“I will only dwell on what my #autistic child *can’t* do, #saidnomother [image: Leo, seen from behind, happily hiking on a verdant oak woodland trail.] |
I haven't had to address the anti-vax Autism Mommy contingent for a long, satisfying while. After the 2015 Disneyland Measles outbreak, the world wised up to the fact that vaccine-preventable diseases were real and deadly, and that vaccines make them go away—and also that established science proves vaccines have nothing to do with autism. Which, no of course I didn't want diseases to resurge, but yes I am glad that I can focus on autism acceptance, education, and rights, instead of spending my time countering willfully, dangerously ignorant people who think having an autistic child like Leo is worse than having a child die from a preventable disease.
But there is still a small, angry, stewing knot of those awful autism-vaccine causation parents lurking on the social media fringes. And their latest effort is the loathsome #SaidNoMother campaign, bewailing all the ways in which the parents "suffer" by having "vaccine injured" kids. The pseudoscience bombs those parents lob about their children are dehumanizing, so dive in at your own risk; these people have no sense of their children as deserving, valuable human beings.
Because Twitter doesn't weight its hashtagged tweets, it may seem like this campaign is huge. But please know that, as an associate tipped me off, it only has one-seventh the impressions of a non-pseudoscience hashtag like #VaccinesWork. So, big hashtag/little pond. And many of those impressions are due to Autistic people and like-minded individuals taking on and infiltrating the hashtag, because even though #SaidNoMother is not trending that much, it's still really f***ing distressing and needs all the countering the Neurodiversity community can muster.
Since Twitter is so ephemeral and scattershot, it's hard to get a sense of how this scenario is playing out unless you experienced it in real time. Or, you know, unless you archive the tweets in a timeline. As I have below. Because so many of the people I countered blocked me, my responses might not make sense—but if they haven't blocked you, you can click through to their linked tweets for context.
If you care about autistic people like Leo and cannot stand to see autistic people used as collateral damage by pseudoscience-embracing martyr parents, please feel free to RT as many of the entries below as your clicker finger can stand. I included a LOT of links debunking just about any nonsense theory or concept they tried to throw at me, plus as many links to helpful resources as I could squeeze in. Because I hope that at least some of these parents, or the people who listen to these parents, will read what was shared, and consider what their children need from them, instead of waging a fruitless war against their own child's neurology.
I want my child to die of preventable disease #saidnomother.— Shannon Rosa (@shannonrosa) March 21, 2018
Vaccines having nothing to do with #autism, says this mother of an #autistic child (and, well, legit science).#vaccineswork
Thanks for the reminder that another anti-vaxxer ploy is to automatically accuse anyone who disagrees with their disinformation of being a pharma $hill.— Shannon Rosa (@shannonrosa) March 22, 2018
“I want you to insult & tell lies about anyone who disagrees with you” #SaidNoMother (Well, no GOOD mother.)#VaccinesWork https://t.co/i3lCIgIIG2
Right? I want a junket. Or at least a coffee mug. https://t.co/cOBWxgHglr— Shannon Rosa (@shannonrosa) March 22, 2018
With the unemployment/under-employment rate of autistic people the way it is? Put up or shut up with these paid "pharma shill" jobs, anti-vaxxers.— Emily Paige Ballou (@epballou) March 22, 2018
Another anti-vaxxer ploy, per #SaidNoMother, is to claim those refuting their disinformation don’t know the “real story.”— Shannon Rosa (@shannonrosa) March 22, 2018
I’ve been reporting on this beat for 10yrs. I have an autistic son. I work with top autism researchers. So yep, #vaccineswork &have nada to do with #autism. https://t.co/NoixiqDA0x
My son is autistic and all my kids are vaccinated—just like the majority of children are.— Shannon Rosa (@shannonrosa) March 22, 2018
This #saidnomother campaign is utter BS, from a tiny but zealous group of vaccine denialists/autism martyr parents who don’t actually care about #autistic kids' (or adults’) well-being. https://t.co/trRkvuoH93
Mine are both vaccinated. I'd make the same decision again - because I believe in science & don't believe that autism is a terrible thing.— Tara Shearer (@NotAratear) March 22, 2018
This #saidnomother campaign is annoying & hardly represents the mothers out there accurately.
Says what mother? This mother.
Autism is not a an injury. #Autism is neurology. If you care about your #autistic children, fight for them: for acceptance, rights, and inclusion. Howling at the internet over the loss of your theoretical non-disabled children—who never existed—is a sad, useless waste of energy. https://t.co/TPpLMXAi1J— Shannon Rosa (@shannonrosa) March 22, 2018
This kind of absurd denialism—of on-the-record facts, and after MMR-autism link fraudster Wakefield lost his license for taking money, abusing children, & falsifying data—is a reminder of how False Prophets turn followers’ fear & ignorance into angry, fervent “beliefs.” https://t.co/8mzCP9h0CA— Shannon Rosa (@shannonrosa) March 22, 2018
The MMR vaccine has never contained thimerosal. Not that you’ve cited a shred of evidence in this thread. https://t.co/1iRNhnOsPZ— Shannon Rosa (@shannonrosa) March 22, 2018
Encephalitis isn't autism. Autism entails distinctive, innate processing differences (yes, sometimes debilitating ones!), not injury or infection. Autism isn't encephalitis and encephalitis isn't autism.— Emily Paige Ballou (@epballou) March 22, 2018
You can suffer a bout of encephalitis and still be autistic. Autism doesn't make us immune from other transmissible illnesses.— Emily Paige Ballou (@epballou) March 22, 2018
I’m sorry that you cannot accept your daughter as natural or us #ActuallyAutistic people as normal. We’re not damaged. We’re simply different. There’s no need for phantoms to explain the misunderstood away. We’ve lived this difference. We’re here to ask of. We can help.— John Marble (@JHMarble) March 22, 2018
Autism is not brain damage. Vaccines have nothing to do with autism. Despite denialists making word salad with sciencey-sounding terms. https://t.co/dOYfZCUmOE— Shannon Rosa (@shannonrosa) March 22, 2018
In which alternate universe? Vaccine safety is one of the most researched topics in contemporary medicine. Surveys of millions of children have determined that there is no link between autism and vaccines. It may not be illegal to lie on Twitter, but it is still unethical. https://t.co/W6H56K0TBo— Shannon Rosa (@shannonrosa) March 22, 2018
Once again, the anti-vaxxer fallback: “I can’t refute your facts, so I’ll play the pathetic autism martyr parent card while accusing you of being paid shills.”— Shannon Rosa (@shannonrosa) March 22, 2018
Your child is not damaged. You are wasting your $/energy and your child’s future by believing the lies of a huckster. https://t.co/udZ77LL1N4
Riiiight. Here is an in-depth explanation of why there’s no “there”— Shannon Rosa (@shannonrosa) March 22, 2018
there in these autism/vaccine/MTFHR claims, and the varieties of ways in which quacks fleece the credulous: https://t.co/46C0G9gbtX https://t.co/eyaddW8Yiv
Why do these people spend so much time trying to find "the cause" as opposed to just helping their kids? I just don't get it.— Tracy (@TAB2034) March 22, 2018
[Note: I deleted my original Tweeted response because it linked to the original photo above, in which the child's face wasn't blurred out.]
There is no shame in needing to use diapers at any age; that’s what disability looks like for some people.— Shannon Rosa (@shannonrosa) March 26, 2018
What *should* happen: “I love to publicly shame my child for being disabled as part of making their disability into a martyrdom pity party all about me, #SaidNoMother."
I would think that being eager for diapers to arrive would be a completely normal opinion for someone who needed them and didn’t have them.— Rabbi Ruti Regan 🏳️🌈♀🇺🇸 (@RutiRegan) March 25, 2018
Every statement below is false.— Shannon Rosa (@shannonrosa) March 23, 2018
Vaccine ingredients are safe & chosen for effectiveness, & occur in lower doses than in most organic produce. The only “known” cause of autism is being born human (sorry, mice). Vaccine injuries are *rare* but real, hence fair NVICP compensations. https://t.co/7t0PqCSFvv
Another anti-vaxxer tell: unexamined privilege. It is contemptible for one who never experienced or witnessed vaccine-preventable death/disease themselves—thanks to vaccines & herd immunity—to sow lies while, globally, so many kids still get sick & die due to limited vax access. https://t.co/Bevl8BdDx9— Shannon Rosa (@shannonrosa) March 23, 2018
Hi. I’m autistic. A funny thing about us is that we get REALLY interested in subjects and obsessively learn about them until we’re experts. Most adult autistics do that with our own autism & conclude from overwhelming evidence that our autism is not vaccine-driven but natural.— John Marble (@JHMarble) March 23, 2018
You can of course believe whatever you wish. But you cannot insist that your beliefs/anecdotes trump a well-established body of evidence regarding vaccine safety. Also Autistic people are more likely to be medically fragile, &thus more reliant on vaccines to protect their health. https://t.co/R4jAlonO73— Shannon Rosa (@shannonrosa) March 23, 2018
Real kids are dying at the hands of their parents and caregivers, as a result of the campaign of dehumanization that anti vaxxers perpetrate against #ActuallyAutistic people. Many that don't die are assaulted and even tortured. THAT is legit. Your actions have consequences.— Marie Porter 🇨🇦 (@OverlordMarie) March 23, 2018
My son is on the autism spectrum so I researched the claimed connection to vaccines. It cannot be said often enough that the original 1998 paper that claimed a connection had to be retracted as it was proven to be fraudulent. #vaccineswork #saidnomotherhttps://t.co/3yx7LW1AVX https://t.co/B65L0177gq— Henning Dekant (@HenningDekant) March 24, 2018
Risk of vaccine adverse reactions is real. Rare, but real.— Emily Paige Ballou (@epballou) March 24, 2018
The risks of vaccines are still hundreds of times lower than the risks of serious complications from measles, mumps, and chickenpox.
That, plus autistic people's lives are equally worth protecting. We're not just the trade-off or the risk people take for healthy, non-autistic kids. We have lives and well-being worth saving.— Emily Paige Ballou (@epballou) March 24, 2018
By focusing your energies on a thoroughly debunked conspiracy theory about vaccine-autism causation, you are stigmatizing #autism & diverting energy for getting #autistic people/families the help and services they deserve. IDK why you’re desperately folding aluminum hats instead. https://t.co/ZK556JwAbO— Shannon Rosa (@shannonrosa) March 24, 2018
Autistics are not "collateral damage." We are every bit as whole as non-autistics. You want to fight for autism justice? Fight for our right to be treated as equals, to be viewed as living lives just as valid as everyone else. Fight against prejudice instead of perpetuating it.— Rachel Snyder (@1RachelSnyder1) March 24, 2018
Funny how anti-vaxxers are willfully ignorant re: their own history. The Vaccine-autism hoax intentionally started by Wakefield set off a panic that led to outsize/damaging ‘00s media coverage. Resulting reduced vax uptake led to disease breakouts—THAT is why you’re ignored now. https://t.co/vZS10jmnHk— Shannon Rosa (@shannonrosa) March 24, 2018
So, those claims are BS. Straightforward enough.— Shannon Rosa (@shannonrosa) March 24, 2018
Note: Ginger is one of the most industrious disinformation-purveyors of the anti-vax movements. Here’s a point-by-point refutation of her bogus “vaccines cause autism” list of studies. #vaccinesworkhttps://t.co/WDFJSZwOeP https://t.co/ImMqqmUtQm
This is an older example of the classic coincidence anti-vaxxers love to flog & hype: Parents notice autism traits around the same time vaccines are given. Contemporary regression studies show autistic traits were there all along. So vaccines still have nothing to do with autism. https://t.co/c6ov4uRi9A— Shannon Rosa (@shannonrosa) March 24, 2018
Because Twitter is a deceptively level playing field, let me make Ginger’s role very clear: yes, she believes what she spouts. But *what* she spouts is the debunked autism-vaccine equivalent of Flat Eartherism or moon landing denialists, and is simply untrue. https://t.co/HofHf3vTOZ— Shannon Rosa (@shannonrosa) March 24, 2018
"I want all my child’s organs to shut down after a pertussis infection," #saidnomother— Shannon Rosa (@shannonrosa) March 24, 2018
"I want my baby too young for a whooping cough vaccine to die because people around her didn’t get vaccinated," #saidnomother
(Unfortunately from a true story):
https://t.co/lclF722Zgq
Look. As autistic people we’re here to help, along with the consensus of the entire scientific community. However, your views are incorrect and those who hold them have fucked-up an entire generation of autistic people by diverting funding and attention from the services we need.— John Marble (@JHMarble) March 25, 2018
If you understood autism as we autistic people do, if you had the knowledge to communicate as your daughter does, if she had the accommodations and you the support you need, your view would change. Society has failed you. It has failed us.— John Marble (@JHMarble) March 25, 2018
If you understood autism as we autistic people do, if you had the knowledge to communicate as your daughter does, if she had the accommodations and you the support you need, your view would change. Society has failed you. It has failed us.— John Marble (@JHMarble) March 25, 2018
That is why autistic people en masse speak out against incorrect vaccine views. We’ve seen how it diverts attention and funding from the accommodations and support we desperately need. Your views may be well-intended but they hurt us. They rob us. They hurt you.— John Marble (@JHMarble) March 25, 2018
It can be hard to break from a view when it grows to be part of your identity. I empathize. However, we are autistic. We have stated how your views make us suffer & hold us back. We are begging you to hear us. Our lives are at stake. Please reach out to us to understand us more.— John Marble (@JHMarble) March 25, 2018
“I’m going to spend all my energy bewailing my high-support #autistic son’s neurology & blaming vaccines even though that’s a conspiracy theory, instead of using my time to learn how he can live the best life possible, both now & after I’m gone.” #SaidNoMother (No good mother.)— Shannon Rosa (@shannonrosa) March 25, 2018
“I’m going to yell at #autistic people who want to help me understand my autistic child better, because I would rather focus on claiming my child is “damaged” than learn how I can improve my child’s life, as well as my own.” #SaidNoMother (no GOOD mother.) https://t.co/Zp1MbrIx9T— Shannon Rosa (@shannonrosa) March 25, 2018
See, I would actually love to spend a week at Tanner’s house, to convey to Tanner how awesome he is just as he is, despite his dad telling the world for 10+ yrs that his own son is irreparably damaged goods.— Shannon Rosa (@shannonrosa) March 25, 2018
“I love to publicly disparage my child” #SaidNoMother (no GOOD mother) https://t.co/RE7jVXPU3X
If you’re calling autistic people idiots, I fear you might not understand how that term has historically been used as a slur to ridicule and oppress us. That makes it hard for us to hear your arguments.— John Marble (@JHMarble) March 25, 2018
“Don’t judge people who spread dangerous misinformation. But you really should have an open mind and agree with me.”— Shannon Rosa (@shannonrosa) March 25, 2018
Yes, the vaccines given to kids today are very different—because they are safer and better tested and more comprehensive. They also have nothing to do w/autism. https://t.co/uEaMI5yMsL
Researchers spent years investigating thousands of parent anecdotes like this. They were never able to validate a *single* parent account of "vaccine-induced" autistic regression. They DID find that parent memory is unreliable, & the kids' #autistic traits were there all along. https://t.co/MFh3IQMmDx— Shannon Rosa (@shannonrosa) March 25, 2018
Be reassured: Now the autism-vax hoax is recognized as the life-endangering BS that it is, not like the '00s when quackery-shiller Jenny McCarthy ran amok. Hashtags/social media presences are deceptive.— Shannon Rosa (@shannonrosa) March 25, 2018
Still, I’d really like to see more people working towards autism acceptance. https://t.co/wnohabLQjn
Here’s the thing. Autistic people know the #autistic experience better than non-autistic parents ever could, while parents know their kids as individuals. I don’t understand why parents reject autistic insights that could empower their kids' & families’ lives—except as denialism. https://t.co/Gzt0Cq8wbC— Shannon Rosa (@shannonrosa) March 25, 2018
You’ll go to your grave fighting the wrong fight, & your daughter will suffer.— Shannon Rosa (@shannonrosa) March 25, 2018
Research is clear: Many now-adult autistics, regardless of intellectual disability, have PTSD &/or end up in depression/suicide as a result of parents treating them as “broken” their entire lives. https://t.co/CAUcVGVcvh
“I want my #autistic child to grow up thinking of themselves as broken, & be at risk for suicide because I always told everyone they were vaccine-damaged—instead of giving them unconditional love, self-advocacy skills, & acceptance, #saidnomother.— Shannon Rosa (@shannonrosa) March 25, 2018
Link: https://t.co/0o5kWKXOoU
Example of how conspiracy theories see conspiracies everywhere.— Shannon Rosa (@shannonrosa) March 25, 2018
What is actually happening: #autistic people, family members, and allies are genuinely outraged by the #SaidNoMother autism/vaccines disinformation campaign, & are speaking out & pushing back. https://t.co/15UYsdceCf
If I found out my mum would rather I, and others, died from entirely preventable diseases than have me as I am... yeah, I'd be devastated. #SaidNoMother? That's exactly what you're saying.— StaceyLikesBooks (@ReadingAutistic) March 25, 2018
Because autism isn’t illness or vaccine injury.— Shannon Rosa (@shannonrosa) March 25, 2018
Because Autistic people like my son/friends shouldn’t be fodder for stigmatizing conspiracy theories about causation when legit science shows autism is inborn.
Because parents becoming aware of Autistic traits is not “regression.” https://t.co/F7f1BdZviR
My son is a 1:1 support Autistic dude. I love him for who he is, do my best to understand what he needs from me, and fight for the rest of society to see & value him as well—now, & after I die.— Shannon Rosa (@shannonrosa) March 25, 2018
Your attitude is horrifying. #Autism is not a demon possessing your child. For shame. https://t.co/HplEVXwKh2
I am sorry you’ve fallen in with people who encourage you to say such awful things about your son. He is a person. And he is not a toddler. He is an adult with intellectual disability.— Shannon Rosa (@shannonrosa) March 25, 2018
Yes, #autistic people & families need/deserve more supports. But that’s not your son’s fault. https://t.co/nhwPSfzlEE
“I want my #autistic child to spend their entire childhood ENTIRELY WITHOUT SAFE PEOPLE OR SPACES because they are injured/broken, and that means they don’t deserve for anyone to have their back, including me.” #SaidNoMotherhttps://t.co/mirpN8xHi9— Shannon Rosa (@shannonrosa) March 25, 2018
It’s more important for me to be seen as a “Warrior Mom” who fights ‘autism’ than it is to pay attention to & fight for the needs of my incredibly vulnerable child, who is already at a disadvantage from society’s bias against the disabled" #SaidNoMother: https://t.co/mSVJLBIgY3— Shannon Rosa (@shannonrosa) March 25, 2018
"Regression” is part of varied autistic development, not due to “injury.” Researcher “think classifying [autistic kids] as regressive or non-regressive is a waste of time and a misnomer.”— Shannon Rosa (@shannonrosa) March 25, 2018
Also autistic adults report “regression” throughout their lives.https://t.co/i0P0j2Z4Xj https://t.co/2aVYQWsWKe
I think I am the parent of a high-support autistic teen. I think I spend my time compiling best practices resources for parents, families, & autistic people about quality of life & services, including planning after parents die:https://t.co/2S0xL7alY9https://t.co/3REBaXmQUt https://t.co/buon6OZ5N0— Shannon Rosa (@shannonrosa) March 25, 2018
Being disabled is not grotesque. Having these thoughts about your own child IS grotesque.— Shannon Rosa (@shannonrosa) March 25, 2018
Some people need toilet assistance. That is life.
Some people don’t have verbal speech. But everyone communicates, though not enough get appropriate support.
Autistic socializing varies. https://t.co/UNp1GI1NUm
You realize you could become disabled at any time, and have any of the traits you so heartlessly describe as “grotesque” at any time? How would you want to be treated? With fear & loathing? Or with respect & appropriate care? https://t.co/UNp1GI1NUm— Shannon Rosa (@shannonrosa) March 25, 2018
"it"— PatriciaPersists🐭🌻🍵 (@pgzwicker) March 25, 2018
And that's the crux of things.
You see Autism as something outside of the person. So that allows you to say such dehumanizing things about YOUR son. But it's not, autism is #actuallyautistic people.
Your language about your son is truly grotesque.
"Im so glad my mother hates living with me because im autistic" - #saidnoautistic ever.— Tania Grey (@maxriderflies) March 26, 2018
In replying to your other tweet, I linked to resources for ensuring people with high support disability needs get the care they deserve, whether their family can participate or not. It is a model from *this* world.— Shannon Rosa (@shannonrosa) March 26, 2018
Please let me know what other resources you are looking for. https://t.co/v5uSMgOogs
Because these myths about autism as vaccine injury or illness have historically led to a lot of horrific mistreatment of autistic people, rather than to understanding of autism as a complex neurodevelopmental condition.— Emily Paige Ballou (@epballou) March 26, 2018
That's what it has to do with us.
As if April wasn't exhausting and dehumanizing enough for #ActuallyAutistic people, there's a new "#SaidNoMother" campaign to REALLY drive home how much they hate us.— Marie Porter 🇨🇦 (@OverlordMarie) March 22, 2018
... Don't click through that hashtag unless you really want to lose any remaining faith in humanity.
Listening to actually autistic people rather than #saidnomother fear-mongering and ableist fuckery for the win.— Ren Martinez (@RenTheMusical) March 26, 2018
Also, vaccinate your goddamn kids. https://t.co/HVKAkrJJZ7
“I will go bankrupt paying for bogus detoxifying treatments that are unhealthy for my child before I accept he or she for who they are. Treating my child like a cancer that needs cured gets me the attention I want.” #SaidNoMother #SaidEveryAntiVaxMother #vaccineswork— Brandi Dalhover (@SpectrumomYeah) March 26, 2018
"My autistic child is in so much distress that he is behaving aggressively. I’m going to post a photo of my black eye on Social Media instead of helping him” #SaidNoMother— Shannon Rosa (@shannonrosa) March 26, 2018
Info on understanding/supporting autistic ppl who are aggressive/self-injurious:https://t.co/mr53TbHZDf https://t.co/XdKrST79Hx
I'm sorry you had to deal with what must read like an attack on your son and children like him, but am grateful to you for speaking up to call it out.
ReplyDeleteThanks Dorit! I really appreciate the work you do too, and I know you get so much grief for than I ever have.
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