I have mentioned this before, but it bears repeating: We keep a daily record of important variables in Leelo's life, to track explanatory underlying patterns if and when things go awry. Or well! The record is online as a Google docs spreadsheet, which we share with his entire team as well as with interested family and friends.
It only takes a few minutes each day to fill out the record. It has been an invaluable tool for information sharing amongst Leelo's team and fans, and also for providing fast, hard evidence of how well he learns and how much progress he's made when I start fretting that things aren't going so well. And, best of all, a daily record on Google Docs is free. I heartily recommend setting one up, if you haven't already.
Here are the factors we track for Leelo, with examples from yesterday:
ROUTINEWe also include categories for SCHOOL and HOME NOTES. I fill out the SCHOOL category from the daily communication notebook his teachers send home, and his therapists fill out the HOME NOTES section.
Haircut which went well, Therapist A 1 - 4, swimming with dad, Dinner with mom & dad at Sewerage (favorite restaurant), late evening play at friend's yard with jumpy house.
Loose tooth bothering him, skinned his knee badly. Otherwise healthy.
Up at 7, to bed at 10 PM. In general has been getting up very early and going to be late for the past week. Tooth pain?
cod liver oil, Naan bread, veggie booty, croissant, PB&J, lassi, stolen soy yogurt, cheerios
claritin, tylenol meltaways for his toothache
I want more lassi, please. Mommy, put it in my hand, please. Get off the couch, Mom. Squid Q: Where do we get naan bread? Leelo A: Sewerage! I need to go to the potty (in the middle of eating naan!)
Girls were gone most of the day [bless you, Jennyalice & Descartes], Leelo demonstrated that he would be a very content only child. Fantastic happy swimming with dad in the afternoon, best possible boy at Sewerage with only mom and dad. Good playing at a friend's house [Jennyalice again] in the afternoon when picking up girls until he fell and badly skinned his knee; it bled a lot and he was very upset but eventually tolerated wearing a bandaid for the very first time! Not hitting girls as much.
Interrupted meal of favorite food in world (naan) to announce that he needed to go to the toilet, and did so successfully -- pee and poop. One pee accident in a friend's jumpy house (overstimulated, understandable), but even so ran to their potty spontaneously and not only finished peeing there but was able to hold his poop for the potty and put it all there.
If you'd like to set up a daily record but need more specifics, feel free to contact me. (I finally put Email and About links over there on the left.)