teen
son, who has short dark hair, next to an image of the book To Siri With Love.]
Others, including autistic writer Max Sparrow, have written extensively about why To Siri With Love is flawed, and you should read what they have to say. Because I'm not alone in noticing that one of the primary problems with the book is that, when it talks about autism, it recycles outdated and stigmatizing cliches. Despite the two years since the award-winning neurodiversity explainer and history NeuroTribes was published, and despite Newman being a journalist, To Siri features common misconceptions, like insisting all autistic people lack theory of mind (long-established research clarifies that the issue is actually one of “double empathy,” in which negative assumptions from non-autistic people about autistic people are most of the problem).
I am also put off by how little respect Newman's shows for autistic people. She writes passionately about how much a specific autistic adult needs support and understanding and (correctly) how badly society and systems have mistreated him—yet reveals second-hand information about his bowel habit demonstrations of distress. This actual lack of theory of mind is even more confusing given that Newman wrote Siri in part to bring more attention to non-genius autistic kids like her son Gus (who seems like the most awesome young man ever), a group she considers underrepresented. But, as as comedian and filmmaker Hari Kondabolu says in talking about minority representation in general: it can’t just be about the stereotypes; it has to be about recognizing real-life diversity and humanity. Yet Newman does nothing to expand autism understanding, bust negative autism stereotypes, or further her son's humanity; if anything To Siri With Love mostly illustrates how much her son's autistic traits annoy her.
I think Newman has failed her son by writing this book. I think her book will make life harder, not easier, for autistic people including but not limited to both our sons. Because when it comes to the treatment of autistic people, the entire world is essentially bigoted bullies and complicit bystanders. Instead of defending her son, Newman has joined the side of the bullies in declaring, “Well yeah, I love him but I get your point and actually I agree that he’s weird.”
This deeply messed up attitude needs to be called out. While it’s common if not OK for parents to be ignorant and bigoted when they come from outside a community, once you find out your own kids are part of a margnialized community you are supposed to be like Amy Acker's mom in Marvel’s X-Men-adjacent series Gifted, and get 100% on your kid's side and do whatever is necessary to protect them. (I’m not recommending going on the lam, but allying with and learning from your kids’ community? Yes, that is actually a very good idea.)
And you certainly don’t join the world's bullies in smacking down all the other autistic people who come to your kid's aid because they are part of his community and get how much being bullied hurts. Instead, you ask your kid's people—who may not be exactly like your kid but surely understand what it is like to be constantly treated like subhumans yet survive—how they did it. You learn from them. Because you and those autistic people? That particular Venn diagram is all your kid has. It should be you, Autistics, and your kid against the fucking world.
This is why it is so infuriating and hurts so much to have a mainstream author like Newman choose the side of conventional shitty attitudes about autism and autistic people when her kid needs so much more from her. Yes, changing one's deeply ingrained negative assumptions about autism is hard. Yes, it's harder when society reinforces those assumptions. But if you’re the parent of a child from a minority group yet you yourself represent and have direct connections to high-profile media channels, and you not only shirk your power and waste the opportunity to change minds but then belittle and dismiss and sabotage your son's autistic community members for having opinions about your harmful book and the people it is hurting, including your own kid? You kind of suck.
To Siri With Love also lacks informed empathy. If Newman had spent real time researching the history of reproductive rights for people with disabilities, she would have known that her blithely casual “maybe I will sterilize Gus, maybe I won’t” attitude reinforces the life-destroying notion that disabled people shouldn't have agency over their own bodies. Yes, she includes a few obligatory citations in related history. But her tone and sources omit the core histories of Black, disabled, and other marginalized communities, including why is it so inhumane to have had their reproductive rights forcibly stripped away. As Kerima Çevik writes, "Forced sterilization is part of a larger nightmare of systemic abuse of the black body we've survived but can't forget." Self-engaged and shallow approaches like Newman's, in my opinion, contribute to the ongoing atmosphere that allows the reproductive rights of people with disabilities to remain under attack.
People like Lydia Brown have already criticized how awful it is for Newman to muse about her son’s sex life, and equate it to a Benny Hill film, as though being autistic somehow turns sex farcical and fictional (she also once again disregards her son's privacy and dignity). I can't help but wonder: If she's so concerned about her son's sexuality, why she doesn’t include helpful information about sex ed for people with developmental disabilities, avoiding learned compliance, or the increased rates of sexual abuse of people with disabilities? Anyone who has ever read The World According to Garp is aware that that sexual abuse of people with disabilities is not limited to women.
Newman has heard most of these criticism before, and was not pleased by them. And here's my final disappointment: Instead of listening, she went on the attack against her son's autistic brethren and their allies. While of course we all want our friends to circle the wagons for us, there is no excuse for Newman and her defenders silencing marginalized disabled people, or making fun of how people who (by definition) have communication disabilities express themselves. I am horrified by her willful abuse of her privilege, just as I was horrified by some autistic people’s calls for Newman to die, or have her kids taken away.
Siri: Please delete the book "To Siri With Love" from my Kindle app. Thank you.
Isn't it terrible when your parents join your bullies?ReplyDelete
And in Garp, wasn't there a character who had lost their tongue? The Ellen Jamesian Society!
My question would be:ReplyDelete
1) Do you have autistic kids?
2? Why do autistic people aways assume that the parents of autistic kids are not themselves, also, autistic and doing their best for their kids.
As an autistic parent with an autistic child, I get annoyed with the attitude that the autistic parents themselves 'dont have a clue.'
Most of us, in actual fact do. As you are no doubt aware, this is a genetic condition. So the autistic child is almost definitely going to have a parent, if not both, in our case, that is also autistic.
Be aware of telling parents they "dont know what its like to be a autistic child."
I think you will find you are mostly wrong.
Also, if you have children yourself and are expected to bring them up, often with minimal support, you will find you might have a different point of view.
Parents (usually women, and often single parents) have little support in bringing up children with SEN.
No one is perfect. Sometimes you have to share some of the difficult stuff in order for people to understand that people in your situation need more support than is currently being given by this failure of a government and this failure of a society, which gives the healthiest and most privileged the most opportunity to be heard and to vote.
Autistic children need autistic parents who are well and who are supported. Please stop crapping on the people who do the hardest job in the world and start looking into how you can support them better.
I say this because I used to have so much anger toward my mum for all of her many mistakes in bringing me up in a society where there was no such thing as autism.
Now, the parent of a kid just like me, I recognize the stress, anxiety, continuous fighting that parents with kids on the spectrum are expected to go through, all the time being "advised" from the outside by a million many "experts", many of whom have never been in the position of being a parent to that an autistic child and managing the demands that brings without the bacj up or support of decent finances, practical childcare or a school system that supports children like ours, who have different needs.
Be careful how you treat those parents. They are the ones who bring up kids like you, make mistakes, are human, and who would walk over coals for their child.
If you keep bashing these parents, they won't be there for long and children like I was and like this writers child, will end up back in institutions because their parent has (like many of the woman in my past family) quite literally ended up having an emotional breakdown, due to feeling like they are doing their absolute best, but regardless, are always a target for everyone.
Be very careful and ensure you understand things from the other point of view first.
Did you actually even read the review?Delete