Showing posts with label Voices for Vaccines. Show all posts
Showing posts with label Voices for Vaccines. Show all posts

7.10.2014

Join Me in Busting Vaccine-Autism Myths

Update 7/12: Here is the full transcript of my talk, with links to the Storify Twitter Chat and an audio recording of the entire event.

In less than 24 hours, I'll be the primary discussant in a Voices for Vaccines Conference Call and Twitter Chat about vaccines and autism. We'll be busting those vaccine-autism myths of course, but will also discuss how to be a vaccine advocate without inadvertently steamrolling autistic people like my son.

Parents should be afraid of deadly diseases, not autism. Autistic people have always been here (and they deserve to be vaccinated, too). But because of media-generated misinformation and outright hoaxes, some people still believe, wrongly, that autism is a vaccine injury -- despite landslides of evidence to the contrary. We need to fine-tune our advocacy efforts to reach such folks using facts, understanding, and compassion. I know those efforts can work, because they worked with me.

The conference call is at 9 AM Pacific/noon Eastern tomorrow, July 11th. It's free, but you do have to register. I'll be talking for about 25 minutes, then we'll do a Q&A. You can also join the conversation on Twitter at #VFVcall. Here's the event info:
To register for this conference call, you must email info@voicesforvaccines.org.

Like many people, you may not know much about autism, and may not know what to say to someone who wants to talk about autism in a conversation about immunization. You might worry that you will say something to offend or hurt autistic people and their families -- but you don't have to feel that way.

Please join us on Friday, July 11 at noon EDT (9 am Pacific) for a very important discussion with Shannon Des Roches Rosa. She will share what she has learned from autistic people and their families, including what they have taught her about neurodiversity and what they want you to know about autism.

Shannon Des Roches Rosa is an author and an outspoken advocate for neurodiversity who writes at her Squidalicious blog, is a contributing editor at BlogHer, and is a co-founder and senior editor of The Thinking Person's Guide to Autism. She has been published widely online and in print.
If you can't make the call, you can still educate yourself about autism and vaccines, with the articles on my Vaccines and Autism Pinterest page (and that should tell you how invested I am -- I made a damn Pinterest page).

Hope to hear from/chat with you tomorrow!

One healthy, fully vaccinated autistic dude.
[Image description: young man with beige skin and short curly brown hair,
wearing a turquoise tee and red shorts*, standing in front of
a low light gray cinder block wall upon which "life is good" is graffitied.]

3.21.2013

Voices for Vaccines: A Welcome Reality Check & Resource

Photo credit: CDC
Are you part of the pro-vaccine mega majority? Do you wonder why mini-minority groups who distrust vaccines get such outsized representation in the media and, occasionally, policy? Wondering what to do about it? The new org Voices for Vaccines (www.voicesforvaccines.org) is the place for you. The below is from their recent launch and conference call.

Who is Voices for Vaccines?

When stories are told about vaccines in the media, among decision makers, and between parents, the parent voice that often gets the most attention is the antivaccine voices. The antivaccine movement has been excellent at shaping their story and getting attention as a legitimate, equal “other side” opposed to public health officials and scientists.

However, the vast majority of parents, well over 90% of parents, happily vaccinate their children. If the vaccine story were told with actual equity, only 5% of the story would cover the movement against vaccines, and it would be shaped as a denialism of the science supporting vaccines.

Voices for Vaccines seeks to reclaim that appropriate balance and to help parents, providers, and community members speak up on behalf of vaccination. These provaccine voices are needed in places like Vermont, where a well-organized antivaccine movement defeated a bill last year to tighten the personal belief exemption that allows parents to opt out of vaccinating their children. We also need these voices in Oregon where legislators are trying to provide real, truthful information about vaccines to those parents seeking to opt out.

To help people advocate for immunization, Voices for Vaccines gets the tools needed into the hands of those everyday people who need them. Our website hosts our toolkits, which so far include “How to Write an OpEd for Publication.” We are also working on a toolkit that addresses vaccine hesitancy and a toolkit that childbirth educators, doulas, midwives, OBs, and the like could give to new parents to help prepare them for vaccinating their children. To support our efforts, we send out a monthly newsletter that directs people to action and gives them up-to-date information about vaccine advocacy. Lastly, our blog provides a place for everyday people to tell their stories. Our members blog about why they vaccinate, how they became provax, and how vaccine-preventable diseases have changed their lives.

How we came to Voices for Vaccines.

The act of writing brought Ashley Shelby and Karen Ernst into this world of vaccine advocacy. Minnesota’s personal belief exemption is one of the least restrictive in the country. A parent need only get a notarized form saying that they do not want to vaccinate, and they are exempted from vaccinating their children. Karen was trying to figure out a way to have this law changed when she found Ashley’s OpEd in the Minneapolis StarTribune about making it more difficult for parents to opt out of immunizations. After reading this article, Karen tracked down Ashley’s email address and convinced Ashley to meet her.

From there, Karen and Ashley went to serve on various Minnesota Department of Health committees and also founded the Moms Who Vax blog. Moms Who Vax was a success. Ashley wrote much about political and news events surrounding vaccines, while Karen tended to debunking things antivax celebrities said. And then other mothers began to join in. Chrissy wrote about her conversation from antivax to provax after realizing that vaccines had not caused her son’s autism. Tristen wrote about how her pediatrician was able to convince her to vaccinate her child against chicken pox. And Katie wrote about her surprise that the antivaccine movement even existed.

At that time, the Minnesota Department of Health sent us to the National Immunization Coalition Conference where we met Dr. Deborah Wexler of the Immunization Action Coalition. Dr. Wexler asked Ashley and Karen to head up Voices for Vaccines and create in it a parent-driven organization whose purpose was to allow everyone to advocate for vaccines.

Connecting bloggers and their audiences to Voices for Vaccines

Because of our experience with Moms Who Vax and our vision for Voices for Vaccines, we are hoping that bloggers can connect their readers to the world of advocating for vaccines and that Voices for Vaccines can be one of those tools. We notice a bump in our membership each time we are mentioned in a blog, and as our membership grows, so does our ability to organize the pro-vaccine
community and make sure the conversation and the laws about vaccines are accurate and smart.

If you do decide to write about us in your blog, please let us know at info@voicesforvaccines.org. We will help promote your blog. We can also send our members to your blog if the comment section of any vaccine-related post needs intelligent responses.

Issues and triumphs when blogging about vaccines

The final portion of the conference call was a discussion about various issues surrounding blogging about vaccines. The discussion touched on comment sections, tactics of the antivaccine
movement, and appropriate imagery. The following links were discussed:

http://www.motherjones.com/environment/2013/01/you-idiot-course-trolls-comments-make-you-believe-science-less
http://blog.drwile.com/?p=3591
http://www.wired.com/geekmom/2012/05/mayim-bialik-disappoints/
http://lizditz.typepad.com/i_speak_of_dreams/2012/03/californias-ab-2109-strengthening-school-entry-vaccination-requirements-a-mild-change.html