The article below describes children who, like Leelo, have seizure or "blanking out" spells that were considered too mild for treatment. These children improved dramatically and phenomenally upon being treated with seizure meds:
Leelo had an EEG done when he was three. The neurologist (not our current one) said that "the seizure activity is significant enough that if your son was not autistic, we'd put him on seizure meds."
Well, why fucking not?
I have always had a bad feeling about the possibility of constant seizures scrambling my son's brain. Given Leelo's tendency to space and blank and his atypical autism traits, I have always wondered if it was constant seizure brain fog preventing him from learning and responding to stimuli as he otherwise might.
Leelo is scheduled for another EEG on 6/2, as ordered by his current neurologist. Then five days ago we received a letter informing us that the medical director had reviewed our request and denied it because the EEG was not "medically necessary to manage our son's symptoms."
I talked to the neurologist yesterday, and she told me to absolutely not cancel the EEG. But now I'm wondering if, since we already have the initial EEG, perhaps we should just go ahead and try seizure meds anyhow? The EEG is going to be a complete fucking ordeal for us, the technician, and especially for Leelo, and perhaps we should just skip it and go to the next steps.
Don't give me any crap about magical "cures" or wishing on stars. I know seizure treatment might not have any effect. But I sure as fuck am going to investigate the possiblities as fully as I can.