In their tales of the horror and harshness of polar living, they did not allow that the north pole's magnetism is as mutable as it is strong, and that for families like ours polar living is simply - reality. We can adjust to it, we can learn how to work with it, or we can fight it. Our choice. But no matter how we go about it, we're working hard, and both we and our children deserve respect.
Click on over to BlogHer for my Autism Awareness Day post. It's a similar-themed though more expansive perspective on why we need a new geographic analogy for autism -- forget Welcome to Holland, that was written for parents of kids with Down syndome -- Welcome to Yellowknife instead! It also ends with some suggestions for going beyond Autism Awareness into Autism Action. Please do forward it to anyone who needs to read it. Here's a teaser:
...once you've settled in, you start to realize how cool Yellowknife can be. You start to see that Yellowknife is a crucible for the intrepid and the fearless, for people like the Ice Road Truckers who brave long and grueling journeys to provide subarctic children with the supplies and services they need. You find that, as in San Francisco, people come to Yellowknife from all over the world.How are you bringing attention to Autism Awareness day? I'm taking a numerical approach:
- 4 = hours of sleep
- 3 = number of deadlines to hit by 2 pm
- 2 = number of children home on spring break
- 1 = number of those children who have autism
Hi! I just read your essay on BlogHer and think it is just wonderful! You are so right- having a child with autism isn't a simple process of getting acclimated to a new culture (like the lovely Holland essay) or learning a new language. Having a child with autism is a bitter/beautiful battle, each and every day. Seeing the beautiful Northern Lights doesn't change the fact it is negative 50 degrees. But we don't pretend it isn't cold, do we? We add another layer, keep fighting the cold, and fiercely look for ways to make our babies warmer.
ReplyDeleteThank you so much for this essay :)
Sincerely,
Kristen
mother to twins with autism
Kristen, thank you for this lovely comment! I am going to repost it to the original BlogHer essay comments, hope that's okay.
ReplyDeleteThank you so much for reading, for getting it, and for being a willing participant in this bitter/beautiful battle.