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http://www.unitedspinal.org/disability-publications-resources/disability-publications/ (Disability Etiquette is the first .PDF on the list.)Helpful excerpts:
Always speak directly to the person with a disability, not to his companion, aide or sign language interpreter. Making small talk with a person who has a disability is great; just talk to him as you would with anyone else. Respect his privacy. If you ask about his disability, he may feel like you are treating him as a disability, not as a human being. (However, many people with disabilities are comfortable with children’s natural curiosity and do not mind if a child asks them questions.)
People with disabilities are the best judge of what they can or cannot do. Don’t make decisions for them about participating in any activity. Depending on the situation, it could be a violation of the ADA to exclude people because of a presumption about their limitations.
When people who have a disability ask for an accommodation at your business, it is not a complaint. It shows they feel comfortable enough in your establishment to ask for what they need. And if they get a positive response, they will probably come back again and tell their friends about the good service they received.
Say “person with a disability” rather than “disabled person.” Say “people with disabilities” rather than “the disabled.” For specific disabilities, saying “person with Tourette syndrome” or “person who has cerebral palsy” is usually a safe bet. Still, individuals do have their own preferences. If you are not sure what words to use, ask.
Remember to write thank-you notes. If you do not know when a thank-you note is appropriate, consult an etiquette book — the older and more hidebound the book, the better. When in doubt, write one anyway; better to err on the side of formality. An email is not sufficient thanks for a physical gift. Purchase stationery and stamps, set aside five minutes, and express your gratitude in writing. Failure to do so implies that you don't care. This implication is a memorable one. Enough said.Happy weekend, all.
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"Does this mean that we can say without a doubt that vaccines do not cause autism in some children? The answer to this question is “no.” There is emerging evidence that some children are immunologically compromised and therefore may respond in an atypical way to vaccinations. We do not currently understand how atypical immune responses might influence the developing nervous system or how commonly such adverse effects occur."
-From the vaccine position statement of the MIND Institute, one of the leading research centers for autism and other neurological disorders: http://www.ucdmc.ucdavis.edu/mindinstitute/newsroom/vaccineposition.htmlYou may also have heard talk in the news about a legal ruling in favor of a girl who developed autistic-like symptoms after being immunized. What is not always clarified is that the girl had a rare mitochondrial disorder that may have been aggravated by the vaccine. She was not just a regular kid who regressed into autism after being vaccinated. Here is a link: http://tinyurl.com/2u332f
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Including special-needs children in class: Is it worth it?
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"Friends listen regardless of their own deal, not while waiting to talk about it. Friendship is neither a game of tragedy-trumping nor one of altruism. It is about being mindful of the people you care for."To have friends, you have to be a friend. That is the way it works. And I feel grateful to have so many good friends in my circle, grumpyfucked as I have been lately.
ROUTINEWe also include categories for SCHOOL and HOME NOTES. I fill out the SCHOOL category from the daily communication notebook his teachers send home, and his therapists fill out the HOME NOTES section.
Haircut which went well, Therapist A 1 - 4, swimming with dad, Dinner with mom & dad at Sewerage (favorite restaurant), late evening play at friend's yard with jumpy house.
HEALTH
Loose tooth bothering him, skinned his knee badly. Otherwise healthy.
SLEEP
Up at 7, to bed at 10 PM. In general has been getting up very early and going to be late for the past week. Tooth pain?
DIET
cod liver oil, Naan bread, veggie booty, croissant, PB&J, lassi, stolen soy yogurt, cheerios
MEDICATION
claritin, tylenol meltaways for his toothache
LANGUAGE
I want more lassi, please. Mommy, put it in my hand, please. Get off the couch, Mom. Squid Q: Where do we get naan bread? Leelo A: Sewerage! I need to go to the potty (in the middle of eating naan!)
BEHAVIOR
Girls were gone most of the day [bless you, Jennyalice & Descartes], Leelo demonstrated that he would be a very content only child. Fantastic happy swimming with dad in the afternoon, best possible boy at Sewerage with only mom and dad. Good playing at a friend's house [Jennyalice again] in the afternoon when picking up girls until he fell and badly skinned his knee; it bled a lot and he was very upset but eventually tolerated wearing a bandaid for the very first time! Not hitting girls as much.
TOILETING
Interrupted meal of favorite food in world (naan) to announce that he needed to go to the toilet, and did so successfully -- pee and poop. One pee accident in a friend's jumpy house (overstimulated, understandable), but even so ran to their potty spontaneously and not only finished peeing there but was able to hold his poop for the potty and put it all there.
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