10.10.2006

Newly Indoctrinated Autism Parents: Cut Yourselves a Break

Newly Indoctrinated Autism Parents: Cut Yourselves a Break

I recently met a mother whose child had been diagnosed with autism only weeks before. I recognized in her many of the feelings of shock, denial, and grief that Seymour and I also experienced when Leelo was first given his label.

But then she started talking about how she blamed herself, and wondering what it was that she had done, or how she had failed as a mother, and in so doing had caused her son's condition. Her attitude was surprising but far from uncommon, so I sent her the following email:
I was just re-reading Overcoming Autism (a great book, probably the best parent guide on the subject IMHO) and came across a passage that made me think of you, as when I met you it sounded as though you were struggling with your feelings about the possible roots of your child's autism:

"It's natural to wonder if you could have prevented your child's autism, but you need to remeber that guilt doesn't help your child. There is no evidence pointing to a parental cause, and while there may be some type of environmental factor to blame, that's not known yet. Don't waste your time torturing yourself with vague fears when you could be swinging into action."

I hope you are able to cut yourself a break. Your life is complicated enough without beating yourself up on top of everything else.

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True Love, SciFi Fan Style

True Love, SciFi Fan Style

I can tell that Seymour and I are meant for each other because neither of us has yet tried to kill the other while he's been at home this past month. (The trick: We sat down and carefully worked out equal shares of child-herding and free time, and then put it on our shared Google calendar.)

An even purer expression of our devotion came last night when we watched the Battlestar Galactica season premiere. We had TiVo'd it on 10/6, but Seymour had left that morning on a three-day mountain biking trip and I couldn't fathom watching it without him. Then I was out until late last night feting birthday girl Ep while Seymour sat on the kids. Did Seymour watch BSG without me? No, he did not. He waited until I got home, because he loves me. And the premiere fucking rocked, just like my partner.

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Have You Been Outed?

Have You Been Outed?

Do you think that people you know may be reading your blog without telling you? I didn't used to, but now I wonder.

Three times now I have found out that someone I know has been reading this site without commenting the very minute they hit my URL. It weirds me out, a little. Not because there is anything wrong with anyone--except my parents, in-laws, or brothers--reading this publicly available website, but because I am embarrassed to think that people I know and respect would voluntarily expose themselves to the never-ending doldrums of my version of life at Casa Rosenberg. Especially since I am about three years past the initial blog rush of confessional posts or incendiary complaints--there is nothing here that would ever offend anyone, these days--so why bother? If you know me, then you also already know that my life is busy to the point of tedium.

The first raised eyebrow was cocked at Supervisor M, but her occasional visits are not so surprising as I once used a page from my site to illustrate a point during a team meeting. Then a couple of Sage's friends told me--over dinner, and simultaneously--that they too had stopped by. But JP, now, that was a big shock as she never mentioned reading my (and indeed all the Bad Moms') sites until a couple of days ago.

In each instance I was mildly and only momentarily perplexed rather than perturbed. But I have to admit that I would be ever so grateful if any lurking friends or acquaintances would out themselves. Thanks.

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10.09.2006

Ways to Be Wistful

Ways to Be Wistful

Latter episodes of slight sadness:

Iz was not elected third grade representative--she came third, out of four candidates. She is able to discuss the loss very straightforwardly, and while she is obviously disappointed, seems overall comfortable with not winning. A good, though difficult, lesson to learn. I am sad for her but proud of how graciously she is handling defeat.

This weekend Mali and I went to Fucking Phoenix for my brother's surprise 41st birthday party. We didn't all go because at the time that I bought the ticket, we had no income and tickets for all of us would have been $1200. Mali got to go because she flew for free-probably for the last time. Anyhow, Leelo was in the car when we got dropped off at the airport. When I hugged him goodbye, he looked me straight in the eye and said, "I want to go on the airplane, Mommy!" This was delightful because it again demonstrated that he is in fact quite aware of his environment even if he doesn't always express it, but also heartbreaking because he was making a very big effort to tell me what he wanted--to go on the trip with us--and I couldn't take him.

I can't really call Mali a baby anymore. She's still my baby, but she's not a baby. Babies don't say things like, "The eggs is cooking!" upon observing a boiling pot of huevos. (Sure she knows eggs, but how does she know "cooking"? I don't remember the last time I boiled eggs, so how does she?)

Babies don't ride around on hobby horses, and demand that their parents saddle up and participate. The fact that Mali has all sorts of self-generated imaginative play is itself surprising and a big contrast from both of her doers-rather-than-players siblings.

Babies don't smell purloined chocolate on their Daddy's breath and then ask for some, too.

Babies don't see Superman Logo and declare, "Is Superman! Is red!" (Again, how the hell does she even know who Superman is, let alone what his logo is?)

Our last baby is slipping away, and getting replaced by a little girl. I am so grateful for every minute with her, but wish there was some Pensieve-like way to preserve her babyhood so we wouldn't have to leave it behind entirely.

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10.06.2006

Would You Like Some Music, Little Girl?

Would You Like Some Music, Little Girl?

Iz spent this past weekend at a Daddy-daughter campout with her friends Fifi and Violet. The campers played music, got absolutely filthy with trail dust and creek mud, and celebrated Fifi's birthday. The week before, her mother had written me saying that Fifi would really like more music from us. So, because I'm pretty sure Armada and her partner Craig will approve, I sent the birthday girl a selection of songs that I would let my kids listen to (below). You might notice that I've not collected much new music in the past 15 years or so. If your kids want copies (two CD's), let me know.

Brrrlak!- Zap Mama
Poisoning Pigeons In The Park (Orchestrated Version) - Tom Lehrer
Istanbul (Not Constantinople) - They Might Be Giants
Raukawa (Maori, NZ 1930) - The Tahiwis, accom. by The Rhythmic Three
Bottle Cap - The Squids
Ghost Town - Specials
Free Nelson Mandela - Special AKA
Pass The Hatchet - Roger & The Gypsies
Sheena Is a Punk Rocker - The Ramones
Apple Picker's Reel - Priscilla Herdman
My Baby Portable Player Sound - Pizzicato Five
Lumberjack Song - Monty Python
Don't Stop 'Til You Get Enough - Michael Jackson
Hualalai - Makaha Sons Of Ni'ihau
Wings of a Dove (A Celebratory Song) - Madness
The Preamble (Schoolhouse Rock) - Lynn Ahrens
Kiko And The Lavender Moon - Los Lobos
White Coral Bells, Fruit Salad Salsa - Laurie Berkner
The Lonely Goatherd - Julie Andrews And Children
Teddy Bears' Picnic, Arkansas Traveler - Jerry Garcia and David Grisman
Mercedes Benz - Janice Joplin
Supercalifragilisticexpialidocious , Harry Connick, Jr.
Zombie Jamboree , Harry Belafonte
Pro Nene Nanar , Geraldo Leite
Moses (Singin' In the Rain) - Gene Kelly & Donald O'Connor
Anything You Can Do - Ethel Merman
(I Can't Get No) Satisfaction - Devo
Should I Stay Or Should I Go? - The Clash
Hum - Chris Molla
Oh My Love - Chopper
South American Way - Carmen Miranda
Medley: Nega Maluca / Billie Jean / Eleanor Rigby - Caetano Veloso
Baby It's Cold Outside (With Bob Dorough) -Blossom Dearie
I Found A Million Dollar Baby - Bing Crosby
Hamady Boiro - Baaba Maal
Wouldn't It Be Loverly (My Fair Lady) - Audrey Hepburn
My Skateboard, Cat With 2 Heads, Magic Chicken - Aquabats
Surrey with the Fringe on Top - Alfred Drake

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Different Drugs, Please

Different Drugs, Please

Hello Dr. Cheyenne,

I hope you are doing well. Leelo is six weeks into school and his schedule seems to be settling out, so we are willing to consider adjusting his medication if you think it is warranted.

Leelo is still on Adderupp, 5mg extended release; in general, we feel that Adderupp does decrease distractibility and does make it easier for Leelo to be in a classroom (in fact I went to lunch with him last week and a stranger complimented him for being so well-behaved in a restaurant), but overall it dampens language, increases whispering, makes Leelo spacey, and increases his social remoteness. He is also increasingly dependent upon "stim" or "fidget" objects. We have noticed less spontaneous language; at home and during therapy--there are occasional spontaneous, novel, wonderful phrases, but these are generally not repeated.

We have discussed the tradeoffs before and I'm not sure that the social and language minuses are entirely worth the plusses for good behavior. His program supervisor wanted us to ask what you thought about taking Adderuppl holidays on weekends. At any rate we would be interested in your thoughts on next, new steps.


Thanks, and best wishes for a lovely weekend,

Squid Rosenberg

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One Thing Each Kid Did Yesterday

One Thing Each Kid Did Yesterday

Mali finally enunciates all the syllables in her name correctly. She is all about the labeling: I am Mali! That is Daddy! She is Violet!

Leelo, after much much much coaching from Therapist L and Supervisor M and Babysitter A and me, is starting to call for me by yelling, "Mommy!" This is a big deal, and the concept seems to have clicked because in order to encourage him I respond quickly and with gusto. "Mommy!" *poof* Mommy appears, even if she was in the middle of hand-washing all those really cute hippie baby clothes that looked so cute at the second hand store but now need to be laundered painstakingly and individually (Note to all new parents: "Hand Wash Only" is one of Hell's own clothing labels. Don't let Satan suck you in, no matter how cute the clothes are, and even if it's only to one of his minor circles).

But, anyhow, Yay Leelo! And he went poop in the potty twice, for Babysitter A. Woo. And then he soaked his carseat on the way home from school, which he has never done. Such an unpredictable boy; just when we think he's totally on top of something, he'll have an accident. Then again, many five year olds still have occasional wet underwear.

Iz corrected me, yet again. This must be what it is like for my mom: The *Duh*, Mommy! Show. Here is the exchange, which started as a discussion about Jo's mom, the impracticality of cemeteries (they could be parks, or schools, or housing), Parsi traditions, Unitarian traditions (most people probably get cremated, but of course the individual gets to choose), pauper graves, the Black Plague, and burial practices in islands like Bermuda where land is scarce so people get buried six deep...

Me: "Well, Zombie Jamboree [we were listening to Harry Belafonte] describes zombies going "back to back and belly to belly" because the bodies were buried on top of each other..."

Iz: "You mean their coffins were lowered into the grave. Or their caskets. They don't just stick the bodies in the ground."

Me: Surreptitious eye roll. "Yes, that is more accurate."

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Izzy Hellbeast

Izzy Hellbeast


Originally uploaded by Squid Rosenberg.

Hell's Own Cocker Spaniel will haunt your dreams and eat your young!



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10.04.2006

Ho Ho Ho

Ho Ho Ho

Yeah, baby, it's true. I've joined the BlogHer Ad network. Mostly because I am a lemming at heart--all my friends are doing it, and I trust them. And even though I no longer have the tiny violin of my husband's unemployment with which to solicit your clickety-clicks, my self-esteem would be ever so grateful for your support. It would be nice to include even $10 rather than the past four years' $0 to our joint income tax statement come April.

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Vote Iz 2006!

Vote Iz 2006!

Iz is reading the speech below today, as part of her campaign to become 3rd grade representative. Apparently her opposition got so nervous about reading their speeches in front of the entire school that the staff decided to limit the third grade speeches to their classrooms.

It has been a rocky road, this campaign. Iz kept blowing deadlines and pulling things off at the last minute, which to me means that perhaps she is not the best candidate for political office. She forgot all about writing her speech until the morning it was due--at which point due to carpooling schedules she did not have enough time to write it at home. Seymour and I told her that we were sorry that she was so sad, but that we couldn't help her, and privately thought that this was a good natural consequences learning opportunity. However our neighbor Alys, Marys's kind-hearted mom who was driving them to school that day, ended up helping Iz write a quick draft because she felt so sorry for our devastated girl (to Iz's credit, she didn't mention why she was so sad until Alys asked her--I was worried that Iz manipulated Alys as she sometimes does when she doesn't get results from the first adult). So Iz was back in the game.

Then the speeches and the election all ended up getting pushed back anyhow and the entire process spun off into amorphousness. Iz missed speech rehearsal yesterday because she didn't understand the directions. I though she was being flaky, but Seymour--as her campaign manager, because I refused to be involved--went to school with her this morning to find out what the real story was. I thought this smacked of over-involved parenting and so confirmed that he was there on an information-gathering rather than a lobbying mission, which he assured me was the case.

Turns out it was a good thing he went. The entire election has been very disorganized; any confusion on Iz's part was reasonable rather than due to flakyness. The principal read, approved, and loved Iz's speech (and was impressed as he is Ira Rusk!n's neighbor). He also assured Seymour that the third grade reps do nothing but show up to the meetings, and that their experience in both the election as as members of student government is for training wheels purposes only. So maybe Iz'll squeak into an elected position. I still think that she should have shown some proactiveness on any one factor, but as I am not her campaign manager I can only state my opinion.

Here is her speech. I think it is cute and very much her. Though I personally think she has more in common with Teddy Roosevelt, she prefers Eleanor because ER didn't let her era's gender constraints prevent her from kicking ass on both national and international levels.

Hello my name is Isobel. I am in 3rd grade. If I am elected, I will try to make it a good year for 3rd grade. I will work hard, and do the best I can to represent the needs of 3rd grade. One way I can help 3rd graders is to bring in books to share, on topics such as history, science, and nature, since these are my favorite subjects.

This is my first year at Big Noggin and I would like to learn what it is like to be part of an important group. I am running for 3rd grade representative because I would like to show responsibility. And I think I would learn a lot about politics.

One politician I admire is Ira Rusk!n, who is our state representative. He is the former mayor of Deadwood City. I have met him 2 times and got his autograph. He has done a lot for schools, the environment and Deadwood City.

I also admire Eleanor Roosevelt. She helped poor people by giving them food. She was a representative to the United Nations. She was first lady and traveled all over the world to visit American soldiers. She spoke up for women’s rights, and for the rights of Native Americans, and young homeless people. Once a group called the Daughters of the American Revolution wouldn’t let Marian Anderson, a great singer, perform in their hall because of her race. So, Eleanor quit the group, and arranged for her to sing in front of the Lincoln Memorial instead.

You should vote for me because I have the right qualities. I am:

Imaginative
Creative
and hard working

One of my other skills is to do big projects. Examples of big projects I will do for the 3rd grade is coming up with ways for everyone to get to know each other, for instance bring all the 3rd graders together to exchange letters and drawings. This helps the school because no one would be lonely, and we want everyone to be happy.

As your representative, you can always come to me with your ideas, and I will share them with the teachers, the principal, and the other representatives. It is your choice, but I hope you will vote for me.

Thanks!

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10.02.2006

Finally Figured out What to Do With Mali's Hair

Finally Figured out What to Do With Mali's Hair


Originally uploaded by Squid Rosenberg.

The piggytails, they work. Her hair is long in back and sparse on top. We've conditioned her not to pull out the elastics. Doesn't she look pleased?

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